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  • In Memory

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  • Bring Back The Colour Fundraising Pack

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  • Trust in Fashion 2016

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  • Meet Dominic and his family

    At 10 weeks old, little Dominic was rushed into hospital where an MRI scan showed a cancerous mass on his brain, spinal column and central nervous system. Dominic’s parents were told he probably only had three weeks to live. Further tests revealed some hope as there was a chance that the cancerous cells could respond to chemotherapy drugs but the consultant was hesitant - Dominic was so small and the drugs would leave him open to infection. He was in hospital for five months and Natalie, his mum, stayed with him and worried constantly about him and Zach, her other son, who she could not see. She was isolated and governed by the hospital ward and Dominic’s treatment. CLIC Sargent referred Natalie to Rainbow Trust and Vicky, one of our Durham based Family Support Workers. “Parents who haven’t found themselves in similar situations cannot appreciate the dilemma of having a very sick child confined to a hospital ward. Despite the parent’s need to get away from it all, there is a terrifying fear of leaving their sick child unless they can balance it with the knowledge that their child is safe and cared for. I trusted Vicky from the moment...

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  • Meet McKenzie

    When McKenzie (pictured left) was diagnosed with atypical HUS, a disease that destroys red blood cells and causes kidney failure in children, the family were told he was the only person in the world who has this condition. Hear from the Kemish family as they share their story. In August 2011, two year old McKenzie fell off a chair and did what most children do, he cried for a minute, then carried on playing. When his mum, Amberley, went to change his nappy he let out a “high pitched scream in agony,” but she didn’t know why. She watched him over the course of the day and noticed he had a stiff neck which she assumed was from the fall. Amberley and her husband, John, went to the hospital where doctors suspected that he had meningitis. They were rushed up to the General Ward only to be told he had tonsillitis and could go home. Weeks later, Amberley noticed that he couldn’t turn his head and had a pea sized lump on the side of his neck. In October of that year, an ultrasound scan and biopsy revealed that he had abnormal lymph nodes and Stage 4 Neuroblastoma. The tumours...

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  • Product partnerships

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  • Client Engagement

    Partnering with Rainbow Trust Children’s Charity can take many forms, from employees taking part in our campaigns right through to promoting the charity on your product. Many of our corporate partners show their support by introducing their clients to the charity or using their staff incentive scheme to send their high performers to our special events. Client engagement We hold major events, including an annual fashion show, wine tasting, clay shoot and golf day that are perfect for entertaining your clients, showcasing the ethical values of your business. With celebrity hosts and fantastic entertainment, as well as the opportunity to hear, first- hand, the difference Rainbow Trust is making to families, we provide first class events that receive national coverage and the guarantee of a good time had by all. “We recently bought a table and attended the rugby dinner hosted by Austin Healey and had a brilliant night! The venue, food, and atmosphere made it a great package and my guests had a thoroughly entertaining night listening to Austin. Using our entertaining budget to support the charity was something we hadn’t done before, and I have to say it was great value for money, sign me up or the...

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  • Corporate volunteering

    We have some great opportunities for employees to volunteer with us. From team building days, pro bono support and skill sharing to helping out at our sibling support groups. Our volunteering activities can be tailored with bespoke ideas to suit your company’s needs and objectives. They can also boost team spirit and engagement and, most of all, with just a few spare hours, make a real difference to families caring for a seriously ill child.

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  • Corporate sponsorship

    Sponsorship is a fantastic way to support Rainbow Trust Children’s Charity whilst achieving a route to market and generating great brand awareness amongst your customers and our supporters. We hold major events, including an annual fashion show, wine tasting, clay shoot and golf day that senior level, high value, influential audiences attend; as well as UK-wide fundraising campaigns, such as The Big Hour and Christmas Poster with marketing materials that are seen by thousands of staff in hundreds of companies. Benefits to your business Get involved in your communityLink to a National charity with a local focus Build deeper networks with your audience by providing direct support to the communities in which your company operates. Enhance your brandBuild rapport with your target audience Reach a potential new audience Build your reputation as a socially responsible company Generate positive PR opportunities at a local and national level Be associated with a much loved children’s charity. Our sponsorship packages start at £1,000, and include full details on type of audience, value of brand association and a variety of brand association opportunities. Each package can be tailored to your objectives, from promotion on marketing and at events, to VIP seating and more. If...

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  • You're making a difference

    ​By taking part and fundraising for seriously ill children and their families you’re helping to bring back the colour to their lives. Meet some of the children and their families who we support below and see how you’re making a real difference.

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  • Candice Brown's Rainbow Cake

    For the cake: 335g self-raising flour 335g soft unsalted butter 335g golden caster sugar 2 teaspoons baking powder 6 eggs Zest of one lemon Rainbow gel colours For the icing: 500g icing sugar 250g soft unsalted butter Juice from 1 lemon Get baking Add all the cake ingredients to the bowl and mix really well so it is combined and fluffy but don’t over mix it Divide the mix into how many layers you are going to make. For each layer add a couple of drops of colour and mix through Pre heat the oven to 160C fan. Grease and line your cake tins. Between 8-10 inch recommended depending on how many layers you are doing Put the mixes into the prepared tins, level them so they’re lovely and smooth. Put them into the oven, for about 20 mins (depending on size). Tip- don’t open the oven too soon or they might start to sink Take the cakes out the oven and give them a few minutes to cool in the tin. Then put them onto a cooling rack. Tip- put a tea towel onto a cooling rack before turning out the cake to avoid having marks on the cake...

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  • Meet Ellis and his family

    While pregnant with their fourth child, Danneka and Andrew were told that their baby had a problem with his bowel, but that it could be rectified at birth. Unfortunately, that did not go to plan, and once born, their baby Ellis ended up staying in hospital for more than 11 months. Read on as Danneka, his mum, shares her family’s story. At my 20-week scan, doctors told Andrew, my husband, and I that our baby had loops in his bowel and we were referred to the RVI. When he was born, doctors said there was a simple procedure that they could do and said he’d have to be in hospital for two to three weeks, but doctors ended up having to remove three quarters of his bowel. After the operation, doctors told us he’d be in hospital for six months but have now said it’s more likely to be a year. Ellis spent two weeks in the Paediatric Intensive Care Unit and had to be put on a ventilator to help him breathe. His body can’t break down food, so he is fed through his central line and all his medication is administered through this central line. It is vital...

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  • Nadiya Hussain's Rainbow Cake

    While I can’t resist a barrage of colour on anything edible, I do sometimes wonder what artificial colourings do to our insides. So, much as I love decorating cakes with multicoloured layers of sugary neon fondant, I am also always on the lookout for clever ways of paring things back. Hidden inside this simple vanilla cake is a subtle rainbow-stripe filling that satisfies my urges for food colouring, while the adornment of fruit on top makes use of the shades that nature has so kindly given to us. While developing this recipe, I happened to be working with a very special Chris Martin lookalike, and I realized how not being able to eat lactose can hinder some people from getting stuck in. So I found a way to make this recipe lactose-free. This one is for you, Chris! It’s all for you! Prep 1 hour, plus chilling Cook 30 minutes, plus cooling For the cake Serves 8-10250g vegetable fat 250g caster sugar 4 medium eggs 2 tablespoons vanilla extract 250g self-raising flour, sifted ½ teaspoon baking powder For the meringue frosting 3 egg whites 200g caster sugar 250g vegetable fat 2 tablespoons vanilla bean paste gel food colouring (red, orange...

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  • Sponsors and partners

    We’re delighted to have the support of our headline partners Craft & Crumb and GoodtoKnow. Now in its second year, Great Rainbow Bake is bigger and messier than ever and we can’t wait! Every Great Rainbow Bake can transform the lives of families with a seriously ill child, so whether you’re baking from scratch or buying a ready made kit from Craft & Crumb, you’re helping to make sure we can be there for seriously ill children and their families when it matters most.

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  • Colourful fundraising ideas

    Need some inspiration to help boost your Bring Back the Colour fundraising? Take a look at these colourful ideas to get you started.

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  • About Bring Back the Colour

    Bring Back the Colour at work, school or wherever you are! Departments, teams, groups or classes choose a different colour to wear for the day and each person donates £2 (or £1 for schools). You could even add to the excitement by organising a colourful bake sale or holding a fabulous raffle. Check out our colourful fundraising ideas here. Have fun, get colourful and raise vital funds to help families with a seriously ill child when time matters most. Why are we doing it? Because life doesn’t always go to plan. When serious illness affects a child, family life is turned upside down and time becomes more precious than ever. Rainbow Trust pairs each family with a dedicated expert Family Support Worker to help them face and make the most of each new day. Our Family Support Workers are there for the whole family to help with whatever they need, bringing some colour back into their lives and helping so that they don’t have to manage alone.

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  • Where your money goes

    The support that every Family Support Worker provides is unique to the needs of each family. Siblings of sick children often feel left out or uninvolved so our Family Support Workers spend a lot of time supporting them. A three year old sibling refused to speak or make a sound so her Family Support Worker deliberately got all the names of the Peppa Pig characters wrong to help break the ice. She eventually opened up in pure desperation to correct the Family Support Worker. Here are just some of the ways you’ll make a difference. £2 a month for a year could help fund a Family Support Worker for one hour so they can support a child and their family when they need someone to answer their questions and listen to their fears £5 a month for a year could pay for a Family Support Worker to support three families at their first hospital appointment with their seriously ill child £10 a month for a year funds time spent in intensive care supporting anxious new parents when their baby is born with a serious illness £15 a month for a year funds a day’s visit with a Family Support...

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  • Sign up for Bring Back the Colour

    We value your privacy and promise to keep your details safe and never share them with anyone. You can read more about how we keep this promise in our Privacy Policy. If you change your mind about how you wish to be contacted or don’t want to hear from us anymore, email supportercare@rainbowtrust.org.uk or call 01372 220083.

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  • Community Ambassadors

    Do you have what it takes to become a Community Ambassador? We are looking to expand our team of Community Ambassadors to help raise our profile across the areas where we work. If you want to be part of a fun, exciting and dynamic team that works within the local community, then this could be the perfect opportunity for you! You can help in the following ways:Promote upcoming events and campaigns through handing out leaflets and talking to people in your local community Deliver talks to local community groups to gain new financial support and raise the profile of Rainbow Trust Attend cheque presentations on our behalf Highlight opportunities for guest speakers to Rainbow Trust and make proactive approaches to local community groups Set up and manage stalls at local fetes and fairs in order to raise money and awareness of the charity.

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  • Using your skills

    Staff from our corporate partners have a wealth of experience and knowledge in their specific area of expertise. From web design to HR, people from a range of companies are giving us valuable pro bono support. Skills sharing Many of our corporate partners work with Rainbow Trust on a skills sharing basis, offering expert help, a fresh pair of eyes or running brainstorming sessions for new ideas. These sessions can be a one- to- one session, or in small groups, working with our marketing and digi teams on forthcoming campaigns through to running in- house training days. If you have a skill you want to share, or a creative spark you can offer, please get in touch to see how you can help. Mentoring Investment in our team at Rainbow Trust is important to us: - mentoring is a great way for us to develop new skills, look at things differently and find new solutions to challenges along the way. If you are prepared to give a couple of hours a month to mentor a member of our team please do let us know.

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  • Future Funders Form

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  • An Update on Rowan's Story

    Rowan Todd lives in Surrey with her brother, sister, mum and dad. In 2009 Rowan was diagnosed with Neurofibromatosis (NF1) and an associated brain tumour on her optic nerve. She underwent an intense 18 month course of chemotherapy. Sadly, a side effect of the treatment is visual impairment so now, 9 year old Rowan, is having to learn to use a cane when she walks. Surrey Family Support Worker Janet, has been supporting Rowan and her family for the past six years with transport to her many hospital appointments, tests and treatment. Over the last few years, Rowan has relapsed and the family has pulled together to get her through it. Unfortunately, at the end of 2013, Beth noticed that Rowan’s eyesight was deteriorating and took her back to the doctor who confirmed that the tumour, “looked different.” She underwent more treatment earlier this year but sadly, a side effect of the new treatment means her eyesight will only get worse. Rowan doesn’t like her white stick and prefers to hold her mum or Janet’s hands when walking. While the chemotherapy aims to destroy the cancer, it also weakens the bones and Rowan fell and broke three vertebrae in her...

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  • Meet Matthew

    Matthew and his family are supported by Rainbow Trust. His eldest daughter, Emily, has a degenerative illness called MPAN which affects her mobility and cognitive skills, causing loss of sight and regular choking episodes. After having amazing support from their Rainbow Trust Family Support Worker Jayne, Matthew wanted to give something back and decided this would be the year he’d run the Bath Half Marathon with his sister. “I’m always keen to give something back so when I heard that Rainbow Trust had places in the event, it was an easy decision to make.” It has long been an ambition of mine to run the Bath Half as I grew up in the city, but I have never taken on a challenge like this before – I’m sure it would have been much easier 10 years ago! My fundraising target is £200, but I will aim to raise as much as I can. With my little sister Kimberley joining me it has split our fundraising potential, but I have different circles of friends and colleagues who I hope will give generously. I carry my sponsorship form with me at all times! Training hard My training began in November and I...

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  • Aimia

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  • 30 years of care

    This year is a special one for us as we mark 30 years since we were founded by Bernadette Cleary in 1986. Since then, with your help, we’ve supported thousands of families with a seriously ill child from diagnosis, through treatment and beyond, for as long as we are needed. While we want to celebrate all that we have achieved in the last 30 years, we are mindful that there are still many more families that need our special support. Our vision to help all families in the UK who need us, and we need your help to make this happen. So join in the celebrations and help us make this year our best ever!

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  • Sammy shaves off her hair

    On Saturday 5 December 2015, Sammy, aged nine, shaved off her hair in an incredibly brave attempt to raise much needed funds for Rainbow Trust. Sammy planned her fundraiser with a little help from her mum, and had initially heard about Rainbow Trust after doing a search online, for children’s charities. She was so inspired by the videos and stories of the families that Rainbow Trust helps, and the difference that our support makes at what can be a really difficult time, that she decided to do whatever she could to help. “If I ever got really sick, I would like to have people like you, to help my family.” This was the first time Sammy had attempted a charity fundraiser, and she set her sights high, hoping to raise £2,000 for Rainbow Trust. At last count, Sammy had raised £1,903.84 – what an inspiration! Aside from the main event (the brave head shave), Sammy asked people to sort and donate old toys, books and teddies which she could use for a table-top sale. She also collected money from people shopping in Accrington, her home town, when asking for sponsorship for her head shave in aid of Rainbow Trust. Sammy’s...

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  • Meet Iris Connolly

    Iris Connolly battled a brain tumour the size of a ping-pong ball when she was just three years old. Iris is from West Horndon and now aged eight she is now doing really well. Throughout her illness the family have been supported by a Rainbow Trust Family Support Worker who has helped the whole family practically and emotionally and between 2010-12 the family raised over £32,000 to thank Rainbow Trust for all its support. As Christmas rapidly approaches the family are reflecting on how far they have come and the vital help they had from Rainbow Trust through those very tough days. The effects of the radiotherapy have left Iris a little behind her peers but she is determined to learn. She loves art and hopes to be an artist when she is older. “We are very proud of her. We always worried about the new and different challenges she would face having had a brain tumour but now we are just so grateful that she is healthy and can play with her brother and sister and enjoy life. Rainbow Trust has been an enormous help and we know that if anything happens or the cancer comes back, we would...

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  • Christmas White Chocolate Tray Bake

    Nadiya Hussein, winner of the 2015 Great British Bake Off, is supporting Rainbow Trust this Christmas and has shared her favourite Christmas recipe to bake with children. Our Family Support Workers spend time with siblings of sick children while their parents are in hospital with their sick brother or sister. They take them for days out, do arts and crafts with them and even bake when supporting them in their home. This gives the children quality time with an adult that they can talk to. Ingredients for the cake 225g soft brown sugar 225g unsalted butter at room temperature 4 medium eggs 200g mincemeat filling (from a jar) Zest of one large orange 2 tsp cinnamon powder 2 tsp nutmeg powder 200g plain flour Ingredients for the white chocolate ganache 100g white chocolate 100g double cream Method to make the cake Preheat the oven to 170 and keep the middle shelf free for baking. Line and grease a 6” x 9” tray bake tin. Cream the butter and sugar for about 5 minutes till mixture is light and fluffy. Add the eggs one by one till well incorporated. Add the mincemeat and orange zest and mix well. Sift the flour...

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  • Making a snowflake

    Nicki, a Rainbow Trust Family Support Worker and Francesca who she supports, share this simple how to guide so you can make your very own paper snowflake! You will need:Six squares of paper Scissors Sticky tape Ribbon Pencil (to draw guidelines for cutting). Step one: Each sheet of paper will create one section of the snowflake. You may use any size of paper as long as all six are the same size. Fold the square diagonally along the middle to form a triangle. Step two: Fold this triangle again along the middle into a smaller triangle and cut three diagonal slits along the single folded side. Step three: Unfold carefully and you will see a pattern of diamonds cut into the paper. Step four: Connect the points by folding matching sides and sticky tape them together, first set of points on one side then turn the paper over for the next second set of points, turn again for third points and again for last set. Repeat for the other five pieces of paper. Step five: Now you need to lay out all the pieces in a line. Tape one piece to the next from the sides until all six are...

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  • Ketchup TV

    Rainbow Trust urgently needs more Family Support Workers to care for seriously ill children and their families this Christmas and beyond and Ketchup TV, home of many of your favourite kid’s programmes, want to help! So here’s the deal. Enjoy Ketchup TV for free, no strings attached, until 31 January 2016. All they ask is that you make a small donation to Rainbow Trust and pass it on! Get Ketchup TV from the App Store, Google Play or watch on Samsung Smart TV. Visit the Ketchup TV website for more information.

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  • Gift aid

    Thank you for choosing to sign up for Gift Aid online. Gift Aid your donations and we’ll receive an extra 25 pence for every pound you donate, at no extra cost to you! Please fill in the short form below to make your Gift Aid declaration online.I want to Gift Aid this donation and any donations I make in the future or have made in the past 4 years to Rainbow Trust Children’s Charity. I am a UK taxpayer and understand that if I pay less Income Tax and/or Capital Gains Tax than the amount of Gift Aid claimed on all of my donations in that tax year it is my responsibility to pay any difference. Please remember to inform us of any change in your tax status, or change of name and address.

    Data protection We take your privacy seriously and will never sell or share your details. Read our Supporter Promise here.

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  • Meet Alfie and his family

    Sophie and Matthew, her partner, were devastated when they were told that their baby boy had Downs Syndrome and two holes in his heart. All their hopes and dreams for their first born were dashed in a moment. Alfie underwent open heart surgery at just seven months old to repair the holes in his heart. Watching their baby undergo such a serious operation was frightening for the young couple as they didn’t know if the operation could save him. But Alfie, “is such a little fighter!!” says Sophie and he only stayed in Intensive Care for a few days. He responded well and this brave little boy fought his way through. A few months later, Sophie and Matthew fell pregnant with their second child, Frankie, and life continued for the growing family. Sadly, when Frankie was six months old, Alfie was diagnosed with leukaemia. He was immediately put onto the three year treatment programme that baby boys with leukaemia go through. “Frankie practically lived with Matthew’s mum,” remembers Sophie. Trying to juggle a new baby and hospital appointments was close to impossible but the family did their best to take care of both boys. Alfie responded well to the treatment...

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  • Apply for a London Marathon Golden Bond place

    *By ticking this box you understand if this is not paid within a week your place on the team may be at risk By providing us with your details you agree to be contacted by Rainbow Trust about this event. Read our Golden Bond Terms & Conditions here

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  • Invesco

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  • Meet Phoebe and her family

    When Phoebe was 14 months old, she was admitted to hospital for various infections and only when they ran some blood tests, did doctors take notice. An oncology doctor asked me about Phoebe’s swollen stomach and the bruises which were now in her groin too. When my husband arrived at the hospital, the consultant told us that Phoebe had leukaemia. Our whole world came crashing down. She was sent to the oncology ward where she spent the next two months as she was so poorly. My husband couldn’t go back to work as we had our, then three year old son, Ollie, to take care of. “We tried to keep things normal but I couldn’t spend time with him - I just wanted to be with Phoebe in the hospital.” Nathan, my husband, would stay with Ollie at home and I’d stay in the hospital with Phoebe. Clic Sargent put us onto Rainbow Trust Children’s Charity – they could see we were struggling with being in the hospital and looking after Ollie. Eventually Nathan had to go back to work. Ollie goes to nursery two days a week so the days he’s home are a struggle. I felt like I...

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  • Rainbow Trust Christmas cards

    For a small selection of our cards visit the Card for Good Causes website. Also stocked in Cards for Good Causes shops:Leatherhead Dorking Chiswick Putney Barnes Sloane Street, London Sutton Croydon Lewes Hastings Wimborne Weymouth Bath Our two charity shops in Harold Wood and Upminster, Essex. You can also purchase a selection of festive cards from Paperchase this year. A contribution of 50p per pack is made to Rainbow Trust which goes towards supporting seriously ill children and their families.

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  • Hope and her family

    At 12 weeks old, Hope was in a constant epileptic state having 200 seizures per day. When she reached six months, doctors diagnosed her with a chronic genetic disorder. Her seizures got worse and Caroline, Hope’s mum was finding it hard to juggle between caring for Hope and her other two children, Jordan, and Max. This added to the stress the family was already experiencing after their baby Sam died the previous year when he was just hours old. Hope’s epilepsy nurse referred the family to Rainbow Trust and Family Support Worker Amelia started regularly supporting the family. Hope is now seven and although she is doing well still needs 24 hour care. Amelia reads Hope’s favourite stories to her and takes her to the park to feed the ducks. She also helps at home so mum Caroline can take a much needed break. “I used to call it ‘chasing rainbows’ trying to keep up with all of Hope’s needs and the daily chores, I couldn’t get anything done and didn’t feel like I was being a good Mum to any of my children. With Rainbow Trust’s help, it now feels like I’m being chased by Rainbow with the many...

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  • Niamh and her family

    Niamh was a typically active little girl trying to walk, eating solids and playing like other children her age when her parents noticed that this changed one day when she suddenly couldn’t do all of those things anymore. She stopped crawling and would choke on solid lumps of food. After more than eight months of tests, she was diagnosed with a progressive genetic disorder which means that the signals from her brain do not get through to her muscles via the central nervous system. Niamh will be 11 this year – she is wheelchair bound and needs 24/7 care. Sean, a Greater Manchester based Family Support Worker, supports Niamh by playing with sensory toys and as Niamh loves music, he plays his guitar and sings to her. “Seeing her eyes light up at the sound of the music makes me so happy,” says Claire, her mum. Having Sean’s support means that Claire can take a break, has someone to talk to and can spend more time with Niamh’s older sister.”

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  • Luke and his family

    Luke is a bubbly ten year old little boy who loves football and to look at him, you’d never know he has a congenital heart defect. He has spent many months in hospital with treatment and surgery. This has meant that his little sister, Lottie, has not had the attention Kurt and Kelly, her parents, would like as they have spent so much time in hospital with Luke. Family Support Worker, Sean, spends time with Lottie playing with her and giving her the one to one attention a little girl needs. Kelly and Kurt wanted to make sure that Lottie did not miss out on still having fun so Sean takes her for days out and spends time at home with her playing games. Lottie can also talk to Sean about things that are bothering her and when Luke is well enough, Sean takes both children out which gives Kurt and Kelly some much needed respite.

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  • Adam and his family

    Adam was eight when he was diagnosed with a brain tumour. The trauma of the treatment and surgery has left this brave little fighter very nervous and agitated around new people. Megan, his 13 year old sister has struggled with her brother’s illness and Sean, a Greater Manchester based Family Support Worker, has spent time with both children. He entertains Adam when he is in the hospital having treatment which allows his mum and dad to have a break knowing that their precious son is being cared for. Megan often talks to Sean about how her family’s life has changed and how she feels about her brother’s illness. Having Sean to talk to gives her the space to talk freely and express her feelings with someone who can listen and be there for her.

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  • Michael Wainwright

    Michael owns and runs Boodles with his brother, Nicholas. He is the fifth generation of the Wainwright family to own the jewellery business, established in 1798, and which has its flagship store in London’s Bond Street. He has managed the tripling of the size of the company over the last few years and brings his commercial expertise to assist Rainbow Trust’s future development.

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  • Howard Dyer

    Howard is Chairman and owner of a retail service group with outlets in continental Europe. He started his career as an engineer before moving into general management building up a breadth of experience in the chemical, engineering, retail and service sectors.

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  • Celia Woollett

    Celia has a City background, most recently at LaSalle Investment Management, where she led the Global Client Services Team and was a member of the Management Board. In essence Celia was responsible for marketing LaSalle Investment Management’s products and services to the global investment community, predominantly covering institutional investors. She lives in Hampshire with her husband and three children.

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  • Mark Richardson

    Mark is retired from full time employment having occupied a number of senior positions in the asset management business. He has broad international experience and now undertakes non-executive and consultancy work in asset management. In the charitable field, Mark has in the past served as Chairman of the Finance Committee of the British Red Cross and Treasurer of Riding for the Disabled.( Finance and Audit Committees)

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  • Dr Jonathan Rabbs

    Jonathan is a consultant paediatrician at Worthing General Hospital. Having qualified from Birmingham University he pursued a career in A&E before moving to paediatrics. He went on to specialise in paediatric oncology at the Royal Marsden and Middlesex Hospitals. Jonathan moved to Worthing General Hospital in 2003 and is responsible for the care of children with cancer or haematological diagnosis. He also has a support role in palliative and end of life care. He heard about Rainbow Trust from families who were supported by our Surrey Care team.

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  • Andrew Honnor

    Andrew is the founder and managing partner of Greenbrook, a specialist communications firm that advises financial organisations and individuals on all areas of communications, reputation and risk management. Andrew started his career over 20 years ago, working on political election campaigns in both the UK and US and was formerly a UK government special advisor. Before founding Greenbrook, Andrew served on the Executive Committee at News International (News UK), handling crisis management issues during the phone hacking scandal.

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  • Tim Bunting

    Tim is a partner at Balderton Capital which he joined in 2006. Prior to that he was Vice Chairman of Goldman Sachs International. He joined Goldman in 1989 and held a variety of positions before becoming a partner in 2000. Tim is a director of a number of private companies, a Governor of Wellington College in Berkshire and the Wellington Academy in Wiltshire, and a Trustee of the Paul Hamlyn Foundation.

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  • Mark Cunningham

    Mark has over 25 years’ experience in the finance industry and is a founding partner of Holbein Partners LLP. Starting his career at Panmure Gordon in 1987 he went on to become a Director of Corporate Finance, focusing on mergers and corporate restructurings. In 2000 he joined Helix Associates Limited, a private equity advisory business, before negotiating its sale to Jefferies in 2005. He remained a Managing Director of Jefferies before leaving to form his own asset management business in 2010. He has sat on the boards of a number of charitable organisations.

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  • Participation Form

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  • Inspiration pack

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  • Bring Back the Colour

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  • Safeguarding Statement

    ‘Safeguarding Children is everyone’s responsibility’ All children and young people linked with Rainbow Trust Children’s Charity, wherever they are, whoever they are with, whatever they are doing, have the right to protection from neglect, physical, emotional and sexual abuse. All members of the public, as well as professionals, have a responsibility for the protection of children and reporting concerns about a child’s welfare or safety. Rainbow Trust Children’s Charity ensures statutory requirements concerning Disclosure and Barring Service checks are met, maintains an up to date Safeguarding policy and procedures, and provides safeguarding training to all staff and volunteers. All Rainbow Trust Children’s Charity staff and volunteers who come into contact with the children, young people and their families will:Be able to identify potential indicators of abuse or neglect Have read the Safeguarding Policy Know their role and responsibilities within their team Know how to communicate and record concerns Know to act upon concerns in line with the principles and procedures for local child protection management and Working Together to Safeguard Children. Therefore, all children and young people in contact with Rainbow Trust Children’s Charity will:Be treated with respect and afforded full civil and legal rights Be listened to and taken...

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  • How to set up a fundraising page

    Raising sponsorship online is the fastest, easiest and smartest way to raise money! You can easily set up a page and share it with your family and friends. Anyone can donate with a credit or debit card from anywhere in the world and your donations are sent straight to us and Gift Aid reclaimed automatically on our behalf.

    Now you can customise it – click the ‘create my page’ button to add photos, links and any other information to make it personal to you. See below for some suggested text and copy and paste this in to your fundraising page. Suggested text Rainbow Trust supports families who have a seriously ill child. Family Support Workers provide individually tailored support to each member of the family for however long they need it. It’s only with the help of fundraisers like me that they are able to raise vital funds which enable them to continue to support families in need. How donations will help Rainbow Trust to support more families:£24 is an hour of support from a Family Support Worker £154 transports a whole family to and from a hospital appointment in a Rainbow Trust vehicle £1,690 covers the cost of a year’s support for one family caring for a seriously ill child.

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  • Fundraising Star Gary

    Gary Corcoran, 50, from London, decided to take fundraising to a new level, and go that extra mile. Quite literally! He laced his trainers and decided to run not one marathon, but THREE! What made this feat even more special is that he managed to complete this ‘marathon trilogy’ all in the space of one month. Below he shares his story of why raising funds for Rainbow Trust Children’s Charity was so important to him. “I’ve known of the Rainbow Trust since 2002. I spent a week working in their Leatherhead office in 2010. I got to meet and interview everyone including the Chief Executive all the way through to care workers, and even one of the families. This was the most extraordinary experience. Especially to speak to everyone involved and capture different perspectives as to what Rainbow Trust does. The stories they told and the work that I could see and hear about first-hand just puts Rainbow Trust in a whole new light. This is what made me want to fundraise for them. The work that they do is extraordinary, and it is volunteers most of the time which makes it even more special. When you speak to families...

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  • One percent

    Our vision has always been to provide every family who has a child with a life threatening or terminal illness with access to a Rainbow Trust carer. If charities received 1% of the value of every estate in the UK, it would generate £71m towards good causes this year alone. When you have considered your own family in your will, would you spare a thought for a family supported by Rainbow Trust? Your 1% could make a huge difference in the lives of the families we support. Our Rainbow Trust Legacy Promise Your legacy bequest to Rainbow Trust Children’s Charity will provide future support to families that have a life-threatening or terminal illness. We understand the importance of this type of donation and make the following promises to all our legacy pledgers:We will respect your wishes and decisions at all times You and your family will be treated in a respectful and considerate manner Your donation will be used in accordance with your wishes. You can speak, in confidence, about any aspect of legacy giving, email us or call us on 01372 220083.

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  • Rainbow Trust Lottery

    Play Rainbow Trust’s weekly lottery for your chance to win up to £25,000 while supporting families with a seriously ill child. The more people that play the more money we receive, so join now to add your support. You can play for as little as £1 per week For each entry, you will be allocated a six digit Lottery number, which will remain yours for as long as you wish to keep playing. You can purchase as many numbers as you like. Every Saturday, the lucky winners are selected at random and prize cheques issued and posted directly to you, so there is no need for you to claim. You must be 16 or over to enter. Winners have to match 3, 4 5 or all 6 digits of the winning number in the correct place in the sequence. 73p of every £1 you play goes direct to Rainbow Trust. The remaining 27p will be used to provide prizes and cover administration costs. Join online now Find out if you are a winner by checking the latest draw results here.

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  • Meet Martin

    The Ironman triathlon is the hardest one-day endurance race in the world. You swim 2.4 miles, then cycle for 112 miles and finish off with a 26.2 mile run (marathon). My name is Martin Bickley, I’m 33 and live in Berkshire and in July 2015 I did just that, for Rainbow Trust. I’d previously done a few 3 Peaks events, had run a few half marathons and completed a half Ironman, but nothing on the scale of a full Ironman. So I decided to sign up for the Ironman Bolton. I had a specific training plan in place for the 10 months leading up to the event. For the final 4 months it was quite intense, most weeks I was putting in between 14 and 18 hours of training, which is quite hard to balance with work and home life. My weekends were totally dominated by training; usually a 6-7 hour cycle on a Saturday followed by a 2-4 hour swim/cycle/run session on a Sunday. My sister Claire manages a team of Family Support Workers at Rainbow Trust, so I get to hear about a lot of the great work the charity does, and can see how the fundraising is...

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  • Meet James

    On Sunday 24 April 2016, James from Surrey, joined our team of 53 runners and ran the Virgin Money London Marathon for his daughter, Evie, who was born with cerebral palsy and retinoblastoma (cancer of the eyes). “When Evie was in Great Ormond Street hospital suffering the most horrific seizures, for hours on end, watching her helplessly was horrific. A doctor commented that for Evie, every seizure was like running a marathon. I decided to run this marathon for my girl for my Evie, because I want to do something to make her proud of me, to make my wife proud and I knew if that little girl could run marathon after marathon for 10 days, in that hospital bed….I can do it for one day.” “Rainbow Trust offers an amazing service; supporting families any way they can. Lyn was able to drive Aimey (my wife) and Evie to appointments when I had to work, Lyn brought us round fish pie when we were too exhausted to cook and has been there from the very start until this very day. Rainbow Trust are the friend you call on without delay. We wanted to give something back so they can continue...

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  • Invesco Thames Challenge Registration

    Please Note It is important to provide an active email address and the mobile number you will be taking on the event! Bike information If you selected to bring your own bike, please ensure that your bike is in good reliable working order prior to the event. We suggest that you get your bike serviced by a reputable and good quality bike shop. For specialist groupsets/brakes, you should bring tools/spare parts with you on the event (i.e. disc brake pads, hydraulic brake seals). If you are in doubt you should consider hiring a bike. Leaders and Support Crew will do their utmost to support you on the challenge and to repair any mechanical failures. However, there may be times the support team will not always be at your disposal through the challenge and it is expected that all participants are capable of at least repairing a punctured tyre. The quickest method is to replace the inner-tube and this should be practiced by all participants until confident to manage alone. In the case of serious failure, our team are instructed to recover bikes and participants in order that they are not disconnected from the rest of the riders. A small levy...

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  • Meet the Robinson family

    Four year old Jack and Liam, his twin brother, started school in September 2013 when they were four years old. They were eager to learn and explore. In January the school called to say that Jack had fallen asleep in class and asked Marie, his mum, to come and collect him. The next day when he was resting on the sofa, she went over to wake him up. He didn’t move, his left pupil was larger than usual and he was struggling to breathe. He was rushed to the hospital and days later, Jack was tragically diagnosed with a brain tumour. He spent weeks in the hospital and his parents were told that there was little doctors could do for him. His mum and dad took him home to be with his family. Marie’s story, Jack and Liam’s mum When the doctors told us there was little they could do for Jack, we spent time at a local children’s hospice where we heard about Rainbow Trust Children’s Charity. At that point, I had hit rock bottom and I needed someone to talk to. The hospice staff contacted Rainbow Trust on my behalf and a few hours later, Dawn, a Family...

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  • Meet the Netball Mums

    On Friday 26 February 2016, Katie and her team of Netball Mums took part in a 12-hour sponsored netball match, to raise funds for four charities, including Rainbow Trust. “We decided to raise money on behalf of the four charities that the school we play at, Noadswood, support. Rainbow Trust being one of them. As the name Netball Mums suggests, we all have children and realise how precious they are (event though they drive us mad at times!)” This was the first time the team had undertaken a challenge together and they set their sights high hoping to raise £2,000. Between them, the determined group managed to exceed their fundraising target and went on to raise an incredible total of £2,800 to support four very worthy causes. Not content with just playing a 12-hour netball match, the team of 23 ladies also played to different music accompanied by some interesting outfits! “We matched the music with different outfits including tutus, wigs and even Disney toys. We had a great Ref, Emma, who ensured we kept on time and that we followed at least a couple of the rules!” Aside from the match itself, the team also asked family and friends...

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  • Stephenson Harwood Online Auction

    Bids are taken by emailing sophie.collins@rainbowtrust.org.uk by Friday May 20 at 6pm. The successful bidder will be notified early the following week where you will receive instructions on how to make your payment. Two tickets for Gladiator Live at the Royal Albert Hall – Thursday 26 May 2016 at 7.30pm. Current highest bid: £50 Maximus Decimus Meridius will have his vengeance again, accompanied by an on-stage orchestra, as Gladiator Live returns to the Royal Albert Hall due to staggering popular demand. Ridley Scott’s legendary swords-and-sandals epic is coming back to the iconic London venue – its auditorium famously based on a Roman amphitheatre – following four incredible, sold-out shows in 2014. The event will see Gladiator screened in high definition on a 20m screen, as Hans Zimmer’s stirring score is performed live by the Royal Philharmonic Concert Orchestra and English Chamber Choir, with guest vocalist Lisa Gerrard, who features on the original soundtrack. Conducted by Justin Freer. Two tickets for Swan Lake at the Royal Albert Hall – Sunday 5 June 2016 at 2.30pm. Current highest bid: £50 Dancers from English National Ballet perform in Derek Deane’s critically acclaimed production of Swan Lake. The production caused a sensation at its...

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  • Meet Hanna

    Hanna was almost 15 when doctors discovered a tumour, the size of a rugby ball, growing on her liver. “It didn’t feel real to me. It only sank in when I walked onto the oncology ward and saw the other sick children,” remembers Hanna. “I was okay with the news at first. I wasn’t scared but seeing my mum, who is normally so strong, break down and cry was really tough.” Hanna underwent nine courses of chemotherapy, two operations and was in hospital for six months. When she was allowed home it was only for a few hours and, “all I wanted to do was go back to hospital. I felt safe there. At home I worried I would get an infection or fall and hurt myself. I felt so guilty for thinking like that,” said Hanna. She first met her two Family Support Workers, Monica and Vicky, after the operation to remove the tumour. They were amazing. We never talked about the fact that I may die, they just made me laugh and gave me my independence back. Having someone to look after me also meant that mum could go back to work. I owe my GCSEs to Monica...

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  • London Marathon Gallery

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  • Donate Single Payment Test

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  • Meet Annabel

    Eleanor, a Family Support Worker from our Southampton care team, shares how volunteers support her and how Annabel helps her provide much needed support to families in need. Harry is four years old and has been diagnosed with leukaemia. He also has a two year old brother. Mum became isolated as her parents live in New Zealand and her husband regularly travels to Europe for work. Annabel gives her time to accompany Family Support Worker Eleanor to give mum some respite. We suggest she has a soak in the bath or relax and watch some television, however, she has her own ideas. Cleaning the house from top to bottom! On a recent visit to the family, upon arrival at the family home, Annabel and I could see two little heads bobbing up and down at the window in excitement. Mum told us that she told the boy’s they had a lovely surprise and when she said it was Annabel and I they shouted “it’s just like Father Christmas coming mummy!” The boy’s often request a visit to soft play followed by a drive to the New Forest to see the horses and donkeys. We always return home with two very...

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  • Meet the Phillips family

    We began our Christmas festivities with Rainbow Trust’s London Carol Concert, where Jacob, my five-year-old, read a humorous Christmas poem in front of 400 people. Danny and I were so proud. He was enjoying his moment in the spotlight so much that he had to be coaxed down from the pulpit! Next was the Rainbow Trust Christmas Party with the Southampton Family Support Team where we got to meet other lovely families supported by Rainbow Trust. The boys loved it. Jacob was very lucky as he was chosen to feature in the big magic show finale! It was the first time the boys had met Santa together too. The lead up to Christmas Day was very exciting and much better than last year, when I was constantly travelling between hospital and home. On Christmas Eve, Danny and I treated the boys to an extra special day – we all sat in brand new matching pajamas, snuggled up, ate naughty snacks and watched Christmas films. We prepared for Santa and his reindeers before bed and all three boys were asleep by 8pm! On Christmas Day we were woken by Louis at 4.45am. He was running around in circles, pointing at everything...

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  • Taking time off work

    Taking time off work to be with your child when they are sick, attending hospital appointments or receiving treatment as an in-patient, can be a struggle. Many parents or carers can’t afford to give up their job, but find it a challenge to keep working alongside their caring responsibilities. If you are employed, the first step is to look at your Staff Handbook or talk to your organisation’s Human Resources staff. You may have a legal right to take time off work in particular circumstances under your contract, and you may also be able to request a change in your work pattern to help you combine your work and caring responsibilities. Here are the main options: Planned time off using ‘parental leave’ As well as paid ‘annual leave’, parents may have the option of ‘parental leave’, which is usually unpaid. To qualify, parents must have worked for an employer continuously for one year and must give at least 21 days’ notice. Your employer may ask you to postpone your leave if it is harmful to their business. Parents must use the time to care for their child and not for anything else. The maximum amount of parental leave a parent...

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  • Challenge a friend

    Do you know someone that would like to take part in a challenge with you? Ask a friend to join you and raise even more funds for Rainbow Trust! Whether it’s to give you some Dutch courage, add a bit of healthy competition, know that there’s someone to help pull you over the finish line or simply to enjoy the experience with, there’s nothing quite like taking on a challenge alongside a friend or family member. We have lots of different sports and challenge events perfect to get involved with as a team. Some of the events in our calendar are perfect to take part in as a team: Three Peaks Challenge – dates throughout the year Get your friends together and tackle the three highest peaks in Scotland, England and Wales in 24 hours. Enjoy the camaraderie en route and take photos of each other at the peaks! Skydive – jump Nationwide on dates throughout the year Grab a friend and take to the skies for the ultimate adrenaline rush. You will be glad of each other’s support on the day and can congratulate each other when you’re back on the ground! Colour5k – get colourful this Spring Gather...

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  • Meet Pam

    Get out and about in your community Quite often, when you think of volunteering for a charity, you think of sitting at a desk filing or helping stuff envelopes. While people might have this view, it certainly isn’t the case at Rainbow Trust Children’s Charity. There are so many ways people can get involved. At Rainbow Trust, volunteers can take on a role depending on their own skills and interests. Opportunities vary from helping at events, out in the community, working in the shops, joining care teams on family visits to working in an office environment. For some, being out and about is a lot more rewarding. Volunteers can help fundraise out in the community or help run a stall at a local fete once or twice a year. Pam Brogan from Walton on the Hill, Surrey, has been volunteering with Rainbow Trust since March 2010 and originally helped the community fundraising team with general admin and donations. Fast forward five years Fast forward five years and she is a fundamental part of the community team. For the last 4 years, she has taken full responsibility for the annual Bookham Carol Concert in Surrey, coordinating the event, inviting guests, securing...

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  • Get inspired

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  • Meet our Trustees

    Mark Cunningham (Chair) Mr Tim Bunting (Chair of Finance Committee) Mr Howard Dyer Mr Andrew Honour Dr Jonathan Rabbs (Chair of Care Committee) Mr Mark Richardson (Chair of Audit Committee) Fiona Smith Mr Michael Wainwright Mrs Celia Woollett (Chair of Fundraising Committee)

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  • Andy climbs Kilimanjaro

    The charity team are most encouraging, I definitely would recommend the experience. I also met up with two others doing it for Rainbow Trust Children’s Charity, who braved T-shirts at base camp – in very cold conditions! Andy Norris from Kent, embarked on a journey to climb Africa’s highest peak, Mount Kilimanjaro for Rainbow Trust in January 2015. Rainbow Trust had been supported by his company, CPC, for two years and it was this that inspired Andy to get involved and take on a challenge in a bid to raise even more funds. Here, Andy shares how he got on and his top tips to anyone considering following in his footsteps. How did you prepare for such a huge challenge? I got a personal trainer and we met every 2 weeks for a year prior to the challenge. I also did a number of long mountain walks in the Lake District and north Wales. How did it feel during the challenge itself? The flight out and back was exceptionally long with little sleep. Days 1-2 of the climb went well and I had no problems adjusting to walking all day and drinking 3 litres a day. Days 3 and ...

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  • Andrew and Sophie

    Sophie, was 14 when her brother, Andrew, was diagnosed with a rare and inoperable cancer. “It was weird as I didn’t expect anything like that to happen. It was upsetting, but we mainly laughed about it. That may sound weird. They say if you don’t laugh you cry. We normally made jokes to get through it.” The pair have supported one another throughout the journey, “We’re very close. I would always talk to him if he was sad or anything. He would come to me when he was sad.” Her brother’s illness naturally had an impact on Sophie and has subsequently inspired her to want to become an oncology nurse. When most of the attention was on her brother, Sophie joked that her brother was an attention-seeker, but said, “He should have been getting all the attention. With him, he would always give me stuff. He gave me his Brave Heart Award, to make me feel like I wasn’t left out. But no, if he got loads of attention then I know the reason why he did, so that’s good.” Through the difficult times, Durham Family Support Worker, Sabrina helped Sophie by giving her some much needed respite with days...

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  • Rowan and Petra

    Petra Todd’s sister, Rowan, was diagnosed with a brain tumour five years ago. She has undergone years of treatment and her big sister, Petra, has been by her side all the way. Petra is an eleven year dancer who loves having her family all together and like most eleven year olds, just wants a “normal” family. She wants to be able to go to the park with her sister or play hide and seek but can’t as Rowan is visually impaired, a side effect of the tumour. “It makes me sad because we can’t do things like walk to the park,” says Petra. In October of last year, Rowan got septicaemia and was in hospital for a few weeks. Will, Petra and Rowan’s dad, was in America promoting his music so Beth, the girls’ mum, had to be in the hospital with Rowan. It was Petra’s birthday and she and her brother were looked after by a number of friends and family members. “It was annoying not having the perfect birthday, having all my family together,” says Petra. Petra worries about her sister and when she had sleep overs when her mum was in the hospital with Rowan and her...

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  • Emily and Gracie

    Thirteen year old Gracie doesn’t have a normal life, her sixteen year old sister has a brain illness which affects every aspect of her functioning. If she isn’t falling over, she is choking as she struggles to swallow so the home is full of worry and concern for Emily’s safety. For Gracie, she can’t talk to her friends about what she’s going through as none of them understand but she can talk to the children in the Rainbow Trust Children’s Charity Siblings Groups that are run in Swindon. Here she can mix with other children who are in a similar situation, they can talk about what they are going through. For Gracie, it’s been, “hard, an emotional rollercoaster but with Rainbow Trust’s help, it’s been easier. The sibling groups take me away from home and Emily’s illness. It takes my mind off things.” This respite is what the sibling groups aim to achieve. For the siblings of sick children, doing all the regular and usual things that other families do, is paramount. They want to feel normal because for them, home life is anything but normal, what with hospital appointments, health scares and not being able to do things that...

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  • Meet Cleo and her family

    When Jo and her husband Rupert were first told there was something wrong with their unborn baby, they were devastated. At Jo’s 20 week pre-natal scan, doctors diagnosed Cleo with hypo plastic left heart syndrome, often called having “half a heart” where the left chamber of her heart was almost non-existent. The prognosis seemed hopeless, like there was no chance whatsoever. A midwife convinced the couple to get a second opinion, which they requested at Great Ormond Street. They met with a cardiologist and instantly felt like they had more positive options and for the first time felt like surgery was an option. Cleo was born on Thursday 24 March 2011 and three hours after birth was transferred to the cardio intensive care unit at GOSH where she had her first major surgery less than four days later. “I have to remain positive and I’ve learnt to forget some of the awful things we had to go through for my sanity. The life that you’re thrown into is a world away from the one you’ve known. I’ve got to keep her weight up and it’s those elements of caring for her when I feel more like a nurse or a...

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  • Mums know best

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  • Rainbrows

    Wear. Share. Donate. Show your colours ​Rainbrows is a way to make a difference by being creative! By transforming your eyebrows into rainbrows and donating £3 by text you can help raise money and awareness for Rainbow Trust. You can share your Rainbrows any time, whether it’s you and your friends having fun at a sleepover, daring your brother or dad to join in, or getting your whole school involved with a Rainbrows Day. Be sure to show us your brows on twitter and instagram by using the hashtag #rainbrows. And don’t forget to tag your friends so you can see their Rainbrow selfies too! Follow the steps below to get going. It really is as easy as 1, 2, 3, selfie!

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  • Boutique and Auction

    Fantastic shopping in our boutique Before sitting down to luncheon and the catwalk show, guests have the opportunity to enjoy a glass of chilled champagne whilst they shop in the Rainbow Trust boutique. See below for some of this year’s brands. Boutiques Accha London Apothenie Birdie London Cleverly Wrapped CrossLow Dida Ritchie Fruity Booty Indigo Island Jess Collett Miliner Lilou Et Loic London Velvet Lulu B Plooms Rosalena Taylor Morris Eyewear Ltd Travelling Bazaar White Coco YunionT

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  • The adventures of Pinky the bunny

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  • A gift for any occasion

    Whatever your special occasion, whether it’s a wedding, anniversary, baby shower or birthday, you can make a real difference to the lives of families with a seriously ill child. Take a look at our Big Day pack where you can download bunting and place cards. You can also request donation envelopes or colourful balloons. If you’re new to fundraising and would like some help contact our Supporter Care Team or fill in the form below to tell us about your celebration.

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  • Weddings and Anniversaries

    Invite Rainbow Trust to be part of your big day If you already have a toaster and towels, pledging your big day would give a family with a seriously ill child precious time together. Every £182 raised gives a family a whole day of support from a Family Support Worker, while they are struggling to cope with ordinary life in their extraordinary situation. £1,780 covers the cost of supporting a family for a whole year while their child receives potentially life-saving treatment. If you are asking for donations in lieu of gifts or donating instead of giving wedding favours, we have handmade place cards to personalise so your guests know that they are helping to support a cause close to your heart. If you’d also like to personalised donation envelopes, just let us know and we’ll send you what you need. Tell us about your big day using the form below and we’ll send you our Big Day Pack with more ways you can support Rainbow Trust while you celebrate, including place cards and bunting.

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  • Donate Landing

    ​If you would like to make a donation from outside of the UK please use PayPal or call 01372 220083.

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  • Trust in Fashion - the catwalk

    Last years’ Trust in Fashion headline designer was Temperley London. We’ll be announcing our 2019 event designer soon, watch this space! Temperley London Alice Temperley MBE founded her eponymous label, Temperley London in 2000, a year after graduating from the Royal College of Art. Alice continues to head up the creative direction of this British, independent brand as it enters its eighteenth year of business. Temperley London is epitomised by modern bohemianism with a confident, feminine and effortless attitude while staying true to its British Heritage. Alice pioneers artisan techniques and intricate hand-worked embellishment; an aesthetic synonymous with her creative style. The core business focuses on women’s ready-to-wear collections, which have evolved to offer a comprehensive range of daywear, cocktail and eveningwear. Muses include Amber Heard, Arizona Muse, Olga Kurylenko, Kate Hudson, Laura Bailey and Florence Welch.

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  • Trust in Fashion - Thank You

    Trust in Fashion CommitteeMelanie Honnor (Chair) Belinda Chaffer Trish Halpin Julia Impey Sheila Lucas Sarah Needham Caroline Regis Alta Thorne John Walford Noni Ware Emma White

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  • Our financials

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  • For as long as families need us

    In 2007, nine-year-old Joe began feeling queasy in the mornings, so his mum took him to the doctor. A brain scan showed that Joe had a large tumour right in the middle of his brain. He was immediately referred to the hospital in Oxford where surgeons removed most of it. Joe underwent months of radiotherapy and chemotherapy. He missed almost all of Year 5 at school. Treatment was successful and he was given the all clear. He went back to school and was well for a while. But in the summer of 2012, Joe started complaining of a ‘numb bum’ when he sat down. A routine scan showed that the cancer had returned, this time in his spine, hence the numbness. In October 2013 he lost his mobility, but despite not being able to walk he managed to continue to go to school until May the following year. Once he was unable to go to school Joe was stuck at home so the family was referred to Rainbow Trust for extra help and someone to keep him company. Family Support Worker Chris, from our Swindon team, was introduced to the family and started supporting them. “Chris gave Joe something to...

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  • New neonatal family support initiative

    When Charlotte, a single mum of one, discovered she was pregnant, she was so excited and happy but a pre natal scan showed that, tragically, her baby had a heart defect and was not expected to survive birth. The hospital contacted Rainbow Trust and asked us to take care of Charlotte and her baby’s end-of-life care. They also asked us to help Charlotte to look after Alfie, her two-year-old son. When Bryan, our Family Support Worker in Swindon, called Charlotte he discovered she was already in labour. She asked for his support and he went straight to the hospital. She asked him loads of questions and talked about death, dying and funerals – she was very open about it all. Bryan stayed with her and supported her throughout her labour and her baby boy, Charlie, was born without any intervention. For a 21 year old, the birth of her baby and his imminent death left her reeling between feelings of excitement, relief, fear and grief. Charlotte hoped that he was all right - he looked ‘perfect’, with no signs of being ill. Bryan stayed with her until she settled and agreed to return in the morning. Sadly, a scan confirmed...

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  • I Love Claims

    I Love Claims is a UK motor claims industry network. Supporting Rainbow Trust since 2011, over 300 companies got involved with a variety of events and campaigns including: networking lunches, golf days, I Love Claims Day on 14 February, British Bodyshop Awards and The AGS Gumball Rally. I Love Claims associates, Apollo Motor Group, Tesco Underwriting and ABP Club also made Rainbow Trust their official Charity of the Year 2014. By the end of the year the network had raised an amazing £127,467. I Love Claims will continue their support until they reach their fundraising target of £500,000. “ILC is proud to be a supporting partner of Rainbow Trust. Both the UK motor and UK homes claims industry has really got behind the cause and have already made great progress towards our £500,000 fundraising target for the charity, a great achievement for the organisation and all our associated companies.” Martin Egan, Managing Director of ILC

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  • Our partners

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  • Our people

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  • Our supporters

    Thanks to you we raised a record £4.65m this year to help families when they need it most. Whether you jumped out of a plane, ran a marathon, dropped your loose change in a collecting tin, or set up a monthly direct debit, you made a huge difference to us and the families we support. We exist because of you. Thank you. “We raised £700 for Rainbow Trust as we have had a lot of help from them for our ill son and his brothers and sisters. They are a big help simply because they are always there for us, whatever our need is at the time. They are tailor made for not only our family, but for the many others that need them.” Amberley Kemish, McKenzie’s mum

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  • Deutsche Bank

    In October 2013, staff at Deutsche Bank’s UK offices chose Rainbow Trust as one of their 2014 Charity of the Year partners. Starting in January 2014, highlights include six staff running the London Marathon and more than 100 employees completing the DeutscheBike cycle challenge. By the end of June, Deutsche Bank had raised an amazing £175,000, with a further £665,000 expected by the end of 2014. Thank you to everyone at Deutsche Bank. “Deutsche Bank has enjoyed working with Rainbow Trust Children’s Charity as one of our staff selected Charity of the Year partners for 2014. The partnership is extremely successful – exceeding many of our financial targets and involving employees from every part of the organisation. We have been very proud to make such a substantial contribution to Rainbow Trust and to the outstanding support which they provide to families caring for a seriously ill child.” Sabira Rouf, Charities and Fundraising Manager

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  • World Duty Free Group

    At the start of the year World Duty Free Group set out to raise enough money to pay for 2,500 hours of family support. Full of enthusiasm, employees took on the challenge. As well as whipping up culinary delights for cake sales, brave staff took on many physical fundraising challenges, including skydives, a 24-hour walk from London to Brighton and a 1,000-mile cycle from Amsterdam to Budapest! Employees also signed up for ‘The Apprentice’-style challenge to further boost their fundraising efforts. Taking over our Leatherhead and Cheam shops, they spent the day head to head competing to increase shop sales. It was a great success: sales grew by 150%, they collected £1,800 worth of stock and raised nearly £1,000. By the end of the year World Duty Free Group had raised £82,973, providing a staggering 3,770 hours of vital support.

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  • Peter's story

    Peter was just two years old when Flora, his mum, noticed that he wasn’t eating well. She thought nothing of it, but when he got a cold and became tired, it lasted two weeks - she thought he could be anaemic so asked for a blood test, which, confirmed that Peter had leukaemia. Peter was admitted to hospital in Oxford for treatment and Flora stayed with him and her husband took his twin brother, Thomas, home to Reading. It was a very difficult time for all the family and seemed toughest on two-year-old Thomas, Peter’s twin brother. Peter was always with Flora as he felt so poorly and clung to her all day. Thomas had been used to having his twin with him and sharing the attention, but now he “… had to learn to be alone,” remembers Flora. The family was referred to Rainbow Trust and Flora was introduced to Jess, a Family Support Worker in our West London team. Jess would take Flora and the boys to hospital appointments and play with Thomas while Peter was in treatment. Peter’s clinginess means that Flora found it hard to do anything without him, so having Jess as a playmate helps...

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  • Serving families

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  • The future

    We’ve made amazing progress this year and we want to do more; three out of four families in England still face caring for their seriously ill child alone. We are on a mission to help every family with a child who has a life threatening or terminal illness at a time when they need it most. We will invest in more Family Support Workers and develop new services to reach more families. Already we are on track to increase the number of families we support nationwide to 2,000 a year by 2016. Quality support and the needs of the whole family remain at the heart of all we do. Find out more by reading our strategy

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  • Our publications

    ​Browse through a collection of our latest reports, research and editions of the Rainbow Trust Magazine.

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  • Donate Customer Details

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  • Big Hour - Donation shopping list

    Your fundraising makes a real difference. Use our shopping list below to see how your money will make life easier for a family with a child who has a serious illness.

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  • Cardiac Support

    Rainbow Trust Children’s Charity has partnered with ECHO (Evelina Children’s Heart Organisation) with the aim of bridging the gap between the medical care that families receive in hospital and the social palliative care they receive in the home or community. Our Cardiac Support Worker works closely with both Rainbow Trust and ECHO to ensure that families whose children have life threatening and complex heart conditions receive the additional emotional and practical support they need. About ECHO Evelina Children’s Heart Organisation (ECHO) supports children and young people with heart conditions, who have had treatment or care under the Evelina London Children’s Hospital, and their families. Formed in 1984, they provide support and encouragement to the whole family. ECHO support members from across the UK and do so both within the hospital and within local communities and clinics.

    Emotional supportSomeone to talk to during and after your stay at Evelina London Children’s Hospital Support during difficult appointments and with doctors emotional support for your child’s siblings bereavement support for the whole family. “Leaving hospital with our daughter was something we had been waiting for, but when the time arrived I was afraid of having noone to talk to, the local ECHO volunteers were a lifeline.” Practical supportRespite - spend time with your child both at hospital and at home so that you can take some time for yourself Hospital support – support you whilst you are in hospital, attending appointments with you and being there for you to talk to when needed Transport – helping you with transport to and from the hospital Social events – keeping you updated with regular social and educational events, providing the opportunity to meet other families through the Rainbow Trust and ECHO networks. Timeframe Once you have joined ECHO and the Cardiac Support Worker has received your referral, we will contact you to arrange an assessment visit. This can take place in the hospital, your home, or wherever is convenient for you. Support will begin after we have completed this. We aim...

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  • Christian McBride

    ​Eight years ago when a colleague mentioned Rainbow Trust to Christian McBride, he chose to support us - impressed by the service we offered to families in crisis. So when Christian and his partner Laura’s six month old son, Liam, fell ill in 2009 with a rare bone marrow disorder, they knew immediately where to find the support their family would need. “We had to watch our bundle of joy undergo transfusion after transfusion, not knowing if he’d live or die. It was a frightening and lonely place for the family, so having Surrey Family Support Worker, Lyn, and Rainbow Trust there to support us, made such a difference.” Liam had to go through a long and complex treatment programme, but is now in remission - a happy and healthy little six year old. Christian, Laura and his company Genuine Solution’s, support for Rainbow Trust continues. They have run and cycled their way to raise a staggering £50,075,99, and this year, they aim to raise another £10,000 through similar events. Christian also mentors Rainbow Trust staff and uses his professional network to support Rainbow Trust, so that families can received the same care he and his family benefited from. I...

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  • Mark's half marathon

    In March 2015 Mark Sutton, Dad we support and father of three, completed the Fleet Half Marathon for Rainbow Trust. Our Surrey care team is currently supporting Mark and his family as his youngest son Luke has a terminal illness. Before beginning his training in November 2014, the last time Mark had ran any distance was in school. He put in a lot of training for that four months and has now developed a real love for running and is now training for a number of 10k races he has signed up to throughout the year. He sees it as a great way to keep fit and it also helps him to clear his head. Amazingly, Mark completed the half marathon in two hours. He was cheered on by friends and family and thoroughly enjoyed the experience. Mark set up a Virgin Money Giving fundraising page and in a short space of time he raised £3,275 for Rainbow Trust. “I feel great knowing I’ve helped other families. The difference Rainbow Trust has made to our family has only spurred me on to help others.” Since completing the half marathon Mark has stayed in touch with us and plans to continue...

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  • What you'll receive

    When you Sponsor a Family Support Worker, like Amelia, you’ll be providing support to families who have a child with a life threatening or terminal illness. Our Family Support Workers work with families to help them cope in extreme and uncertain situations so that they don’t have to cope alone.Iris died at home in October 2010. She was two and a half. The support that we had from Rainbow Trust went beyond the practical. They were, and are, family. Our Family Support Workers, Mary and Mandy were with us until, and beyond the end, and for that humanity and care I am forever grateful - Iris’ Father

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  • Your sponsorship in action

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  • Sponsor a Family Support Worker

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  • Big Hour - Sponsored silence

    Have a reputation as a bit of a talker? Always one to have the last words? Never one to miss out on a good natter? We have just the challenge for you! It is really as simple as it sounds… For an entire hour, you’ll need to keep quiet as a mouse. An hour of support from Rainbow Trust can be the difference between a family coping and falling apart. We’ve got a handy sponsorship form, or you can set up a fundraising page online and we have plenty of inspiring tips for you too. . There’s no need to suffer alone in your silence! Get your friends involved and come up with hilarious new ways to communicate! Be as creative as you like with our toolkit. How about an office-wide silence to support terminally ill children or how about a silent lesson or lecture? Talk to your teacher or professor about the sponsored silence and see if you can get your whole class involved. However you plan or cope with your hour of total silence know that our fundraising team is right behind you with lots of ideas and advice, just sign up now and we’ll be in touch...

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  • Big Hour - Indoor teddy bear picnic

    For today’s the day the teddy bears have their picnic… This year why not make the most of your extra hour by bringing everyone together for an event that the whole family can enjoy with an indoor teddy bear picnic. We understand that the weather is unpredictable at best, especially during Autumn, so why not combine a perfect Summer’s day activity with the comfort of the cosy indoors? For the most of us the hardest part is getting started but don’t worry, we’ll provide you with all the essentials you need to make your picnic a success. You’ll be able to print bunting, invites, labels and even a colour-in teddy bear to keep the little ones entertained. This is the perfect event for your nursery, pre-school or family so gather your children, and their teddies, and throw a fun-tastic fundraiser. You can go to town with preparing for your event to make it extra special. Why not add blankets, fairy lights and play indoor games? Ask guests to make a donation towards the day which they can put in this DIY donation box and get the older children to help you count up the money raised! Let them know that...

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  • Big Hour - Lunch hour olympics

    Your lunch hour may usually be a relaxing time where you sit back and enjoy doing nothing for a brief blissful moment - it’s time to break the norm! Work in a busy office? Why not introduce some healthy competition and go head to head in a battle of wit and skill. Schools can also get involved using lunch hour as a chance for students to get moving and raise some money for a great cause. Simply charge an entrance fee into the Olympics and let the games begin! Fun event ideas include:A three legged race Waste-bin Basketball Egg and Spoon race (or plastic ball and cup race if you don’t want to mess up the office too much!) Most holes you can punch into paper in a minute Most number of press-ups And any more you can think of! If you’re stuck for ideas on challenges and activities for your Lunch Hour Olympics, don’t panic, sign up to take part and our team will be in contact to help you make the most of your activity.

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  • Big Hour - Tools

    Holding a Big Hour fundraiser is easy. Simply sign up here to keep up to date with all things Big Hour and we’ll also send you tips and information on how you’re helping families. For now, we have everything you need, including posters, bunting and invites, ready for you to download and use.

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  • Donate Single Payment

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  • Big Hour - Take part

    ​We’d love to know how you will be using your 60 minutes! Sign up below and we’ll get in touch with extra tips and more info about how your support is helping families. If you have any issues submitting your form please email thebighour@rainbowtrust.org.uk. By registering your Big Hour, you are consenting to receive communications about your Big Hour fundraising.

    ​We value your privacy and will never share your details.

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  • Big Hour - Pay in your money

    Thank you for holding your Big Hour. You’ve made a real difference to families who have a seriously ill child, you rock! Here are four easy ways to get your hard earned fundraising to us:Online - select “I would like to pay in money I have raised” and type in Big Hour before completing the transaction Online fundraising page - if you one set up you can ask people to donate directly to your page Offline donation - please fill out a Sponsorship Form Send a cheque, made payable to Rainbow Trust Children’s Charity with the words Big Hour written on the back of the cheque, to: Rainbow Trust Children’s Charity, Cassini Court, Randalls Way, Leatherhead, Surrey, KT22 7TW. Don’t forget to Gift aid it. At no extra cost to you, we’re able to claim 25p of tax on every £1 that you give. Simply tick the gift aid box when paying in online, by post or using this Gift Aid Declaration. Need help? If you are experiencing difficulties paying in money, or need help making a donation, please call Supporter Care on 01372 220083 or email supportercare@rainbowtrust.org.uk. Unfortunately we are unable to accept donations from cards not issued and...

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  • What is The Big Hour?

    My Big Hour is an annual fundraising event which encourages people to use an hour to fundraise for seriously ill children and their families. Every year, we ask our supporters across the UK to join My Big Hour, either by donating an hour of pay or by holding a Big Hour fundraiser. Why we do it If there’s one thing we all wish we had more of in family life, it’s time. Time is precious to us all, but when a child suffers from serious illness, time becomes more precious than any of us can imagine. Not just for hospital visits and the best care possible, but for the all the everyday stuff, big and small, that makes a family a family. We take the time to understand what each family needs, from help with looking after brothers and sisters, transport to hospital, listening when parents just want to talk or know how to deal with difficult questions. Our Family Support Workers are there, whenever they are needed. It costs just £23 to provide families an hour of life-changing support, but we need your help to reach many more families. By holding your Big Hour you can help make sure...

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  • Supporter promise

    You, like all of our generous supporters, are at the heart of us achieving this vision. Thanks to your generosity last year our teams of Family Support Workers helped over 2,500 families; more than ever before. We know you expect us to behave correctly and spend your money wisely and that’s why we want to share our promise with you. Our Supporter/Rainbow Trust PromiseWe will keep you up to date and share stories of how your donation makes a difference to families with a seriously ill child We will make it clear and easy for you to choose how you hear from us, including how to opt out from future communications. Once a year we will contact you to make sure we have everything right and give you the option to subscribe or unsubscribe to communications We will always check first that you are happy to speak to us when we call We will never share your details with other organisations or charities except those we engage directly to fundraise on our behalf. Read our Privacy Policy here. We will only work with professional fundraising organisations and always adhere to fundraising best practice as laid down by the Fundraising Regulator...

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  • The Big Hour

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  • Fundraising tips

    Where to start Online fundraising sites are valuable tools to help manage and measure any donations given to your chosen event or fundraising activity. Not only do they save the task of counting every penny, but your profile is also made accessible around the clock. We recommend using Just Giving which directly transfers all proceeds to us, with a note of who is funding so you can sit back, or rather spend time on more important matters of training! Personal Touch When writing your page, keep in mind your intentions for wishing to donate. Use any personal stories and reach out to your audience. Providing a picture is also key and speaks a thousand more words than simply using a sponsorship form. You can also make your own fundraising materials using our Online Toolkit to create beautifully designed posters, flyers and invitations that are bound to stand out from the crowd and get your event noticed! Collecting Donations Friends and family are a great place to start and more often than not, they are willing to go the extra mile to help, whether this be financially or offering their time. The generous donations can then set the benchmark for others...

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  • Neonatal support

    Support for you, your baby and your family ​Rainbow Trust Children’s Charity works with the whole family. We focus on supporting the baby’s siblings, who are often very confused and upset, and unable to visit for a variety of reasons. We also provide a transition service for parents whose babies do recover sufficiently to go home and offer a continued service at home. Parents eagerly look forward to bringing their new-born baby home, so it can be extremely disorienting when they are admitted to the Neonatal Intensive Care Unit. Parents can experience loss of expectation and normality and young siblings cannot often visit the Neonatal Unit.

    ​Emotional support Someone to talk to during and after your baby’s time on the neonatal unit Support during difficult appointments and conversations with doctors Emotional support for your baby’s siblings Bereavement support for the whole family. “Rainbow Trust allowed me to see my baby more than once a week.” Practical support Respite - Sit with your baby if you would like some time to yourself and a break from the unit ​Hospital support - Support you whilst you are on the unit, attending appointments with you and being there to talk when needed Sibling support - Help with care of siblings, supporting them at home, the hospital or taking them out for the day so they don’t feel left out or forgotten. Can also help with school drop-off and pickups Transport - Help you with transport to and from hospital. Flexible support Neonatal Support Workers are extremely flexible to help families in the best way possible. Timeframe ​Once Rainbow Trust has received your referral, a Neonatal Support Worker will contact you to arrange an assessment visit, which can be in the hospital, your home, or wherever is convenient for you. Support will begin after we have completed this. We aim...

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  • Social media badges

    Spread the word about your support for Rainbow Trust on social media with our downloadable social media badges for Facebook and Twitter. Once you click download, a new window will open where you are given the option to save the folder. Simply click save, unzip the file and view the badges. Choose your favourite cover photo or image to use with your social media post and save to download the image to your phone or computer.

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  • Our Patrons and Trustees

    Meet the people who make decisions about our strategic direction Our Trustees work together to develop a clear strategy for the future of Rainbow Trust and ensure that the work we do and goals of the organisation are in line with our vision. They each play a key role. We have a very supportive Board who passionately believe in the services we provide to families and the professionalism and expertise that everyone brings to their role across Rainbow Trust.

    Our patronsMeet the people who help us raise funds and spread the word We are really lucky and very proud to have over 30 patrons who support the charity across the country. Our Patrons help us raise the vital funds to provide families caring for a child with a life threatening or terminal illness the high quality care and support they need, free of charge. Rainbow Trust’s Patrons also get behind a wide range of campaign and fundraising activities to help spread the word. Sir Hugh Blackett ~ Sue Cook ~ Annabel Croft ~ Ashley Davies ~ The Hon Mrs James Dawnay ~ Lady Fellowes of West Stafford ~ Lord Fellowes of West Stafford ~ Jack Gratton ~ Trish Halpin ~ Austin Healey ~ Michael Howard ~ Mrs Andrew Lukas ~ Aled Miles ~ Mary Nightingale ~ Pauline Obee MBE ~ The Countess of Perth ~ Lord Redesdale ~ Lady Robson ~ Mrs Robert Ropner DL ~ Mrs James Russell ~ Trevor Hanover ~ Mrs John Salkeld ~ John Scott ~ Alan Stevenson ~ Zac Toumazi ~ Mrs Peter Vey ~ Andrea White ~ Kevin Whitfield ~ Mary Wynne-Finch

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  • Celebrity support

    We are extremely proud and fortunate to have so many celebrities who support the work we do. They help us spread the word and raise awareness of Rainbow Trust so we can continue to reach more families with a seriously ill child who need our help.

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  • Liz skydives for Rainbow Trust

    Liz Stratford, 25, from Manchester, had wanted to do a skydive for as long as she could remember. She tells us here what it meant to her to finally tick it off her bucket list, whilst doing it for a cause she believed in and to raise funds for Rainbow Trust. “I had always said if I was to do a skydive it would be for charity. It was like a conscious thing I needed to do for myself. So when my sister told me about Rainbow Trust I decided that this was the perfect charity to do a skydive with to raise money and awareness. There are a lot of charities out there that get recognition, yet a lot of people I know hadn’t heard of Rainbow Trust and all the fantastic work they do. I don’t personally have a connection to the charity, but I’m so glad I chose them. When I got in touch with the charity to book my skydive, I was told I would need to raise £500. At first it seemed daunting but I knew I could do it. My family and friends were very supportive and overall I raised a massive £665, which...

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  • Donate Confirmation

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  • Donate Regular Payment

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  • Benefits and other sources of help

    Benefits, transport and equipment Check what you might be eligible for on the GOV.UK website. Your local Citizens Advice Bureau will also be able to advise you or you can head over to their website to find information online. Many families may find they are eligible for Carer’s Allowance, Disability Living Allowance, or Child Tax Credits, for instance. If you have any private health care and critical illness policies for yourself then do check if these include benefits you can claim for a child. Help from your local council Your local council is responsible for assessing your child’s health, care and educational needs. You might be able to get help with disability aids, adaptations to your home, or short breaks for your child or family. Read more here. Blue Badges Find out if you are eligible for a Blue Disability Badge to enable you to park in disabled bays. You should be eligible for a Blue Badge if your child either:receives the higher rate mobility component of Disability Living Allowance (this is only available to children aged three or more) is two years old or more, and has severe walking problems is under three and has a condition which means...

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  • Colour at Christmas

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  • Coping with Christmas in Hospital

    Christmas is a time for family, but what if your child is spending it in hospital? Leanne Cummings is a Family Support Worker in our Durham team and helps families prepare for Christmas in hospital. Many families are used to spending time in hospital, but there are still things they can do to make it as enjoyable as possible. “The hardest impact is usually on the children who are old enough to understand what is going on.” Leanne explains, “Sometimes children worry that Santa won’t know where they are to visit, so simple things like writing a small note at the end of their Christmas list to explain where they are helps.” Hospitals will make every effort to make Christmas as festive as they can. “Make sure you have asked the hospital what their plans are and then fit your Christmas around them. In our local hospital in Newcastle, there are usually visits from local sporting star and of course Santa himself.” “Children in isolation won’t be allowed decorations in their room due to the risk of infection, but you can decorate the windows outside, so it still feels Christmassy. You will be allowed to take presents in, but speak...

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  • Everest Base Camp

    Trek to the base camp of the greatest mountain on earth, take on this incredible 11 day trek and help us to support more families who have a seriously ill child. Take a look at a selection of dates in March, October and November and choose one that suits you! This fully supported 16 day challenge is a once in a lifetime experience, not only will you witness some of the most breathtaking scenery you’ll have the opportunity to visit some of the highest villages in the world, as well as admiring the sunrise over the Himalayan snow-capped peaks and Khumbu Glacier. The sponsorship target might seem unachievable right now, but with the support of our Sports and Challenges team you’ll be on your way to hitting your fundraising target in no time! We’ll be in regular contact to provide advice and helpful fundraising tips to keep you on track.It was quite the survival experience. The temperature was a challenge, however we felt on top of the world and the views were incredible” Lindsey - Everest Base Camp conqueror Join our team: As part of our team you will benefit from:Full support from our dedicated Sports and Challenges team A...

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  • Circus Starr supports Rainbow Trust

    Roll up, roll up! This Autumn Circus Starr is bringing the magic of circus to Swindon and Rainbow Trust is delighted to be their nominated Charity of the Year for their Big Top Autumn Tour 2014. Circus Starr is a world class, touring circus featuring acrobats, dancers and entertainers from across the globe. It is also an independent, charitable organisation that supports disabled, underprivileged and vulnerable children across the UK through a 75 venue tour held three times a year. For more details please visit their website. We are delighted to be working with the fantastic team at Circus Starr.

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  • 1st Credit, the battle continues

    After first working with 1st Credit in 2013 we were thrilled the company decided to take part in a Rainbow Trust’s “Battle of the Boutiques’ retail Challenge. On Thursday 21 August two teams of 1st Credit employees “The Cheam Rainbows” and the “The Rainbow Rangers” fought to see which team could increase sales in their shop by the highest percentage aiming to raise funds and awareness for the charity. After the grand effort of last year it was hard to see how 1st Credit was going to top it. Nevertheless they hit the ground running, calling out to clients to provide raffle prizes, encouraging colleagues to sign up for events and encouraging friends and family to donate, having already raised over £1,895 before the event had even begun! In spite of it being an extremely hot day both teams took to the streets with huge enthusiasm and eagerness. The teams worked tirelessly fundraising and collecting bits and bobs for a fortnight before the day itself. Despite all of this, there was to be only one winner. Leatherhead’s ‘The Rainbow Rangers’ won but together both teams raised an amazing total of £10,000 Both teams gave it their all with a tremendously...

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  • DHL flying high for Rainbow Trust

    On Monday 23 June nine brave UK Senior Operations Managers from DHL (aka the DHL Flyers) took to the skies to show their support for Rainbow Trust. Denis McCarthy, Kirsty McCue, Jez Jones, Jon Brooker, Kate Hall, Francis Ktenidis, Colin Young, Barry Young and Jeff Pashley, travelled to Hibaldstow in North Lincolnshire from their DHL bases around the country to undertake tandem skydives. The team went through skydiving training before heading out to the plane, strapping themselves to an instructor and travelling 15,000 feet into the sky before throwing themselves into the air. Freefalling at 120mph before pulling the shoot and gliding gracefully to the ground, each Flyer landed with huge smiles and a new found interest in adrenalin sports! The team has been busy fundraising in the run up to their jump, raising over £5,700 so far, and as they collect in pledges they are hopeful to get over £6,000 before applying for match funding from the DHL Foundation. DHL support Rainbow Trust as their long term charity partner, as part of their extensive CSR programme. “Bravery is the key word I think. I have to admit, a number of our Flyers were more than a little nervous on...

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  • A Whopping success

    On 3 July, Wapping Gardens was full of excitement and adrenaline as runners from all over geared up for the Whopping Rainbow Run. It was a wonderfully sunny evening, which made it more enjoyable for the spectators; and although it was a bit warm, the runners didn’t mind as they were distracted by the interesting route through Wapping and the many friendly faces cheering them on. There were a great number of supporters willing to cheer on the participants, including the Komarni cheerleaders, who did a fantastic job leading the warm-up then applauding the runners as they finished the race. We even attracted some younger cheerleaders who were playing in the park and decided to join in on the fun. We saw a variety of different costumes, including a giant sombrero, tutus, and our very own mascots George, Bungle, and Zippy. There were delicious burgers and cool drinks being served; a great reward for everyone. This year, there were around 250 participants, who raised over £25,000 for Rainbow Trust Children’s Charity - an outstanding accomplishment. A big thank you and congratulations to everyone who participated and volunteered their time!

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  • Party leaders must put #ChildrenAtTheHeart of the election

    We have joined more than 140 charities who are calling on all party leaders to set out how children and young people will be prioritised in the next Parliament. The open letter highlights that there are almost 14 million children in the UK but so far their voices have been missing from the national conversation. The charities are asking each of the party leaders to put children at the heart of this election, and to commit to three actions:To set out their party’s priorities for vulnerable children – to protect children from challenges such as growing up in poverty, or experiencing poor mental health, online harm, violence or exploitation. To put children at the front of the queue for investment – to ensure there are the services and professionals available to help children and families to thrive. To re-balance spending – by investing in early intervention programmes which have been proven to work, moving away from the trend towards spending on late intervention services. Zillah Bingley, Rainbow Trust Chief Executive, said: ‘Far too little attention has been paid to children’s needs during this election campaign, and particularly the needs of the most vulnerable such as children with life threatening and...

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  • For families living with serious childhood illness, It’s About Time

    In the last decade, the number of families being referred to Rainbow Trust and needing our support has doubled. There are now more families than ever struggling to cope when their child is ill. For these families, It’s About Time. Not just for tests and treatment and care. But for all the things that modern medicine can’t do: time for talking, for listening, for coping. In a recent survey* of 2000 parents with children aged 18 and under, it was revealed that the majority of respondents – approximately 6 in 10 – said their child being diagnosed with a serious illness was their worst fear. Additionally, of all those surveyed, 65% said that they would have no idea how to cope if this actually happened. The survey also highlighted that 91% of parents feel that there is not enough time to do everything they would like for their family, with 6 in 10 only managing one hour of quality time with their children a few times per week due to things like work, chores and screen time. But imagine how much harder this becomes when one of your children is seriously ill. This is why we have launched our new...

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  • This Christmas, meet Jenson and his family

    Clare and Steve have six beautiful children and like most parents at Christmas, want the day to be as special and magical as possible for them. So, when Jenson, their youngest, was rushed to hospital on Christmas eve, their plans for a magical family Christmas fell by the wayside. This is their story… Jenson is the youngest of six children. He has Down’s syndrome, heart and lung problems and needs oxygen 24/7. He also has feeding difficulties so needs a specialist feeding tube. In the run-up to Christmas day he was in and out of hospital. He had been unwell, he had an awful cough, but doctors kept telling us that it was nothing serious, that it was just a virus and to give him paracetamol. On Christmas Eve, when we were wrapping the last few presents, everything changed. Jenson started struggling and fighting for breath. Frightened and panicked we called an ambulance. He was diagnosed with pneumonia and admitted to hospital. When the children woke up, they didn’t know that I wasn’t there or that their baby brother was in the hospital. I was so upset - they’ve missed out on so much with Jenson being so ill and...

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  • What does the General Election mean for seriously ill children?

    Ahead of the General Election on 12 December, we are calling on all political parties to commit to improve support for families where a child has a life threatening or terminal illness. We believe there are two key questions to be asked of prospective parliamentary candidates: 1. What are your party’s plans to improve support for families where a child has a life threatening or terminal illness, and in particular, to improve emotional and practical support for the whole family? 2. Will your party commit to increasing funding for social care support for families where a child has a life threatening or terminal illness? The NHS is widely considered a central concern for many voters, but healthcare is only one part of the picture when a child has a life threatening or terminal illness. Whichever party wins enough seats to form the next government, they must urgently bring in a social care settlement which addresses the needs of seriously ill children and young people and their families, as well as disabled and older adults. Zillah Bingley, Chief Executive of Rainbow Trust, said: ‘This election period, we urge everyone who cares about seriously ill children and their families to make sure...

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  • Do your own thing

    Taking part in a event that isn’t listed on our website? Whatever challenge you have chosen to take on, we would love for you to raise money for Rainbow Trust. We love seeing our supporters tackling different challenges across the UK and sometimes even the world! You will receive full support from the Sports Team and they will be on hand to help you with your fundraising and training. As a Rainbow Trust fundraiser you will receive:A welcome pack and email full with fundraising ideas Dedicated support Access to our online toolkit to make branded posters for your fundraising A bright Rainbow Trust t-shirt, running vest or cycling vest, and we may even throw in our famous rainbow hair too! Please let us know about what you are planning to do by completing the form below and we will be in touch to support you with it. If you have any questions about taking on a sports event for Rainbow Trust, call the sports team on 01372 220 031 or email us. T&Cs By providing us with your details you agree to be contacted by Rainbow Trust about this event, you also consent to Rainbow Trust sharing your details with...

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  • Royal Parks Half Marathon

    A big shout out to the RTCC team who braved the elements (on a Sunday!) to cheer us on - it helped massively and was the perfect pick-me-up when it was really needed. So THANK YOU! Laura, 2018 Royal Parks finisher. Starting in central London, you’ll run past some of the cities world-famous landmarks. You’ll run along closed roads and through four of London’s Royal Parks, Hyde Park, Green Park, St James’s Park and Kensington Gardens. It’s a fast, flat course attracting over 16,000 runner each year. With a awesome atmosphere, it’s perfect for beginners and seasoned runners alike! By joining the team you will benefit from:A professional personalised running vest Post-race reception with massage Two cheer points on route - checkout our support in action Our eye-catching rainbow hair Inspirational fundraising and training advice. If you have any questions please do get in touch with us by email or call 01372 220031.

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  • Virgin Money London Marathon 2020

    Virgin Money London Marathon has taken the difficult decision to postpone until 04 October.Whilst we appreciate how disappointing this must be for all our runners, your welfare and that of other runners, staff and volunteers is paramount.We know that you will have questions, London Marathon Events have asked that we bear with them as they work through the detailed planning process to deliver the 2020 Virgin Money London Marathon on its new scheduled date. As soon as we know more we will be in touch, but for now, keep on running (if you can). Our Family Support Workers are still visiting families, and following all local hospital advice about attending appointments or visiting. It’s thanks to the fundraising efforts of all our runners over the last few months, and over the next few months that we can continue to do so.If you are running for us, please do get in touch if you have any queries.___________________________________________________________________________There are still spaces on the 2020 Rainbow Trust London Marathon Team!Join our team for one of the most iconic marathons in the World and help us raise funds to support more families who have a seriously ill child. With more than 40,000 runners taking...

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  • BM Ride

    Team Rainbow Trust is currently full for the 2020 BM Ride, please complete our enquiry form below and if any places become available we will be in touch! After a successful first year, BM Ride is back for one of the biggest weekends in Brighton and Hove, with a fantastic atmosphere and huge crowd support, it’s a weekend not to be missed! Take this rare opportunity to cycle 50km along the closed roads of Brighton city centre, you’ll also pedal along the seafront and conquer a few challenging hills over a 50km distance. Whether you’re an experienced cyclist looking for a group ride, a family looking for a cycling challenge or someone looking to conquer a completely new event, the BM Ride will have something for you! Join Team Rainbow Trust and receive:Loud support on the day from our cheer squad High-quality cycling jersey Dedicated fundraising support Fundraising materials to help hit your target. If you have any further questions please complete the enquiry form below or give the Sports Team a call 01372 220031.

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  • Brighton Marathon

    With over 12,000 runners taking part, the Brighton Marathon is one of the most popular alternatives to the London Marathon. The fast, flat course winds through the city of Brighton, taking in glorious coastal views and finishing at the iconic Madeira Drive in front of thousands of cheering spectators! With a host of bands and music along the course to provide a lively and buzzing atmosphere in one of the country’s most vibrant cities. We work hard to ensure our runners have a great experience and we’re all about the personal touch! Join the team, and you’ll receive:A high-quality running vest - with your name on it! Bright rainbow hair to stand out from the crowds. Support from our loud cheer points along the route. Fundraising and training advice. If you would like to know more about running for Rainbow Trust, please email us or call 01372 220031.

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  • Bungee Jump

    Looking for an adrenaline rush? Why not tick a bungee jump off your bucket list? You can choose a time and date that suits you at various locations across the UK. The cost is dependant on location and jump height, you can choose between 160ft and 300ft! Please check out all locations here. The bungee jumps are organised by the UK Bungee Club who have over 20 years experience. Join Team Rainbow Trust and receive:Rainbow Trust T-Shirt Rainbow Hair Fundraising pack and lots of support! Sign up for this event is direct with UK Bungee Jump, once you have selected your jump date please complete our online registration form to let us know the details of your event. If you require any assistance or you have any questions please complete the enquiry form below or give our friendly Sports Team a call on 01372 220031.

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  • Having difficult conversations

    Earlier this month, in the Independent on Sunday, Rainbow Trust contributed to an article regarding how doctors have very difficult conversations with parents when telling them that there is nothing more medically they can do to help their child. Rainbow Trust think that this is an important subject to discuss and contribute to, and would like to take this opportunity to share our thoughts on the matter further. We believe that because every family is different, and every circumstance the family is in will be different, there will never be an absolute right way of having this conversation. One thing we do know though is that having social support as well as medical support for families is crucial. Rainbow Trust is able to offer additional support to a family during this time. Our support can vary, but because we provide a dedicated Family Support Worker for each family, they have a familiar person with them, that is known to the whole family and can offer emotional support if and when needed. On a practical level we can distract children so parents can have time to themselves or allow them more time to ask the doctor questions. We are also able...

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  • Great Wall of China

    Trek along one of the world’s most iconic structures and help us to support more families who have a seriously ill child. The adventure takes you from the ‘Wild Wall’ at Guibeko with its crumbling paths and ruined watchtowers to the restored ‘postcard’ views of Mutianyu and Badaling where panoramic views stretch to distant misty mountains over peaceful woodland and terraced fields to exposed ridges and majestic peaks. Away from the wall, you’ll also spend a day trekking in the Black Dragon Pool Park, a spectacular nature reserve set in a deep valley with waterfalls, towering cliffs, crystal clear pools and traditional Chinese buildings. As you complete your 45 km trek after 5 days you’ll head back to Beijing for a celebration and some exploring of one of the world’s most fascinating cities. “I had a really brilliant time, I met some lovely people and didn’t find the day to day walking that tough. I was touched by the support I received from Rainbow Trust.” Adele - 2017 supporter The sponsorship target might seem unachievable right now, but with the support of our Sports and Challenges team you’ll be on your way to hitting your fundraising target in no time...

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  • Yorkshire 3 Peaks Challenge

    Conquer the alternative Yorkshire Three Peaks for Rainbow Trust and help us support families who have a seriously ill child. Starting and ending in Horton-in-Ribblesdale you take in the 3 highest peaks in Yorkshire, Pen-y-ghent (694m), Whernside (736m) and Ingleborough (723m). The aim of the challenge is walk this 25 mile route within 12 hours! We’ve teamed up with Maximum Adventure to ensure you get the most out of this incredible experience, this awesome adventure can be booked on a variety of dates between May and October! Join us We’d love you to join our team! The most popular option is often to raise a minimum sponsorship - you’ll need to pay a £99 registration fee and raise a minimum of £350 (80% of this target needs to be raised 10 weeks prior to the trip, the remainder can be raised up to 4 weeks after). What we can provideA bright Rainbow Trust t-shirt and some crazy rainbow hair Fundraising advice and materials to help you hit your fundraising target! All information including itinerary, inclusions and dates can be found at Maximum Adventure

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  • Coast to Coast Cycle

    The Coast to Coast route takes you from the Irish Sea at Whitehaven to the North Sea at Sunderland. It’s the classic cycle route in the north of England. It’s a route on a par with (but not along!) Wainwright’s famous Coast to Coast walk. The cycle route offers the opportunity to experience the great variety of the north of England: the old port of Whitehaven, the Coal country of West Cumbria; the heart of the Lake District; the Eden Valley; the wild moors and lead mines of the North Pennines and Weardale, old Durham railway routes, and the renascent industrial and commercial zone of Tyneside. It’s a deservedly popular route and a classic challenge, covering 225km (140 miles) in three days. The trip includes qualified cycle guides, three nights accommodation including breakfast and baggage transfers. Join our team:High quality Rainbow Trust cycling jersey Fundraising advice and support from our friendly Sports Team to help you reach your target. If you have any questions please complete the enquiry form below or give the team a call 01372 220031

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  • Wing Walk

    Take a walk on the wild side and be a dare-devil for Rainbow Trust! Feel the freedom of flying at speeds of up to 135 mph, all whist standing on the outside of a plane! Manoeuvres will include steep turns, dives and zoom climbs, transitioning from positive -G to weightlessness, leaving you totally exhilarated! You’ll be able to bring along friends and family and they’ll be able to watch you as you fly directly above the aerodrome. Your wing walk will be organised through the challenge provider Sky Max, so you can choose a time and date that suits you! Walk for Rainbow Trust: You’ll receive a bright Rainbow Trust t-shirt An inspiring welcome pack full of fundraising ideas to help you hit your target. Dedicated support and advice from the Sports Team! Upon the completion of your registration, your contact details will be passed across to Sky Max to allow them to confirm the time and date of your booking. Requirements:You must weigh no more than 77kg (12 stone 2lbs) You must be between 18 and 65 years old You must be medically fit and able to climb to the wing walking rig on the top wing (approx 1...

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  • Climb Kilimanjaro

    Conquer Mount Kilimanjaro on this incredible 10 day trip and help us to support more families who have a seriously ill child. Trips take place throughout the year, the optimum time to climb is between the end of December - March and June - October. However you can choose any date that suits you! Mount Kilimanjaro is Africa’s highest mountain as well as one of the world’s largest freestanding volcanoes. Its peak stands at 5,895 metres above sea level and as you climb towards its mighty snow-capped summit, you will pass through every ecosystem known to man. ‘Just a quick note to say that we’re all back safe and sound and had a fantastic experience. Thank you very much for your support, I hope that Rainbow Trust benefits as much as we did.’ Rainbow Trust Kilimanjaro conqueror. We work closely with organisers Action Challenge to ensure you get the most out of this incredible trip and have a truly memorable life experience, and we recommend their 10-day Machame Route, which is widely regarded as the most beautiful and provides an excellent opportunity for you to acclimatise to the altitude. Join our team To fund your trip with sponsorship money, you...

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  • 3 Peaks Challenge

    Conquer the Three Peaks for Rainbow Trust and help us support families who have a seriously ill child. This is your chance to tackle Britain’s highest peaks - Ben Nevis, Scafell Pike and Snowdon - all in the space of 24 hours. It will include a total of 480 miles of road travel, largely during the night and climbing a total of approximately 3,000 vertical metres. This challenge is great in a team, so why not encourage your friends and family to take part with you? We’ve teamed up with Maximum Adventure to ensure you get the most out of this incredible experience, this awesome adventure can be booked on a variety of dates between May and October! Join us We’d love you to join our team! The most popular option is often to raise a minimum sponsorship - you’ll need to pay a £99 registration fee and raise a minimum of £650 (80% of this target needs to be raised 10 weeks prior to the trip, the remainder can be raised up to 4 weeks after). What we can provideA bright Rainbow Trust t-shirt and some crazy rainbow hair Fundraising advice and materials to help you hit your fundraising...

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  • Skydive

    Imagine feeling the rush as you free fall at 125mph from 10,000 feet above the ground - skydiving is a truly once in a lifetime experience! Skydive for Rainbow Trust and help us to support more families who have a seriously ill child. Your skydive will be organised through the booking provider Skyline. You can therefore choose from a range of airfield locations to take on the challenge and pick a date that suits you.‘You wouldn’t expect or believe that someone would jump from a plane for fun, but we did and there’s nothing to match the thrill of the feeling - unforgettable in the best way and for a great cause!’ Jordan Jump for Rainbow Trust:You’ll receive a bright Rainbow Trust t-shirt A fundraising pack full of ideas Support and advice from the Sports Team. To find out more please contact the Sports Team or call 01372 220031 *You’ll need to raise a minimum of £450 to cover your cost if jumping in Scotland or Northern Ireland.

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  • One Step at a Time - 5k

    5k any day, your way. Sign up to run, walk or cycle for families caring for a seriously ill child. One Step at a Time is about giving families the one thing we all wish had more of in family life, time. When a child suffers from a serious illness, time becomes more precious than any of us can imagine. Our Family Support Workers give even the strongest parents a moment to let their guard down, siblings a moment to feel special and enable sick children to be children. Whatever tomorrow brings for the families we support, sometimes we all need a moment to pace ourselves, spend time together and celebrate the milestones we make every day.“I can’t look too far ahead, we have to take it slowly, one step at a time .” – Cleo’s mum Whether you tackle your 5k in one go, over a week or a month. Sign up to make every step count.How it worksSign up to take part for £20 Complete your 5k your way Submit your results online: this could be a screenshot of a fitness app or post activity photo! Get your medal

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  • Spooky Fundraising at Chessington Garden Centre

    We would like to say a huge thank you to the 70 volunteers that helped us over the October half term at Chessington Garden Centre in Surrey. Our team of enthusiastic volunteers, a mix of children, adults, students and corporate teams, provided spooky fundraising games for families in exchange for donations, including face-painting, pumpkin hunts and a ‘Slime-bola’. Regional Fundraiser Gaby Richardson who organized the event said: “It was an amazing 8 days with people from all sides of the community helping out for the week. We had loads of prizes, sweets and scary faces being painted. Even though it was our Halloween week it definitely got people looking forward to Christmas with the garden centres decorations already up and shining bright. We are already looking forward to Easter at Chessington in 2020” A total of £3700 was raised which is fantastic. Thank you to everyone who helped.

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  • Meet Chloe, our Office Admin Volunteer and Room to Reward winner

    A volunteer who has given more than 2,500 hours of her time to Rainbow Trust has won an award celebrating her dedication and commitment to volunteering. Chloe Smith started volunteering at Rainbow Trust seven years ago, after looking for an opportunity to give back to her local community and support children and their families. Chloe volunteers at our Head Office and has helped with a wide variety of tasks over the years. She was nominated by three different members of staff – a real testament to the impact she has as a volunteer. She volunteers for a day and a half per week, supporting with a range of tasks including counting all of the cash that comes in each week, research projects, as well as being a pro with the laminator and proofreading all of our family assessment packs as she assembles them. Nothing is too much trouble for Chloe, and she gets stuck in to even the most repetitive of tasks without a grumble. Everyone knows Chloe and stops by to say hello to her – she is such a positive person who brings a smile to everyone, both staff and other volunteers and she makes the office brighter...

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  • What can seriously ill children expect from the re-elected government?

    As seriously ill children and their families prepare to make the most of precious time together this Christmas, MPs new and old are taking up their seats in Westminster, and government ministers are returning to their desks. What can families of children with life threatening and terminal conditions expect from the new government? With a large majority, the Conservative government has the power to implement its manifesto promises in full. These included:To make hospital parking free ‘for those in greatest need, including disabled people, frequent outpatient attenders, parents of sick children staying overnight’ To ‘treat mental health with the same urgency as physical health’. To legislate to enable employed parents to take additional leave when a baby has required neonatal care To publish a National Strategy for Disabled People, to include looking at the benefits system, access to housing, education, transport and jobs, and support for children with Special Educational Needs and Disabilities. To help patients with multiple conditions to have ‘simplified and more joined-up access’ to the NHS. To develop new treatments, including extending the Cancer Drugs Fund into an Innovative Medicines Fund which could provide advanced treatments for conditions such as cancer or autoimmune disease, ‘or for children...

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  • George Michael: celebrating his memory

    George Michael was introduced to Rainbow Trust Children’s Charity by the late Pat Foxton, wife of The Jam’s singer, Bruce. Pat used to work with George and when she started working for Rainbow Trust, she talked to him about our work and the importance of the support we give to life-threatened or seriously ill children and their families. When George went on to meet Bernadette Cleary, our founder, they warmed. They had long chats about issues affecting society in the UK at the time and Bernadette remembers clearly that George was amazed at how and why she set up the charity. He was a philanthropist and was really impressed that a person would selflessly dedicate all of her time to looking after seriously ill children and their families. He admired how Bernadette, after realising the great need for support, decided to set up the charity to make the movement bigger, to be able to reach more seriously ill children and their families. George’s active involvement with Rainbow Trust manifested in different ways. He donated the royalties from his duet with Elton John Don’t Let The Sun Go Down On Me, a number one in the charts released in 1991, and...

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  • Why I would encourage other companies to partner with Rainbow Trust

    We spoke with Rachel Hall at St. James Group about their experience as a Corporate partner with Rainbow Trust Children’s Charity. How has partnering with Rainbow Trust helped St James fulfil its CSR objectives? Partnering with Rainbow Trust has helped us to fulfil the values and the mission of the Berkeley Foundation – the charity arm of our organisation. With this in place, each operating company within the Berkeley Group has a designated local charity that they support. “Our partnership with Rainbow Trust started five years ago when we had our office in Leatherhead. Berkeley had the vision to build community and help the local places where we build, so partnering with the Rainbow Trust has helped us to fulfil that vision.” How do you feel the charity resonates with the employees and how do the employees get behind the cause? It’s a great cause. We constantly keep our employees engaged with the charity which involves updating them on the work that the charity is doing with different families across the UK. We also have monthly office fundraising activities. We have annual activities such as our quiz night and go-karting day. Not only that, Rainbow Trust is very hands-on themselves...

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  • Five policy areas affecting seriously ill children and their families in 2019

    As the year draws to a close, we reflect on 12 months of Rainbow Trust’s policy and influencing work. From small steps forward to concrete changes, we’re proud to have used our voice to push for better emotional and practical support for families with a life threatened or terminally ill child. Here are our top five positive policy stories from 2019: 1. A spotlight on siblings of seriously ill children As the year began, Rainbow Trust’s report, See Us, Hear Us, Notice Us, focused attention on the needs of siblings of seriously ill children. The report set out how sibling support can help children learn important coping mechanisms and find an outlet for their strong feelings. As a result, many parents, adult siblings and professionals signed an open letter to the Care Minister and the Children and Families’ Minister, delivered in person by three siblings supported by Rainbow Trust’s Central London team. The letter called on the Ministers to ensure all children and young people with seriously ill brothers and sisters have access to high quality sibling support when they need it, before their education, mental health and wellbeing are more seriously affected. Several MPs tabled parliamentary questions to which...

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  • Hi, my name is Ben

    Hi, my name is Ben, I am 13 and have Spinal Muscular Atrophy which is a rare neuromuscular disability. This means that the signals from my brain don’t get to the muscles in my arms and legs properly. Consequently I cannot walk and need twenty –four hour support for all of my personal care. I have an electric wheelchair which has a controller that can connect to a computer using Bluetooth, so I can activate and use the cursor on a computer screen with my wheelchair joystick because I can’t use a regular mouse. It also means I can use a PS3 using a special connection, something I couldn’t do otherwise. My wheelchair is my lifeline and I couldn’t do without it. My family and I have fantastic support from Rainbow Trust and our family support worker called Jayne. She comes around and gives my parents a break by bringing different messy activities for my sister and I to do and enjoy for an hour or two including baking cupcakes and arts and crafts. Rainbow Trust points us to different charities and activities that they think may be able to help us. This is important because Mum and Dad don’t...

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  • Take part in The Big Hour

    Rainbow Trust’s biggest fundraising event, The Big Hour is back this year, bigger and better than before! Sponsored by Wright’s Baking a third year in row! Help us out this October by spending your extra hour wisely organising a tea time for family and friends when the clocks go back (Sunday, 26 October). Bake and sell cakes during this tea time to help raise money in supporting families that have a child with a life threatening or terminal illness. More information and sign up here.

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  • Thank You Deutsche Bank

    On behalf of everyone at Rainbow Trust, especially the families we support, ‘I would like to extend my heartfelt thanks to every employee at Deutsche Bank who has given time and money this year, helping to raise over £840,000.00, this phenomenal amount of funds means we have been able to provide nearly forty thousand hours of support to families who have a terminally ill child. From diagnosis, through treatment and beyond, with your help we have been able to support 1,660 families in 2014. Thank you just doesn’t seem enough’ Heather Wood, Rainbow Trust CEO Over the past year Deutsche Bank employees have undertaken some incredible achievements including: Funding 40,000 hours of support to families with a terminally ill child Volunteered 210 hours of their time Over 377 Deutsche Bank employees competed in over 22 fundraising events, including DeutscheBike 2014, which saw a total of 160 employees getting on their bikes A total of 54,512 metres have been scaled by Deutsche Bank teams, and over 900 miles were walked through our challenging treks 90 employees signed up to take part in the Big Hour to raise awareness of the importance of time for families that Rainbow Trust supports £29,945 was...

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  • SAVE 50% when you join us for the Ultra Challenge Series

    For the first time ever, Rainbow Trust has teamed up with Action Challenge to bring our supporters an exclusive offer across the Action Challenge Ultra Challenge Series. Rainbow Trust has worked with UK and international challenge event organisers, Action Challenge, for a number of years and is extremely excited to be working even closer with them in 2015. The Ultra Challenge Series is made up of five endurance treks that take place in various locations across the UK. From picturesque countryside to the South Coast, or the banks of the Thames, all the events allow you to choose your distance and walk, jog or run. These are not just challenges but unique experiences to complete your challenge your way! Rainbow Trust is proud to be an official charity partner of the brand new event, London 2 Cambridge Challenge for 2015. Taking place 29 - 30 August, the route starts near the Olympic Park and heads up the Lea Valley through stunning countryside and on to Cambridge, from one historic city to another. There are several distances to choose from including the Capital Marathon Challenge, the ultimate off-road marathon event perfect for those wanting something different, and there is also a...

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  • Father hits the ground running to raise funds for Rainbow Trust

    A father of a terminally ill child in Swindon ran the Bath Half Marathon alongside his Family Support Worker and 11 other runners for Rainbow Trust Children’s Charity on Sunday 1 March. The determined pair underwent a rigorous training regime to prepare for the 13.1mile challenge and have been raising money amongst family and friends to support their efforts. The Bath Half Marathon is not only a first for the Family Support Worker, but is also the first time Rainbow Trust has entered a team into an event in the South West. All money raised are in aid of the charity, which supports families caring for a child with a life threatening or terminal illness. Chris Garlick (pictured above) is a Rainbow Trust Family Support Worker from the Swindon care team who provides emotional and practical support to families in the area. He says: “This was truly personal to me as it is work-related but I also love a good challenge. We want to raise as much money as possible so that the charity can support more families across the South West.” Matt Hunter, from Devizes, is supported by Chris, particularly before and after his son Joe sadly died last...

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  • Rainbow Trust responds to Review of Choice in End of Life Care

    Rainbow Trust welcomes the new report offering a ‘blueprint’ for future choice in adult end of life care. This is an important step in recognising the need. Anne Harris, Director of Care for Rainbow Trust said: “It’s not just adults who aren’t being given appropriate choice about their care or the support needed to make informed decisions; in our role, as the biggest organisation providing children’s social palliative care in England, we also know that children are not getting these choices either. We urge the government to give equal weight to the choice of children too and consider the resources required to make these choices a reality. Funding and expert infrastructure are urgently needed to give parents and children a say in the way they are treated at the end of their lives. If the child and family would prefer to be at home at end of life then we need to be able to offer consistent, fast access to 24 hour medical and social care to support them. The 2012 University of Leeds report ‘Rising National Prevalence of Life-Limiting Conditions in Children in England’ highlights that there are 49,000 children in England that may require palliative care so the...

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  • Where does social palliative care currently sit within provision and why is it so important?

    When I first joined Rainbow Trust back in 1988 the need for specialist children’s palliative care services was just being recognised and the UK was leading the way. It was a really important time to be at the forefront of shaping children’s palliative care, and in particular for me in creating support for all the family, when and where it was needed offering choice and flexible services which were not available. This type of care is very important. Families are coping with caring for a life threatened or terminally ill child, one of the most traumatic times of their lives, and the impact is on the whole family creating enormous strains on parents, siblings and wider family members. They need support suitable for their family, when and where it is best for them. This is particularly important for dealing with crises and for end of life care. As identified in the Department of Health review of children’s palliative care in 2007 this support was, and is, simply not widely then available and Rainbow Trust fills this gap. Sometimes families need help getting to and from hospital appointments. Rowan is seven and this makes a huge difference to her family’s life...

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  • Gestamp Tallent Ltd raise £6,350 for Rainbow Trust

    Just over a year ago, Gestamp Tallent Ltd, an automotive company based in Newton Aycliffe in County Durham, selected Rainbow Trust Children’s Charity as its charity partner. Since then, the staff have been busy fundraising in all sorts of imaginative ways. As well as festive Christmas fundraising and numerous cake sales, they organised a summertime fun day and lots of other activities inside and outside of the office. Thanks to their tremendous effort, £6,350 has been raised for Rainbow Trust so far which will go towards supporting families who have a child with a life threatening or terminal illness. It is down to those like the staff of Gestamp Tallent Ltd that we are getting closer to our vision of one day helping all families in the UK who face this situation. We were so pleased to have been chosen to work with a great local company who are so committed to helping good causes. The enthusiasm and dedication shown by staff has been fantastic. We want to say a big thank you to everyone that got involved and helped raised this brilliant amount of money as it will make a real difference to the families we support. Holly Jenkins...

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  • Rowan's journey

    When Rowan’s family received the heart breaking news that she had a brain tumour, they were devastated. Beth, Rowan’s mum, said that learning to cope was her only option. Coping with the thought that she may die as well as the practical issues of caring for a seriously ill child. Beth and her husband, Will, are self-employed and worried about how they would manage financially, juggle appointments and cope with long stays in hospital. They were also concerned about how their other two children would adjust to the sudden and dramatic upheaval of family life. Life as they knew it was turned upside down. Fortunately, they were introduced to Rainbow Trust Children’s Charity and I made initial contact with the family as soon as they needed it. When Rowan’s parents were anxious and afraid and needed someone to talk to, I was there to listen and help them understand. When the family had to endure the 100 mile round trip to attend specialist hospital appointments, I was able to help with transport in my Rainbow Trust car. When Rowan, pale, tired, frightened and clutching her beloved cuddly bunny, was waiting to attend chemotherapy, I was there with her mum, to...

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  • Motor claims Industry shows some love

    On Friday 13th February, the UK’s motor claims industry came together to fundraise for Rainbow Trust. For the fifth year running, ‘I Love Claims Day’ saw dedicated staff at 25 companies in almost 100 locations join forces to build upon the £300,000 already raised in previous years. Employees wore red to work in the spirit of Valentine’s Day as well as organising cake sales, raffles, tombola’s and quizzes in a bid to raise as much money as possible for the children’s charity. ‘I Love Claims Day’ is an annual fundraising day organised by the industry’s leading communication, insight and networking forum ‘I Love Claims’. The companies involved are passionate about Rainbow Trust and its support for families with a child who has a life threatening or terminal illness - they throw themselves into their fundraising efforts each year. This time they went even further for the charity with Laird Assessors taking to the slopes dressed in red on their annual ski trip and brave men from numerous companies volunteering to have their legs waxed! As well as ‘I Love Claims Day’, the industry raises money for Rainbow Trust all year long through networking events, awards nights, car rallies, golf days...

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  • TV presenter Mary Nightingale presents radio 4 appeal

    Rainbow Trust is urging its supporters and the general public to listen to a special charity appeal launching on BBC Radio 4. The broadcast, presented by television presenter and Rainbow Trust Patron, Mary Nightingale is due to air Sunday, 22 February. The appeal features the story of a little girl called Rowan and her family who Rainbow Trust is currently supporting as she goes through treatment for a brain tumour. It is hoped that donations from listeners will help raise much needed funds for Rainbow Trust’s current appeal to raise money for Family Support Workers across the country. You can listen live or online on the BBC Radio 4 Appeal webpage after the initial broadcast. Click here to donate. Thank you. Mary Nightingale, has been a loyal and enthusiastic supporter of Rainbow Trust for many years. “I do hope that the public will tune-in to find out more about the marvellous work of Rainbow Trust and, at the same time, show their support by making a donation. You can’t imagine how you’d feel if your own child was diagnosed with a life threatening illness. It’s hard to picture the impact that this would have on your life. Rainbow Trust steps...

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  • Spread the Rainbow Love this Valentine’s Day!

    Support Rainbow Trust this Valentine’s Day and buy a cute heart-shaped soap for your loved one. Produced especially for the charity and re-branded as Rainbow Love, premium soap company Sudzfun will donate £1 to Rainbow Trust for every soap they sell. A great gift for all ages that also raises funds for your favourite children’s charity – what’s not to love? Order today! If you’re looking for other gift ideas for February 14, and beyond, check out some of our other generous corporate partners who donate money to Rainbow Trust from the sale of their products: Tinc will donate 65p for every multi-colour and scented pen pack purchased; perfect for creative kids looking to design the perfect Valentine’s card! Show your love for even the smallest people by kitting them out in a gorgeous Lilly & Sid outfit - £3 will be donated to us from every Baby Giftset sold online And British-made brand Funky Feet Fashions have a fantastic range of heart-emblazoned products including soft baby shoes, baby hat and cushion - £1 from every product bought online comes to Rainbow Trust. Walk this way! Or for something a bit different, check out Holly & Beau’s magical children’s swimwear...

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  • FTI Consulting names Rainbow Trust as its Charity of the Year

    Firm aims to raise £30,000 to help families with terminally ill children FTI Consulting is delighted to announce that its UK employees have chosen Rainbow Trust Children’s Charity as its 2015 Charity of the Year. The global business advisory firm, which operates in 26 countries across the world and employs over 600 people in the UK, has committed all of its annual fundraising efforts to help the charity. Rainbow Trust will fundraise, increase awareness and engage with all of FTI Consulting’s UK-based employees throughout the year, as it seeks to raise vital funds to help support more families with a life threatened or terminally ill child. Chris Osborne, Co-Chairman of FTI Consulting EMEA region, said: “I’m proud that we have chosen Rainbow Trust Children’s Charity as our chosen charity partner for 2015. Its work is critical to ensuring that seriously ill children and their families are given much-needed emotional and practical support, and we look forward to supporting their activities through fundraising and volunteering over the coming months.” Heather Wood, Chief Executive of Rainbow Trust said: “We are absolutely delighted to have been selected as FTI Consulting’s Charity of the Year 2015. The partnership will have a huge impact for...

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  • New chairman appointed to lead Rainbow Trust Children’s Charity

    A new chairman to lead Rainbow Trust Children’s Charity, which supports families caring for a seriously ill child, has been announced. Mark Cunningham has been a Trustee of the charity for several years already and will take over from previous chairman, Gordon Tempest-Hay. Working with the other Trustees at Rainbow Trust, Mark will oversee the charity’s continued growth strategy. He has a wealth of knowledge, having sat on the boards and Committees of a number of charitable organisations including The Caldecott Foundation, Hope Appeal and the Executive Committee of the Friends of Covent Garden. Mark has worked in the finance industry for over 25 years and has had a series of leadership roles in different companies. He is now a managing partner of Holbein Partners LLP. Mark said, “I am proud of the solid foundation that has been built by the staff and Trustees at Rainbow Trust. We now care for 45% more families since Gordon began as chair in 2011. My thanks to Gordon for his contributions and for creating the strong position that Rainbow Trust is in today. I look forward to exploring new enterprises to further develop Rainbow Trust and help even more families in the years...

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  • Camp Hill Christmas Fair raises £6,000

    Every year the beautiful Camp Hill estate in North Yorkshire opens its doors to the public for its annual Christmas Fair, where they invite local companies to come and sell beautiful Christmas gifts. Now in its 18th year, the fair continues to raise fantastic amounts of money for charities including Rainbow Trust and have raised over £160,000 for various causes so far. Camp Hill are long term supporters of Rainbow Trust with owner Jo Ropner being one of our Patrons. This year the fair raised a fantastic £6,000 for Rainbow Trust. We are absolutely delighted with the amount raised by this years Christmas Fair, the continued support of Camp Hill and Jo Ropner helps us tremendously to reach our goal of supporting more families in the area. We would like to thank everyone who helped make the event a success. We are already looking forward to this years event! Holly Jenkins, Regional Fundraiser North East

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  • Impact Report

    Rainbow Trust Children’s Charity launched our annual Impact Report today, detailing our key achievements for 2013/14. The report, available online and in print, features detailed information on how we are performing, our progress towards meeting our goals and celebrates the positive impact Rainbow Trust has when supporting families with a seriously ill child. 2013/14 saw a 24 per cent increase in the number of families we support, taking our total to 1,692, a huge step towards our goal of one day helping all families who have a child with a life threatening illness and need our support. Our 53 Family Support Workers, working across England, provided 10,410 hours of home support helping families make home life a little bit easier. They provided 7,671 of hospital support, attending appointments and offering respite to parents in hospital with their child. In total they travelled 906,118 miles, the equivalent of 36 laps around the world, transporting families to hospital appointments and running errands, that’s two more laps that last year! Supporting the whole family remains a continued focus for us with four new sibling groups launched across the country as well as a hospital in-reach group in Newcastle. In total we spent 3,39...

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  • New year, new challenge?

    With the start of the New Year, we often begin to think about what we would like to accomplish in the following months. Many of us will consider signing up for a challenge, whether it’s something we have done before, or something entirely new. We take on challenges for many reasons - getting fit, losing weight and facing our fears are just some of them! When you take on a challenge for Rainbow Trust not only will you have an unforgettable life experience, you will be helping to make a real difference to the lives of the families that are supported by Rainbow Trust. That experience begins when from the moment you sign up. Our Events team is dedicated to ensuring you are supported throughout your challenge from sign up and fundraising advice, to cheering you on during and after your challenge. Your will be sent fundraising materials, a branded top to wear, and we will be in contact with you as much, or as little, as you would like to make the experience as smooth as possible, helping you to achieve your goals, both personal and financial. “The challenge was tough, heavy rain meant the trails were muddy, but...

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  • Christmas shopping with Rainbow Trust

    It’s that time of year again – Santa and his elves have been working hard with Christmas preparations, friends and family are braving the hustle and bustle of the high street, and we are all left wondering what to choose from the packed shelves! A number of our corporate supporters have gifts that are benefiting Rainbow Trust so we thought we would try and make your choice a bit easier. Tinc is inviting you into their colourful world this Christmas by donating 65p for every multi-colour and scented pen pack purchased. Coco5, the all-natural hydration drink, are donating 5p for every bottle sold this year. The perfect gift for the athlete or health conscious person on your Christmas list. Coco5 aim to raise £20,000 for Rainbow Trust next year, help them reach this goal! Lilly & Sid, a best-selling luxury children’s wear brand, will donate £3 from each Baby Giftset sold online. From festive baby playsuits to colourful, cosy sock-sets, they make perfect presents. Lilly & Sid are spreading the festive cheer even further by offering a £5 off voucher redeemable against any of their gorgeous baby and children’s clothes when you enter the code rainbow at checkout (valid until...

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  • An exclusive evening at Frieze Art Fair

    We are excited to announce that Rainbow Trust is hosting an exclusive evening reception at Frieze Art Fair in London. The event, taking place on Thursday 16 October, invites guests along to view the art on display at the fair, and afterwards enjoy drinks and canapés in a private lounge where a live auction of contemporary art will take place. There is also an online auction running until 20 October, featuring a selection of limited edition prints by contemporary artists and unique art experiences. Items for the live auction will include a new painting by Maggi Hambling ahead of her November show at the National Gallery, and oil paintings by renowned artists Arturo Di Stefano and Paul Benney. Rainbow Trust’s Event Manager, Judith Osorio, says: “We are really happy to be hosting such an exciting opportunity for art enthusiasts. The event will give people the chance to view and bid for some exquisite artwork, while enjoying the exclusive evening reception. As we rely almost entirely on fundraising, events like this really help to ensure families get the vital support they need, when they need it most”. This wonderful opportunity has been gifted to us by our corporate partner, Deutsche Bank...

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  • Kemish family shines at London Carol Concert

    On Thursday 4 December Rainbow Trust celebrated the start of the festive season with their sixth London Carol Concert. Held at the beautiful St. Paul’s Church in Knightsbridge, the concert treated guests to a wonderful mix of musical performances, festive readings and congregational hymns. Dominic West, Sheila Hancock, Rupert Penry-Jones, Pippa Haywood and Gillian Wright all gave fantastic readings, some of which added a welcome touch of humour to the evening, and guests enjoyed musical performances from the Hailo Singing Cabbies, Thomas’s Clapham Chapel Choir and operatic ensemble Canteremo. The real stars of the show though were the Kemish family from Totton, Southampton. McKenzie Kemish was just two years old when he was diagnosed with cancerous tumours in his neck (Stage 4 Neuroblastoma). He was then diagnosed with a disease that destroys red blood cells and causes kidney failure. He underwent six months of chemotherapy, then surgery, then radiotherapy which involved a general anaesthetic every day for three weeks. Amberley and John, McKenzie’s mum and dad, met Rainbow Trust Family Support Worker Dawn Pond and told her, “We needed someone to bring the fun back into our children’s lives as they’d lost it since McKenzie’s illness.” Amberley, McKenzie’s Mum Dawn...

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  • A message from Carol

    ​My daughter Kia has battled health problems since birth. Kia has a genetic disorder that’s so rare, it took seven years for doctors to understand. Those years involved regular trips to the hospital with several illnesses (some life threatening) tests and visits to different specialists. The emotional and financial strain on our family was enormous. I had to give up work and we couldn’t afford a mortgage on just Dean’s wage. It was hard juggling my time between the hospital and home, especially when my son, Brayden, started school. It became too much. Kia desperately needed a bone marrow transplant after an intensive course of chemotherapy which caused her hair to fall out. That’s hard if you’re a 12-year-old girl. Following the transplant Kia had to spend 42 long days in hospital isolation. We went from isolation in hospital, to isolation at home. It was just before Christmas when Kia came home, but her immune system was so low she couldn’t go outside for three months and we had to be careful who came round. I found it very hard to cope. It was then that we were referred to Rainbow Trust and we met out wonderful Family Support Worker...

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  • SACA Charity Bike Ride raises £30,000

    Rainbow Trust Children’s Charity has been proudly supported by SACA Charity Bike Ride throughout 2014. Hundreds of riders from across the UK took part in the Birmingham to London bike ride over the Summer. The cycle ride attracts riders from all over the country, as well as international riders, and each year and involves months of planning to ensure the event is amazing. Riders start in Birmingham and then travel through Coventry, Daventry and Bedfordshire before reaching Luton. The second day then continues through St. Albans, Radlett, Elstree and Harrow, reaching the final destination in Southall, West London. Each year, SACA selects a children’s charity to benefit from the money raised as part of the event. Over the last 30 years, the event has raised in excess of £380,000 for different children’s charity groups. SACA, who celebrates their 30th anniversary this year held a presentation over the weekend at the University of West London and was delighted to present Rainbow Trust with a cheque for an incredible £30,000. Community Fundraiser, Zoe Clarke said, “We cannot thank SACA enough for their dedication and commitment to supporting Rainbow Trust. This generous amount of money will help us to reach more families in 2015.”

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  • Sunshine girls bring light to Rainbow Trust

    We would like to say a huge thank you to the Sunshine Girls for hosting their charity soul night in support of Rainbow Trust Children’s Charity. The Sunshine Girls are a group of lady DJ’s who get together once a year to put on a fantastic charity evening. This year Rainbow Trust were lucky enough to be their chosen charity. During the evening guests danced the night away to original vinyl classics from the Northern Soul scene and Motown. The ladies enjoy coming together to share their love of music and their passion for making a difference in their community. Their fantastic efforts this year raised £2,261 which allows continue to provide our valuable service to families and have agreed to support Rainbow Trust again in 2015. Their next event will be on 12 September 2015 and they are looking to make it even bigger and better! We cannot thank the sunshine girls enough for their support and look forward to working with them again.

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  • Rainbow Trust partners with the first London 2 Cambridge Challenge

    Rainbow Trust Children’s Charity has been selected as an official Event Partner for Action Challenge’s brand new London 2 Cambridge Challenge. The charity, which supports families caring for a seriously ill child, has worked closely alongside Action Challenge on several events previously, but has now become an event partner for the first time. The London 2 Cambridge Challenge links two of the UK’s most historic cities, starting close to the Olympic Park and then following Lea Valley out of the Capital towards Cambridge. Rainbow Trust has three care teams based in the surrounding areas of the route supporting 230 families and is hoping to raise £10,000 from the partnership, which will help the teams continue providing emotional and practical support to families. Maxine Edwards, Events Executive at Rainbow Trust says: “We are delighted to be an official event partner for the London 2 Cambridge Challenge. We rely almost entirely on fundraising so events like this are vital for us to carry out the important work we do, ensuring families with a terminally ill child get the support they need”. Taking place next summer, the challenge is an endurance trek which participants are able to walk, jog or run. Individuals can...

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  • Watch Rainbow Trust on this year’s BBC Children in Need appeal show

    We’re delighted to announce that this year Rainbow Trust will be taking part in the BBC’s Children in Need appeal night on Friday 14 November. One of our Family Support Workers, Sean Tansey, was filmed by the BBC, and features in a film aired during the evening show. Sean’s role is currently funded by BBC Children in Need, the video showcases the work he is able to do as a result of this. The film follows him as he visits four families that we support in the Manchester area, showing the different ways we help them, including emotional and practical support for the whole family, transportation to and from hospitals and schools, and sibling support. Sean tells us, “Being a Family Support Worker for Rainbow Trust has given me the chance to make a difference to families’ lives in such difficult situations. Every day is different and you have to be flexible in order to offer tailored support to each family. It’s amazing to witness the courage that these children have.” We currently have 45 Family Support Workers supporting almost 1,700 families across nine regions, including: Central London, Cumbria, Durham, Essex, Manchester, Southampton, Surrey, Swindon and West London. Read more...

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  • Meet Sean, our Family Support Worker, who featured on BBC Children in Need

    Sean who featured on BBC Children in Need 2014 answers a few questions on what it’s like being a Family Support Worker and why he loves his job. Tell us a bit about your background I have always worked with children and families in various roles from a Contact Worker for Children’s Services, SEN Teaching Assistant to an Early Years Practitioner. I joined Rainbow Trust in September 2013 and I chose the charity because of what it does, the challenges of the role and to have the chance to make a difference to families coping with such difficult situations. What do you love the most about being a Family Support Worker? I enjoy meeting lots of families in different situations. Seeing the children’s faces when I arrive at the family home or hospital makes the job very worthwhile. I love playing music with the children too. What does a typical day consist of? Every day is different and you have to be flexible to offer tailored support to each family. The day may begin with a school drop off for brothers and sisters which takes some pressure off parents. I can spend quite a bit of time at the Royal...

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  • Why the clocks going back this weekend should remind families to use time wisely

    When Tilly-May Sommerville from Bristol was born in November 2006, her parents, Jenny and Richard were overjoyed at her arrival, but at the same time were heartbroken. This is because Tilly-May was born with part of her brain missing. That wasn’t the end of Tilly-May’s condition either as she was also born blind with Cerebral Palsy. Doctors explained to the family that they didn’t expect her to live past two. However, when she went past that, the family were told that children with similar conditions who surpass two years don’t live beyond seven. Tilly-May is now six and turns seven in November. This week Rainbow Trust Children’s Charity is using the extra hour given to us when the clocks go back on October 26th to remind people of the importance of an hour of family life and encourage others to use that time wisely. Tilly-May’s parents talk about how precious time really is to their family. Tilly-May’s story Tilly-May requires 24/7 care, which can put a strain on the family as she also has an older sister, Emily, an older brother, Ben, and a younger brother, Dylan. “It’s especially hard when I am in hospital with her as sometimes I...

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  • Albert Bennett, Burma Star - RAF 155 Spitfire Squadron and long term supporter turns 100

    You would think turning 100 may be a quieter occasion than other birthdays but not for Albert. For his 100th birthday he decided to have an open house from 10am-10pm! He had a never ending stream of visitors including a number of children from a local school who came and sang Happy Birthday. The celebrations didn’t stop there. He has been busy lunching with friends and on Friday evening a friend surprised him with a party at the Crayford British Legion, attended by the Mayor of Dartford Councillor Avtar Sandhu MBE, and the legendary Spitfire pilot Ginger Lacey’s daughter Diana along with other family and friends. Albert is a keen letter writer and has files full of letters from members of the royal family, military personnel and celebrities. His aim was to receive 100 birthday cards and thanks to one of Albert’s friends who posted messages on social media he smashed that target receiving over 200 cards and messages from all over the world. Albert has been supporting Rainbow Trust for 19 years after he and his late wife Betty heard Esther Rantzen interviewing Bernadette Cleary (the founder of Rainbow Trust). They were so moved by the interview they wanted...

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  • Family from South Shields talk about why every hour is important

    Llana Qazi from South Shields was four months old when her mother noticed she wasn’t feeding properly, was always hungry and slept a lot. Tests confirmed that Llana had an irregular heart rhythm and after being taken to the Freeman Hospital, she was diagnosed with a heart muscle disease and given a survival rate of just 10%. Rainbow Trust Children’s Charity is using the extra hour given to us when the clocks go back on October 26th to remind people of the importance of an hour of family life and encourage others to use that time wisely. Llana’s parents, Mohammed and Shazia Qazi, explain why time is so important to them. Llana’s story When Llana taken to hospital, she was monitored by doctors but after a fortnight she deteriorated and specialists moved her onto an artificial heart which helps pump blood around the body. She stayed on this for more than seven months while waiting for a suitable transplant, which was finally found 11 weeks after her body began to reject the artificial Heart. After 11 hours, the operation seemed to have been a success. Doctors told Shazia to go home for the night as she’d been away from home...

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  • Totton family holding special event to act as a reminder of just how precious an extra hour is

    In August 2011, two year old McKenzie Kemish, from Totton, fell off a chair and did what most boys do, he cried for a minute, then carried on playing. When his mum, Amberley, went to change his nappy, he screamed in agony. Throughout the day, she noticed he had a stiff neck which she assumed was from the fall. Amberley and her husband John, took him to Lymington Casualty where doctors said he had tonsillitis and could go home. Weeks later, McKenzie was still not right and after numerous visits to the hospital, Amberley noticed that he couldn’t turn his head and had a pea sized lump on the side of his neck. In October of that year, McKenzie was diagnosed with Stage 4 Neuroblastoma, a rare form of cancer. Life for the Kemish’s has not been the same since. Rainbow Trust Children’s Charity is using the extra hour given to us when the clocks go back on October 26th to remind people of the importance of an hour of family life and encourage others to use that time wisely. For McKenzie’s mother, Amberley Kemish who also has four other children, time means everything to her and her son. Mckenzie’s...

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  • The Big Hour is here!

    Our offices are buzzing at the fact that we actually have an excuse to bring in treats and eat more than we should be! We have some wonderfully skilled bakers in our mist and we can’t wait to try all of their tasty creations. They aren’t just delicious but also incredibly decorated. It’s a bake show in our very own kitchen which would make Mary proud. Last year was a huge success. Cupcakes and cakes filled our tables and stomachs so you can only imagine how much our stomachs are rumbling in anticipation for this year. The Big Hour is our time at the office to show off our skills and bring all our different departments together. Corporate, community, events, marketing, care and finance all cram into our kitchen in order to eat, chat, and laugh. It’s not every day that we are all able to spend an hour together, not stuck in a meeting, and enjoying each others company. The Big Hour brings our offices together. We hope it brings you closer with your friends, family or colleagues. Enjoy a cake baked by the guy from finance that you would have never guessed could whip up a delicious three...

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  • The Big Hour is almost here!

    Time has really seemed to fly by as the weeks have whittled away to now a mere few days standing between us and The Big Hour. There are so many things to do now, but it also seems like we have prepared for so long that there can’t possibly be anything left (but there always is)! As we have been busy planning and setting all the details of our own Big Hour Tea Time, I’m sure you all have been doing the same. Just narrowing down what type of tea you want to have is stressful enough (don’t look up ‘tea time’ on Pinterest…you’ll be there for days), and then actually having to arrange everything is another hectic process. Party planning is for the elite, so congratulations on being a champion and arranging your own event! Of course, we understand if maybe you’ve put off some of your planning (as I’ve said, time flies and procrastination is just too easy) but don’t worry. A week is plenty of time, especially with all of our easy access party supplies. All you need is a printer! Click over to our fundraising kit and download all of our invites (although we do hope...

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  • A brand new look for Rainbow Trust

    Rainbow Trust Children’s Charity launched a brand new look today to coincide with the launch of our new website. The new look, called ‘Facets of Light’, is the first brand change since the charity was established and was designed by London based brand agency Small Back Room. Rainbow Trust was established in 1986 by Bernadette Cleary OBE when a neighbouring family needed support for them and their child who was dying from a terminal illness. We now have nine care teams across England and we currently offer our vital support to almost 1,700 families. While the services we provide families will not change in any way, we feel that the new brand more closely reflects the tailored support we provide each family. watch this short animation explaining the journey behind our new look Rainbow Trust’s Head of Marketing, Oonagh Goodman, who led the brand re-launch says “We’re really excited about our new look. Feedback from our supporters and the families we care for told us that our profile needed updating. We needed a profile that better represented what we do and represented the field of work we are in – social care for the whole family of a child with...

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  • Zillah Bingley - Welcome Q&A

    This week, Zillah Bingley joined Rainbow Trust Children’s Charity as our new Chief Executive. Here she shares with us some of her first thoughts. What attracted you to Rainbow Trust? The emotional and practical support that Rainbow Trust offers to families is unique. I have experienced first-hand the heart-break that the serious illness and death of a family member can bring. I am particularly passionate about ensuring children and families have the emotional and practical support they need at one of the toughest times imaginable. What is your vision for Rainbow Trust? It’s early days yet and I think our priority should absolutely be supporting more families and continuing to develop partnerships in new areas, for example, working with other charities and with hospices. Are you planning to change anything? At the moment, I’ve no idea if anything needs changing – I’ll need to understand what works well, what, if anything, could be improved, and if anything could be, what we’re going to do about it together as a team. What inspired the move from corporate to charity sector? I did a lot of voluntary work for charities whilst working as a corporate lawyer. I worked in Romania as a...

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  • It's About Time

    For families living with serious childhood illness, time is everything. Not just for tests, treatments and the best care possible. But for the things that modern medicine can’t do. Time for playing. For making a mess in the kitchen. For being naughty. Time for brothers and sisters. For help with homework. For a treat. For a kick-about. Time for parents. For just a second to let your guard down. For talking. For listening. For a cup of tea. It’s the things that we often take for granted. But ask any family that we support and they will tell you: time makes all the difference. Because even in the shadow of a serious childhood illness, it’s the everyday moments that help a family keep being a family. It’s About Time. Right now, too many families are coping alone. With no support. Without a second spare for any of this. But with your help, we can reach them. We give each family a Family Support Worker to help them through. Not a website or a helpline. A real person who’s there for whatever they need, for as long as they need. For all the stuff that medicine can’t do...

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  • Our impact 2018/19

    Being told that your child is so seriously ill that they might die is something no parent ever wishes to hear. Nobody knows how they would react or how they would cope. And in this new world in which families find themselves, everyday life has to continue. This year we supported more families than ever before through our eight care teams, read how we helped families cope in our latest impact report. Download our 2018/19 Impact Report here.

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  • Your questions answered

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  • School life and friendships

    School can be a welcome break from a pressured home environment, but it may not always be easy. The logistics for parents to attend appointments for the ill child and manage their condition on a day-to-day basis means that parents can find nursery or school drop offs and collections difficult, and siblings’ clubs or hobbies may become hard to keep up. For some children, sleep disruption can affect their focus and concentration at school. For instance, their ill brother or sister may need to be given medicines at intervals overnight or perhaps an alarm rings if the child’s condition deteriorates, waking the whole family. Keeping up with homework can be hard, with time and energy at a premium. A healthy child may also feel isolated socially. When friends visit, they may feel embarrassment that their brother or sister looks different or needs equipment, or may, conversely, feel extra protective of them. Most express a wish they could enjoy a more ‘normal’ life. Unfortunately, some children experience bullying and teasing at school because their family is different. There are lots of practical ways that teachers can help. This can include:ensuring strong home-school communication regularly asking the child how they are on...

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  • How to help

    Healthy brothers and sisters will often benefit from time with a grownup who they know is there just for them. How much support they need will depend on many factors, such as the stage of the illness, their age, and the role of any extended family. Group outings and activities can reduce feelings of isolation by helping healthy siblings to meet children and young people in a similar situation. The best support will: Be normalising It’s helpful to maintain a child’s routine, with as many of their usual activities, meal times, existing rules and structures as possible.Be fun Many siblings feel isolated by their situation and the fact their family is different to that of their friends and peers. It’s great if healthy brothers and sisters have a chance to get out of the house, spend time with friends; continue hobbies, and enjoy one-to-one activities.Involve the sibling in the care of the ill child With the right support, healthy children can benefit from being involved in their sister or brother’s care, knowing that they have a role to play in the family. If their sibling is an inpatient, they can keep in touch using cards, texts, video calls, or recorded...

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  • Coping with stress and change

    Lots of things can change when a brother or sister is seriously ill. Parents often have less time to focus on healthy children, and routines have to change to fit around the needs of the ill child. Parents may need to attend frequent medical appointments or to stay with the ill child for in-patient treatment. For example, a child with cancer may need six weeks of radiotherapy treatment at some distance from the family home. Maintaining the normality of school, after school activities, homework and meals for healthy siblings can be very difficult. Brothers and sisters may need to help out at home with the extra tasks that come with their sibling’s care. The healthy child may struggle to understand what is happening. Explaining the situation can be frightening, but concealing it might damage their trust in their parents or carers. Some may wrongly worry that it was something they did which has caused the illness, but it can be difficult for them to share this anxiety. Children often recognise their parents’ anxiety and hide their own feelings in order to protect them. This can result in the sibling becoming withdrawn. It is also not unusual for a brother or...

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  • Activities

    One of our Family Support Workers shares an activity they do with siblings to help them cope and manage their emotions. One idea for working with siblings that I found useful was the following activity: You get all the siblings in the family to draw around then cut out their handprints, about 4-6 each is good. Then decorate the handprints however you like, this can range from simply sticking stickers on, to decorating the nail area with tiny gems or drawing henna designs on the hand. Then get a large piece of card (either black, brown or green) and cut out the shape of a tree trunk, then cut it up and out to make thick branches. Place the handprints on each of the branches. I used this once with an ill child and his two siblings, the ill child was too sick to decorate his handprint himself but his siblings helped to finish them off for him, the older sibling than wrote about five lines on white paper on how they loved each other, this was then glued at the bottom of the tree trunk. They presented it to their parents at Christmas about two months after the ill...

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  • Tips for working with siblings

    It can be difficult to know the right words to say. We asked some of the siblings we support for their top tips. Things to do when working with siblings: Get to know us; take time to talk to us and find out what we like and what’s going on in our lives. Learn about our whole family so you can talk to us about it. Take us out; we spend a lot of time in the house so getting out gives us a break. Make things with us, using arts, crafts, and writing helps us to think about how we feel and talk about things we find difficult. Treat us equally, we know we are different but don’t make us stand out. Be honest with us, tell us what you can about our siblings’ health and make sure we know what days appointments are on and what thee appointments are for. Not knowing makes us worry. Try to talk to us about the future, even if you can’t give us answers. Let us say what we think, even if you don’t agree with us. Listen to us, you don’t always have to give us solutions, we just want someone...

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  • What is sibling support?

    Sibling support refers to support given to brothers and sisters of seriously ill children. It might be spending time playing, talking or going to the park with a Rainbow Trust Family Support Worker, or going along to a group to meet other children in the same situation. Brothers’ and sisters’ needs for support will be fluid and will change at different points:Some will have known no other experience of family life Some may not need in depth support. Perhaps the sick child is in a stable phase of illness, or there are existing strong family support networks Other children may have a sibling who suddenly becomes ill. For them, their world may be turned upside down in a matter of days The brothers and sisters of seriously ill babies may be unable to meet their baby when they are in intensive care for some months A child’s age and development can affect the kind of help they need. Sibling support can play a vital preventative role, helping children and young people to learn coping mechanisms, find an outlet for their strong feelings and worries, keep up with their school work, and build a support network for themselves outside the home...

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  • Useful links

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  • Supporting siblings

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  • Please sign our letter to Government

    Rainbow Trust’s new report, Hidden Savings, shows how our tailored support not only helps the whole family to cope better but also saves public services around £2 million per year. Rainbow Trust support can, for example, prevent families from missing hospital appointments, help siblings and parents to manage their emotional health, and can reduce pressure on NHS patient transport. But our support is undervalued and underfunded. At the moment only three per cent of Rainbow Trust’s funding comes from the public purse. Will you help us to change this? Please sign our letter to Government, by signing below you are helping us call on local decision makers to make sure that services providing emotional and practical support for families with a life threatened or terminally ill child are not excluded from local funding streams, and for additional child social care funding to be provided by whichever party forms the next UK government. This petition is now closed. You can read an update on the petition here.

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  • Share your story

    Raising awareness is hugely important in helping Rainbow Trust support more families across the UK who have a seriously ill child; not just in terms of fundraising but in letting other families know that vital charity services, like ours, are available to them. By blogging or vlogging (video blogging) for us, you can unleash your creativity and support us at the same time.

    Why blog for Rainbow Trust?You’ll be helping seriously ill children and their families: Sharing the work that we do helps us to reach more people, and with more people comes more support which means we will be able to help even more families who need our dedicated support We’ll help you reach more people: If we like your content, we might share it on social media or feature it on our website Raise awareness: You can help us reach other families who may not know about the work that we do and who may be facing their child’s illness alone. Aspiring writer or journalist? Writing for a national charity looks great on your portfolio and on a CV New to the blogging scene? Working with a national charity can make you more attractive to other brands which can be incredibly useful in making your blog a success. Need content? No problem! We always have campaigns and stories we’d love you to share. If you need any help, get in touch!

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  • Meet Samuel and his family

    Having a child with a terminal or life threatening illness is difficult for any family. They face daily challenges such as going to the supermarket with a trolley and a wheelchair, having to watch every mouthful of food their child eats in case they choke or spending months, even years on end, confined to a hospital room. For these families, parents and friends can help out by giving them a much needed break or some moral support. But for Vicky and Rick, nobody wants to look after or even watch their sick child. Vicky’s 22-week scan showed a dark shadow on her unborn baby’s heart. Doctors didn’t know exactly what it was – it could have been the way the baby was lying or it could have been a hole in his heart. She was sent to Great Ormond Street Hospital for further checks. Sadly, these checks revealed that the baby had not one, but four issues with his heart and that he may not even survive birth. Vicky and Rick chose to have faith in their baby and when he was born, was kept in Intensive Care with medication and machines keeping him alive. He underwent his first open...

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  • Meet Susie

    Susie is an endurance runner. She runs races from one to 100 miles and has taken part in some of the toughest ultra-marathons and endurance races around the world. She regularly gives inspiring speeches at expos, seminars and running clubs. She also commentates at races, has appeared on television and radio interviews and regularly contributes to fitness magazines, podcasts and websites.

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  • Meet Ralph

    Ralph (pictured far right) took up Personal Training in the year 2000. Originally training and qualifying with Premier Training International, he is now a well-respected personal trainer and triathlon coach. He has trained numerous Great Britain age-group triathletes and duathletes and specialises in training these sports. He has been the official trainer of both novice athletes and corporate teams for London Triathlon since 2001. He has also been the official massage provider for UK Ironman and 70.3 events since they first came to the UK in 2004. He has been competing since he was 4 years old, representing school, district and county and university cross country championships. More recently he was very proud to have represented Great Britain in eight duathlon and triathlon age-group World Championships, achieving seventh in the 2006 World Duathlon Championships.

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  • Big day pack

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  • Meet Henry and his dad Godfrey

    Godfrey works as a manager at Cubitt and West estate agents who have been fundraising for Rainbow Trust since 2006. Godfrey never imagined that one day he would need our support. Godfrey and his wife Beccy have two boys – Henry, nine, and Thomas, four. Henry, was born with a rare condition called Posterior Urethral Valves which has left him with severe kidney and bladder damage and he is fed through a tube in his stomach. He has had his bladder reconstructed using a part of his bowel and has to be catheterised several times a day. In the future he will need a kidney transplant but for now, he is very happy child. Meeting Nicki, their Family Support Worker Godfrey became aware of Rainbow Trust Children’s Charity when he attended a fundraising event organised by his company, Cubbit and West. His employer has been supporting Rainbow Trust for over 10 years through various fundraising events and the company fund a full-time Family Support Worker in the Surrey region. Godfrey met Louise, a fundraiser with Rainbow Trust, and they got chatting and the more they talked, they realised that Rainbow Trust could help his family. So Christina and Nicki, the...

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  • Heart rate training

    One of the most important element in determining your performance is how you train. Our fitness expert, Ralph Hydes, tells us how you can use your heart rate to help get the most effective results. There are a number of different ways to train and many are very effective. The most effective way to train involves using your heart rate as a performance indicator and it can even be a training partner. Through using a heart rate monitor you can push your body to its safe limits and get the most effective results. If you train without a heart rate monitor you run the risk of over training and a possible burn out which will lead to disappointment and possibly injury or illness. There are a number of factors that can affect your heart rate so take these into account. The heart is a very delicate organ and is therefore very susceptible to fluctuations such as mood, hydration status, diet, sleep, temperature, wind and humidity. Some sports will involve more stress on the heart and therefore elevate your heart rate more than others. This is due to the different muscles being used. Running is the activity that will elevate your...

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  • Conditioning for marathon

    Training for a marathon or sporting event can be a tough challenge, where do you start? It’s important to incorporate conditioning in to your routine to help prepare your body for the challenge ahead. Personal trainer and fitness expert, Ralph Hydes, explains why it’s not just running that will get you to the finish line. One of the things I’ve noticed over the years as a coach is the mindset of many runners, especially distance runners, as to the type of training they do to prepare for their race. To have a successful marathon, you need to train in a way that covers all aspects of fitness, not just running. If you miss out anything, you are setting yourself up for problems or injuries. There are always a large proportion of runners that never make it to the start line due to getting injured along the way. This is usually due to the lack of conditioning to protect the body from the demands of running long distances repeatedly week in, week out. When designing a training programme for my athletes I look at several key areas and plan a regime to follow so that all weaknesses are covered. This will...

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  • Training

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  • Meet Zia and her family

    It’s been two years since the launch of our pilot neonatal service at the Chelsea and Westminster Hospital in London and we now have two dedicated Neonatal Family Support Workers. Outside of this pilot project, each of our nine care teams support neonatal families in their area, helping families with the pressures and complexities of having a new born baby in intensive care. Zia was born 10 weeks early and weighed just 2.3lbs. She was admitted to the neonatal unit and put on a ventilator for oxygen. She had six blood transfusions, chronic lung disease and was later diagnosed with a hole in her heart as well as having a genetic disorder. “In the neonatal unit, it’s like being in a bubble. That’s all there is,” remembers Dawn, her mum. “It felt safe but the thought of bringing her home scared me.” She and Matt, her partner, have a 9 year old son, Rhys. Dawn referred herself to Rainbow Trust for support. She knew she needed help so contacted the Rainbow Trust Cumbria office. After a chat, the team offered to help. Marlene, one of our Family Support Workers, visited the family at their home and talked about how she...

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  • Own place registration

    Thank you for confirming that you have secured your own place for your event and for choosing to do something amazing for seriously ill children and their families. We are delighted to have you taking on a challenge for us and look forward to welcoming you to the team. Fill out the form below and tell us what you’ll be doing. We will then give you a call and help to get you kick started on your fundraising journey.

    By providing us with your details you agree to be contacted by Rainbow Trust about this event, you also consent to Rainbow Trust sharing your details with the official event organiser to allow you to complete your registration. If you submit pictures to Rainbow Trust from your event you consent to them being used for marketing purposes.

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  • University and RAG fundraising

    Interested in fundraising for charity whilst at university? Whether you are fundraising alone, with friends, in a society or as part of your university’s RAG, we are here to help and provide some inspiration along the way!

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  • enews subscribe

    ​Sign up and receive updates on our work and how your support is making a difference to families with a seriously ill child.

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  • How your money is spent

    How your money is spent At Rainbow Trust, we are committed to ensuring that every £1 donated makes a real difference to the lives of families with a life threatening or terminally ill child. At a time when charities are in the spotlight with regard to how they spend your hard earned cash, Rainbow Trust would like to share with supporters just how your kind donations are spent.

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  • Measuring our outcomes

    We want families to have control over the services we provide to empower them to make positive and sustainable changes in their lives. We work in partnership with each family to measure how our support impacts their lives in six key areas. Families have identified the areas where they feel Rainbow Trust support can make the most difference. These are: For example, if a family requests help with transport to hospital it could be because they are struggling to meet the cost of this (our intervention would lead to improved economic wellbeing), or it could be because the family finds the experience of having a seriously ill child overwhelming (our intervention could be linked to increased stability and confidence). We create a support plan based on what each family tells us they need.

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  • We'd like to thank

    Our Chairman Mark Cunningham Our Trustees Tim Bunting • Howard Dyer • Andrew Honnor • Dr Jonathan Rabbs • Mark Richardson • Michael Wainwright • Mrs Celia Woollett Our Patrons • Sir Hugh Blackett • Sue Cook • Annabel Croft • Ashley Davies • The Hon Mrs James Dawnay • Lord and Lady Fellowes of West Stafford • Jack Gratton • Trish Halpin • Trevor Hanover • Austin Healey • Michael Howard • Josie Law • Mrs Andrew Lukas • Aled Miles • Mary Nightingale • Pauline Obee MBE • Geraldine Peacock CBE • The Countess of Perth • Lord Redesdale • Lady Robson • Mrs Robert Ropner DL • Mrs James Russell • Mrs John Salkeld • John Scott • Alan Stevenson • Zac Toumazi • Mrs Peter Vey • Andrea White • Kevin Whitfield • Mary Wynne- Finch Our Committees and Friends Hampshire Friends • London Carol Concert Committee • London Friends • Trust in Fashion Committee • Corks & Couture Committee • Upminster and Harold Wood Volunteers • Trusts and Foundations Donald Forrester Trust • E C Graham Belford Charitable Settlement • Ernest Kleinwort Charitable Trust • Gerald Palmer Eling Trust Company • Northumberland Village Homes...

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  • Our amazing supporters

    We couldn’t do it without you Thank you everyone! Last year you raised an amazing £4.6m to fund expert Family Support Workers who supported over 2,500 families across the country. Thank you for every hour of support and every pound you donated. Here are some of your highlights.

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  • Our Vision

    Our vision for the future Every family in the UK who has a child with a life threatening illness should get the support they need. We will continue to focus on providing flexible high-quality support services to families caring for a seriously ill child.In 2020 we will be focussing on:Reaching more families and developing our service Increasing awareness, influence and reputation Developing funding opportunities Developing technology and improving data and systems to drive fundraising growthDeveloping our people For families of a seriously ill child, It's About Time: time together, time apart, time to themselves. And It's About Time that we were able to support every family who needs us.

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  • Our accounts

    You can download our full 2018-2019 Accounts Report here.

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  • A message from Zillah and Mark

    Introduction from Mark Cunningham, Chairman and Zillah Bingley, CEO This impact report showcases highlights from across 2018/19. It shows the impact our service has on thousands of families’ lives and celebrates the generous and tireless contributions of our supporters and volunteers.We were proud to support 727 new families. The number of new families who turn to Rainbow Trust is increasing, demonstrating the growing need for and awareness of our high-quality trusted service. Through continued effective management of family caseloads and the increased number of hours volunteers spent supporting families alongside our Family Support Workers, we were able to prioritise those in greatest need.Our campaigning and policy work was extensive. We launched a comprehensive report See us, Hear us, Notice us about the importance of supporting siblings of seriously ill children. With the help of our generous supporters, we have given more families at breaking point more time to cope, raising £4.6m across the year.We retained our position in The Sunday Times Top 100 Best Not-For-ProfitOrganisations to Work For in the UK.We retained our position as a top 100 not-for-profit employer, reflecting the continued importance of our people to our strategy and their pride in, and passion for, the services we...

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  • Trust in Fashion 2017

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  • John and Danielle climb Kilimanjaro

    Father and daughter, John (51) and Danielle (22) from Buckinghamshire, climbed Kilimanjaro in 2017. Here’s what they had to say about their challenge climbing Africa’s highest peak. Climbing Kilimanjaro is something my Dad has always wanted to do I am so glad he persuaded me to go with him! When looking for a charity to raise money for we wanted to find one where we knew the money we would raise would be able to make a significant difference. I work as a Children’s Nurse and work with children with terminal and life-threatening illnesses so can see what a difference charities like Rainbow Trust make to children and their families. Rainbow Trust provide endless help and support to a large number of families and hopefully with the money we have raised can continue to do this for a few more We had lots of support from friends and family We set up a Virgin Giving Page and posted lots on social media. My dad also held an auction evening at his Bucks Property Meet two days before we left for Kilimanjaro and we have pledges for £9,000. Training for the climb We had various trips to Wales – climbed Snowdon...

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  • Sign up for ILC Day 2020

    ILC Day takes place on 14 February. Sign up below and you will receive some downloadable fundraising materials and campaign updates to help you make your ILC Day a success.

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  • Ride London gallery

    ​Read more about RideLondon and Team Rainbow Trust’s success here.

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  • Couch to 5k training plan

    Leaving the sofa and training for a 5k can feel overwhelming but don’t worry this simple training plan will guide you one step at a time. This 12-week training schedule is designed for beginners who have set themselves a challenge of running 5k. You should do 3 runs a week and ideally try to give yourself a day off after each one. Strength training is extremely beneficial for all levels of runners. It enhances endurance and speed whilst helping preventing injury. You should aim to complete a strength training workout once a week.

    Download the complete 12-week guide Ready to go all the way to 12 weeks? Then finish your 5k training with our complete downloadable 12-week guide.

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  • CarFest Pack

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  • Share giving

    Why donate shares to Rainbow Trust? Simple and tax-efficient, donating shares can help transform the lives of families with a seriously ill child with practical and emotional support when it matters most. Every day, amazing people like you make our work possible. If you are considering donating shares, you’ll be helping families to cope when their world is falling apart. What are the benefits of share giving to you? If you donate to Rainbow Trust by giving sharesYou can claim full Income Tax relief on the value of shares No Capital Gains Tax will apply, so you can maximise your donations at no extra cost How does share giving compare to making a cash gift?

    To qualify for tax relief, the shares must be HMRC qualifying shares for example listed or dealt on a recognised stock exchange. How do I donate shares worth more than £500? Our investment manager, Cazenove Capital will help make selling shares as easy and secure as possible. Please contact Karen to get the ball rolling.

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  • June Appeal

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  • Bereavement support

    Four-year-old Jack was tragically diagnosed with a brain tumour in 2014. He spent weeks in the hospital and his parents were told that there were little doctors could do for him. This is Maria’s story. When the doctors told us there was little they could do for Jack, we spent time at a local children’s hospice where we heard about Rainbow Trust. At that point, I had hit rock bottom and I needed someone to talk to. The hospice staff contacted Rainbow Trust on my behalf and a few hours later, Dawn, a Family Support Worker from Rainbow Trust, called and arranged her first visit. I was a bit hesitant at first but since Jack’s diagnosis, it had been a whirlwind and I needed help. We didn’t know what the future held, and I felt we’d need as much support as possible. Supporting siblings with grief Dawn visited two or three times a week and, initially, came to play with Liam, Jack’s twin brother. I was worried about him as I had spent so much time away from him being in the hospital with Jack. I felt so desperately guilty about leaving him, but Jack needed me more. I couldn’t...

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  • Home support

    Our support is available wherever the family need us most, including support at home. Rachael’s mum explains how Rainbow Trust supports her family. For months prior to Lia’s diagnosis, I had been saying that there was something wrong with her. It was only when she finally had blood tests done, that she was diagnosed with liver cancer. That was a shock for me - I knew there was something very wrong but I hadn’t even considered cancer. Support tailored to each family’s needs I heard about Rainbow Trust Children’s Charity through the Rice Centre and Sarah, our Family Support Worker, has been supporting me ever since. Sarah is someone I can talk to - she helps me out with the children and keeps them entertained. She’s helped me tidy up because I have a back problem, so it’s been difficult for me to do some things. Life without Rainbow Trust would have been difficult, especially over the last several months. Sarah being able to take the children for days out is great. Financially, it would have been difficult for me to do some of the stuff they have been offered so it has honestly been a great help and they’ve...

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  • Hospital Support

    Sharon, Hope’s mum, talks about how Rainbow Trust supports her family in and out of hospital. When Hope was a year old, she was diagnosed with severe asthma, severe angioedema which is a condition that can swell her body parts up to double the size. She also has Inflammatory Bowel Disease, seizures and coeliac disease – she often ends up in hospital and has been admitted over 200 times to date! Supporting families in hospital We’ve had Rainbow Trust’s support for five years and it’s a godsend, a lifeline for us. The emotional support is invaluable as well as the physical support with hospital appointments. There is often so much information to take in at Hope’s appointments that it’s great to have someone else there to listen and hear what the doctors are telling me. Some days we have such long waits in the hospital and Amanda stays with us which is truly a godsend. Some days we can be in for 10 hours so having the company makes a real difference. Mandy also supports the rest of my family when Hope and I are in hospital. It’s a constant worry for them – will Hope be okay, how long...

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  • Sibling support

    When a child is diagnosed with a serious illness, the whole family is affected. Aimee, Phoebe and Ollie’s mum, explains the impact of Rainbow Trust’s sibling support. When Phoebe was 14 months old, she was admitted to hospital for various infections and only when they ran some blood tests, did doctors take notice. When my husband arrived at the hospital, the consultant told us that Phoebe had leukaemia. Our whole world came crashing down. Our world turned upside down She was sent to the oncology ward where she spent the next two months as she was so poorly. My husband couldn’t go back to work as we had our, then three-year-old son, Ollie, to take care of. We tried to keep things normal, but I couldn’t spend time with him - I just wanted to be with Phoebe in the hospital. Nathan, my husband, would stay with Ollie at home and I’d stay in the hospital with Phoebe. Giving brothers and sisters some normality Clic Sargent put us onto Rainbow Trust Children’s Charity – they could see we were struggling with being in the hospital and looking after Ollie. Eventually Nathan had to go back to work. Ollie goes to...

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  • Wednesday - Week with a Neonatal Family Support Worker

    This morning I am taking Helen, mum of Alex, Finley and Aisha to visit their baby sister who is in intensive care at St Mary’s Hospital, London. The children aren’t allowed into the ward as they are at risk of passing on infections to the babies on the unit so I took them to the hospital playroom where they played and we made “Get Well Soon” cards for their sister. “Hi Jo, Just want thank you for your time with the children yesterday. They couldn’t stop telling me how nice you were. Thanks again” At the end of the day I drove the family home. Helen really appreciated the time she was able to spend with her baby, and was visibly more relaxed on our journey back. The kids were so excited with what they had made and clung onto them all the way home, excited to show their Dad. After I dropped them off and helped get the children inside I drove home and felt happy and satisfied that I had been able to make a real difference to this family, at such a difficult time.

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  • Tuesday - Week with a Neonatal Family Support Worker

    Today I am taking Lisa to visit her two month old daughter, Susan, at the Chelsea & Westminster Hospital. Samantha is in the Neonatal Intensive Care Unit as she was born at just 26 weeks. On the way to the hospital Lisa talks about so many things including Samantha, her family, their holidays and Lisa’s childhood. Spending the whole day on the unit can be very quiet and lonely for Lisa so having some time to talk about everyday things in the car makes the long wait that much more bearable. “I really enjoy our journeys to the hospital and having someone to chat to about everyday things, as NICU can be quite a lonely place”. She also said, “I couldn’t have seen my baby as much as I had wanted to if it wasn’t for Rainbow Trust. When I heard there was going to be a tube strike I was worried I wouldn’t be able to visit, but you have made it possible.” Once Lisa is on the ward with Samantha, I attend a “Family Matters” meeting with a group of other health professionals to discuss any families that may benefit from Rainbow Trust’s support. This time also gives...

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  • Monday - Week with a Neonatal Family Support Worker

    Today I collected Katie, Lauren’s mum, and took her to a full day of hospital appointments at Great Ormond Street Hospital. Lauren was born 13 weeks premature and spent a long time on a neonatal unit. She was finally sent home when she was six months old but, due to her chronic lung disease, she is constantly on oxygen on which makes travelling on public transport very difficult. Lauren’s dad works so Katie is unable to get to and from the hospital with Lauren, her oxygen tank and all she needs, on her own. Once we got to the hospital, Lauren went straight in for her scan with Katie following. After the scan, Lauren was scheduled for an ultrasound followed by an appointment with neurosurgery. As with most hospitals, appointments cannot always run on time and children and parents spend a lot of time waiting around for their allocated time. Lauren and Katie were finally finished with all their appointments and I took the pair home at 6pm that evening. It’s a long day for anyone but especially for a mum and a small baby. Without my support Katie’s husband would have had to take a day off work or...

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  • Lockton gets in gear - Bike transportation

    By ticking ‘Yes’ you are agreeing to check your bike in at Lockton by 4pm on Wednesday 20 September. Your bike will then be transported to the start line of Lockton Gets in Gear in Cambridge on Thursday 21 September. You hereby acknowledge that Rainbow Trust accepts no responsibility for the loss or damage to any bikes and/or belongings checked in at Lockton. By leaving your bike here you’re doing so at your own risk.

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  • Legacy promise

    A gift in your will to Rainbow Trust Children’s Charity will provide future support to families of children that have a life-threatening or terminal illness. We appreciate the particular importance of this type of donation and make the following promises to all our legacy pledgers:We will respect your wishes and decisions at all times You and your family will be treated in a respectful and considerate manner Your donation will be used in accordance with your wishes You can speak, in confidence, about any aspect of legacy giving, to our Legacy Manager.

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  • London Marathon 2017

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  • Rainbow cookie sandwich

    IngredientsCookies 1 1/2 cups marshmallows from Lucky Charms cereal 1 pouch Betty Crocker sugar cookie mix Butter and egg called for on cookie mix pouch for drop cookies Frosting 1 1/2 cups marshmallow creme 2/3 cup butter, softened 1 1/3 cup powdered sugar Red, yellow, green and blue liquid food colours, if desired MethodHeat oven to 375°F. Line cookie sheet with parchment paper. Place marshmallows in resealable food-storage plastic bag. Using rolling pin or wooden spoon, crush marshmallows into small pieces (but not powder). Pour into small bowl. In medium bowl, stir together cookie mix, butter and egg until soft dough forms. Shape dough into 36 (1 1/4-inch) balls. Roll each ball in marshmallow pieces, pressing gently to get marshmallow pieces to stick. Place 2 inches apart on cookie sheet. Bake 8 to 10 minutes or until set and light golden brown. Cool 2 minutes; remove from cookie sheet to cooling rack. Cool completely, about 30 minutes. Meanwhile, in large bowl, beat marshmallow creme and 2/3 cup butter with electric mixer on medium speed until well blended. Beat in powdered sugar on low speed until fluffy and creamy. Divide frosting evenly into 6 small bowls. Add desired food colour(s) to...

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  • Media Centre

    For press enquiries, case studies or to request an interview with a spokesperson from Rainbow Trust, please contact the press office. Press Contacts Anna Jackson – PR Manager Tel: 01372 220 028 Email: anna.jackson@rainbowtrust.org.uk Clare Youings – PR Executive Tel: 01372 220 018 Email: clare.youings@rainbowtrust.org.uk Out of hours: 07944 253 066 Media enquiries and spokespeople Rainbow Trust provides emotional and practical support for families who have a child with a life threatening or terminal illness. Our Press Office welcomes any enquiries from the media covering issues surrounding seriously ill children, childhood palliative care and child bereavement. Do give us a call and our press team will do their very best to provide a suitable spokesperson, quote, statement or family case study.For general enquiries For any other enquiries, please email us at: enquiries@rainbowtrust.org.uk If you are interested in interning with the PR team, please visit Jobs and Volunteering for current opportunities or email us.

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  • Rainbow popcorn

    Ingredients180g popping kernels 2-3 tablespoons vegetable oil (corn, sunflower, peanut, etc.) 180g fine sugar 2 tablespoons water 1/2-1 teaspoon of four or so different liquid food colouring’s (four is the recommended amount, as it’s easy to handle, reduces the amount of dishes used and it still looks like a rainbow theme) MethodAdd the oil to the large saucepan. Sprinkle the corn kernels over the base of the pan, in the oil. Put the lid on. Put the saucepan on the stove top. Heat at full heat. Wait for the popping. Every now and then, give the pan a shake to help prevent burning. Shake more often when you hear popping noises. Remove from the heat when you think the popping is done. Add the sugar and water to the small saucepan. Bring to the boil. Stir frequently as the mixture boils. Stir and boil until the sugar has dissolved completely. Pour the sugar water into as many bowls as you have food colouring choices. Add a drop or two of different food colouring to each bowl. Divide the popped corn into as many bowls as you have food colouring choices. Pour one coloured sugar water over one bowl of popcorn...

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  • Rainbow fruity ice cubes

    Ingredientshandful raspberries handful blueberries 1 kiwi fruit 1 mandarin orange jug cold water MethodStart by washing the raspberries and blueberries, then fill a quarter of an ice cube tray with each fruit. Peel and roughly chop the kiwi, and add to the ice cube tray Peel the mandarin orange, removing as much of the white pith as possible. Break it into segments, then cut each segment in half. Use them to fill the last quarter of the ice cube tray.

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  • Rainbow skewers

    ​Ingredients1 kiwi fruit (peeled and chopped) ½ mango (peeled and chopped) strawberries red grapes blueberries MethodWash the strawberries, grapes and blueberries in cold water and pat dry. Cut the tops off the strawberries and discard. If the strawberries are big, cut them in half or into large chunks. Cut the grapes in half if wanted. Put all of the fruit into bowls.Arrange bowls by fruit colour in the order you wish to put them on the skewers. Thread fruit onto skewers. Plastic skewers look great but bamboo skewers or even long cocktail stirrers would work too. You can arrange the fruit in the same way for each skewer or mix them up – it’s great to let your child decide. Serve immediately and enjoy!

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  • Rainbow omelette

    ​Ingredients (makes 6 ‘cakes’) 1 tsp Olive Oil ½ Red Pepper 2 Spring Onions 1 Small Carrot 2 Tbs Sweetcorn 50g Cheddar Cheese 3 Large Eggs What you do… Preheat the oven to 180°C/350°F/Gas Mark 4. Line a muffin tin with six silicone or paper cupcake cases. Prepare your ingredients – finely chop the pepper and spring onions, grate the carrot, drain and rinse the sweetcorn, grate the cheese. Warm the olive oil in a pan, then gently cook the pepper and spring onions for a couple of minutes until starting to soften. Take off the heat and add the grated carrot and sweetcorn. Break the eggs into a large bowl and whisk until frothy. Add all of the vegetables and the grated cheese to the eggs. Stir until combined. Spoon the mixture into the cupcake cases. Bake in the preheated oven for 25 minutes until cooked through and golden. Leave to cool in the tin for a few minutes before serving warm. Alternatively, cool completely and pack them up to take on a picnic.

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  • Rainbow couscous

    Ingredients (serves 4) 200g couscous 250 ml boiling water 1 red OR orange pepper 1 small green pepper 2 tomatoes 3–4 spring onions 200g can sweetcorn Dressing: 10g (about a handful) fresh coriander OR parsley 1 clove garlic (optional) 1 small lemon (juice only) 2 x 15ml spoons olive oil Black pepper (optional) 1 x 5ml spoon whole grain OR Dijon mustard (optional) What you do… Put the couscous in a bowl. Measure 250ml of boiling water into the measuring jug. Pour the hot water over the couscous and cover with the plate or tea towel. Leave to stand for 10 minutes. Fluff the couscous with a fork. Add a little extra water if necessary. Allow to cool. Wash and dry the vegetables. De-seed the peppers and remove the core and any white pith. Chop into cubes (about 1½cm). Chop the tomatoes into similar size pieces to the pepper. Top and tail the spring onions and slice finely. Drain the sweetcorn and discard the liquid. Add the chopped peppers, tomatoes, spring onions and sweetcorn to the couscous and mix well with a fork. Finely chop the parsley or coriander with scissors. Peel and crush the garlic (if using). Grate the...

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  • Rainbow slaw

    Ingredients (serves 8) 1/4 cup honey 1/4 cup lime juice 2 tablespoons vinegar 1 tablespoon ground cumin 1/2 teaspoon salt 1/4 teaspoon ground pepper 1/3 cup olive oil 3 cups shredded red cabbage 1 cup grated carrot 4 thinly sliced green onions 1 cup sugar snap peas, sliced 1 sliced red pepper 1 sliced yellow pepper 1 cup chopped coriander What you do… In a small bowl, whisk together honey, lime juice, vinegar, cumin, salt, and pepper. Slowly whisk in the olive oil and set aside. Chop vegetables to bite size strips. In a large bowl, combine red cabbage, carrots, green onions, sugar snap peas, red pepper, and yellow pepper. Give a toss and add chopped coriander. Pour the dressing over the slaw and toss until coated. Check for seasoning and add salt and pepper as needed.

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  • Rainbow pizza

    Ingredients (serves 4) 4 stone-fire flat breads 1 cup pizza sauce (homemade or store bought) 1 cup of shredded Mozzarella cheese 8 cups of veggies diced into roughly 1cm cubes, (to make a rainbow pizza go for broccoli, green peppers, yellow peppers, orange peppers, cherry tomatoes and red onion) (equal quantities of each). 4 tsp olive oil 2 tsp Italian seasoning (optional topping, Parmesan cheese, red chilli flakes) What you do… Preheat oven to 220 degrees C, gas mark 7, and dice veggies into 1cm cubes. Lay out your pitta breads on a large baking sheet. Divide pizza sauce between the pitta breads, use the back of a spoon to spread the sauce even all over. Sprinkle the Mozzarella (and Parmesan) cheese over the top of the pizza sauce. Then layer the veggies in a rainbow pattern on top of the cheese. Drizzle each pizza with a little olive oil and sprinkle with some Italian seasoning. Put in the oven for about 20 minutes or until the veggies are cooked and the crust is golden brown. Slice and serve warm (be careful it might be very hot!)

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  • Summertime picnic - games

    Add some fun to your Summertime Picnic with arts, crafts and games. We have a word search, treasure hunt and games to keep everyone entertained. All you’ll need is some scissors, glue and a pen. Simply print off and follow the instructions included.

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  • Summertime Picnic - Recipes

    Have ago at making some of these amazing recipe’s to make your summer picnic even better!

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  • Summertime Picnic

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  • Summertime Picnic Pay in online

    You can also quickly and easily make a payment online. Simply click here and select “I would like to pay in money I have raised” and type in Summertime Picnic before completing the transaction If you’ve set up an online fundraising page with Virgin Money Giving or JustGiving you can ask people to donate directly to your page Or send a cheque, made payable to Rainbow Trust Children’s Charity with the word Summertime Picnic written on the back of the cheque, to: Rainbow Trust Children’s Charity, Cassini Court, Randalls Way, Leatherhead, Surrey, KT22 7TW. Don’t forget to Gift aid it. At no extra cost to you, we’re able to claim 25p of tax on every £1 that you give. Simply tick the gift aid box when paying in online or by post. If you are experiencing difficulties paying in money for your Summertime Picnic, or need help making a donation, please call Supporter Care on 01372 220083 or email supportercare@rainbowtrust.org.uk. Unfortunately we are unable to accept donations from cards not issued and registered in the UK, so if you are donating from outside the UK, please use PayPal or contact Supporter Care for further assistance.

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  • Summertime Picnic - Picnic Pack

    We have all of the materials you’ll need to make your picnic look as good as possible! Make sure your Summertime Picnic goes off with a bang with these handy resources.

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  • About Summertime Picnic

    When a parent is told their child has a life threatening or terminal illness, their lives are turned upside down. They are thrown into a world of hospital treatments, appointments and medical jargon which can be overwhelming and frightening. Brothers and sisters are often cared for by other family members as parents rally around to make vital appointments and treatment for their sick child. Our Family Support Workers help by giving families time to focus on each other. The Summertime Picnic is a fundraising event for seriously ill children and their families. We ask people across the UK to host their own Picnic and donations on the day are made to Rainbow Trust. With your help, we can reach more families who urgently need our support. Celebrate this summer with Rainbow Trust with a picnic at home with family, in the park with friends or at work with colleagues and spend time together. Why do we do it? Today there are an estimated 49,000 children and young people in the UK living with a life limiting or terminal condition who may require palliative care. Our goal is to make sure no family has to go through this alone. We provide...

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  • Why intern with us

    Want to find out what you’re really capable of? Intern with us and we will work with you to make sure you get the most out of the experience. With in-house training and hands-on experience at one of the Times 100 Best Companies to work for, you’ll get the opportunity to develop new skills and discover your strengths, so you can get your career off to a great start. If there isn’t a role there that suits you advertised, get in touch and we may be able to match your requirements to one of our teams.

    Want to know more? What better way to find out all you need to know about interning at Rainbow Trust that from our interns themselves? Read their stories and find out more.

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  • Events gallery

    We have an exciting events calendar and here are just some snapshots of the fun our supporters have raising vital funds so that we can support more families.

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  • DB and Rainbow Trust together and Christmas

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  • London’s Fashion show with a conscience is back

    Tickets for London’s prestigious fashion event with a conscience are selling fast as the charity behind the event, Rainbow Trust Children’s Charity, announces Angela Scanlon as this year’s host. Trust in Fashion, sponsored by THE OUTNET.COM, Boodles and Marie Claire, will return for its fifth year on 16 March 2015, providing fashion’s elite with an afternoon of retail indulgence in the opulent surroundings of The Savoy. This special event will showcase some of the latest collections from top designers at THE OUTNET.COM, whilst raising vital funds for the much-loved Rainbow Trust Children’s Charity, which provides bespoke emotional and practical support for families who have a child with a life threatening or terminal illness. The afternoon starts in The Savoy’s River Room with a champagne reception and opportunities for shopping in the Rainbow Trust boutique, after which guests are invited into The Ballroom for a fabulous Savoy afternoon tea. The best fashion afternoon in town then gets underway with a series of catwalk shows showcasing key trends for spring/summer 2015 from THE OUTNET.COM and the latest stunning jewellery from British fine jewellery brand, Boodles. Trust in Fashion is always extremely well supported by the fashion industry’s brightest stars, with last year’s...

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  • Our Parent Participation Network

    Parents are the experts on what it is like to have a child with a life-threatening or terminal illness. If you have this experience, have you considered joining the Rainbow Trust Parent Participation Network? This group works largely by email, and it means you can use your experience to make sure decision makers know what matters most, and what needs to change. Parents being willing to share their stories have enabled Rainbow Trust to provide valuable input to public bodies, government departments and parliamentarians. What’s important is that decision makers hear first-hand about the needs and challenges facing families where a child has a life threatening or terminal illness. Cath Stone, mother of Helaina who has Costello Syndrome, a rare genetic disorder, says: “I joined my regional group as I have a great interest in health and a wealth of knowledge. I want to share all my knowledge with other parents and professionals.” What to expect: • You’ll have opportunities to share ideas about what could be improved, locally and nationally • You’ll receive occasional emails with news about how you can give your views. Please consider whether you could support us in this way. You can do as much...

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  • Great Rainbow Bake

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  • Sweepstake Guidelines

    Sweepstake competitions can be a great way to help raise money for Rainbow Trust Children’s Charity, but there are some basic rules that you will need to follow if you are planning on hosting your own sweepstake:Firstly the entry price must be the same for all participants. You need to decide before starting your sweepstake competition whether the entry money will be split between the winner and the charity, or if you are going to have a separate prize with all entry fees going to the Charity. Whichever option you take, participants must be informed before they enter and the host cannot make a profit. Office sweepstakes can only take place in one office with people in the same premises. You must not sell entry to the sweepstake on the street or house to house. For more information on the rules of running your own fundraising sweepstake please visit the Gambling Commission website, or contact our Sports team at events@rainbowtrust.org.uk

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  • Questions about volunteering?

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  • Ways to volunteer

    There are so many great ways to get involved, from joining our cheer squad at the London Marathon, working in our Head Office or directly supporting families.

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  • Briefings and consultation responses

    See all of our briefings and consultation responses below:

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  • Why volunteer with Rainbow Trust?

    Your time matters Volunteering is a great way to develop your knowledge and make use of your skills whilst supporting a cause close to your heart. With thousands of families caring for a seriously ill child in the UK who need us, we couldn’t do it without people like you. Whether you can give a few hours, a day or two or want to become a lifelong volunteer, your time really does count. If there isn’t a role there that suits you advertised, get in touch and we may be able to match your requirements to one of our teams.

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  • Our work with other organisations

    Many voices are louder than one. To bring about change we often work with other organisations to help improve the lives of the children and families that we support. Rainbow Trust belongs to a number of coalitions, campaigns and membership bodies including:Children England Disabled Children’s Partnership Fair Funerals campaign Together for Short Lives We belong to the National Council for Child Health and Wellbeing and engage with a number of All Party Parliamentary Groups.

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  • What If

    What If is a great beginning to a question. It suggests there are no boundaries to what could be possible. What if you win the lottery jackpot? What if you don’t have a will? What if you left a gift to Rainbow Trust in your will? The answer to the first and second questions is to write a will, so that those you care about most are taken care of in the future. If you already have a will but your circumstances have changed – you have a new child, or your finances have drastically improved – it’s probably time to write a new will, to make sure your wishes take into account all you care about and minimise the amount of tax to be paid. But what if you left a gift to Rainbow Trust in your will? 101-year-old Albert was a tireless advocate of Rainbow Trust during his lifetime. His kind decision to donate a percentage of his estate to Rainbow Trust provided support for 44 children, like Amadeusz, for a whole year. Four-year-old Amadeusz was diagnosed with a rare type of epilepsy when he was just eight months old. It was during a hospital stay two years...

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  • How to order donation envelopes

    We can provide personalised A6 donation envelopes, printed with the name of a loved one. Just fill in the form below and we’ll send them to you within a week. You can also remember a loved one online, by setting up a Forever Fund. A Forever Fund allows you to share your story, fundraise with friends and family and create memories while helping to fund expert Family Support Workers.

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  • Fire Walk Disclaimer

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  • Lia and her family

    Our difficult journey began when my son, Harley, needed open heart surgery when he was two years old. Sadly, his dad then died when he was three. Like many families, we’re no strangers to cancer, my dad has been diagnosed and my father in law died of cancer last year. Only two weeks later, we found out that Lia, my little girl, had liver cancer. For months prior to Lia’s diagnosis, I had been saying that there was something wrong, but doctors kept saying, “…it was normal, it’s viral, she’ll get over it.” When they did finally check her over, one doctor said he could feel more liver than he’d like, but that that can be normal in some children. It was only when we were in the Out of Hours surgery that a doctor said that Lia’s liver was enlarged and that we needed to get her to hospital immediately. After her blood tests, we were sent straight to the cancer ward, although I didn’t realise it was the cancer ward until I got there. Nobody told me my daughter had cancer. That was a shock for me.“I knew there was something very wrong, but I hadn’t even considered...

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  • Our Work With Other Organisations

    Many voices are louder than one. Rainbow Trust Children’s Charity works with a variety of other organisations to help improve the lives of the children and families that we support through our influencing work. Rainbow Trust belongs to a number of coalitions, campaigns and membership bodies including: • Children England • Disabled Children’s Partnership • National Bereavement Alliance • Together for Short Lives. We belong to the National Council for Child Health and Wellbeing and engage with a number of All Party Parliamentary Groups. Photo by Jennifer Moyes Photography

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  • How we Influence

    Speaking up for children and their families. Rainbow Trust helps improve health, care and welfare policies in several important ways:

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  • Great Rainbow Bake - Latest news

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  • Our influencing work

    Supporting families directly is at the heart of what Rainbow Trust does. But we don’t stop there. Rainbow Trust also improves families’ lives by making sure decision makers, such as government ministers, know what matters most, and what needs to change. For instance, we’ve been making the case for our Family Support services to have fairer access to funding, and we want to see changes so that parents can more easily combine work and care if they wish. We also know that parents want us to speak out on the emotional, practical and financial impact when their child is ill.

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  • Forever Fund holding page

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  • Friday - Week with a Neonatal Family Support Worker

    Friday is our team meeting day in the office. We talk about the families we are supporting and have the opportunity to share any concerns or challenges we are facing. It’s also a chance to catch up with colleagues who know and understand what our work is like. My other two colleagues are Family Support Workers so support families with a child with a life threatening or terminal illness. This may be in the form of transporting parents and the sick child to hospital appointments or spending time with siblings while mum or dad is in the hospital with their sick sibling. Our Family Support Workers provide bespoke support to families in whatever way they need it. Being in the office means I can catch up on admin from my busy week which includes making case notes, follow up phone calls and planning for the following week. It’s a busy role but I am enjoying it, meeting new people and helping families in a situation that no parent ever hopes to find themselves in.

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  • Thursday - Week with a Neonatal Family Support Worker

    Part of my role is assessing families that are newly referred to Rainbow Trust for support. During these meetings I discuss, in more detail, what we can offer and the sort of support that might benefit the family. Today I met a Mum of a family that is new to Rainbow Trust. We talked about what her needs are and how I might be able to help through this difficult situation. It gave her a chance to find out what we are about and to ask any questions she might have after being thrown into this new unexpected world of life on a neonatal ward. Aisha, this mum, has two young children at home, one with special needs. Both parents are struggling to manage their time between home and the hospital, trying to be there for all their children. Their baby, Ali, was born at 25 weeks gestation and had already had two surgeries before being transferred to Chelsea & Westminster, so is likely to be in hospital for a long time. Aisha told me how saddened she feels not being able to care for her baby, and that she finds the sterile setting of NICU hard to be in...

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  • Trust in Fashion

    We are excited to announce that we will be returning to the Grosvenor House Hotel for Trust in Fashion 2020. Once again, guests will enjoy shopping in the Rainbow Trust Boutique, followed by lunch and a designer runway show.Throughout the day there will be the opportunity to bid for some fabulous prizes in the silent auction to help Rainbow Trust to continue to support seriously ill children and their families.

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  • Gaming for charity

    Whether you hold a 24-hour live stream or set your mates a challenge to complete. Unlock the ultimate achievement by choosing to raise vital funds to help support families with a seriously ill child. Everyday life doesn’t stop when a child becomes seriously ill. Rainbow Trust’s support isn’t about one single experience or memory, it’s about making every moment count. Every hour of our support helps families to cope – and your time could help fund life-changing support.

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  • Upcycle your Christmas cards

    Old Christmas cards can often get left lying around or thrown in the bin after the festive season comes to an end. Reduce your waste and have fun upcycling them into 3d decorative stars. This fun five-minute craft can be done with any old greetings cards and with our handy template, comes out perfectly every time! Follow the method below to start crafting yours. You will need Old Christmas cards (as an alternative you can use coloured card) Our template Pencil Scissors

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  • How to make a pom pom

    Pom poms are a great simple crafting activity for any time of year. But at Christmas time, they can be more versatile than you think - garlands, wreaths or even tree decorations - how you use yours is up to you! Follow our method below to create your own pom poms. You will need Wool (in your choice of colours) Cardboard Scissors Pencil Something circular (we recommend a glass or mug!)

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  • Christmas Appeal

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  • Nicola and her family

    Sophie was just seven when she was diagnosed with leukaemia. She started treatment but soon developed pneumonia and was rushed to hospital. In the week running up to Christmas, doctors had to put her on more and more oxygen, and she ended up with sepsis. She was moved to the Intensive Care Unit and her family was told it was touch and go. She also had a lung infection so to help her breathe, doctors put her on a ventilator but that meant putting her into a coma to give her body the best chance to fight. Nicola and Paul, her parents, were told that if she didn’t wake up on her own, she may not wake up at all. Nicola met Sabrina, a NE based Family Support Worker, at a hospital coffee morning. She told Nicola how Rainbow Trust could help and after an assessment, she started supporting the family. Sophie’s sisters, Heidi and Chloe, visited her in the hospital but then struggled to leave their mum. Nicola, their mum, said: “They missed Sophie and wanted to know what was going on. Sabrina would take them to and from school, she’d play games with them and take them on...

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  • Laura and her family

    Anna was eight years old when she was diagnosed with bone cancer in 2018. Following an emergency operation and 18 rounds of chemotherapy at Bristol Children’s Hospital, Anna now has a prosthetic hip and had to learn to walk with it. Soon after Anna’s diagnosis, Laura, Anna’s mum, met Charlotte, a Rainbow Trust Family Support Worker, via recommendations from Clic Sargent at a hospital coffee morning. After an assessment, Charlotte began supporting the family. Charlotte helped with hospital appointments and would sit with Anna while Laura spoke to consultants. Having someone she trusted to leave Anna with, meant that hospital appointments were much less stressful. Charlotte also supported Laura while she tried to keep Anna positive when treatment was particularly gruelling. “During treatment, Anna was very anxious. She didn’t like the doctors discussing anything about her in front of her – they’d have to leave the room. It really affected her mentally and emotionally - she had panic attacks as she was a very sensitive little girl at that time. Having Charlotte to help keep her calm was a great help – she became a non-medical friend for Anna,” says Laura. Charlotte also supports the family at home looking after...

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  • Ella Mae and her family

    Ella-Mae and fiancé Giovanni’s non-identical twins, Bella and Ruby, were born 14 weeks early weighing a mere 910 grams and 900 grams respectively. At her 20-week scan, Ella-Mae was told to prepare to lose the babies as she had already started dilating. With medical intervention and almost seven weeks of bed rest, against the odds, the girls survived and were born on 31 October 2018. Due to their prematurity, the girls had Chronic Lung Disease and needed 24-hour oxygen. They were kept in hospital on the neonatal ward until mid-January 2019 during which time they, collectively, had 10 blood transfusions and had several serious complications. Once the twins were discharged, they required round the clock care and oxygen for another eight months. Ella-Mae contacted Rainbow Trust after reading about their support on the neonatal ward at Guys and St Thomas’. After an assessment, Ella-Mae and Giovanni were assigned Fiona, their own dedicated Family Support Worker. “Fiona gave us emotional support during the hardest time of our lives. We had no certainty the girls would make it, and this support made the world of difference to us. The magnitude of difficulty and the overwhelming rollercoaster that comes with having two sick...

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  • Anna and her family

    Lucy was born with a rare condition called KCNQ2 which is an epileptic encephalopathy. The seizures started when she was born. Scans and a lumbar puncture revealed that the potassium channel in her brain had not developed properly which meant that Lucy had multiple seizures in any 24-hour period. She spent much of her first six months of life in hospital. Lucy has to be watched round the clock – she has the developmental age of a four-month-old baby (she’s two) and is fed on a pureed diet, cannot sit or crawl and struggles to hold her head up or speak. She is also partially sighted. Oliver, Lucy’s seven-year-old brother, was starting primary school when she was born and Anna and James, their parents, were extremely worried about the effect Lucy’s illness had on him. When Lucy was six months old, the family was referred to Rainbow Trust Children’s Charity Family Support Workers, Marlene and then William, who has been supporting them for about 18 months. Anna says: “Marlene and William’s support has made a huge difference to our emotional wellbeing and mental health, giving us breathing space again to cope with family life.” William helps Anna and her family...

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  • Resources for families

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  • About the Great Rainbow Bake

    While we all love cake, we love the time making it together a whole lot more and we want as many people across the UK to join us in celebrating quality time spent together and help raise money for families caring for a seriously ill child. We’re really excited! Our Great Rainbow Bake is getting bigger and messier than ever before and everyone can take part - whether you’re a star baker, complete beginner or simply want to have some fun with the kids. Why are we doing it? Because life doesn’t always go to plan. When serious illness affects a child, family life is turned upside down and time becomes more precious than ever. Rainbow Trust pairs each family with a dedicated expert Family Support Worker to help them face and make the most of each new day. Our Family Support Workers are there for the whole family to help with whatever they need so that they don’t have to manage alone. So get silly, get messy, get baking! No need to worry about flour in hair, dough on faces or colouring on fingertips, simply create your rainbow bake and share your pictures with us using #GreatRainbowBake #BakeItMessy #MessyMoments...

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  • Great Rainbow Bake - Pay in online

    Thank you for grabbing your apron and taking part in the Great Rainbow Bake. We hope you enjoyed getting messy and spending time together. You’ve made a real difference to the lives of families who have a seriously ill child, helping them make the most of every precious moment. How to get your fundraising to us: Online - select “I would like to pay in money I have raised” and type in Great Rainbow Bake as your reason for donating before completing the transaction Online fundraising page - if you have one set up you can ask people to donate directly to your page Send a cheque - made payable to Rainbow Trust Children’s Charity with the words Great Rainbow Bake written on the back of the cheque, to: Rainbow Trust Children’s Charity, Cassini Court, Randalls Way, Leatherhead, Surrey, KT22 7TW. Don’t forget to Gift aid it. At no extra cost to you, we’re able to claim 25p of tax on every £1 that you give. Simply tick the gift aid box when paying in online, by post or using this Gift Aid Declaration. Need help? If you are experiencing difficulties paying in money, or need help making a donation...

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  • deVere Europe names Rainbow Trust its first charity partner

    We have been selected by deVere Europe to be their first charity partner. The company, which is one of the largest independent financial advisory organisations in the world, has committed its annual fundraising efforts to help support seriously ill children and their families. Rainbow Trust will engage with employees throughout 2020 in a bid to raise vital funds to help support more families with a seriously ill child. James Green, Divisional Manager at deVere Europe, said: “We’re really looking forward to partnering with Rainbow Trust, by embedding the charity within our company culture we hope to raise considerable funds that will directly impact families who have a seriously ill child.” When a child suffers from serious illness, time becomes more precious than ever. We pair each family with a specialist Family Support Worker who helps give them time. They give time for a parent to have a desperately needed break, they make time for the brothers and sisters to help them feel less frightened and isolated and they give time to parents to do the things they used to love, before family life was turned upside down. Every hour of Rainbow Trust’s support helps families to cope. Oonagh Goodman, Director...

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  • Planning a funeral

    Having to make decisions about a funeral at this incredibly difficult time can be daunting. Some people may have religious or cultural beliefs that will guide them, however others may not. It is important to make these choices in your own time. Do not be rushed, because you don’t know how you will feel about certain aspects of what needs to happen. Your Family Support Worker can help you by talking through options, making suggestions and connecting you with people who can help. Making contact with a funeral director is one option as they will be able to talk you through the many and varied ceremonies available and how you might create your own personal service. Hearing about what other families have done in the past may be of help to you and there are links to other bereavement organisations. Some aspects of children’s funerals are free with some funeral directors , and there is some funding available which your Family Support Worker can help you with. Remember, this is your child and how you choose to say goodbye is a very personal tribute. Take your time and talk it though with people you trust. Organisations who can help: Child...

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  • What we do

    Rainbow Trust supports families who have a child aged 0-18 years with a life threatening or terminal illness and need the bespoke support we offer. Today there are an estimated 49,000 children and young people in the UK living with a life limiting or life threatening condition who may require palliative care (University of Leeds, 2011). Many of these children and their families are able to cope or are not in a ‘crisis situation’. However, thousands of families have to face the very real possibility that their child may die and struggle to cope on a day to day basis.Who we support We support these families who have a child with a life threatening or terminal illness and are in the greatest need. Our Family Support Workers provide a life line to these families and children. We support the whole family including parents, carers, the unwell child, brothers, sisters and grandparents. They bring support and help to families who so desperately need it at home, in hospital and in the community. Any family can receive support from the moment of their child or young person’s diagnosis. Our support is hugely varied and depends on the needs of the family. Support...

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  • Get involved

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  • Support for families

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  • About

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  • Marathon Training Days

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  • Ride London 2018 Gallery

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  • RideLondon timings

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  • FIFA World Cup

    Get into the spirit of the game with our World Cup fundraising ideas! From sweepstakes to wear your kit to work day, we share our top tips to get your friends, family and colleagues involved.

    Are you ready? ​If you are interested in holding your own sporting event and raising funds for seriously ill children and their families, get in touch and tell us more! Been part of your own footie fundraiser? Pay in your fundraising here.

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  • Meet Poppy and her family

    Poppy was two when she was diagnosed with leukaemia on Valentine’s Day 2017. “From around her birthday in November, she had gone from being a child I couldn’t keep in the pushchair, who wanted to explore and was very lively to being a child who just wanted to sit under a duvet and watch DVDs,” remembers Vicky. Blood tests revealed an abnormality in Poppy’s blood and she was rushed to hospital. “That night was awful,” says Vicky. Once in the hospital nurses and doctors tried to put a cannula in her arm to start treatment but she screamed and kicked out as she was terrified and looked to Simon and I to make the hurting stop.” She was transferred to Great Ormond Street Hospital the next day, “We were shown into a room on the oncology ward. I unfolded my bed and I knew it was bad. Doctors came in and told me that they had found leukaemia in Poppy’s blood and they’d be starting chemotherapy that day,” says Vicky, “My head was screaming but I had to focus and listen to what doctors were telling me.” Treatment started immediately and Poppy was in hospital for weeks, she barely moved...

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  • Meet Mikaere and his family

    When Elly went into labour, she and Sam, her partner, were so excited. They were ready to meet their little bundle of joy and had prepared diligently for parenthood. However, parenthood didn’t look like they expected it to. When their baby didn’t show any signs of descending down the birth canal, doctors had to intervene. Mikaere was born at 41 weeks. Here, they share their story. When he was born, we had a few moments where everything went as expected. He cried and opened his eyes - we thought he was fine. His breathing was shallow, but doctors reassured us that he’d be okay. We had a beautiful hour together before the second check. By then, Mikaere had closed his eyes and was floppy like a rag doll when he was rushed to NICU (Neonatal Intensive Care Unit) Due to the epidural I had, we had to wait six hours before we could see him. Time moved intolerably slow, until eventually he was moved to the Special Care Baby Unit, where we were allowed a very gentle cuddle. We were still very hopeful he’d come around. On day two he was having difficulty breathing and by day three, he had...

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  • RideLondon Training Day

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  • Our support

    We work with families who have a child with a life threatening or terminal illness. This means that some families we support will sadly face the death of their child. Uniquely, our Family Support Workers, who will have been providing practical and emotional support for your whole family during your child’s life will continue to be there after the child has died. We recognise that all families are different and will have approached their child’s illness in very personal ways. Our Family Support Workers will have got to know you and will be best placed to support you in ways that reflect your family’s needs. Bereavement support we can offer Emotional support: This is different for everyone. The loss of your child will bring with it a vast range of emotions. Knowing that you can call on your Family Support Worker to listen and support you can be very helpful. If you find you need someone to talk to, we can help you decide if our service would be helpful, or help you find the right support for you. Practical support: When a child dies there are practical issues that need to be taken care of and your Family Support...

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  • How to help siblings

    When a child dies the impact is felt throughout the family. How a brother or sister reacts to this will be dependent on their age and maturity and what they have been told about their sibling’s health. Whilst every family is different and will have managed their child’s illness in their own way, this guidance should help you to think more about the sibling’s reactions and emotions. How they might react Children do not always react to the news that their sibling has died in the way we expect. They can be very matter of fact and appear unmoved. They may wish to carry on with what they are doing, for example going to school. When things feel overwhelming children often like to connect with routine. They may “act out” and demand attention through their behaviour. They may ask lots of questions. Equally, they may become very distressed and require a lot of support and reassurance. This can be challenging for a bereaved parent. Seeking external support is a good idea. Keep your child’s school or other carers informed so they can help. Be clear with them about what you want your child to be told and the language you...

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  • What to expect

    Each parent approaches their child’s illness and death differently. Maybe you have tried to ‘prepare’ yourself, or maybe you have focused on hoping for a positive outcome. Whatever the circumstances, the death of your child will be a shock. People can experience a wide range of emotions quickly or none at all to start with. Some people are surprised by their physical response to the loss. When a child dies it is the whole family who experience it, and as a parent you may have responsibilities to care for others at this time. No family is the same and people will experience different challenges depending on their own circumstances. Some things that you may need to think about are:Practical arrangements - registering the death, arranging where you child is before the funeral, and the funeral itself. Link to funeral page Telling people, family members, siblings and friends - do you feel able to do this? What do you want to say? Link to sibling page Looking after your own health - eating, sleeping and allowing time and space to yourself. Link to useful links Other peoples reactions - everyone has their own experience of loss. Friends, colleagues and even family...

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  • Great Rainbow Bake - Your Rainbow Cakes

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  • Bereavement support

    The loss of a child is the hardest thing any parent can experience and at this time there can be many challenges to face, but the most important thing to remember is that you don’t have to go through it alone. We provide bespoke continued support to family’s we already work with through Family Support Workers who will have got to know you, your child and the family during your child’s illness. They can help you to negotiate the plans that will need to be made as well as offering emotional support at this devastating time.

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  • Dance like dad this Father's Day

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  • London Marathon 2018 Gallery

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  • London Marathon Gold Bond Terms and Conditions

    The £150 registration fee must be paid within a week of being offered a place on the team. If payment is not received within a week your place will be retracted You commit to raise a minimum of £1,000 by Friday 18 January 2020 If you drop out of the marathon or if Rainbow Trust retracts your place, the £150 registration fee is non-refundable if we are not able to fill your place before the console deadline. You commit to raise a minimum of £2,000 for Rainbow Trust If you do not raise £2,000 and cannot pay the remaining amount you may be black listed from all future London Marathon Events. If you do not raise £2,000 you will be invoiced for the outstanding amount If you have to drop out of the London Marathon 2020 we cannot guarantee you a place on the team in 2021 If you drop out of the London Marathon after Friday 1 February you may still be responsible for raising the £2,000 in fundraising If you drop out of the London Marathon or Rainbow Trust retracts your place we cannot refund any donations already made towards your fundraising target

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  • Donation Widget Test

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  • Your event details

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  • Personalise your top

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  • Meet Amadeusz and his family

    Amadeusz and I hardly left hospital until he was nine months old. His frequent seizures are caused by a type of epilepsy called SCN8A. The condition is so rare that there are only 160 cases in the world and Amadeusz has one of the most complex cases. Without Lyn and Rainbow Trust, our lives would be very tough. When Amadeusz was born, everyone I knew was having children too. But once he became ill, I was suddenly left with no one, my friends weren’t comfortable around me, they didn’t know what to say or do. My husband needed to keep his job, so he couldn’t be with me at the hospital and I was usually alone with Amadeusz for long days on the ward. For the first few days after he was diagnosed I found it hard to be close to him. I wasn’t sure whether I could care for him at home with his complex needs. I heard about Rainbow Trust and met Lyn, who started taking me to hospital, sitting in appointments with me, offering support and advice. She even took me to Ikea to let off steam when I desperately needed to take some time out. Amadeusz...

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  • Meet Scarlett and her family

    Scarlett will be five years old in August, however she has been on quite a life-threatening journey to get to where she is today. Scarlett was two when her family learned something was wrong. She was rushed to hospital and quarantined for a whole month and treated for a condition that to this day has still to be named. Scarlett has an undiagnosed immune system problem, which makes her more susceptible to bacterial and viral infections. This uncertainty about her condition left her parents experiencing a mix of emotions. Matt, her father, said it left him feeling “annoyed, frustrated and most of all worried. Its one of those conditions that if it looks like a dog and barks like a dog then it’s a dog”. Scarlett’s illness occurs rarely in adults, and extremely rarely in teenagers, and as Matt says, “it just doesn’t happen to kids her age.” This made little Scarlett an unfortunate anomaly. In June 2014, Scarlett was so ill she was in an intensive care unit (ICU) for eight weeks. Her health deteriorated to a point where she woke up unable to speak, walk, or even move. This left Scarlett with no choice but to relearn how...

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  • Meet Abideen and his family

    After the death of her first-born son to Brittle bone disease 16 years ago, Shabnam Syed was understandably worried when she fell pregnant again seven years later. However, much to her relief, she gave birth to a healthy daughter, Sofia. Another seven years on when Shabnam fell pregnant again, the family faced more worry as this time scans showed that her son, Abideen, had the disease. “He was born with fractures from his head to his toe,” Shabnam remembers, “It would take three people just to change his nappy, he was that fragile”. For Shabnam, it has always been important to be honest with Sofia, who is very smart for her age and loves playing with her brother. “When Abideen was born Sofia already knew a lot about the disease.” Shabnam says, “We were honest with her, we told her that things would change, but we would try to keep her life as normal as possible”. Eleanor from Rainbow Trust helps keep that normality in the family’s life. “Eleanor is what we call a ‘pick me up’ for Abideen. When he sees her he has this big special smile, whatever mood he’s in!” Shabnam explains, “It was very draining on...

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  • Meet Charlie and his family

    When Charlie was born, I knew in my heart there was something wrong, he didn’t look normal and didn’t make a noise. When he was three weeks old he went back into hospital as he had a nasty chest infection and he kept having these grey episodes which seemed to happen when he was having his milk. I now know what it was – his little body was working so hard trying to co-ordinate things, drinking his milk and breathing. He wasn’t getting enough oxygen while he tried to feed. He’s undergone so many invasive tests and a range of genetic tests. Next he is having a muscle biopsy. Doctors are yet to make a diagnosis but for now, at just one, he is fed through a nasal tube, he is slowly building up his muscles and he can now hold his head up and is starting to move. In October last year when he was three months old, my GP put us in touch with a neuro consultant who agreed that we had reason for concern. She sent him for an x-ray and when they put an oxygen probe on him, they saw he was not taking in enough...

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  • Meet the Ridley family

    When Dean and I went for my 20 week scan, we were told that our baby girl had a heart defect. Doctors said it was so severe that she may not survive the pregnancy and if she did survive, she probably wouldn’t live for very long. There was a surgery the doctors could do that could help if she did survive but that had its risks too. Against the odds, she survived and that’s why we called her Hope. When she was born, she was whisked away for heart surgery to try and repair her damaged heart. Hope has Ebstein Anomaly. The right side of her heart is severely deformed so the left side of her heart has to work twice as hard to keep pumping oxygenated blood around her body. Hope was in hospital for five weeks during which time, Tyler, our then two year old son, had to stay with Dean’s mum and dad. My folks live in South Africa so could not help out. When we got home from the hospital we had to watch Hope constantly, we still do. Because of her condition, we have to make sure she is getting enough food to keep her...

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  • Meet Hadley and her family

    Hadley, my two year old, had been ill on and off for months and when I look back now, I wish I had made the doctors do a blood test. Ben, her twin brother, got sick but recovered quite quickly. Hadley was diagnosed with a double ear infection in December 2014 and had it for a long time. The doctors gave her antibiotics and the infection went away briefly, but she never seemed right. I made an appointment with the GP to talk about Hadley’s constipation and luckily the GP was alert and suspected there was something more serious going on. She told me to take Hadley to the hospital for some blood tests and an X-Ray. Tests revealed that Hadley had leukaemia. I felt scared for her and what she would have to go through but I was convinced she would survive. I couldn’t even think she wouldn’t. Her prognosis was good and I clung to that. I was struggling to manage two small children and it was only going to get worse so I knew we needed help. I wasn’t in a good place – I felt buried and on edge. We contacted Rainbow Trust and a whole...

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  • Meet Daniel and his family

    Soon after Daniel was two, he stopped walking and wasn’t eating. He was a grey colour and his parents and doctors thought he was anaemic. After numerous tests, Daniel was diagnosed with neuroblastoma, a cancer which mostly affects babies and young children. Within a few weeks of diagnosis, Daniel and his family were introduced to Sabrina, one of our North East based Family Support Workers. With all the tests and treatment he had to have, Daniel withdrew into himself and wouldn’t let anyone touch him. He even made up the word, “mish,” to tell people to go away but he took to Sabrina instantly. Claire and Michael, his mum and dad, were so grateful for the support as Daniel’s diagnosis came just three weeks after Claire had discovered she was pregnant. Sabrina helped with hospital appointments and would sit with Daniel to give Claire and Michael a break to speak to consultants, make phone calls or even just grab a coffee and have a breather. Half way through Daniel’s treatment, the chemotherapy stopped working and he had to go onto a clinical trial to see if the new treatment would work. He had surgery to remove the tumour and it...

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  • Rainbow Trust's Young Carers

    I was once asked by a concerned parent what I thought the long-term impact would be on their other children, having a brother with cancer. This was an impossible question to answer as nobody can predict the future, however, I was able to talk to them about some of the amazing young people who help their families care for their sick brothers and sisters every day. It is estimated that 700,000 children are young carers in the UK and a proportion of them are supporting a sibling with life threatening or terminal illness, or disability. At Rainbow Trust we see first-hand some of the challenges faced by these young people. When a brother or sister receives a diagnosis, their family as they know it will be changed. Families can be separated whilst treatment is happening, frequently in hospitals far from home. Normal routines can be turned upside down and jobs and responsibilities normally carried out by adults can fall to other children in the family. Caring can take on many forms. For younger children it might be fetching things for parents carrying out treatments at home, taking on more household tasks to keep the home running - and older children...

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  • Parents Matter

    The case for supporting parents when a child is seriously illHearing that your child has a life-threatening or terminal illness is one of the most stressful and traumatic experiences that a parent can have. The nature of life-threatening and terminal conditions in children means that the mental health of parents can be under severe strain for many months or years. It is likely that many will experience feelings of anxiety, distress, depression or even trauma.Our new report, Parents Matter, brings to light the shared experiences of some parents and carers who have cared for a seriously ill child or young person. It considers what mental health support exists for them, what services these parents were offered, and what they themselves feel would be most helpful.We hope this report, quite literally, opens up new conversations, and we urge health and social care commissioners to act to ensure that they are planning and funding local services to meet the mental health needs of parents in these traumatic situations.Download full reportDownload executive summary

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  • Big Hour Fundraiser

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  • Activities - Colour Sorting

    Download a step-by-step worksheet for this activity.At an extremely uncertain time, we now face a dramatic drop in our income. 98% of our income comes from the generosity of donors and we need these regular funds in order to keep Rainbow Trust - and the vital support that we provide to seriously ill children and their families - going. If have enjoyed this activity with your own family and can spare just a few pounds to help us keep running, please consider donating today.

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  • Activities - Paper Flowers

    Download a step-by-step worksheet for this activity.At an extremely uncertain time, we now face a dramatic drop in our income. 98% of our income comes from the generosity of donors and we need these regular funds in order to keep Rainbow Trust - and the vital support that we provide to seriously ill children and their families - going. If have enjoyed this activity with your own family and can spare just a few pounds to help us keep running, please consider donating today.

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  • Specialist sibling support for Freddie

    Family Support Worker, Charlotte, gives Freddie time and space to understand his own feelings and emotions.Just before her first birthday, Freya was diagnosed with a very rare inherited metabolic condition, Pyruvate Dehydrogenase Deficiency (PDH), characterised by a build-up of lactic acid in the body and a range of neurological problems. Parents Kelly and David were devastated when they first had the diagnosis - their whole world had been blown apart. They were told she wouldn’t even be able to hold her head up, yet she is now walking.In fact, at seven years old she is a medical marvel and is doing brilliantly. Although PDH affects every part of Freya’s life - she can’t dress herself, her speech, vision and mobility are affected, and she needs a specialist diet because her eating and drinking is compromised - Freya is a determined, sociable little girl. Freya is non-verbal but she lives life to the full and wants to be treated as any other child would.One of Freya’s nurses recommended Rainbow Trust to Kelly and David as they also have a four-year-old son, Freddie. Kelly explained to Family Support Worker Charlotte that their life unintentionally revolves so much around Freya that Freddie wasn’t...

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  • Holding space: opening our hearts and stopping judgement

    When there is so much to say and no space in the day to say it, having someone who will create room for you to just be yourself can be the thing that keeps you from being overwhelmed and less able to cope.There can be few things that are more upsetting than managing the feelings generated from having a seriously ill child, yet parents will rarely prioritise their own well-being, and this can lead to both emotional and physical health issues. It is a normal reaction when we see a friend or colleague suffering to want to make it better, to say something helpful or to make them feel that we understand by sharing our own experiences and, of course, there is nothing wrong with this. Rainbow Trust Family Support Workers do things a bit differently. We fully understand that each parent’s experience is unique; we can’t change what is happening, but we can consciously create time for parents to feel that they can be heard, without fear of judgement, by someone who will not be shocked by what they say. Family Support Workers endeavour to validate the feelings that parents express by truly understanding their point of view and...

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  • Activities - Pipe Cleaner Bird Feeder

    Download a step-by-step worksheet for this activity.At an extremely uncertain time, we now face a dramatic drop in our income. 98% of our income comes from the generosity of donors and we need these regular funds in order to keep Rainbow Trust - and the vital support that we provide to seriously ill children and their families - going. If have enjoyed this activity with your own family and can spare just a few pounds to help us keep running, please consider donating today.

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  • Statement from the Chief Executive of Rainbow Trust on the Government proposals

    We welcome the Government now having agreed to provide some financial support for charities but are concerned that the level of support pledged is only a fifth of the £4bn the sector is expected to lose in 12 weeks, as addressed by NCVO. The devil will be in the detail but, as a charity with Family Support Workers on the front line of the COVID-19 crisis, it is likely to fall short. It is difficult to see how the £160million allocated to those of us supporting the vulnerable will be fairly divided across what is a large group of hugely necessary charities.Rainbow Trust is a charity providing social palliative care to families with a terminally ill child. We currently receive no government or NHS funding and do not qualify for the children’s hospice grant as, whilst hugely important, social care does not meet the criteria.New calculations reveal that if our tailored family support did not exist, the cost to the NHS and social care system would be at least £3.9 million each year. All the families to whom Rainbow Trust provides support are already in that unimaginable situation that their child may die before them and now they are seeing...

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  • Activities - Chick Bookmark

    Download a step-by-step worksheet for this activity.At an extremely uncertain time, we now face a dramatic drop in our income. 98% of our income comes from the generosity of donors and we need these regular funds in order to keep Rainbow Trust - and the vital support that we provide to seriously ill children and their families - going. If have enjoyed this activity with your own family and can spare just a few pounds to help us keep running, please consider donating today.

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  • Activities - Hand Bunnies

    Download the step-by-step worksheet for this activity.At an extremely uncertain time, we now face a dramatic drop in our income. 98% of our income comes from the generosity of donors and we need these regular funds in order to keep Rainbow Trust - and the vital support that we provide to seriously ill children and their families - going. If have enjoyed this activity with your own family and can spare just a few pounds to help us keep running, please consider donating today.

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  • Activities - Spring Wreath

    Download the step-by-step worksheet for this activity.At an extremely uncertain time, we now face a dramatic drop in our income. 98% of our income comes from the generosity of donors and we need these regular funds in order to keep Rainbow Trust - and the vital support that we provide to seriously ill children and their families - going. If have enjoyed this activity with your own family and can spare just a few pounds to help us keep running, please consider donating today.

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  • Activities - Kitchen Roll Rainbow

    Download a step-by-step worksheet for this activity.At an extremely uncertain time, we now face a dramatic drop in our income. 98% of our income comes from the generosity of donors and we need these regular funds in order to keep Rainbow Trust - and the vital support that we provide to seriously ill children and their families - going. If have enjoyed this activity with your own family and can spare just a few pounds to help us keep running, please consider donating today.

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  • Activities - Ice Fossils

    Download a step-by-step worksheet for this activity.At an extremely uncertain time, we now face a dramatic drop in our income. 98% of our income comes from the generosity of donors and we need these regular funds in order to keep Rainbow Trust - and the vital support that we provide to seriously ill children and their families - going. If have enjoyed this activity with your own family and can spare just a few pounds to help us keep running, please consider donating today.

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  • Activities - Memory Game

    Download a step-by-step worksheet for this activity.At an extremely uncertain time, we now face a dramatic drop in our income. 98% of our income comes from the generosity of donors and we need these regular funds in order to keep Rainbow Trust - and the vital support that we provide to seriously ill children and their families - going. If have enjoyed this activity with your own family and can spare just a few pounds to help us keep running, please consider donating today.

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  • Take part in the #TwoPointSixChallenge for Rainbow Trust

    In response to the COVID-19 pandemic, the organisers of the biggest mass-participation sports events across the country have come together to create a new campaign to raise vital funds for the UK’s charities. The 2.6 Challenge launches on Sunday 26 April – what should have been the date of the 40th Virgin Money London Marathon. It calls for the nation to invent their own challenges based around the numbers 2.6 or 26 - and donate or raise £26 for a charity of their choice. The challenge is particularly apt for us, as £26 is enough to provide 1 hour of Rainbow Trust support to a terminally ill child and their family. So, fancy giving it a go to help us raise vital funds to continue our care throughout this crisis and beyond? Here's some ideas to help, if you're not sure where to start: Complete a 2.6 mile run, jog or walk.Ride a 26 kilometer cycle - inside, on a trainer, or outside. Bake 26 cupcakes and deliver to your neighbours.Hold a plank for 2 minutes and 6 seconds.Take on 26 laps of the garden...skipping, hopping or jumping!Hold a sponsored silence for 26 minutes...or hours!Complete a 26-part obstacle course in...

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  • Activities - Peg Monster

    Download a step-by-step worksheet for this activity.At an extremely uncertain time, we now face a dramatic drop in our income. 98% of our income comes from the generosity of donors and we need these regular funds in order to keep Rainbow Trust - and the vital support that we provide to seriously ill children and their families - going. If have enjoyed this activity with your own family and can spare just a few pounds to help us keep running, please consider donating today.

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  • Activities - Pebble Pets

    Download a step-by-step worksheet for this activity.At an extremely uncertain time, we now face a dramatic drop in our income. 98% of our income comes from the generosity of donors and we need these regular funds in order to keep Rainbow Trust - and the vital support that we provide to seriously ill children and their families - going. If have enjoyed this activity with your own family and can spare just a few pounds to help us keep running, please consider donating today.

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  • Activities - Bottle Bowling

    Download a step-by-step worksheet for this activity.At an extremely uncertain time, we now face a dramatic drop in our income. 98% of our income comes from the generosity of donors and we need these regular funds in order to keep Rainbow Trust - and the vital support that we provide to seriously ill children and their families - going. If have enjoyed this activity with your own family and can spare just a few pounds to help us keep running, please consider donating today.

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  • Activities - DIY Jigsaw

    Download a step-by-step worksheet for this activity.At an extremely uncertain time, we now face a dramatic drop in our income. 98% of our income comes from the generosity of donors and we need these regular funds in order to keep Rainbow Trust - and the vital support that we provide to seriously ill children and their families - going. If have enjoyed this activity with your own family and can spare just a few pounds to help us keep running, please consider donating today.

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  • New research reveals significant rise in need for Rainbow Trust support

    A new study published today shows that the number of children in England with life-limiting or life-threatening conditions has trebled over the last 17 years, and the likely need for services is significantly higher than previously understood. The number is predicted to rise by at least another 11% by 2030.The Make Every Child Count study, conducted by the University of York, has revealed that the number of children in England with life-limiting or life-threatening conditions increased to 86,625 in 2017/2018. The figures for 2001/2 were 32,975. Key findings include: There are growing numbers of children with life-limiting conditions, increasing from 26.7 per 10,000 in 2001 to 66.4 per 10,000 in 2017/18. Prevalence is highest in the under ones, The proportion of life-limited children living into young adulthood is increasing Prevalence is highest in areas of higher deprivation and in ethnic minority populations. Prevalence is higher in boys than girls. The prevalence of life-limiting conditions was highest for congenital abnormalities. Prevalence is increasing across all regions of England, with the highest increase in the North West of England and Yorkshire and the Humber.Our Chief Executive, Zillah Bingley, said:"This new research reflects how vital Rainbow Trust’s emotional and practical support is, as...

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  • Activities - Rainbow Hunt

    Download a step-by-step worksheet for this activity.At an extremely uncertain time, we now face a dramatic drop in our income. 98% of our income comes from the generosity of donors and we need these regular funds in order to keep Rainbow Trust - and the vital support that we provide to seriously ill children and their families - going. If have enjoyed this activity with your own family and can spare just a few pounds to help us keep running, please consider donating today.

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  • Activities - Alphabet Hunt

    Download a step-by-step worksheet for this activity.At an extremely uncertain time, we now face a dramatic drop in our income. 98% of our income comes from the generosity of donors and we need these regular funds in order to keep Rainbow Trust - and the vital support that we provide to seriously ill children and their families - going. If have enjoyed this activity with your own family and can spare just a few pounds to help us keep running, please consider donating today.

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  • Activities - Painted Collage

    Download the step-by-step worksheet for this activity.At an extremely uncertain time, we now face a dramatic drop in our income. 98% of our income comes from the generosity of donors and we need these regular funds in order to keep Rainbow Trust - and the vital support that we provide to seriously ill children and their families - going. If have enjoyed this activity with your own family and can spare just a few pounds to help us keep running, please consider donating today.

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  • Isolation isn't new for us, it's a way of life

    For families with a seriously ill child, isolation is something they are already familiar with. Here, Louise - a parent we support - explains.When the country went into lockdown in March, people started experiencing how my daughter Jessica and I have lived for the last 16 months. Jessica has a genetic condition and was admitted to Great Ormond Street Hospital in November 2018. We were immediately put into isolation. Jessica could no longer see her brother or school friends and, although there were another 10 children on the ward, they were not allowed to play with each other. Jessica would have nurses and doctors coming in throughout the day, one hour of school a day - sometimes a play worker or volunteer visit her for an hour - and then an hour of physiotherapy twice a week. She had no contact with other children, except a visit from her brother once a week when the doctors decided that it was safe to do so. In 2019, we were referred to a local hospice and had some respite sessions away from the hospital environment. We were referred to Rainbow Trust and had a Family Support Worker assigned to us. I chose...

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  • Activities - DIY Kazoo

    Download a step-by-step worksheet for this activity.At an extremely uncertain time, we now face a dramatic drop in our income. 98% of our income comes from the generosity of donors and we need these regular funds in order to keep Rainbow Trust - and the vital support that we provide to seriously ill children and their families - going. If have enjoyed this activity with your own family and can spare just a few pounds to help us keep running, please consider donating today.

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  • Protecting our Future by Anne Harris, Director of Care Services

    At Rainbow Trust we continue to balance the huge challenge of supporting families with a seriously ill child, who are in more need of our practical and emotional support than ever before, against the sudden uncertainty around our fundraised income.We want to be clear to the families we support and our donors about what we are doing to protect our service and our future, in these troubling and unprecedented times. We are now managing our short-term service delivery in the most pragmatic and sustainable way possible, so that as we start to emerge from this crisis, we will still be here to continue to work towards our vision of supporting every family who has a child with a life-threatening or terminal illness who needs it. To the families we support, we understand you are finding your situation is much worse than before, and we are committed to continue to support you, however and whenever you need it most. We have been able to quickly adapt and change our service delivery model in the face of the Covid-19 crisis. 85% of families we support are self-isolating, which naturally triggered an overnight rethink to the way we can meet family’s needs. We...

    Thank you.

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  • Share your rainbow on #GivingTuesdayNow

    Our Family Support Workers - identified as ‘key workers’ in the current crisis - have been part of the national response to rapidly increasing demand, providing critical care and support to seriously ill children and their families, who are already going through so much, in this new reality.Tomorrow, Tuesday 5th May, is #GivingTuesdayNow - a day dedicated to charities, like us, who have continued to support families, friends and communities in challenging circumstances, throughout this extremely difficult time. The day asks for people to share a message of thanks on social media, or a heart in their front window, as a sign of solidarity and gratitude to all key workers supporting local communities. Or if you don't have access to a printer, you can share a heart with your own personal message on social media. For the past few weeks, we've been encouraging people to share their rainbows on social media with the hashtag #ShareYourRainbow, to show support for our key workers who are still supporting seriously ill children and their families isolating at home, or who are currently in hospital. So to celebrate #GivingTuesdayNow, we've created a downloadable rainbow heart that you can print off and colour in at...

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  • Activities - Toilet Roll Tube City

    Download the step-by-step worksheet for this activity.At an extremely uncertain time, we now face a dramatic drop in our income. 98% of our income comes from the generosity of donors and we need these regular funds in order to keep Rainbow Trust - and the vital support that we provide to seriously ill children and their families - going. If have enjoyed this activity with your own family and can spare just a few pounds to help us keep running, please consider donating today.

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  • Be More Adam

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  • Activities - Woven Placemats

    Download a step-by-step worksheet for this activity.At an extremely uncertain time, we now face a dramatic drop in our income. 98% of our income comes from the generosity of donors and we need these regular funds in order to keep Rainbow Trust - and the vital support that we provide to seriously ill children and their families - going. If have enjoyed this activity with your own family and can spare just a few pounds to help us keep running, please consider donating today.

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  • Not the way it was supposed to be: helping with grief and loss in a national pandemic

    Contemplating the death of your child at any time is a thing that nobody should have to do, yet this is the reality for parents who have a child diagnosed with a life threatening or terminal illness. Some may choose not to acknowledge the shadow of this in their lives, but it will be there nonetheless. This shadow would also have been in the context of a world before the COVID-19 pandemic.We know that how families are supported at the time of a bereavement can have a lasting impact on how they manage their feelings and new reality. Making choices ahead of time or even being supported to do so in the moment, can be acts of great love that parents can show to their child. Where this is denied due to circumstances beyond their control there is a risk that there will be additional negative feelings generated, thus exaggerating already overwhelming loss. This is particularly true for the way in which families will want to mark their child’s life. To be denied the opportunity of creating a personal tribute where family and friends can mourn a child’s death will not only be an additional loss, but could inhibit the...

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  • Activities - Number Wheel

    Download a step-by-step worksheet for this activity.At an extremely uncertain time, we now face a dramatic drop in our income. 98% of our income comes from the generosity of donors and we need these regular funds in order to keep Rainbow Trust - and the vital support that we provide to seriously ill children and their families - going. If have enjoyed this activity with your own family and can spare just a few pounds to help us keep running, please consider donating today.

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  • Living with the unknown - a way of life for families with a seriously ill child

    A parent recently told me that after years of unplanned - and sometimes emergency - admissions to hospital she has developed a routine. Whilst she waits for an ambulance or medical help for her child, she preps her home and family for what lies ahead and hopes for their return home. This can be anything from emptying the bins and the fridge so she doesn’t return to gone off food, to calling her support network for help with her other children. This is a way of life for parents of a sick child - in some cases, not just for weeks, but for months and years. Living with the reality of not knowing what is around the corner; trying to shop and keep supplies in, not knowing when you will next be able to go out; keeping the practicalities of life together. Under the overwhelming stress of caring for a seriously ill child, is a skill that families develop out of necessity. And now we are getting a glimpse of what this can be like.Is this a time when families supported by Rainbow Trust come into their own? Show us their resilience and their ability to cope with incredibly difficult...

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  • Share Your Rainbow

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  • Tips for parents struggling with their mental health

    All parents want to protect their children and keep them safe and so it is understandably devastating if your child is diagnosed with a serious illness. By taking care of your mental well-being, you are better able to cope and better able to support your ill child and any siblings they may have.Here are ten tips that may help if you are struggling in the shadow of serious childhood illness:

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  • A bereaved father’s thoughts on Jack’s Law

    When our daughter Iris was six months old she became quite ill and was diagnosed with a very rare cancer. Over the period of a year she went through surgery and treatment at Great Ormond Street, but very sadly when she was 18 months old her illness returned. She passed away at home when she was just two and a half years old. That was in 2010.I feel very privileged to have had an employer who was wonderfully supportive in the immediate aftermath of Iris's death. When we knew that nothing more could be done for her we decided to nurse her at home. I was lucky enough to be able to take time off towards the end of her life to help care for her. Not everyone is so fortunate. As a bereaved father I am delighted to see the introduction of Jack’s Law in April. The law will entitle parents who are employed at the time of their child’s death to have two weeks’ compassionate leave. Prior to this, employers have only been obliged to offer ‘reasonable’ time off to bereaved employees. Whilst two weeks is not enough time to deal with the trauma of losing a child...

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  • How to help a parent who is managing illness in the family

    Parents of a seriously ill child can experience difficult feelings such as isolation, anxiety and depression. Coupled with the practical stresses of caring for the child and their siblings, this can take a toll on their mental health and ability to cope. If someone close to you is living in the shadow of serious illness, you may want to help but feel powerless to do so. Here are some suggestions of how you can help support them:

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  • Checklist for health and social care professionals

    Many parents say that they put on a brave face in front of professionals and their children. It may not be obvious how much a parent is struggling underneath. Please download our checklist when working with parents of a child with a life-threatening or terminal illness.Our checklistDo you feel confident that you could spot the signs of a parent or carer struggling with their mental health? Do you regularly offer access to psychological support or counselling? Is the offer of support repeated at different stages, rather than being a one-off? Is support offered in a sensitive and discrete manner, so parents do not feel singled out? When parents are interested in accessing psychological support of counselling, do you discuss with them whether there are practical barriers, such as transport or childcare needs, that need to be addressed? Do you include all relevant professionals in discussions about how families are managing, to ensure that support is provided in a joined up manner?Have you considered how you can ensure that information is shared effectively between professionals involved with a family? Are you able to signpost parents to relevant charities or support groups which offer emotional and practical support?

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  • Order your Rainbow Trust t-shirt or jersey

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  • Parents Matter: a new report on mental health support for parents of a seriously ill child

    When a child is seriously ill, parents can experience extreme stress and anxiety, often for many months or years. Our new report, Parents Matter - The impact on parents’ mental health when a child has a life-threatening illness, shares parents’ stories of managing their mental health, and their advice to other parents in the same situation. Feelings of isolation, depression and anxiety are common. The report is backed by father Adam Proops, whose two-year-old daughter Iris died of cancer in October 2010. Adam is keen to raise awareness and eradicate mental health taboos when caring for a life-threatened child. Adam said: “After Iris died, I was hit by a deep depression and I was in a very low place. I remember one morning I sat on a park bench for several hours, unable to move or go into work. Suicide is the biggest killer of middle-aged men. Nothing that dark ever crossed my mind, but I was feeling hopeless. I think a lot of men struggle to talk about their emotions and admit they are finding it hard to cope. But I learnt there is no shame in needing mental health support and the key for any parent going through...

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  • 29 ways to fundraise this Leap Day

    Leap Year comes only once every four years, making them rarer than a partial solar eclipse. They provide us with a whole extra day in the year; and with busy lives where time is short, this extra day is special - so why not use it for good?At Rainbow Trust, we support families who have a child with a life-threatening or terminal illness. Our Family Support Workers provide a lifeline to these families. They bring the support and help so desperately needed at home, in hospital and in the community. This care costs £8,709 per day to provide, and in a Leap Year, we need to find funding for an extra day, 29 February. To achieve this, we are asking you to join the Big Leap to help us raise the additional £8,709. By giving a little of your time, you can make a real impact!Here are 29 fun-filled fundraising ideas to show how you could do something meaningful and memorable on 29 February, by using your extra day to help us to reach our target. For companies and schools, how about fundraising on Friday 28 February instead? 1. Why not have a Bake Sale? A Friday treat for the...

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  • Supporting mental health in children and young people

    As a Family Support Manager, I have worked with many families supporting them in crisis. While the parents are struggling with the news their child has been diagnosed with cancer or another life-threatening condition, they also are worrying about the impact on the mental health of the sick child and their healthy siblings. This made me want to find out more about mental health, not to add more worries to a family, but to make sure that my team has the necessary tools to support parents if they were concerned about a child or children.In recent years, there has been a growing recognition of the scale of poor mental health among children and young people, and the difficulty in accessing timely professional support. We need to acknowledge there is still a stigma associated with mental health which may prevent any child from seeking help, and many children and young people can find it difficult to express how they are feeling. Sometimes siblings of a sick child will keep their worries to themselves, to protect their parents as they care for their brother or sister. Feelings of anger, jealousy and frustration are common among healthy siblings, with the family’s attention on...

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  • Valentines Appeal

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  • The Big Leap

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  • Run Gatwick

    Take on the Run Gatwick Half Marathon, the fast, flat single lap course takes in a combination of town centre, beautiful rural Sussex and Surrey countryside and the buzz of Gatwick Airport. The event recently won Gold for ‘The Best New Event’ at the 2019 National Running Awards, this is an event you want to be part of!By joining Team Rainbow Trust you will receive:A professional running vestOur eye-catching rainbow hairInspirational fundraising and training advice.If you have any questions please do get in touch with us by email or call 01372 220031.

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  • Jennifer Smithson

    Jennifer has been a partner in the Private Client department at Macfarlanes, a prominent city law firm, since 2014, having qualified as a solicitor in 2005. Prior to becoming a solicitor, Jennifer spent six years working in authorial rights and TV and film distribution. Jennifer lives in South London with her husband and two daughters.

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  • Liz Crighton

    Liz is Associate Professor for Children's Nursing at Kingston University. Previous roles include strategic lead for education at The Shooting Star Children's Hospice and practice educator at the Louis Dundas Centre for Paediatric Palliative Care at Great Ormond Street Hospital. Liz has an extensive range of clinical and educational experience caring for children and young people with long-term and life-limiting conditions across hospital, community and hospice settings and is a co-opted member of the Rainbow Trust Care Committee.

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  • New ministers urged to respond to the needs of families of seriously ill children

    The recent reshuffle of government ministers saw new appointments to two roles of significance for seriously ill children and their families.Helen Whately, MP for Faversham and Mid Kent, has been appointed as Minister of State for Care, replacing Caroline Dinenage MP. Vicky Ford, MP for Chelmsford – where Rainbow Trust is currently supporting six families - has been appointed Children and Families Minister, replacing Kemi Badenoch MP. Adult social care is set to dominate Helen Whately’s in-tray, with action on the issue having been promised by Prime Minister Boris Johnson during the 2019 General Election. However, Rainbow Trust has written to the new minister to highlight the importance of also addressing the social care needs of families where a child has a life-threatening or terminal condition, alongside the needs of older adults which are more regularly in the news. Vicky Ford’s role, within the Department for Education, will lead on children’s social care and the government’s review of special educational needs and disability (SEND). Rainbow Trust Chief Executive, Zillah Bingley, said:"We welcome Ms Whately and Ms Ford to their posts, and we hope that they will quickly get to grips with the needs of families supported by Rainbow Trust.It’s a...

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  • St James leaps to the rescue

    At Rainbow Trust, the care and support we provide families with a seriously ill child costs £8,709 per day. In a Leap Year, there is an extra day which we need to raise money to fund. Reaching out to our supporters through our Big Leap campaign, we put out the call for support in raising this additional income. Little did we know that one of our corporate partners, St James and St William, would step in and donate the deficit amount. Louise Bingham, Corporate Partnerships Manager at Rainbow Trust said:"Our Family Support Workers provide a lifeline to families. They bring the support and help so desperately needed at home, in hospital and in the community. By making up the funding shortfall, St James and St William will have a huge impact. We are grateful for their continued, ongoing support. Companies such as this are vital to us maintaining sustainable income."This donation means that any additional funds raised through The Big Leap campaign can go toward giving more time to families, helping them make the most of each day.Dean Summers, MD of St James and St William said:"St James and St William, and its employees, are delighted to be able to...

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  • Two very special Leap Year Birthdays

    Two families that we support in Essex will be celebrating very special leap year birthdays this weekend. Skye, who has a rare genetic metabolic illness, will turn eight this weekend - defying all the odds of her diagnosis. Mum, Vicki, will be inviting family and friends to their home to celebrate. She says:“Doctors told us that children like Skye live for three or four years and she’s about to turn eight. She’s a fighter and has defied the odds.”Skye was diagnosed with the illness when she was 16 months old and is tube-fed, non-verbal and unable to sit up unaided. She likes to move across the floor by shuffling on her back and enjoys music.Rainbow Trust Family Support Worker Abi has supported the family for about three years, predominantly helping Skye’s brothers - 5-year-old brother Harrison and 7-month-old Max. Vicki also said:“The most important thing Abi has done for us is the one to one support she gives Harrison. Rainbow Trust are the only people who really help siblings and the wider family. Harrison has a special relationship with Abi and that makes such a difference. Without charities like Rainbow Trust, children like Harrison can feel left out. Abi makes...

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  • Meet Emily, Neonatal Sibling Group Volunteer

    Tell us a bit about yourself – interests and hobbies, other work or volunteering I graduated from the University of Surrey around 4 years ago and have been working in the PR and Marketing industry ever since - I’m currently a Junior Creative for a communications agency called Ketchum London.Outside of work I absolutely love all things baking and am always experimenting with new (mostly healthy!) recipes in my spare time. I also love to get involved in charity work and have been volunteering at Rainbow Trust for just under a year now. Alongside this, I also volunteer for a charity called Riding for the Disabled; another amazing organisation that provides therapeutic horse riding for disabled children and adults in the UK.How did you first hear about Rainbow Trust and why did you decide to volunteer? When I moved into London a year ago, I was on the lookout for a more local volunteering opportunity that I could fit alongside my work schedule and new location. After a lot of researching I came across Rainbow Trust and was instantly drawn to the incredible work they do all over the UK, supporting children and their families. I decided to sign up...

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  • MPs call for emergency charity funding

    More than 236 MPs and peers from nine different political parties have come together to call for an urgent government package to support charities and other voluntary groups in light of the devastating impact of the Coronavirus pandemic on charity fundraising.The cross-party letter has been circulated by Stephen Doughty MP, and urges Chancellor Rishi Sunak to support charities, the voluntary sector and social enterprises by adopting five specific measures. Rainbow Trust Children’s Charity is continuing to support seriously ill children and their families across England at a time when many are in a high risk group and must self-isolate to prevent their child contracting the virus. We are particularly concerned that the government implements the first two proposals which are: To provide immediate emergency funding for charities, voluntary organisations and social enterprises supporting the response to the crisis, especially those alleviating pressure on the health service or providing support to people suffering from the economic and social impact To establish a stabilisation fund for all charities, voluntary organisations and social enterprises to help them stay afloat during the crisis and to continue operating.Rainbow Trust Chief Executive, Zillah Bingley, said: ‘We are, as are many others, facing unique times. Rainbow Trust...

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  • Meet Sharon, Admin Volunteer in Southampton

    Tell us a bit about yourself – interests and hobbies, other work or volunteering My name is Sharon and I am a mother of two grown up children and have three grandchildren. My hobbies include travelling, theatre trips and doing crafts. I’m an outgoing person and enjoy socialising with my friends.How did you first hear about Rainbow Trust and why did you decide to volunteer?I recently lost my husband and there has been a massive void in my life. I then came across this charity while visiting Slimming World in the same building. I bumped into an old friend from years ago and she happened to be the Family Support Manager in Southampton for Rainbow Trust. She felt that I had too much time to sit and think and asked if I had ever thought about volunteering. It was a no brainer and I haven’t looked back.What do you enjoy most about your volunteering? I enjoy being part of a team again and it makes me feel valued and gives me back some worth in my life.Can you describe a typical day volunteering and what it involves? I arrive in the morning and make tea and coffee for whoever is...

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  • Budget 2020 falls short for children

    Sustainable funding for children’s social care was conspicuously missing in this week’s Budget, although emergency funding is being established to help local authorities support vulnerable people affected by the spread of the COVID-19 virus. Chancellor Rishi Sunak announced large injections of funding to the NHS and other public services in response to the virus, alongside new spending on infrastructure and potholes. A £5 billion COVID-19 response fund will include some funding for local authorities to ‘manage pressures on social care and support vulnerable people’. Our Chief Executive, Zillah Bingley, said:"Emergency funding to enable local authorities to support vulnerable groups is to be welcomed. Many families caring for a seriously ill child are already under immense pressure, and this pressure is likely to increase in the weeks ahead. Ensuring that both health care and social care support continue to be provided in these circumstances will be hugely important to these families. However, it is disappointing that sustainable funding for social care for seriously ill children and their families is a lower priority than potholes. We urgently need this government to address the needs of this vulnerable group, and we will be looking towards the Spending Review later this year to increase...

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  • New entitlement to neonatal leave announced

    We warmly welcome the announcement of a new entitlement to Neonatal Leave and Pay in this week’s Budget. Chancellor Rishi Sunak announced that employed parents whose babies spend an ‘extended period’ in neonatal care will be entitled to paid leave of up to 12 weeks. This follows a concerted campaign in recent years for improved support to parents in this situation. At present, some parents find that their paid paternity leave expires when their newborn baby is still in neonatal care, or feel forced to save some or all of their entitlement until their baby is discharged home. Meanwhile household spending can often rise as a result of hospital parking costs, transport costs to visit a neonatal unit at some distance from the family home, or additional childcare for healthy siblings.Our Chief Executive, Zillah Bingley, said: ‘We are delighted to see this policy which means that employed parents of seriously ill babies will feel less financial pressure at a time of great worry and anxiety. This new entitlement will mean some parents will no longer need to choose between returning to work and taking care of their vulnerable baby, and more partners can support each other during a very difficult...

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  • Coronavirus statement

    The current situation with Coronavirus (COVID-19) is deeply unsettling. As ever, our priority is the families we support, our staff, our volunteers and our supporters. We are following and responding to all the guidance provided to us from the UK Government, Public Health England and the NHS.We are doing everything we can to minimise the impact and reduce the spread of COVID-19 across all our sites and will continue to do so. Our Care Teams are in contact with the families we are currently supporting to see how they are coping during this challenging time and our Family Support Workers are still visiting families, and following all local hospital advice about attending appointments or visiting. We are closely monitoring the situation and are reviewing all our forthcoming events and fundraising activities in line with the Government’s advice, as it emerges.Do get in touch with us if you have any queries or concerns: For families we support: Please contact your Family Support Worker or call the 24-hour care line out of hours on 0800 126920. For volunteers or supporters: Please call 01372 363438 or email enquiries@rainbowtrust.org.uk

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  • Standing together for Mother's Day

    As we approach Mother’s Day, I know that as a parent myself I will reflect on what it means to be a mother. It is of course the most privileged role there is and this remains the same when you have a child who is seriously or terminally ill - and also when you are a bereaved mother. Being any one of these changes the meaning of Mother’s Day a great deal. The mothers I work with as a Family Support Worker at Rainbow Trust face huge challenges on a day to day basis. Many are juggling the needs of their unwell child with the needs and time of their other children who also require attention, understanding and love. Many have not spent any quality time with their partner, friends or family for months. Some have even spent weeks in hospital away from home and their other children to spend all their time with their unwell child. Some Mums I work with don’t even have the time to shower or eat throughout the day, let alone think about choosing what they will wear or doing their hair. They may have had to give up a job or a hobby that...

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  • An open letter from Zillah, our CEO, on COVID-19

    Dear Rainbow Trust Supporter,What can I say that you won’t already have heard? We are (as are many others) facing unique times and the massive concern that Rainbow Trust will not be able to continue to support the 2,500 vulnerable families with a terminally ill child that we currently do.We urgently need your help. The families we support are already facing the unimaginable thought that their child may die before them. Now, they are also experiencing the genuine fear of that being exacerbated by a situation out of their control which may, at the very least, make them temporarily unable to continue to care for their child and be supported in doing so.Families often tell us that their Rainbow Trust Family Support Worker is one of the only trusted ‘constants’ in their lives, helping them as they face uncharted territory, uncertainty and often the unknown. That is not changing in the short term. We will continue to be there to support them in their lives, in whatever way we can be of most help, whether that is in person (wherever safely possible), by telephone or in other ways, for as long as is possible. However, we now face a dramatic...

    Thank you.Zillah Bingley, CEO

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  • Activities

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  • Activities - Super Soap Experiment

    Download a step-by-step worksheet for this activity.At an extremely uncertain time, we now face a dramatic drop in our income. 98% of our income comes from the generosity of donors and we need these regular funds in order to keep Rainbow Trust - and the vital support that we provide to seriously ill children and their families - going. If have enjoyed this activity with your own family and can spare just a few pounds to help us keep running, please consider donating today.

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  • Activities - Make your own playdough

    Download a step-by-step worksheet for this activity.At an extremely uncertain time, we now face a dramatic drop in our income. 98% of our income comes from the generosity of donors and we need these regular funds in order to keep Rainbow Trust - and the vital support that we provide to seriously ill children and their families - going. If have enjoyed this activity with your own family and can spare just a few pounds to help us keep running, please consider donating today.

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  • Activities - Marble Run Fun

    Download a step-by-step worksheet for this activity.At an extremely uncertain time, we now face a dramatic drop in our income. 98% of our income comes from the generosity of donors and we need these regular funds in order to keep Rainbow Trust - and the vital support that we provide to seriously ill children and their families - going. If have enjoyed this activity with your own family and can spare just a few pounds to help us keep running, please consider donating today.

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  • COVID19 Appeal

    Our Family Support Workers - identified as ‘key workers’ in this Covid-19 crisis - are part of the national response to rapidly increasing demand, providing critical care and support to seriously ill children and their families in this new frightening reality. But overnight our income has dropped. We have seen every fundraising event cancelled and our two charity shops closed. We receive no government funding and rely almost entirely on the generosity of the public. We face the very real concern that we will not be able to continue supporting the 2,500 vulnerable families that we currently help. Families with children undergoing cancer treatment, organ transplant patients and others with compromised immune systems. We are giving emergency practical, mental, and emotional health support 24 hours day to these families by:Acting as a bridge between hospital and home, relieving pressure on vital NHS staff by giving emotional support to parents who have nowhere else to turn.Delivering breast milk from new mothers to their babies on neonatal wards, as they are separated and unable to visit.Sourcing and delivering vital medical and grocery items that vulnerable families need to keep going. For example, medicine, milk and nappies.Giving regular video and telephone support to...

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  • Cancer survivor virtually cycles to London to raise money for Rainbow Trust

    Stockport teenager and cancer survivor Adam Finch, has set himself a massive challenge while in isolation by cycling on his exercise bike virtually over 200 miles to London, to raise £1,500 for us.Adam,13, whose vulnerable heath following treatment for brain and spinal cancer means he is in isolation, can’t see his dad who lives in London. To feel closer to his dad Adam has decided to take on the huge challenge of virtually cycling to London while raising money for us, as we have supported him and his family since he was diagnosed with cancer in 2015 when he was just 8 years old.Adam felt compelled to help us after he heard that the coronavirus had meant that we needed to cancel or postpone fundraising up and down the country. Worried that we might not be able to continue supporting families with a seriously ill child, he wanted to do something to help.Adam says: “In 2015 doctors told me I had a brain tumour. I was very scared, and so was my sister. But then I met Sean from Rainbow Trust, and things started to get better.“I was in hospital for nearly a year and Sean visited me every week...

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  • Activities - Hand Print Creatures

    For this activity, you will need to download and print these handy templates (or if you don't have a printer at home, why not try drawing them yourself?).

    Download the hand print creature templates for this activity.At an extremely uncertain time, we now face a dramatic drop in our income. 98% of our income comes from the generosity of donors and we need these regular funds in order to keep Rainbow Trust - and the vital support that we provide to seriously ill children and their families - going. If have enjoyed this activity with your own family and can spare just a few pounds to help us keep running, please consider donating today.

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  • Activities - Salt Bingo

    Download a step-by-step worksheet for this activity.At an extremely uncertain time, we now face a dramatic drop in our income. 98% of our income comes from the generosity of donors and we need these regular funds in order to keep Rainbow Trust - and the vital support that we provide to seriously ill children and their families - going. If have enjoyed this activity with your own family and can spare just a few pounds to help us keep running, please consider donating today.

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  • Great North Run 2018 Gallery

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  • Volunteer at Bitesize Battlefield Challenge

    Interested in volunteering for the Bitesize Battlefield Challenge? Register your interest using the form below and let us know what dates you are available. Please note that by providing us with your details below you agree to be contacted by Rainbow Trust about this event.

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  • Together at Christmas

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  • Meet Shelly

    Shelly Duck, 39, has been a volunteer working with our care team in Durham since December 2012. She talks to us about working with children and settling into the post. Why did you choose to volunteer for Rainbow Trust? When I went on to Rainbow Trust’s website to check it out I was overwhelmed by the amazing work being done. Once you started to take on volunteers I grabbed the opportunity to contribute. What kind of work do you do for the families you support? I visit hospital wards to enable the families to have a few hours to themselves. Many of the parents are at the hospital 24 hours a day which can be exhausting and very stressful. I also accompany the Family Support Workers with siblings of the children with illnesses as they can often feel overlooked. Having two of us means we can give more attention to each sibling when there is more than one. How do you cope with the difficult situations you encounter? Nothing prepares you for the first time you go on to the ward and see all of the sick children, it is a devastating sight. But I am amazed by how much...

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  • Making arrangements for a memorial

    If you have been asked to arrange a funeral and collect donations in lieu of flowers, collect online donations or simply provide information on a chosen charity, we can support you. We can provide personalised donation envelopes, printed with the name of a loved one. Just email us at supportercare@rainbowtrust.org.uk with the date of the memorial, the name you would like on the envelopes, how many you’d like and a postal address for us to send them to. We can help you set up an online tribute fund, so that friends and family can donate via your own website. If you’ve already held a collection, you can send funds to us online. If you’d rather send us the money in another way, here is more information on how you can do that.

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  • Sarah's Forever There Tribute Fund

    An amazing way to remember our sparkly, beautiful daughter Maggie Hancock’s daughter Sarah died on 14 December 2004. Maggie is a long term supporter of Rainbow Trust and decided as a special way of keeping Sarah’s passions and memory alive, to set up a Forever There Tribute Fund in Sarah’s name. Maggie uses Sarah’s online fund to spread as much positivity and love with all her friends and family to make a genuine difference for the future of families. “Sarah loved rainbows. Raising money for Rainbow Trust through donations instead of flowers at her remembrance service seemed to us and our friends and family the most appropriate way of remembering Sarah. Every year since then we have continued to raise funds in her name, including selling raffle tickets, collections and her Aunt running the Great North Run. It is an amazing way to remember our sparkly, beautiful daughter and the support we have received from Rainbow Trust throughout this has been wonderful.” Maggie Hancock.

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  • Iris's Forever There Tribute Fund

    We will always miss Iris and will keep her memory alive Iris was seven months old when she was diagnosed with a tumor on her liver. Despite surgery and a gruelling regime of chemotherapy, Iris died on 10 October 2010, aged two and a half. Adam, Iris’s dad shares his story. “The routine of hospital, chemotherapy, home, blood tests, transfusions, infections and hospitalisation becomes worryingly normal. Initially, we did not own a car, so I signed up to a car club. We couldn’t take a child with a compromised immune system on the train. Life was tough and financially it hit us hard. Kate, Iris’s Mum hadn’t been home for a month. Thankfully, we were introduced to Rainbow Trust. Family Support Workers Mary and Mandy became an indispensable part of our lives. I did not have to worry about getting Iris to hospital any more. Most importantly, Iris loved them. When the very worst was confirmed, and we were told our little girl was going die, Mary and Mandy were astonishing in their care, compassion and hard work. “Rainbow Trust gave us time” Rainbow Trust played such an important part in our lives - they gave us time – we...

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  • Volunteer out and about

    There are lots of different ways to get involved and support Rainbow Trust. Here are just a few ideas of how you can make difference by volunteering your time and energy. Event support Do you want to be part of a team helping at our fundraising events? We organise and attend many events in the community and are always looking for volunteers to come along and help. It’s a fantastic way of getting involved in some really fun events and meeting new people; whilst supporting families who have a seriously ill child. Fundraising We are looking for people who would be happy to raise funds in their local community by organising a fundraising event on our behalf. You can organise your own event or take part in one of Rainbow Trust’s annual fundraisers like ‘The Big Hour’. You will be supported all the way with the help from our experienced community fundraising team. Join one of our Friends Groups We currently have Friends of Rainbow Trust groups in England who play an important role in raising funds for Rainbow Trust. They are supported by a dedicated member of staff who is always on the end of the phone to offer...

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  • Volunteer Ambassadors

    We are looking for volunteer ambassadors to join our team. If you have experience in public speaking or giving presentations, why not use your skills to help us raise the profile of Rainbow Trust Children’s Charity to local community groups, schools and clubs? We are asked to attend many talks and cheque presentations and our staff are not able to attend every one, this is where our valuable ambassadors come in. The talks that we are requested to attend can vary from 5 minutes to an hour long. We train our volunteers to be equipped with the right information and to be adaptable for each audience. How you can get involved? You can get involved by:Attending cheque presentations in your local area and thanking our donors face-to-face Giving short talks about Rainbow Trust and our work to community groups Getting people involved in our latest appeals and campaigns like October’s The Big Hour. If you are interested in helping to raise awareness of the valuable work that we do, please get in touch.

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  • Stretching

    Why do you need to stretch? • It can optimise your potential for different activities. • It helps prepare the body for the demands placed upon it in training or racing. • Heighten your awareness of your bodily movements. • Reduce the risk of joint sprains, muscle strains and muscle soreness. • Reduce the risk of back problems. • Reduce the tension of muscles. Dynamic stretching This type of stretching is also known as functional stretching. It basically involves moving the muscles through a range of movements that you will mimic in the activity that you will be doing. It is probably the best form of stretching that you can do prior to exercise. What is more, through stretching dynamically you can keep the core temperature of the body higher due to movement and keep the heart rate up, whereas static stretching will allow both of these important pre-exercise conditions to drop. Dynamic stretching has been demonstrated through research to enhance flexibility and can improve optimum flexibility, which is essential for all sports. Static stretching This is the most commonly used form of stretching. It involves moving the limb and then holding when the stretch is felt. The stretch occurs...

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  • Swimming Training plan

    TrainingBuild up your training distances over a period of time. The Hampton Court Swim is 2.25 miles, which is just over 3,650meters. I.e. that’s 146 lengths in a 25 metre pool, 73 lengths in an Olympic size 50m pool. Break training into sections, you don’t have to swim the whole distance every time that you train. Practice looking straight ahead when you breathe, this will be useful for sighting turn buoys during the swim. Kit listWetsuit and swimming cap. You can hire/buy your wetsuit from some great websites and its worth getting this plenty of time in advance so that you can train in it. It is essential that you wear a swimming cap on the day as this will have your swimming number on it and this will be supplied by the organisers prior the race. It is worth buying another one to train in and also you can wear it underneath your official one for an extra layer of warmth over your ears! Vaseline. This is to prevent your wet suit from rubbing. Apply the Vaseline with rubber or plastic gloves DON’T get it on your hands! Goggles (Mirrored goggles are best to prevent glare) Warm clothes. Have...

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  • Beginner's Half Marathon training guide

    Tackle your first half-marathon with our 12-week training guide. We’ll give you everything you need to start developing the endurance and speed you’ll need to make it to the finish line! 13.1 miles is more achievable than you think. But you’ll need to put in the time to be race-day ready. Our training plan is divided into tempo runs, recovery runs, long-distance runs and rest days. Weeks 1 to 3 The first couple of weeks are designed to help you get started. To start tempo running, it is best to start with a 2-5 minute warm-up before running at tempo pace for 5-10 minutes. After this, keep going by jogging for a couple of minutes to let you recover before repeating. Hey presto - you’ve just completed 30 minutes of tempo running! With your other running exercises, don’t worry about how fast you are going, the aim is to get your body used to covering these distances at a running pace. However, it can be helpful to have a look at your mile times. Generally, many of us would be starting at 11 or even 12 minutes per mile but aiming to get it down to less than 10 minutes...

    Weeks 4 to 6 By now you should be ready to crack the hour-long run and the tempo work should be starting to come along nicely. Over these next three weeks, you should be hoping to increase your tempo running to 20 minutes at continuous tempo speed before taking a 2-3-minute recovery jog, and then taking the pace up again. Your long runs will be building up in length, enabling you to run further in comfort. Because of this, it might be tempting to “go for it” and try to run at full tempo speed for the entire 30-40 minutes - but resist the urge. The last thing you want to do is injure yourself before the race, so keep cool and remember to always warm-up and warm down. Top tip: If you have less time, why not try some speed intervals on the streets or the treadmill in the gym?

    Weeks 7 to 9 In this set of weeks, you will conquer another big hurdle - the 10-miler. Remember to tackle this milestone steadily and break it down into stages, either by 1-mile or 10-minute chunks. You may find that you need to drop your pace down to a crawl or even a walk. For this reason, week 9’s 5-mile and 50-minute runs are a good opportunity to check out your running pace. If you are running an average of fewer than 10 minutes per mile you are doing well and on schedule to finish the half marathon in about 2 hours 20 minutes.

    Weeks 10 to 12 The main challenge will be the psychological effort of motivating yourself to keep going for the full 12 miles. The good news is that if you can do it now in training, then the extra mile and a bit on race day will fly past easily as the excitement and atmosphere of the race will carry you along. After this big test, you will begin your two-week “taper”. This is a time of recovery and preparation for the race itself. Your aim is to keep the gains you have made over the past 10 weeks, while also ensuring that your body has time to recover and revitalise before the race. Your last week is all about getting ready for the race, so take it easy. Make sure you carry out plenty of stretching to stay loose and avoid injuries. Your tempo run will be the last push, which is designed to keep the aerobic systems firing on all cylinders and to energise the muscles. All the work is done - good luck and enjoy it!

    ​Are you Royal Parks ready? Royal Parks Half Marathon is a great opportunity to soak in the atmosphere of London’s crowds and world-famous landmarks whilst completing a fast, flat course perfect for beginners and seasoned runners alike. Join our team

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  • Cycling training plan

    Do I really have to train? Yes! Cycling Challenges are designed for people of average fitness as long as you are prepared to train. You should start training several months before the event, and the attached programs will help you to do this. How you start training for a long distance bike ride depends largely on your present fitness level, age and the amount of cycling you have done in the past. There are various ways to train for your challenge, below and in tabulated form are various training regimes that can be adapted to fit into your personal lifestyle. Non-Cyclists/Moderately Fit People who have not ridden a bike for several years or indeed at all will have to start their training regime at least 4 months in advance of their trip. Mileage should be built up gradually to avoid injury and over-exercise, and to establish a good base fitness on which to build the stamina levels you will need on a cycle challenge. A cycle ride every other day should be attempted for the first 4 weeks and the mileage should be between 5 and 10 miles, there is no need to over stretch the ride by pushing a...

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  • Carbohydrate Loading

    What is Carbohydrate Loading? The concept of carbohydrate loading is popular amongst Marathon runners and triathletes prior to competition. Carbohydrate loading is more than simply eating pasta for dinner the night before competition and certainly doesn’t mean gorging yourself with food for the entire week leading up to a race. As your training decreases leading into a race, energy (kilojoule) and carbohydrate requirements also decrease. During an easy week prior to competition it is important to taper your food intake accordingly to avoid unwanted weight gain immediately prior to racing. To adequately fill muscle glycogen (carbohydrate store in the muscle) athletes need to consume between 7-12g of carbohydrate per kilogram body weight for 24-48 hours prior to competition. The length and total amount of carbohydrate consumed by an athlete will depend largely on the distance of the race so it needs to be adjusted if competing in half marathons. For athletes competing in Half Ironman, marathon and Ironman races, should increase their carbohydrate intake to 10-12 grams of carbohydrate per kilogram body weight for 48 hours before race start. This will allow the muscles to maximally load with glycogen prior to race start, which will help offset fatigue. A 70kg...

    Eating before Exercise Many athletes put a lot of emphasis on the pre-event meal believing it is the key element to performance. It is important to remember that food eaten throughout the training week and food and fluid consumed during the event is also important. The meal eaten before exercise should be seen as an opportunity to fine-tune carbohydrate and fluid levels and to ensure you feel comfortable and confident. When Should I Eat? Food consumed before exercise is only useful once it has been digested and absorbed. This means you need to time your food intake so that the fuel becomes available during the exercise period. The time required for digestion depends on the type and quantity of food consumed. Generally, foods high in fat, protein and fiber tend to take longer to digest than other foods, and may increase the risk of stomach discomfort during the event. Large quantities of foods take longer to digest than smaller quantities. You need to experiment to find the timing that best suits your individual needs. Generally, athletes in sports involving lower intensity activity, or sports where the body is supported (e.g. swimming, cycling) are able to tolerate more food in the...

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  • Job Benefits

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  • Intermediate 10K 8-Week Training program

    Crossing-training (CT): Cross-training allows you to give your joints and running muscles a break, while still working on your cardio. Do 60 minutes of cycling, swimming or cardio machines or another activity you might enjoy. Tempo Run: Start your run with 5 to 10 minutes of easy running, then continue with 15 to 20 minutes of running near your 10K pace (but not at race pace). Finish with 5 to 10 minutes of cooling down. If you’re not sure what your 10K pace is, run at a pace that feels “comfortably hard”. Interval workouts (IW): After a warm-up, run 400 meters (one lap around most tracks) hard, and then recover by jogging or walking 400 meters. So when the schedule says, 4 x 400, that would mean four hard 400s, with a 400 meter recovery in between. Rest: Rest means rest!!! Saturday long runs: Maintain a comfortable pace Sunday: This is an active recovery day. Your run should be at an easy (EZ), comfortable pace, which helps loosen up your muscles.

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  • Meet Lucy

    Seventeen-year-old Lucy from Dorking started volunteering for Rainbow Trust in November 2013 and she’s never looked back. “I started volunteering for Rainbow Trust because I come from a family of eight, where I am surrounded by children, so a children’s charity was something that I felt strongly about. Plus Rainbow Trust looked like a community I wanted to be part of,” The Benefits of Volunteering “Before I joined Rainbow Trust, I was struggling like many of my friends to find part-time work which fitted around my college course. I felt that my time was more well spent volunteering for Rainbow Trust, than sitting at home doing nothing. Volunteering for Rainbow Trust, I have gained retail experience, learnt how to work with the public and it has given me a sense of belonging.” New Skills “I found out about Rainbow Trust through my college. We have a volunteering booklet which shows all the volunteering opportunities in the local area and I was having a look through and found an advert for Rainbow Trust. I instantly loved the idea of volunteering for this charity. I volunteer in the Leatherhead Charity Shop, so an average day for me includes talking to customers and...

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  • Volunteer with us

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  • In Memory Fundraising ideas

    Losing a loved one can be devastating. But there may come a time when you would like to do something in their memory. Everyone is different, but some people want to do something positive in a difficult situation. Some may find that family and friends wish to show their support in a practical way. Often this can mean fundraising for a good cause which is why we created Forever There Tribute Funds. Money raised in the fund will go towards caring for families with a seriously ill child. Rainbow Trust can only support one our of four families that need us. You can help us make sure that one of Family Support Workers is always there for more families. Anyone can contribute to a Forever There Tribute Fund in whatever way they wish and there are some ideas for you here. A Forever There Tribute Fund remains open indefinitely or until you choose to close it. Every year we will let you know your fund total and how you have helped families at their time of greatest need. Do a Sporting Event ‘Everyone’s overwhelming generosity and knowing I was doing it In Memory of my granddad played a massive part...

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  • Why work with us

    Why work with us? It’s official, we’re a Great Place to Work! The Sunday Times has named us in the top 100 UK not-for-profit workplaces for eight years running. We recruit people who are passionate about what we do and we look after them well, because our success, and the care we provide families, depends on having a team that is motivated and committed to learning and sharing. Rainbow Trust Work-Life Balance We understand that people have different needs and that when work and home responsibilities are managed effectively, people are more engaged and productive. We are committed to providing a successful Work-Life Balance approach, which complements business benefit with individual well-being. Our employees’ wellbeing is critical to our ability to operate across all functions and we recognise that all individuals have a life outside of work. Enabling our employees to balance work and their personal life in ways that benefit everyone – the organisation, employees and families – has a significant effect on employee motivation and performance. Flexible Working Practices We regard flexible working as very important, both for delivering the service to families and to raise the funds needed, and we try to accommodate flexible working practices such...

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  • Do Something Different

    “Our supporters take part in such a wide range of fantastic events to raise money for us. There really is no challenge too big or too small! I thoroughly enjoy hearing about the different events and helping our supporters to raise as much as they can” Maxine, Events TeamWhy raise money for Rainbow Trust? Rainbow Trust supports over one in four of the 6,000 families in England who have a child aged 0-18 years of age with a life threatening or terminal illness and need the bespoke support we offer. We support the whole family 24/7, 365 days a year and regardless of diagnosis. We can only continue to provide this support with your help. You can take on any challenge for Rainbow Trust, we would love to have your support. The funds you raise will help us continue to support families who have a seriously ill child. If you’d like to complete a challenge that isn’t listed in our events calendar, please get in touch and tell us about it and we will support you all the way!How we’ll support you Once you have signed up for your chosen event direct with the organisers, let us know what you...

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  • Terms and Conditions

    These terms and conditions have been made in accordance with UK legislation and regulations. In these terms the following terminology applies. Any reference made to ‘Rainbow Trust’, ‘us’, ‘we’, ‘our’ means Rainbow Trust Children’s Charity, whose registered office is at Cassini Court, Randalls Way, Leatherhead, Surrey, KT22 7TW and Charity Registration Number 1070532 (England and Wales). Any reference to ‘you’, ‘your’, ‘user’ means the person visiting our website and you hereby accepts our terms and conditions. Any reference to ‘shop’ means our online shop accessed via www.rainbowtrust.org.uk. Any use of the above terminology or other words in the singular, plural, capitalisation and/or he/she or they, are taken as interchangeable and therefore as referring to the same. These terms and conditions will take effect upon your first visit, and your use of the site means that you accept these terms and conditions. As the sites owner, Rainbow Trust reserves the right to change these terms and conditions at any point, so please read them carefully and check them regularly. In relation to any other terms stated on this website which are in conflict with the terms found here, then the latter shall prevail. The Site Rainbow Trust Children’s Charity website has...

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  • Super David

    My daughter, Eloise 46-year-old David Kennard took on the challenge of completing the Brighton, London and Milton Keynes marathons, on three consecutive weekends. David raised money for Rainbow Trust, who helped his family through the death of his daughter, Eloise. David first heard about Rainbow Trust in 1997 when his daughter Eloise was diagnosed with a terminal illness. David, from Harrow, said: “My wife went into labour 10 weeks early and our twin baby girls were born premature, Eloise weighing in at just 1b 10oz and Naomi 2lb 5oz.” At the time Naomi seemed the most sick of the two, suffering from a stomach infection. However, at one week old Eloise became seriously ill and was rushed to hospital where she was diagnosed with Necrotising Enterocolitis - a disease that affects the intestines. She had many operations, each one removing more and more of her intestines, and suffered two brain haemorrhages from all the operations, medication and treatments. It got to a stage where we just thought, enough is enough, no more. Eloise’s condition was terminal and we just wanted to take her home and look after her as much as we could, rather than see her spend her whole...

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  • Team Isla

    Here’s our story… Isla Holliday was just two months old when she was diagnosed with Schinzel-Giedion Syndrome. Her parents, Kelly and Phil, were told she would only live for two years. Isla in fact lived until four years old, making her one of the longest surviving children with this rare genetic disease. Rainbow Trust supported Isla’s family from her diagnosis and will continue to do so for as long as they need us. “Isla could smile but her condition severely restricted her mobility,” says her mother, Kelly. “She couldn’t walk or talk but she smiled and giggled when she was happy, which was most of the time.” “She needed 24/7 care,” says Kelly. “I left my accountancy job and dedicated my life to ensuring that she had a normal childhood.” Rainbow Trust started supporting us Rainbow Trust began supporting Kelly and her family in 2009. “I first met the family after they were referred to us by the children’s community nurse,” says Family Support Worker Marlene Shirley. “Having me visit the family home gave Kelly the chance to talk about issues she couldn’t discuss with her family because it was all too raw,” says Marlene. “The emotional side of it...

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  • Privacy Policy

    Rainbow Trust Children’s Charity provides support to seriously ill children and their families which is funded almost entirely by donations, including those made by members of the general public. We want to be completely transparent about why we need your personal details that we request when you support us and how we will use them. We are fully committed to respecting and protecting your information, using it reasonably and in line with the General Data Protection Regulation (GDPR). When you choose to provide us with personal information, it will only be used to support your relationship with Rainbow Trust and in line with this policy. Rainbow Trust is a registered charity in England and Wales (no. 1070532). We are listed on the Information Commissioner’s register of data controllers (registration reference Z579868X) and are a member of the Fundraising Regulator. What is personal information? Personal information is any information that you give us that enables you to be identified. This includes your name, your home address, your home telephone number, your personal email address. It may also include photographs and case studies. We process and hold personal information that we need to run the operations of the charity and for which...

    Updates to this policy We may update this policy from time to time to reflect changes in how we use your information. You may wish to check this policy each time you provide your information to Rainbow Trust. In certain circumstances and, if there are significant changes to the policy, we will notify you.

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  • Star Baker Mollie-Ann

    “I love baking, especially the decorating, so I was really happy that I could bake AND raise money for Rainbow Trust!” Here’s my story… My school were looking for suggestions for a charity to support with a bake sale so I suggested Rainbow Trust. It was a great opportunity for me to show off my baking skills and raise money for a good cause. I had loads of fun making a delicious chocolate cake with my Auntie. My friends got involved too… Mollie-Ann asked all of her class to do the same and bring in cakes. The whole class held a ‘guess the baker’ competition. It was so much fun! They all learnt a new recipe and also raised £305.80 for Rainbow Trust.

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  • Social Media Policy

    Social media policy We’ve established these House Rules to keep our online sites a healthy environment for discussion. This is YOUR page to share fundraising stories and pictures, read about the families you help and get in touch with us. As we are a children’s charity we may have children read this page so please remember this when posting. We expect you not to post content that is:Offensive, abusive, defamatory, intolerant or obscene Fraudulent, deceptive or misleading Unrelated or off-topic Trollish or intended to deliberately provoke others Spam: business solicitations or other advertising of personal interests, blogs, or websites. In violation of any intellectual property right of another We will remove any posts that fall into the categories above. If you see any posts like this that you think we may have missed, please let us know and we will remove them. If a user continues to post any of the above, we will ban the user. Rainbow Trust cannot take responsibility for any content posted or interactions by third parties on this page

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  • Accessibility

    Rainbow Trust Children’s Charity is committed to making this website as accessible and easy to use as possible. This website has been designed and built to meet W3C Web Accessibility Initiative (WAI) Web Content Accessibility AA guidelines. If you have any suggestions or feedback on our website’s accessibility, or have encountered any problems using the site, please let us know. Viewing options This website has five different viewing options.Standard Version Accessible Version: Black on White Accessible Version: Black on White, no images Accessible Version: White on Black Accessible Version: White on Black, no images For screen reader software users, we recommend you to choose either of the text only viewing options, as these options are optimised for the screen reader software. The text only versions fits the maximum width of your browser and is the best choice if you want to change the font size on the website. Font re-sizing To change the font size on this website, either choose an accessible version or modify your browser settings. To change your browser settings, select “View” from your browser’s toolbar, choose “Text Size” and the sub-menu appears with the text size options. Choose a larger size than your current option (marked...

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  • Support us as we grow

    Family Support work lies at the heart of our mission. Rainbow Trust currently has nine Family Support Teams based around the UK, but we need to increase this to reach more families. Every teams delivers life-changing support to families with a child whose life is threatened by terminal illness. Family Support Workers offer a vital lifeline to traumatised parents devastated by the news that their child may die and to brothers and sisters suffering from the sudden and dramatic upheaval in their family. The support Family Support Workers give can make the difference between a family coping with their child’s illness, or falling apart. There is no time limit to the support and it is offered for as long as the family needs it. When a family is in crisis 24-hour support can be provided. Family Support Workers care for families from diagnosis, through treatment and after bereavement. Support is given at home, in the community or at hospital, wherever it is required. Help us grow our reach We have identified several key locations as being areas into which we would like to expand if significant funding was made available. Our first priority is to make sure that every team...

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  • Support our neonatal project

    Helping the families of very sick new born babies Research indicates that, at any one time, more than 500 babies need palliative care services in London alone. Currently there is a national public and voluntary sector focus on the importance of neonatal palliative care. In response to this, we have recently expanded our services into the Chelsea and Westminster Hospital in London. Developing this new service now is critical to raising the profile of Rainbow Trust and establishing ourselves as leader in this field. Rainbow Trust works with the whole family, and has a focus on supporting the baby’s siblings who are often very confused and upset and are usually not allowed into Neonatal intensive care units themselves. We also provide a bridging service for parents whose babies do recover sufficiently to go home and offer a continued service at home. For those parents whose babies do not survive, the Family Support Worker provides ongoing bereavement support for the parents and siblings. Help Rainbow Trust develop this vital new service £38,000 will fund a specialist Neonatal Support Worker. This will develop our neonatal palliative care services so that the charity can help more families in the devastating position of having...

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  • Terrific Tom

    Here’s my story… “The jump was amazing, I got such a buzz and enjoyed every second!” A skydive is something I have always wanted to do. It was completely out of my comfort zone and a once in a lifetime challenge, so I thought why not sign up to raise money for charity at the same time? I’d heard of Rainbow Trust through a member of my family and I decided to sign up for their Jump in July campaign in 2013. I wanted the challenge and signed up! I signed up in April to ensure I had time to reach my £500 fundraising target, but I was determined to smash it and being the Assistant Manager of a pub I knew plenty of people that I hoped would help me to do that! I used collection tins and held a football match I asked Rainbow Trust for some collection tins which I placed on the two bars in the pub and they also designed me some personalised posters to put up to let people know what I was doing. Although the collection tins filled up very quickly, there’s only so far that collecting loose change will get you, so...

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  • Crisis support

    Receiving the news that their child has been diagnosed with a terminal illness, is a devastating blow which often throws the whole family into chaos. ‘Normality’ seems to be a thing of the past and routine flies out the window. A Rainbow Trust Family Support Worker starts working with a family soon after diagnosis and provides whatever help parents and siblings need to cope with the emotional impact of the diagnosis as well as practical support like taking the other children to school or attending hospital appointments. The Family Support Worker’s role is to care for the whole family, providing emotional, practical, respite and domestic support. There is no time limit to the support. It is offered for as long as the family needs it. When the family is in crisis 24-hour support can be provided if needed. The Family Support Worker continues to support all the family as the child’s life draws to an end and the family prepare themselves for the death of their child. The death of a child is devastating for the family and the impact is shocking for everyone involved. Our Family Support Workers develop a strong bond with all the members of the family...

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  • Rosie's Road to Marathon Success

    Here’s my story… “Everyone’s overwhelming generosity during my fundraising certainly played a large part in getting me over that finish line!” In July 2012 I found out I had been successful in gaining a place in the Virgin London Marathon 2013, running for Rainbow Trust. I can’t express strongly enough how good it was that I’d raised most of my money quite early on in my training as it hugely spurned me on to the end, and I’m not sure I’d have been able to battle the weather quite so well without the determination I felt not to let everyone down. I thought it would be fun to do an event towards the end of January when everything has quietened down and people are ready to party again! My fundraising target I was set a target of £1,600 but I decided to aim to raise £2000 which seemed to be way beyond my wildest dreams but I was determined to really go for it in a once-in-a-lifetime sort of way because I knew that I would probably never do a challenge like this again. I was very lucky that one of my closest friends had organised a highly successful pub...

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  • In Memory

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  • Pay-in-money

    Completed a fundraising event or activity for us and want to know how to pay in your money? How to pay in your fundraising money We value every individual helping to fundraise for us, be it an event you’ve organised yourself or participated in an event or activity, your money will always go towards helping us to support families with a child with a life threatening or terminal illness. You can pay in your money using the following options. Pay in online You can quickly and easily make a payment online. Simply click here and select “I would like to pay in money I have raised” and complete the information provided. Collection boxes If you have one of our collection boxes, please contact us on 01372 220083 and we would be happy to pick it up if you are in the local area. If you are outside the south east, we ask if you could empty the tins and pay in online here. For further queries, please contact us on 01372 220083 or email supportercare@rainbowtrust.org.uk. Online fundraising If you have set up a Just Giving page, Virgin Money Giving page or Facebook fundraiser, the money raised will automatically be sent...

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  • Charity of the Year for your local business, school or club

    No matter how big or small your organisation you can still help make a difference to families caring for a seriously ill child. By nominating Rainbow Trust Children’s Charity as your charity of the year you can create a focus for your fundraising and build community spirit.

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  • Why Leave a Gift in Will to Rainbow Trust

    Our vision for the future Imagine a future where every single family who has a child with a life threatening or terminal illness had the support they needed, when they needed it. A future where families didn’t have to struggle alone. Rainbow Trust is working towards providing this future - where every family who has a child with serious illness has access to a Rainbow Trust carer. We know that this vision is some time off but we are committed to making it happen. This is why Gifts in Wills are so vital to our work, and so appreciated. They ensure that our unique support can continue for many years to come. With your support we can do more With your support we can make this happen. Changing a will can seem daunting but it’s actually really simple to do. If you already have a will and want to leave a legacy donation to Rainbow Trust, all you have to do is complete a simple codicil form to make an amendment to an existing will. You can print a codicil form here – simply complete the details, ask two witnesses to sign it and keep it with your existing will...

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  • Meet Frankie and his family

    Frankie is two years old and has chronic lung disease. He is oxygen dependent and has Downs Syndrome. Sean began working with the family in February this year. He originally supported Frankie’s brother, Jackson, playing with him and taking him to nursery as Steph, his mum, doesn’t drive. Now that Jackson is at school full-time, Sean’s support is focused on Frankie and Steph, often helping with the weekly shopping. He’s there to take the family to and from appointments at Alder Hey and Bolton hospitals, supports Steph at Multi-Disciplinary meetings and offers emotional support when it’s needed.

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  • The Fielding Family

    When 12-year-old Nathan was eight, he suffered a severe cardiac arrest when playing football at school and was diagnosed with a disease of the heart muscle. Sean has supported the family since February 2014. When Nathan is admitted to hospital for long stints, Sean will sit with him to give Linsey, his mum, a break and will also collect his brother and sister, Will and Lauren from school. Lauren and Will have been on a number of trips with Sean including days at Gulliver’s World, the indoor snow centre at Chill Factore in Manchester and a climbing centre which Lauren loved!

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  • Zerina and her family

    Zerina is three years old. When she was just 18 months old she was diagnosed with a form of blood cancer. Sean started supporting the family back in September 2013 and has helped the family in many different ways. He plays with Zerina at the family home along with her two big brothers, Hazeeq and Aqeel. When Zerina was unable to attend nursery, Sean would sit with her at home and do lots of painting. As well as helping with the children, Sean also provides emotional support for Zerina’s parents. He even helped Robina, mum, build her daughter’s confidence to go to nursery. Because of this help, Zerina is now attending full-time. Sean also takes Hazeeq to a monthly sibling group run by Rainbow Trust. Hazeeq and Aqeel have enjoyed sibling days out with Sean including trips to a climbing centre, the park and a day with an art therapist.

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  • Children in Need

    Keep your eyes open for our BBC Children in Need trailer which features Sean, a Family Support Worker from our Manchester team whose post is funded through Children in Need. The trailer is one of several short films illustrating where the money raised from Children in Need goes in the lead up to the main show on Friday 17 November. You can read more about the families Sean helps below and watch Sean in action in the short video, filmed for BBC Children in Need last year. Sean is one of our team of 50 Family Support Workers who provide care and support to over 2,500 families with a seriously ill child. Find out about sponsoring a Family Support Worker here.

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  • Corporate eCards

    Send your clients a festive season’s greeting with a Rainbow Trust eCard. Our eCards are a fantastic way to wish your business contacts a wonderful festive season, while showing your support for Rainbow Trust. For a minimum donation of £300* you can personalise a Rainbow Trust eCard with your company logo and greeting to send to as many customers and clients as you wish. Benefits include:No postage cost Instant arrival Environmentally friendly A range of designs, colours and animations Personalise with your company logo and greeting Showcase your support of Rainbow Trust. To order your eCards, or for more information, please email us or call 01372 220090. *Terms and conditions apply.

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  • Sign up for e-news

    ​Don’t worry we won’t be emailing you all the time but you will hear from us about: How your money is helping us support families News from our Care teams Latest fundraising events Thank you

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  • Second Time

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  • Second Chance

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  • Training toolkit

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  • Wright's Baking Chocolate Chip Muffins

    Ingredients Wright’s Chocolate Fudge Cake Mix 500g Water 200ml Vegetable Oil 60ml (4tbsp) Milk Chocolate Chips 150g For the topping: Butter or Margarine 200g Icing Sugar 200g Cocoa Powder 2 heaped tbsp Hot Water 1tbsp Sprinkles of your choice – we used coloured balls What you do… Place the cake mix, water and oil into a bowl and mix well for 1-2 minutes. Place 12 paper muffin cases into a baking tray and spoon the cake batter evenly between them. Sprinkle a small handful of chocolate chips evenly on top of the batter in each of the muffin cases. Bake at 200C (390F), gas mark 6, for approximately 20-25 minutes or until springy to touch. Allow to cool before decorating each muffin. For the ‘topping’, mix the cocoa power to paste with the hot water. Sieve the icing sugar into a mixing bowl; add the butter or margarine and the cocoa paste until smooth and pipe onto the cakes. Decorate with your topping of choice. Alternatively you can use a ‘ready-made’ chocolate topping / frosting. Wright’s top baking tip: These chocolate muffins are the perfect show stopper to bring out at a birthday party or an indulgent afternoon tea with...

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  • Shop With Rainbow Trust Children's Charity

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  • Why support us

    The Todds live in Surrey and have three children; Aidan, Petra and Rowan who is eight years old. Mum, Beth, is an opera singer and Dad is a composer. Both are self-employed and without the support of Rainbow Trust, Beth would be doing hospital trips on her own, and on occasion, with all three children. Rowan was diagnosed in 2009 with a brain tumour. She underwent 18 months of chemotherapy and lost all of her hair. Side effects of the treatment include visual impairment, which makes walking, reading and playing for a four year old difficult. Rowan is totally clued up about her treatment, she talks about her tumour, asks the doctors and nurses exactly what they are doing and why. This brave little girl does her own nose and mouth swabs and knows what she is allergic to. A day at GOSH… Rowan explained that she was having an MRI scan, which she had to do regularly to see if her tumour had grown or not – she let me stay with her when her wiggly was attached and showed me where the medicine goes to make her sleep for her MRI. She was poked, prodded, injected and assessed...

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  • Get in touch (Gift in Wills)

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  • For Executors And Legal Executives

    If you are the executor of someone’s estate, probate doesn’t have to be a complicated process. Here is some guidance and frequently asked questions about estate administration.

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  • How to Leave a Gift in Will

    It’s easier than you think Making a Will can seem daunting and easy to put off but it’s actually really simple to do. You can download a guide to leaving a gift in your will here. There are three ways you can leave a Gift in Will to Rainbow Trust.

    Already have a Will? Wonderful. If you already have a will and want to leave a legacy gift to Rainbow Trust, all you have to do is complete a simple codicil form (means amendment). Have two witnesses sign it and keep it with your Will. Download the codicil form Need help finding a solicitor? A homemade Will can be problematic if the correct formalities are not carried out. We always recommend that you contact a solicitor or a member of the Institute of professional Will Writers. Contact us for further support on 01372 220083.

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  • Payroll giving

    About Payroll Giving Payroll giving enables you to give regularly to Rainbow Trust from your gross salary (before income tax is deducted). It is simple, quick and effective and guarantees a regular flow of funds to support families who have a seriously ill child. Your donation is an easy, tax-effective way to give monthly to Rainbow Trust so it costs you less to give more! For example, if you pay tax at the basic rate of 20%, it will only cost you £4, yet Rainbow Trust receives £5 as the tax is included. Why have a Payroll Giving scheme for your employees? Research shows that offering Payroll Giving to your employees increases staff morale, retention and recruitment and improves company image. It also enables you to increase your company’s charitable giving with little cost or effort, and allows you to monitor the funds raised by your company. Some companies also match the contributions made by their employees which provide a significant boost to the vital work of Rainbow Trust. Not signed up to a Payroll Giving Scheme? Employers need to be registered with a Payroll Giving Agency (PGA) which is simple and easy to do. For more information visit the...

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  • One Step At A Time - FAQs

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  • One Step At A Time

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  • Meet Zachary and his family

    Clare and Ben have three beautiful children; Connor is 11, Esther is seven and Zachary is 18 months old. This is Clare’s story. When Esther was six-weeks-old, we were called back for a routine blood test and we found out she was very poorly. Looking back at photos, she was definitely pale. Diamond Blackfan Anaemia (DBA) was mentioned. It’s an extremely rare disease, only 125 people in the country have it. Esther had a blood transfusion every month for the first year of her life – it’s like putting petrol in the car, it became normal. No two people are the same so we don’t know what her path will be - whether she’ll need a bone marrow transplant in the future or she’ll need a different treatment, we don’t know. We are constantly planning around her needs and being her champion as DBA is so rare that the specialist doesn’t know everything, so I keep in touch with Facebook groups and other mums of children with DBA. It’s never being able to relax. We have to be agile to manage whatever comes up because not enough is known about DBA, nothing is normal. Zachary’s diagnosis Zachary was a surprise...

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  • Create Ecards

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  • Join our cheer squad

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  • Albert's legacy

    It was 23 years ago that Albert Bennett first heard of Rainbow Trust Children’s Charity. He and his wife Betty were watching Hearts of Gold on BBC1. They listened to Rainbow Trust’s founder, Bernadette Cleary, talking about the charity she set up at her kitchen table back in 1986. Albert and Betty were both so moved by the interview that they called us the very next day, offering to help us raise funds. Albert chose to give talks about his time in the RAF, asking for a donation to Rainbow Trust in lieu of his speaker’s fee. His talks to community groups and schools reached thousands with news of Rainbow Trust’s support for families. He raised more than £6,000 to support the families helped by Rainbow Trust, not only through his talks, but later through sales from his book ‘Spitfires Over Burma’. Albert died peacefully at home in 2016, just two weeks shy of his 102nd birthday. He is greatly missed by our staff, who got to know him very well during his years of enthusiastic support. Albert was a tireless advocate of Rainbow Trust. His kind decision to donate a percentage of his estate to Rainbow Trust will provide...

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  • Fire Walk London Gallery

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  • See your impact

    By taking part in the Great Rainbow Bake, you’re helping us to be their for families with a seriously ill child at some of their toughest times. We understand how serious illness can have a huge impact on the whole family, that’s why our Family Support Workers help families in whichever way is needed, to give them time together to make the most of every moment. Making every moment count

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  • Sign up for the Great Rainbow Bake

    We value your privacy and promise to keep your details safe and never share them with anyone. You can read more about how we keep this promise in our Privacy Policy. If you change your mind about how you wish to be contacted or don’t want to hear from us anymore, email supportercare@rainbowtrust.org.uk or call 01372 220083.

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  • See us, Hear us, Notice us

    The case for supporting siblings of seriously ill children A child’s life changes dramatically when their sibling is diagnosed with a serious illness. Our new report, See us, Hear us, Notice us, sets out why the support of brothers and sisters – known as sibling support - should be valued and funded more highly. When a child becomes ill, a parent will have less time to focus on their brothers and sisters. Routines change, and a healthy child can struggle to understand what’s happening. Getting to and from school can be hard, and opening up about their feelings can be difficult as they try to protect their parents from more worry. Sibling support from organisations like Rainbow Trust can help children learn important coping mechanisms and find an outlet for their strong feelings. Practical support can help them get to school and keep up with homework. Meeting other children in the same situation can also help them feel less isolated. However, despite a rise in demand, funding has fallen. These services need to be far better valued and funded by decision-makers. Download full report Download executive summary Campaign update A huge thank you to the more than 200 parents, adult...

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  • Why I'm leaving a Gift in my Will

    There since the beginning “I’m proud to say that I’ve been with Rainbow Trust from the very beginning. I remember when it was just three of us, sitting around a kitchen table, talking about how we could help families through such a difficult time. Of course a lot has changed in the past 28 years, but one thing that hasn’t changed is our determination to help families for as long as they need us – and it never will.” “Of course I understand that your Will is very personal, and you want to ensure your loved ones are taken care of. I’m a mother myself, so when I drew up my own Will, I was careful to remember my family first – but I also wanted to ensure that I would continue to help families who have a child with a life threatening illness, well into the future. That’s why I have remembered Rainbow Trust in my Will, and I hope you will do the same.” “By leaving a gift in my Will, I can continue to help terminally ill children and their families, even after I’m gone. That’s very important to me. If you feel the same, I hope...

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  • Gift in Wills

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  • Philanthropy

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  • Recycle

    Recycling with us is an easy way to raise funds for Rainbow Trust and support families who have a seriously ill child - the best part is they are environmentally friendly too! You can raise money through recycling the following:

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  • Community Get in Touch

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  • Why fundraise for us

    Support more families There are so many ways that you, your school or group can get involved and raise money for Rainbow Trust. Our fantastic team of expert fundraisers is on hand to give you all the advice and guidance you need to make raising money as easy and as fun as possible. We also have some great ideas that make the most of our ‘rainbow’ theme and regular events that you can join in too. From walks to runs and our annual Big Hour Tea Time there is something for everyone. To get started just call or email us and we will put you in touch with a fundraiser near you. Your support will be making a huge difference to families who have a seriously ill child near you.

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  • Christmas poster

    This year instead of sending Christmas cards to your work colleagues, why not wish them a Merry Christmas by donating £2 to Rainbow Trust Children’s Charity, and signing your name with a festive message.Pop this poster and a collection tin up in your office and you’re all set. Every pound you raise will help support families with seriously ill children this Christmas.

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  • Community

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  • Essex team

    ​Address: Estate Office, London Road, Pitsea, Essex, SS13 2BZ Tel: 01372 220081 Fax: 01372 363101 Email the Essex team Meet our Family Support Workers Maggie Hampton - Family Support Manager Rainbow Trust Children’s Charity is pleased to report that following our inspection by Care Quality Commission the Essex team has been awarded a rating of Good.

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  • Central London

    Address: Unit 2, 7 The Green, West Drayton, UB7 7PL Tel: 01895 448378 Fax: 01895 437796 Email the Central London team Claire Bickley - Family Support Manager Rainbow Trust Children’s Charity is pleased to report that following our inspection by Care Quality Commission the Central London team has been awarded a rating of Good.

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  • West London team

    Address: Unit 2, 7 The Green, West Drayton, UB7 7PL Tel: 01895 448378 Fax: 01895 437796 Email the West London team Meet our Family Support Workers Tomasz Czarnecki - Family Support Manager Rainbow Trust Children’s Charity is pleased to report that following our inspection by Care Quality Commission the West London team has been awarded a rating of Good.

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  • Surrey team

    ​Address: Cassini Court, Randalls Way, Leatherhead, Surrey, KT22 7TW Tel: 01372 220111 Fax: 01372 363101 Email the Surrey team Meet our Family Support Workers Christina Cahill - Family Support Manager Rainbow Trust Children’s Charity is pleased to report that following our inspection by Care Quality Commission the Surrey team has been awarded a rating of Good.

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  • Southampton team

    Address: Rooms at Calmore Community Centre, Calmore drive, Totton, Southampton, SO40 2ZU Tel: 02380 232 129 Ext 3601/3602 Email the Southampton team Meet our Family Support Workers Dawn Pond - Family Support Manager Rainbow Trust Children’s Charity is pleased to report that following our inspection by Care Quality Commission the Southampton team has been awarded a rating of Good.

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  • South West team

    Address: Church Farm, Middle Common, Kington Langley, Chippenham, Wiltshire, SN15 5NN Tel: 01249 705881 Fax: 01372 363101 Email the South West team Meet our Family Support Workers Charlotte Sturgess - Family Support Manager Rainbow Trust Children’s Charity is pleased to report that following our inspection by Care Quality Commission the South West team has been awarded a rating of Good.

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  • North West team - Manchester

    Address: Chambers Business Centre, Chapel Road, Hollinwood, Oldham OL8 4QQ Tel: 0161 628 2194 Fax: 0161 628 2194 Email the North West Manchester team Meet our Family Support Workers Sean Tansey - Family Support Manager Rainbow Trust Children’s Charity is pleased to report that following our inspection by Care Quality Commission the Greater Manchester team has been awarded a rating of Outstanding.

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  • Lancaster team

    Address: White Cross Business Centre, Office 5-2-6, The Gatehouse, White Cross, Quarry Rd, Lancaster, LA1 4XQ Tel: 01372 220 095 Fax: 01616 282 194 email the North West Lancaster team Meet our Family Support Workers Sean Tansey - Family Support Manager Rainbow Trust Children’s Charity is pleased to report that following our inspection by Care Quality Commission our North West team has been awarded a rating of Outstanding.

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  • North East team

    Address: Suite 2M, North Sands Business Centre, Liberty Way, Sunderland, Tyne and Wear SR6 0QA Tel: 0191 300 1601 Fax: 01372 363 101 Email the North East regional team Meet our Family Support Workers Fiona Walker - Family Support Manager Rainbow Trust Children’s Charity is pleased to report that following our inspection by Care Quality Commission the North East team has been awarded a rating of Good.

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  • Where we support

    ​We have eight care teams of Family Support Workers in nine locations across the UK who provide emotional and practical support for families at home, at hospital and in the community.

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  • Meet Ben and his family

    Some families appreciate support at home; sometimes it’s simply a Family Support Worker spending time listening to their fears for the future and their concerns about their children. It may be the sick child who appreciates time with a trusted adult from outside the family who can talk to them about their treatment or help them to relax and have fun. Our Family Support Workers are experienced in identifying the support that will really make a difference to each family. Ben races around in his wheel chair and has a big smile Ben Morris is a bright, engaging fourteen year old with a big smile and lots to say. He loves talking about his best friend and cracking jokes. Ben has Spinal Muscular Atrophy, which means that his muscles don’t receive signals from his brain. The only part of his body that he can move is his left thumb. Despite this he races around in his wheelchair, which he controls with his thumb, and attends the same mainstream school as his sister Emily. Jayne our Family Support Worker takes Emily off to the park Ben’s parents, Doug and Sandra, have their work cut out looking after him. Ben’s condition means...

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  • The Big Hour redirected

    Why take part? Right now in this country there are thousands of families struggling to cope because they have a seriously ill child and need support. Rainbow Trust believes that they shouldn’t have to cope alone. Our teams of Family Support Workers try to keep their lives as normal as possible, proving support 365 days of the year, from diagnosis, throughout treatment, and as long as they need us. Taking part in the Big Hour Bake off is simple. Sign up to take part and we will support you with everything you need to hold a fantastic event for your friends, family, school or colleagues so you can help us continue to support families with a seriously ill child.

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  • Contact us

    For general enquiries, please contact our Leatherhead Head Office or email enquiries@rainbowtrust.org.uk If you are currently supported by Rainbow Trust and are unable to get hold of your Family Support Worker please call our helpline number. Rainbow Trust operates out our Head Office in Leatherhead and nine regional teams of Family Support Workers across the country. For media enquiries, please contact the Press Office.Please note that we are no longer able to accept donations of toys (new or old) or of Easter Eggs as it is very difficult for us to distribute fairly to families.Donations for our shops can still be made at our Romford and Upminster shop addresses, below. Thank you.

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  • Thank you

    ​Thank you for getting in touch with us. We will reply to you shortly

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  • Companies

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  • How to Help Siblings Cope

    “Choice of language and allowing siblings to be involved are key to helping them deal with the fact that their brother or sister is very ill”, says Sibling Support Worker Annalie Ashwell. The world in which a child lives is very different to that of an adult and varies greatly from age to age. Under sevens, for example, tend to fantasise and use their imaginations much more than older children, while teenagers are responding to the emotional and physical changes that are taking place within them. Clearly they have quite specific needs that have to be taken into account should a sibling be diagnosed with a life threatening or terminal illness. “Having a very sick brother or sister can have a huge impact on a child,” says Annalie. “They can be vulnerable to depression, anger, guilt and social isolation as a result of the huge changes that take place in the family.” “Often the sibling has to act a lot older than their age by trying to be the strong one,” she adds. “They might want to look after their brother or sister or they may feel they are missing out on all the attention. Every child responds differently.” Tell...

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  • Fundraise

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  • Make a referral

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  • For professionals

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  • For children

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  • For young people

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  • For parents

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  • Meet our Family Support Workers

    Our Family Support Workers provide a lifeline to families. When time is limited by a serious illness, time becomes more precious than ever. ​Rainbow Trust pairs each family with a dedicated Family Support Worker to help them face and make the most of each new day. Meet some of the Family Support Workers who enable us to support over 2,500 each year.

    Could you sponsor a Family Support Worker?

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  • Staff

    Meet the people who ensure the day to day smooth running of our charity Our Leadership Team at Rainbow Trust leads staff so that we meet our goals; efficiently and cost effectively. They all play an essential role to ensure our strategic vision is put into practice and meets the needs of the families we support.

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  • Family stories

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  • Posters

    Follow each step to create your own print ready A4 poster. Choose to download with or without crop marks (choose crop marks if getting printed professionally). If you have any problems with your artwork, please use the support button to report your issue.

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  • create_social posts

    Follow each step to create your own image to use on social media. You can download your image or copy the URL to share anywhere you like or share directly to Facebook, Twitter and LinkedIn. If sharing directly to social media, make sure the browser you are using allows for pop ups. If you have any problems with your artwork, please use the support button to report your issue.

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  • Create

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  • Christmas quiz

    Embrace your competitive spirit for Rainbow Trust this Christmas! This Christmas why not put your knowledge to the test and play our fun festive quiz. You can play with friends and family, or even organise your own Christmas quiz at work, your local pub or community centre. By charging people to take part and raising as much money as possible you can help us be there for families caring for a seriously ill child this Christmas. Get started To get started simply download our Christmas Quiz, you can then pay in the money you’ve raised here, once your quiz is over. Happy quizzing!

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  • Forest & Fir

    This Christmas we’re really excited to team up with Forest & Fir who will be making a £10 donation to Rainbow Trust for every 6-10ft Christmas tree sold. The Forest & Fir family hand pick premium Christmas trees and organise to transport them, especially for you, by providing a complimentary delivery service on your date of choice. They re-plant 2 trees for every 1 tree purchased so purchasing a Forest & Fir Christmas tree is stress-free as well as sustainable. Forest & Fir are also offering an Early Bird Special for Rainbow Trust supporters and if you buy your tree before 15 November 2018 you’ll be entered into a draw for a chance to win a case of champagne in time for your New Year Celebrations! Get your Christmas tree To support Rainbow Trust and purchase your Forest & Fir tree click here and enter the code RAINBOWTRUST10 at check out.

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  • Questions Children Often Ask

    As children struggle with the hospitalisation of their sibling they often have questions. They are trying to understand and cope with the changes going on around them and the emotions they are feeling. Here are some questions that children often ask about their sibling’s hospitalisation/illness and suggested ways for answering them. When is my brother/sister coming home from the hospital? Explain that their sibling will come home as soon as the doctors and nurses decide that he/she is well enough. Children need age-appropriate, accurate information about what is/will be going on at the hospital. Try to include them in hospital-related conversations, whenever appropriate. What can I do to make my brother/sister get better? It‘s important to explain to your children that just as it was not their fault that their sibling became ill, there is also nothing they can do that will make them worse or completely better. The doctors’ and nurses’ job is to help their sibling get better, and their job is to help cheer their sibling up while they’re not feeling well. What will the hospital do to take care of my brother or sister? Children are often curious about why their brother/sister has to stay at...

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  • How to Have Difficult Conversations

    There’s never a good time to discuss illness or death, but there are ways to ensure children feel they can ask questions and cope with bad news. Anne Harris, Director of Care Services at Rainbow Trust gives some advice here on having difficult conversations. “Am I going to die?” You are driving home, concentrating on the road, when your child suddenly asks, “Am I going to die?” This is not a question any parent will ever want to hear but if your child has a serious illness they may ask it when you are least prepared. So what is the best way to respond? Give as full a picture as possible The first difficult conversation you may have is when your child becomes sick. “A parent’s instinct is to protect their children from anything bad,” says Anne. “But children have an immense capability to cope. We advise families to be honest and to give as full a picture as possible.” Keep hope alive but be realistic Whatever conversation you are having, it is vital to let your child ask as many questions as they want. “No one has all the answers so if you don’t know then say so. Tell...

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  • Get your club involved

    Who we work with We work together with many different clubs in the local community including golf clubs, rotary clubs, tennis clubs, brownies, guides, cubs and scouts. How we partner with you Partnering with Rainbow Trust supports families in your local community. Case study - Durham Bede Rotary Club Rainbow Trust Children’s Charity and Durham Bede Rotary Club have been friends for a couple of years now. The local Rotary more than just fundraises for Rainbow Trust - it helps us open lots of doors in our local community. Durham Bede first supported Rainbow Trust when they nominated Rainbow Trust as the beneficiary of their Music Night in November 2013. The night was a huge success and raised over £1,000. Since then we have kept in touch and we were delighted when we were invited to speak at a lunch to give us the opportunity to raise our profile and meet local Rotarians. Working alongside a local club such as a Rotary gives Rainbow Trust the opportunity to engage with the local community and be part of community events. We have built great relationships with local Rotarians and can call upon each other to help with events, ideas and contacts...

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  • Little Big Hour Cup Cakes

    Easy cupcake recipes to show off your creativity! Ingredients 120g (4oz) soft margarine 120g (4oz) caster sugar 120g (4oz) self-raising flour 2 eggs What you do… Put all these ingredients into a bowl and beat with a wooden spoon Alternatively, process in an electric mixer or food processor until smooth Divide the mixture between a 12-hole cake tin lined with cake cases Bake in a pre-heated oven, 180C (350F) for 15-18 minutes When cooled, decorate beautifully for your Big Hour Tea Time.

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  • Schools Fundraising

    Get involved and have fun for a good cause No matter what your age, we are always on the lookout for enthusiastic students who want to raise money for a good cause. Our community fundraising team is on hand to offer you practical advice, support and tips to help make your fundraising a success. If you already have an idea for a fundraising event, we can offer you and your classmates lots of advice to make it bigger and better than ever. We can also offer new ideas for a fundraising event if you cannot decide what to organise.

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  • Support Us Out and About

    Get involved with your local community At Rainbow Trust we need to raise at least £4.5 million every year to help families who need our support because they are coping with their child’s serious illness and the impact it has on their family. The local community plays a vital role in helping us raise this money. Here are some ideas on how you can involve your community. Display a Rainbow Trust collection box Placing one of our cash collection boxes at your till points or reception areas can help Rainbow Trust in a simple but very effective way. Collection boxes have raised a fantastic £19,540.70 to date. From boxes to footballs Our collection boxes not only raise much needed funds but they also help to raise awareness of Rainbow Trust. Michael’s Fish Bar in Bookham, Surrey has had one of our collection boxes since 1994 and raised a staggering £3,680. Last year whilst waiting for his fish and chips a local man saw our thank you certificate and decided to organise a charity football match. On a really hot day in May The Bookham Old Boys played the Chelsea Old Boys and raised a fantastic £5,000 for Rainbow Trust.

    Get your local supermarket or shop involved Waitrose Waitrose has been running their Community Matters scheme since 2008 and in that time has raised an amazing £13,000 for Rainbow Trust. Each month stores receive £1,000 to distribute between three charities nominated by customers. Customers then vote for their favourite charity. To nominate Rainbow Trust at your local store just pick up a Community Matters form in store. John Lewis After the success of Waitrose Community Matters scheme, John Lewis decided to launch it in their stores too. Each store has £3,000 to split between charities. To nominate Rainbow Trust as one of the chosen charities, please fill in a nomination form at your local store. Asda Asda is now accepting online nominations for the charities you think they should support. Each store has a Community Life Champion who works a day a week to raise awareness for community organisations and inspire colleagues and customers to get involved. Simply find your nearest store online and fill in the short nomination form. Find out more here. Thousands of schools, community groups and charities across the UK are benefiting from Asda’s generosity. The Co-Operative The Co-operative also has a programme where branch staff...

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  • What our partners have to say

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  • Engage with your customers

    Partnering with Rainbow Trust can build brand awareness, enhance customer relationships and may increase sales. We have a wealth of experience and will work with you to build a creative campaign that engages your target market to helps you to stand out from your competitors. Case study - Fab Ice Lollies In 2007 the Fab Ice Lolly team, a brand owned by R&R Foods, partnered with Rainbow Trust on their “Design a Fab Den” campaign. Children aged from 5-15 across the UK were encouraged to unleash their creative skills and design their own unique bedroom, with Rainbow Trust receiving £1 from every entry received. Fab consumers responded very positively with the brand enjoying a 30.9% increase in like for like sales for Fab Strawberry over the previous year. It was a win-win for consumers and Rainbow Trust, too. Three lucky winners had the room of their dreams created by top interior designers whilst over £90,000 was donated to the charity. The aims of the partnership were: • To enhance Fab’s profile as well as raise valuable funds for Rainbow Trust • To increase Fab’s brand engagement amongst its target audience, with a focus on families • To demonstrate Fab’s commitment...

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  • Employee engagement and fundraising

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  • Charity of the year: Deutsche Bank

    Rainbow Trust Children’s Charity is one of Deutsche Bank’s Charities of the Year 2014. Starting in January 2014 the partnership aims to raise £1 million to provide additional support and care for families with a seriously ill child. There have been lots of opportunities for Deutsche Bank employees to get involved in fundraising for Rainbow Trust. These included a Quiz Night, a raffle for an amazing trip to Kenya and even a Spring Bake in which employees from across the organisation baked cakes and sold them to raise money for Rainbow Trust. In addition to fundraising, we also encouraged Deutsche Bank employees to take part in lots of sporty fundraising events such as Whopping Run, sponsored by Deutsche Bank, the DeutscheBike, the Three Peaks Challenge and a trek in Iceland. This strong partnership continues until the end of the year with events to look forward to such as The Big Hour Tea Time, the Diamond Raffle and an appeal to mark the end of the partnership. Achievements so far: • Funds raised to pay for 1,598 hours of care from our Family Support Workers • Deutsche Bank employees have donated 210 hours of their time as volunteers • Funds raised...

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  • Charity of the year

    The Corporate team at Rainbow Trust works meticulously to make sure that charity of the year partnerships are mutually beneficial. We offer professional account management. We also encourage employees to involve themselves in a variety of creative fundraising opportunities which raise money and brand awareness for both our corporate partner and Rainbow Trust. “We had a fantastic 12 months with Rainbow Trust back in 2010, raising a whopping £243,725. All 48 stores got behind the charity and undertook a whole range of Rainbow related fundraising madness! Rainbow Trust is an inspirational cause, that has national impact with a local feel – it was a privilege to support them.” Rob Thomas, General Manager at OUTFIT Fashion Selecting Rainbow Trust as your charity of the year could help you:Define your corporate identity Provide PR opportunities Enhance employee relations Build stronger teams Improve networking opportunities.

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  • Our strategy

    Today there are an estimated 49,000 children and young people in the UK living with a life limiting or life threatening condition who may require palliative care (University of Leeds, 2011*). Many of these children and their families are able to cope or are not in a ‘crisis situation’. However, thousands of families have to face the very real possibility that their child may die and struggle to cope on a day to day basis. Rainbow Trust supports these families who have a child with a life threatening or terminal illness and are in the greatest need and it is our intention to expand geographically and introduce new services to meet this total demand. *Based on the 2012 research report by the University of Leeds (Fraser et al) which is the most recent and most comprehensive data source for the children’s palliative care sector.

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  • Why partner with us?

    We need you We think it’s about time that every family coping with childhood illness gets the support they need. This is not possible without the support of our heroic corporate partners. Each and every one of our corporate partners, whether large or small, makes a positive impact on the families that we support. There are an estimated 49,000 children and young people in the UK living with a life limiting or life-threatening condition. We are proud to have supported over 2,500 families last year but the need to expand our support for families in crisis is now urgent. Why partner with us Like the families we support, we work with our “heroes” in a bespoke way, tailored to your needs and with clear outcomes. We will work with you to create a successful partnership that is not only inspiring, dynamic and engaging, but mutually beneficial and focused on the objectives of everyone involved. Our experienced and enthusiastic corporate team is dedicated to building personalised partnerships which align with your values and meet your strategic business objectives. Associating with our brand As a much-loved children’s charity our brand is fast becoming a household name. Associating your company with Rainbow Trust...

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  • Pay in your money raised (TBH)

    Thank you for taking part in The Big Hour Tea Time. We hope that you had a great time and we really appreciate your support! Here’s how to pay the money in that you’ve raised. Don’t forget that you can also gift aid your donation too. Online You can use our secure donation form to donate online using your credit or debit card. Alternatively you could transfer the money you have raised via your online banking system using the details below. Please specify this is for the ‘Big Hour Tea Time’. Coutts & Co Sort code 18-00-02 A/C 08917841 Over the phone You can call one of The Big Hour team on 01372 363438 ‬and donate using your credit or debit card. At a bank You can pop into your local branch of Coutts & Co or Natwest to pay your money in too. If you pay into another bank you may have to pay a charge or have difficulty tracing your payment. By post If you experience any problems banking your money or cannot get to a branch of Coutts & Co or Natwest you also send us a cheque made payable to Rainbow Trust Children’s Charity together with...

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  • Wright's Baking

    We are delighted to have our Big Hour Tea Time sponsored by Wright’s Baking a family run flour mill established by George Reynolds Wright in 1867. With almost 150 years of milling experience the Wright family has always been at the forefront of blending traditional skills with innovation to ensure they consistently produce top quality flours and mixes for their customers. Today David Wright, the 5th generation of his family to run the mill is as passionate about the business as his ancestors and continues to oversee the development of the mill and its’ dedicated workforce. Located in Enfield, by the river Lea, there has been a mill on the site since around 1067 and some parts of today’s buildings date back to 1650. Over many generations, Wright’s flour has been renowned for its superior baking characteristics. With the skills and highly sophisticated technology employed today, the product quality and value for money are better than ever. Wright’s cake mixes offer a quick and simple route to make great tasting cakes, muffins, cupcakes or tray bakes for all occasions – just add water and a little oil and your imagination, and away you go. Their cake mixes are available from...

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  • John Scott's Rainbow Cake Recipe

    Ingredients 9oz caster sugar 9oz butter (cut into cubes) 9oz self raising flour 4 eggs 6 shades of food colouring (gel not liquid) Buttercream/frosting You will need to grease and flour three 7-8″ round tins and line with grease proof paper. What you do… Preheat the oven to 180/350 gas mark 4 Cream butter (at room temperature) with the sugar until pale and fluffy. Beat in the eggs one at a time if it starts to curdle add a little flour. Sift in the flour a little at a time and fold into the mixture using a wooden spoon. Divide the mixture between 6 bowls and add your food colouring to each. Then add 3 of your mixtures to your pans. Place in the oven and bake for 20 minutes. Check they are cooked by pressing down lightly on the sponge. If it springs back then it’s cooked. Take out of pans and leave to cool on a wire rack. Repeat again with the 3 other colours. Once cooled coat your purple layer with frosting and then place on top with your blue layer, coat with the frosting and then place in the fridge to chill for 1 hr. Then...

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  • Will Torrent's Black Forest Cupcakes

    Ingredients (serves 8) 150g Unrefined Golden Caster Sugar 250g Butter (200g for Cake and 50g for buttercream) 4 Medium Eggs 80ml Semi-Skimmed Milk (50ml for cake and 30ml for buttercream) 150g White Self Raising Flour 50g Cocoa powder 50g melted dark chocolate 125g Icing Sugar 50g cherry jam/compote 25ml Kirsch or cherry brandy 1 tsp. Vanilla Extract What you do… Pre-heat oven to 180oC, Gas Mark 4. Beat the caster sugar and 200g of the butter in a food mixer on high speed using the beater attachment for 5 minutes. Slowly beat in the eggs, one at a time, and then 50ml milk. Add the flour, cocoa powder, melted chocolate and mix thoroughly. Spoon the mixture into cupcake moulds and bake in the centre of the preheated oven for 20 minutes until the tops of the cakes are even in colour and a skewer inserted into the centre of the cake comes out clean. Allow the cakes to cool on a wire tray. Soften the rest of the butter in a bowl in an 850w microwave on high for 10 seconds, transfer to a food mixer and beat on high speed for 1 minute. Slowly mix in the icing sugar...

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  • Jo Wheatley's Vanilla Sponge Cake recipe

    Serves 8 – 10 This is a classic vanilla: made with love, it can never fail to impress. Ingredients 225g margarine or unsalted butter, softened 225g caster sugar 4 large eggs, beaten 1 tsp vanilla extract 225g self-raising flour 2 tbsp full-fat milk Buttercream 500g icing sugar 125g unsalted butter, softened 3 tbsp full-fat milk 1 tsp vanilla extract 2 tbsp strawberry jam sprinkles You will also need 2 x 20cm sandwich tins, greased and the bases lined with buttered baking parchment and ribbons to decorate Vanilla Birthday Cake from A Passion For Baking by Jo Wheatley, Constable 2013What you do… Preheat the oven to 180°C/350°F/Gas Mark 4. In the bowl of a free-standing mixer, cream the margarine or butter and sugar together until pale, light and fluffy. Gradually add the beaten eggs and vanilla extract. Add the flour and milk and mix until light and fluffy. Divide equally between the prepared sandwich tins, spread level and bake on the middle shelf of the preheated oven for about 22–25 minutes until golden and a skewer comes away clean when inserted into the middle of the cakes. Turn the cakes out of the tins onto a wire cooling rack and leave...

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  • The Big Hour Chocolate Cake

    A devilish chocolate cake recipe to tantalise the taste buds Preparation time 10 mins and cooking 20 minutes plus time for cooling, icing and eating. For 9” cake tins just triple the mixture! Ingredients 4 oz self raising flour 4oz soft margarine 4oz castor sugar 2 eggs 1 level tsp baking powder 1 heaped tablespoon cocoa 2 tablespoons of boiling water What you do… Melt the cocoa with the water Shove everything in a mixer/food processor and mix until combined. Pour into two 6” round cake tins – greased and lined (or something similar) Pop in a preheated oven, 170 degrees for 20 minutes or until brown (when you lightly press with your finger they are firm but bounce back a bit). Take out, cool for a couple of minutes before turning out onto a wire rack to cool completely. You can then either sandwich them together with cream or make up some icing with icing sugar, a tsp of cocoa powder and a tsp of hot water. Ice the top too and decorate.

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  • What to Say to Parents

    Talking to the parents or family of a child with a serious illness can be nerve-racking and uncomfortable. How do you know what to say? What if you say the wrong thing? Sometimes avoiding the family can seem easier than facing a difficult situation. Jayne Abbott, a Family Support Worker with Rainbow Trust in Swindon, helps families to maintain close contact with their family and friends even in the midst of a crisis. She says it’s common for parents to stop spending time with friends or extended family when a child is ill, even though they need their friends more than ever and may need to return to that support network after a child’s death. So it is very important for friends to make the effort to reach out. “There’s no need to worry about saying the ‘right’ thing, it’s just about being there, just having that support system. Let the parent talk without offering advice or anything else. “Try to be positive for the parent,” she suggests. “It’s about listening skills. Let them talk. This will help you to empathise and understand the whole situation that the family finds themselves in.” There’s no need to worry about saying the...

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  • Sweeten your tea time

    ​Here are some great tips to make your Big Hour Tea Time a sweet success!

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  • Memory Jar

    Children can sometimes find it difficult to talk about a brother or sister who has died. One way to encourage them to express how they feel is to create a memory jar. This simple activity helps children think about happy memories while creating something beautiful to help them remember their brother or sister. The following instructions create a jar layered with different coloured salt and chalk to trigger different memories. You might prefer to mix the salt with powdered paint instead. You can choose to add objects to the jar that have significant meanings. The end result will be a way of remembering a special person and will allow children an opportunity to communicate their feelings. Let’s make it! 1. Gather together a glass jar with a lid, a pen, salt, coloured chalks, felt tip pens and six sheets of A4 paper 2. Carefully fill the jar with salt and place to one side 3. On a piece of paper write down any five things you remember about the person who died 4. Draw a dot of colour next to each memory (for example, blue for their favourite song, pink for a time you did something fun together) 5. Spread...

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  • Spooky Star

    It can be a challenge to find ways of entertaining children indoors, particularly those coping with the added emotional stress of bereavement or the serious illness of someone close to them. Children can sometimes find it difficult to talk about a brother or sister who is seriously ill. One way to encourage them to express how they feel is to create something fun, like a spooky star. This simple activity makes children relax and share their emotions more freely. The following instructions create a very cool spooky star as shown in the photo above.

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  • Cork Owls

    It can be a challenge to find ways of entertaining children indoors, particularly those coping with the added emotional stress of bereavement or the serious illness of someone close to them. Children can sometimes find it difficult to talk about a brother or sister who is seriously ill. One way to encourage them to express how they feel is to create something fun, like a cork owl. This simple activity makes children relax and share their emotions more freely.

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  • Book Club

    Our Family Support Workers have found that reading a book together with children can really help with the development of their emotions and understanding. This is both for siblings of a seriously ill child who has recently died and also for the sick child. Books help adults and children connect, bring security and help explain things in a creative way. Following is a list of books that are recommended by our Family Support Workers.

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  • My sister is very ill

    Having a brother or sister who is very poorly can be very hard for you to deal with. You may feel very sad and sometimes angry. You may even feel guilty for wanting to do your things and miss time with your Mum and Dad. Here’s some tips from our Family Support Workers to help you through this very difficult time.

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  • Josh Jones

    This is a true story about a brave little boy whose family was supported by Rainbow Trust. The story is written by his mum and the wonderful pictures are drawn by Josh and his sister. He was only six when this story began…

    He was playing with his sister, running through the fountains at Alnwick Castle, when he noticed his mum on the phone. She told him that they would need to take his sister to the doctors as soon as they got back. She looked a bit worried.

    His mum and dad were meant to collect him from school but instead his nan and granddad got him. This was excellent but confusing because they lived a long way away. When his dad got in later that night, he explained that his mum and his sister would not be home until the weekend because his sister was having some tests done. His dad looked very upset.

    His mum and dad were very sad, but he was pleased that they were all together and that his nan and granddad were there too. Even better, his other nan and granddad came to visit too and everyone had brought presents.

    His mum put him to bed and asked him if he could remember reading about cells in his “Deadly Diseases” book. He said that he did. She explained that his sister had cells that were growing too fast and that she had a lump growing inside her. He thought carefully about this and asked if it would kill her. His mum said that she and dad would be taking his sister into hospital for the whole week for tests, an operation and some strong medicine that would make his sister very poorly but hopefully shrink the lump. He was worried but decided to be brave. He was sad to learn that his dog would have to go to stay with his nan and missed her when she went.

    She also lost her hair. He worried about her but wanted to be brave for his parents who sometimes got upset and sometimes angry. Sometimes he would be picked up by different people after school and have to go to their house, sometimes for tea, sometimes for sleepovers. Sometimes he would not see his parents for days, knowing that they were in hospital with his sister.

    Most of the time he knew what to expect, but quite often he didn’t know where he was going or what was going on. He knew that his sister was very poorly and that he had to be brave. He didn’t really know the people he had to stay with, remember that he was only six! Think how you would have felt. He had to give up lots of things that he wanted to do because his parents weren’t around to help him or to play with him, and even when they were, his sister needed a lot of care.

    He even his dog is back, but his being brave isn’t over yet. His sister has to go back to hospital to check that the cancer has not come back, and will do for five years, all being well. His parents still worry. He still has to be looked after when they go to hospital.

    All through this difficult time he was caring, thoughtful, brave and selfless, and for most of it only six! His mum and dad weren’t even there for his 7th Birthday Party!

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  • Glossary of Terms

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  • My brother's got cancer

    The pair have supported one another throughout the journey, “We’re very close. I would always talk to him if he was sad or anything. He would come to me when he was sad.” While her brother’s illness was difficult to deal with, Sophie explains, “It was upsetting, but we mainly laughed about it. They say if you don’t laugh you cry. We normally made jokes to get through it.” Her brother’s illness naturally had an impact on Sophie and has inspired her to want to become an oncology nurse. When most of the attention was on her brother, Sophie was very understanding saying, “He should have been getting all the attention. … I know the reason why he did, so that’s good.” A friendly face and someone else to talk to Through the difficult times, Family Support Worker Sabrina helped Sophie by giving her some much needed respite with days out of the house alone or with her brother, away from hospitals, and someone outside of the family to talk to. “It’s just nice to see a friendly face. I would talk to my friends about it but if I needed to talk about something else I would talk to...

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  • I'm young and I've got cancer

    Andrew Forbes was 12 when he was diagnosed with a rare and inoperable cancer. Doctors operated on him to remove as much of the tumour as possible without damaging his brain and afterwards he underwent six months of radiotherapy. “It wasn’t that bad to begin with. All you had to do was lay on a table while they clipped your head so that it wouldn’t move out of the space. About halfway through they did say you would lose your hair. One morning I just woke up and … it just fell out and it was on my pillow. I didn’t mind it. It just made me very unusual.” Andrew was 13 when he met Rainbow Trust Family Support Worker Sabrina “Sabrina is basically a mate,” Andrew said. “She’s someone that you trust. You know she is going to be friendly, and if you want to go anywhere she would just take you.” “The treatment made me really tired. When we went out with Sabrina, we weren’t doing a lot of active things that required a lot of movement but it was really, really fun. It was nice to get away from all the treatment and the hospitals.” Sabrina helped...

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  • Is my brother or sister going to be ok?

    There are many different life threatening or terminal illnesses. Some of them can be diagnosed and others not. For example, many cancers can be treated effectively in young people. People respond differently to treatment too so it’s important that you are there every step of the way to support your brother or sister. It’s also important that you discuss your emotions with a trusted friend or adult. The emotions you may have such as guilt, anxiety, isolation or embarrassment are all completely normal. Our Family Support Workers are here to help you through this. Can I catch it? This depends on the illness but is highly unlikely. Most illnesses are not infectious but some are hereditary and passed through your family. If you are concerned about this, it’s really important that you talk to an adult and ask these questions no matter how silly they sound. Why does my brother or sister look so different? People react differently to treatment throughout their stages of illnesses. Some treatments, such as chemotherapy may cause your brother or sister to lose hair, make them tired, feel sick or have sore skin. Treatments can be both physically and emotionally draining. It’s important to realise...

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  • Just Diagnosed

    Rainbow Trust supports young people up to the age of 18 who have been diagnosed with any form of life threatening or terminal illness. We can support you and your family through diagnosis, treatment and beyond. Your first reaction Our Family Support Workers are experienced in the emotional and practical needs of young people who have a life threatening or terminal illness. Finding out you have a serious illness is a terrible shock and can feel like your life is on hold. It can bring a sense of isolation and anxiety for the new journey ahead. At diagnosis you may feel overwhelmed and unable to fully digest the news, thinking “this can’t be happening to me”. This is perfectly normal and our support is there for you. Your treatment Your treatment will depend on the type of illness you have. Rainbow Trust Family Support Workers can be with you every step of the way. They will be there for you and your family during hospital appointments, they will be there to talk to when you need someone to listen and will support your brothers or sisters and help them come to terms with your illness. It is also important to...

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  • FAQ's

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  • Practical Tips

    Practical help and your finances Rainbow Trust provides practical support to families. This can range from providing transport to and from hospital, looking after the sick child to enable parents to spend time with other siblings or creating a safe environment for your sick child and siblings to play in at our drop-in groups. Read our story about how we support Poppy and her family and, by the way, if you’re finding the constant medical terminology and our special jargon a little overwhelming, just take a look at our glossary of terms which is there to help you understand what people are talking about. Taking time off work to be with your child Many parents are concerned about how to combine work with caring for their child but there are some options. Read more. Benefits and other sources of help Check what benefits your family may be entitled to, and find out about help with parking and equipment.

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  • Two months to go until the biggest sports event in our calendar

    With more than 35,000 runners taking part, the London Marathon is the largest single fundraising event in the world. Each year the event tops most runner’s wish lists, and importantly, it raises over £40m for charity. It’s the biggest event in our sports events calendar. On 26 April our staff, volunteers, runners, and their families and friends, will have an unforgettable day. The London Marathon, however, is more than just one day, it’s a journey, and one that has already begun. In this series of blog posts, we will share with you just what it takes to get to this iconic event, from behind the scenes information, to our celebrity runners, and a first look at our new running vests. You will get the inside scoop on what our events team and runners do to prepare for the big day. Rainbow Trust will have over 50 runners taking part this year, with the aim of raising a total of £100,000 to help support families with a seriously ill child. Our events team is on hand to support the runners every step of the way. Our runners have benefited from professional marathon training sessions with former GB triathlete and friend of...

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  • My first day as a Rainbow Trust intern

    My name is Bea and I’m the Digital Marketing intern here at Rainbow Trust Children’s Charity. I’ve just graduated from the University of Salford, Manchester after studying Media for the last three years. After Uni, I was a bit stuck for what to do - I loved working in television and radio but was increasingly interested in social media, namely YouTube. The new way companies were using online content creators such as YouTubers, bloggers and vloggers to market and advertise their products is something I found very exciting. I knew I wanted to get involved in this emerging world but without professional experience, I wasn’t sure how. I had heard of Rainbow Trust whilst I was at school and my dad had been to networking events with people who had worked for the charity, so when he told me there were some internships available at the charity’s headquarters in Leatherhead, I immediately looked it up on their website. There were two internships that would have been great but I was really excited by the Digital Marketing one since it would involve me getting to better grips with all aspects of social media. I was very surprised and happy when I...

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  • Volunteering

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  • Ready to wear red again? ILC Day returns for 2018

    For the sixth year running, ILC members will be will be participating in the annual ILC Day, raising funds for Rainbow Trust Children’s Charity on Wednesday 14 February. Falling on Valentine’s Day, ILC Day is when we ask the insurance claims industry to show their love for Rainbow Trust Children’s Charity by wearing red to work and making a donation to the charity. The donations raised contribute towards supporting families with a seriously ill child, allowing them to make the most of their time together. Over the years, companies large and small have signed up to receive a fundraising pack and take part in the fundraising day, many of which have taken their participation further than just wearing red to include bake sales, raffles and quizzes. Since its arrival, ILC Day has raised over £52,000 for Rainbow Trust and last year, over 100 locations got involved across the country. Follow the buzz leading up to and on the day on Twitter, #ILCDay2018, with live feeds of tweets and photos of the fun.

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  • Five year old in remission from cancer is Rainbow Trust’s ‘face’ of the Great North Run

    A five-year-old boy from County Durham who is in remission from cancer is fronting our appeal, calling on people to take part in the iconic Great North Run in Newcastle-upon-Tyne on 9 September. Aptly named Daniel Rainbow and his family, from Stanley, are appealing to people to sign up to the half-marathon and join ‘Team Daniel’ along with his mum Claire and other family members, to help raise funds for families like theirs who are supported by Rainbow Trust. Rainbow Trust is encouraging runners without a ballot place to sign up for the 70 places up for grabs on ‘Team Daniel’. Ballot runners can also join ‘Team Daniel’ by raising sponsorship for Rainbow Trust. Competitors need to raise £300 each and pay a £40 registration fee. Rainbow Trust will provide each runner with a Team Daniel running vest and will have cheering squads at the event. Runners will also enjoy a post-race reception and massage and will receive a thank you card designed by Daniel. The 13.1-mile race spanning Newcastle, South Shields and the North Sea coast, attracts some 57,000 runners each year including celebrities, wheelchair-racers and fun-runners and is filmed live on the BBC. The money raised from Team...

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  • K2's Kili Klimb raises over an incredible £17,700

    A team of eight intrepid explorers from K2 Corporate Mobility took on the most popular of Kilimanjaro routes, the Machame, to raise much needed funds for seriously ill children and their families. The six-day trek included climbing 5895m, five nights of camping, a scramble over the infamous Barranco Wall, before a rewarding summit to watch the sunrise over Mawenzi peak. The team have managed to raise a phenomenal £17,795 from their Kilimanjaro challenge. In addition to this K2 have also been fundraising throughout the year bringing their total to over £43,000. This will allow us to fund a Family Support Worker for an entire year, to provide emotional and practical support to families caring for a seriously ill child. A huge thank to the team for their continued support, we look forward to seeing what crazy challenge they take on next! If you or your team are interested on taking on this challenge please take a look here for more information or get in touch with the Sports and Challenges team.

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  • Challenge 1: My first saxophone lesson

    So Challenge 1 was my first ever saxophone lesson. Now to be clear I can read music. I also played the recorder as a child and tried to play the oboe for a short time. But goodness me how VERY different it is attempting to get a noise out of the saxophone! Rainbow Trust’s very own Karen Shortland was my excellent teacher. Aside from working for Rainbow Trust in her spare time Karen plays a vast number of instruments in a marching band, teaches children to play them and is part of running a local scout group. She is a busy woman! So 3pm Friday 3 February was the allotted time. We decided to do the 45 minute lesson in the office conference room – much to the concern of the team, given the expect noise akin to a strangled cat. In any event, the room proved to be a little more sound-proofed than expected, although Dave did decide to join in in the open plan office with the bicycle hooter which normally signals that someone has donated. On this occasion I was hoping it was not a hint to get me to stop!! The lesson was great and focussed...

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  • Why I'm taking on Challenge 50 this year

    Hello all and welcome to my first Challenge 50 blog and to my inspired avatar! I am a great fan of marking ‘significant’ ages in a positive way – celebrating being alive, well and healthy. When I turned 40 I had an incredible party weekend and made the most of it for me. This year I am 50 and now I think it’s time to celebrate in a way that benefits others. I am really excited about being 50 and, as a result, felt that I should come up with a list of 50 things to do that would challenge me in different ways, that raise money for one of the most incredible charities I have ever been involved with, Rainbow Trust Children’s Charity, and that (mostly) relate in some way to the charity, its work and the incredible staff and volunteers that support it. Hence Challenge 50 was born; 50 challenges, on 50 different days, throughout 2018 to raise a minimum of £10,000. And you can be a part of it – donate whatever you can (plus gift aid) on my fundraising page here, join me in one of my challenges, come along and shake a bucket or two...

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  • #FollowTheChild campaign calls for better end of life care

    Rainbow Trust welcomes the campaign to #FollowTheChild which urges action to ensure that all seriously ill children have the best possible end of life care. The campaign is calling for all families to have access to good end of life care, wherever they live. #FollowTheChild has been launched to coincide with the launch of a book of the same name, in which mother Sacha Langton-Gilks tells the story of her son David, who died of a brain tumour aged 16. Sacha explains that she is hugely grateful that her son died peacefully at home, but feels passionately that this should not have been down to good luck. She is now campaigning to ensure that all families have the same choices for end of life care if their child is dying. Recent research conducted by Together For Short Lives showed that access to end of life care can vary greatly according to a child’s postcode, with 46 per cent of local NHS planning and funding bodies (Clinical Commissioning Groups or CCGs) saying they do not implement the government’s end of life care choice commitment for children and young people, and have no plans to do so. This directly impacts of the...

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  • Hadleys London to Support Rainbow Trust

    The Arun Estates group have launched a new brand called Hadleys London and we are pleased to announce that they will be supporting Rainbow Trust. Cubitt and West, another Arun Estates brand, have been supporting Rainbow Trust for over 10 years, and in that time have raised a tremendous amount for families with a seriously ill child. Hadleys London will be supporting Rainbow Trust across the whole area they serve, which will include Bromley, West Wickham, Penge, Chislehurst, Orpington, Beckenham and Petts Wood. Hadleys London is specifically tailored to market and sell individual properties and offers a fresh and innovative approach to helping their customers with that “dream move”. Hadleys London said: “We are proud to be supporting such a vital cause and we intend to use every scrap of our strong local presence to drum up as much awareness and as much support as possible to change the lives of those families with children who have a life threatening illness.” Oonagh Goodman, Director of Marketing & Fundraising at Rainbow Trust said: “Rainbow Trust is delighted to be supported by Hadleys London, as part of its partnership with Cubitt and West. Cubitt and West has actively supported the charity for...

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  • Grandma gives back and goes sky high above fundraising target

    Joanne Shaw and Kath O’Reilly, both from Manchester, took to the skies to complete their sponsored skydive, smashing their initial £790 fundraising target and raising £1355. Their fundraising will enable Rainbow Trust to provide 59 hours of support to a family caring for a terminally ill child, helping them make the most of precious time. Joanne knows only too well how vital this support can be, her grandson Frankii has chronic lung disease and has Downs Syndrome, Rainbow Trust supports her daughter Steph, helping out with hospital appointments, the weekly shop and ensuring that Frankie’s brother Jackson is also supported. Both ladies managed to smash their fundraising target with the generosity of family and friends, as well as holding a party fundraiser. If you would like to take to the skies for Rainbow Trust, we’d love to have you jump for us! We are here to provide you with fundraising advice to help you hit your target, so don’t worry we will help you get there. Click here to find out everything you’ll need to know!

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  • How Rainbow Trust can reduce pressures on hospitals

    With NHS Hospital Trusts across the country reporting very high levels of pressure on their services, Rainbow Trust Children’s Charity calls on Health and Social Care Secretary Jeremy Hunt to look again at opening up existing funding for child palliative care to non-clinical services providing emotional and practical support. Recent weeks have seen a steady stream of media stories relating to pressures on hospitals, including a one year child whose heart operation was cancelled five times before it was eventually carried out, elderly patients waiting for hours on trollies, and many hospital trusts missing their target for responding to Accident and Emergency patients. At the same time data suggests high numbers of nurses leaving the profession. Rainbow Trust Children’s Charity can assist in the timely discharge of children who are in-patients and can help free up hospital beds. The opening up of existing funding for child palliative care could enable the charity to do this in more parts of the country. As set out in the report, Hidden Savings, Rainbow Trust’s support for families can be a factor in enabling the discharge of children to the family home. In particular, the support of a Family Support Worker can allow parents...

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  • Seriously ill children supported by Rainbow Trust Children’s Charity enjoy reindeer and sleigh rides

    The Grounds Care Group in Fetcham organised a party with reindeer and sleigh rides for seriously ill children supported by its charity partner Rainbow Trust. Families supported by the charity’s Surrey care team, along with local residents, were invited to the festivities at the Ground Care Group’s Cannon Way offices on 17 December. The children had the chance to feed the reindeer, sit in Santa’s sleigh and visit his grotto and they all received a special festive gift. After selecting Rainbow Trust as its Charity of the Year, The Grounds Care Group also previously committed to providing free gardening to Surrey families supported by Rainbow Trust. Oonagh Goodman, Director of Marketing and Fundraising at Rainbow Trust, said: “We are extremely grateful to The Grounds Care Group for organising such a wonderful event for families caring for seriously ill children. Christmas can be one of the hardest times of the year for these families and we would like to thank The Grounds Care Group for providing them with a fun opportunity to spend precious time together.” Kirsty Bedford, Finance Manager at The Grounds Care Group, said: “It was lovely to see the huge smiles on the children’s faces as they met...

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  • Inspirational Cubitt & West dad supported by Rainbow Trust wins Fundraising Champion Award

    A father from Redhill and branch partner at estate agent Cubitt & West whose family is supported by Rainbow Trust Children’s Charity, has won a Fundraising Champion Award for raising funds for the charity supporting families caring for a seriously ill child. Godfrey Haire was presented with the accolade by Agents Giving, the property industry’s charity, at their annual Ball at the Royal Lancaster London Hotel on 8 December. Godfrey, who is preparing to donate a kidney to his seven-year-old son who was born with severe bladder and kidney damage, has been actively fundraising for Rainbow Trust for three years. He was introduced to the charity through Cubitt & West around 11 years ago who funds a Rainbow Trust Family Support Worker in Surrey and who have been supporting Rainbow Trust for over 10 years. Godfrey has undertaken various challenges for Rainbow Trust including the Seven Colours of the Rainbow, which saw him set himself a different task each month including taking part in Ride London with a group of friends, a 100-mile race around London and Surrey. Godfrey’s son Henry was born with severe bladder and kidney damage and Rainbow Trust Family Support Worker Nicki has been supporting Godfrey...

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  • Contiki brings smiles to Rainbow Trust families

    Travel company, Contiki, opened the doors of its trendy London Basement on 9 December 2017, to host a Christmas party for Rainbow Trust families from the central London area. An appearance was even made by Mrs Claus (Santa was very busy elsewhere at that time!), who handed out presents. The party was especially magical for 18 month-old Talin who, in her short life, has only spent less than 2 weeks out of hospital. Arrangements were put in place so that Talin, her mum and older sister could attend the party together and enjoy the festivities at the most special time of the year. Contiki have supported Rainbow Trust since September 2009 raising over £90,000 for the charity through foreign currency collection from passengers, and staff undertaking annual fundraising challenges such as 100 mile bike rides, obstacle courses and treasure hunts. We cannot thank Contiki enough for their continued support and offer thanks on behalf of the families; not just from those who were lucky enough to attend the wonderful Christmas Party, but those who have benefited from the expert, practical and emotional care that their donations have supported over the years.

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  • Parents whose two daughters undergoing pioneering treatment for Batten Disease thank Rainbow Trust

    Parents whose two daughters were diagnosed with the same fatal disease a year ago have thanked Rainbow Trust Children’s Charity for its support and are looking forward to the New Year with fresh hope, thanks to pioneering treatment their daughters are receiving. Nicole and Jessica Rich were diagnosed with Batten Disease within three months of one another and are receiving pioneering treatment for it and Jessica, who has just turned two, is the youngest in the world to receive it. Parents Gail and Matthew, from Throckley, Newcastle, hope that Jessica’s early diagnosis will stop her developing full-blown Batten Disease, the rare and life-limiting genetic disorder, which causes progressive deterioration of the brain and nervous system. Nicole’s symptoms have improved since January when she started the enzyme treatment, which can slow down the progression of Batten’s, and Jessica does not yet have any symptoms at all. Gail said: “All eyes are on Jessica and that’s why we are full of hope because they are giving her the treatment before the problems have started and we hope she will beat it or be ok. The expectation is that she will never develop full symptoms. Nicole’s the bravest little girl, she’s a happy...

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  • Holly Willoughby supports best friend raising money for Rainbow Trust

    We are delighted that This Morning presenter Holly Willoughby took to Instagram on Monday 8 January to support her best friend who is raising money for the charity, which is supporting her sister’s family. In Holly’s detailed post she spoke of her friend Emma Driver’s fundraising challenge to cut off 12 inches of her hair to support families with a seriously ill child. Holly wrote: “In 2010 I did my best friend Emma’s hair for her wedding day…today she has decided to cut off 12 inches of that beautiful hair to help her sister’s baby girl Alice… sisters and friends will always stand side by side and help where they can ... love you Ems, one of this worlds special people!” Holly copied Emma’s post which said: “We are raising money for Rainbow Trust Children’s Charity - a lovely charity close to our hearts, as they support our little one-year-old niece Alice, who has Bilateral Retinoblastoma.” Calling on people to donate to Rainbow Trust, Emma wrote that Rainbow Trust helped families through stressful times, enabling them to take an occasional break. “We are very grateful to Rainbow Trust and as they continue to support Alice and the whole family through...

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  • My time interning with the digital team

    My name is Max and I am an undergraduate studying business management. I joined Rainbow Trust as part of their digital team after my second year of university as I needed real world experience on my CV. Just having a degree doesn’t seem to be enough to stand out anymore. When I joined Rainbow Trust I had never worked in an office environment, so immediately everything felt alien, running out the door was sounding very appealing. However, after talking to my new colleagues, I soon found that everyone was looking out for me, whether I didn’t know how to use a software or not knowing what to say when answering the phone, everyone was always extremely helpful. I have been particularly impressed with the structure of the internship and how seriously Rainbow Trust take their interns, sometimes when you say you’ve done an internship people assume you’ve been making tea for a couple of months, but not here! When I arrived, I had a meeting with my manager about my personal goals and what I wanted to learn and gain from the internship, on top of this I have an online checklist of what I needed to be trained on...

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  • Meet volunteer Chloe

    Volunteer of five years, Chloe, shares why she started volunteering and how the experience has changed her life for the better. How did you first hear about Rainbow Trust? I used to volunteer at a different charity but then I moved out of the area. When I moved here I was walking down Leatherhead high street and went into the Rainbow Trust charity shop. I started talking to the volunteers there and decided that this was a charity that I wanted to be part of. It’s been 5 years now! Why did you decide to volunteer for the charity? I always wanted to work with children, but I knew I wasn’t physically able to, so instead I began looking for something where I could support children from an office environment. I went through a lot of hospital treatments as a child, so I know how hard it is for the whole family and Rainbow Trust does a lot to make it a better experience for them. What do you enjoy most about your volunteering? I love the variety of jobs I have here – it changes week to week. There’s always a different way in which I can help, so...

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  • Star studded support for top London Carol Concert raises more than £30,000

    Hundreds of guests filled the pews of the stunning St Paul’s Church, Knightsbridge on Wednesday (6 December) for the much-loved celebrity studded London Carol Concert which raised more than £30,000 for seriously ill children and their families. ITV Presenter and Rainbow Trust Patron Mary Nightingale hosted the event, voted one of London’s top 2017 carol concerts. Other special guests and speakers included actress Maureen Lipman (Prime Suspect and James Bond), actor Robert Portal (King’s Speech and My Week with Marilyn), Annabel Croft (former British number one tennis player), actor Jason Flemyng (Lock, Stock and Two Smoking Barrels and Snatch) and Rupert Young (BBC’s Merlin). Guests enjoyed mulled wine and mince pies and heard a range of wonderful festive readings and performances from The West End Gospel Choir and The Farleigh School Chapel Choir, from near Andover, Hampshire, who sang arrangements of classical Christmas songs and led the congregational singing of traditional Christmas Carols. Classical Reflection, comprising classically trained sopranos and identical twins Naomi and Hannah Moxon seen on The Voice sang In the Bleak Midwinter. One of the concert’s many highlights was hearing Rory McConnachie, an 11-year-old sibling of one of the families in London supported by Rainbow Trust, read...

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  • SC3 select Rainbow Trust to benefit from Christmas single ‘Family’

    SC3 (S Club 3) will be supporting Rainbow Trust Children’s Charity through the sale of their single ‘Family’, released Monday 11 December, to help the charity support families with a seriously ill child. SC3, consisting of three of the original S Club 7 bandmates, Jo O’Meara, Bradley McIntosh and Tina Barrett, chose Rainbow Trust to benefit from 40% of the single’s proceeds. The charity was a good fit for the SC3 single which highlights the importance of family. Emma Haines, Director of Fundraising and Marketing at Rainbow Trust said: “We are delighted to be benefitting from SC3’s Christmas single ‘Family’. Christmas is such a special time for families but it can also be one of the toughest times of year when you have a child who is seriously ill. All the funds raised from this partnership will help us ensure that we can continue to provide vital help to families at home, in hospital and in the community to give them as much precious time together as possible. We would like to thanks SC3 for supporting Rainbow Trust and wish them all the best with the new single.” You can download the single here: https://itunes.apple.com/gb/album/family-single...

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  • Without Rainbow Trust life would be very tough

    Four-year-old Amadeusz was only the fifth person in the world to be diagnosed with a rare genetic mutation of epilepsy when he was just eight months old. “We knew there was something wrong as soon as he was born. Amadeusz was shaky and jittery and he started having seizures. After he was born we hardly left hospital for nine months; we were living by his bedside.” recalls Anna, his mum. The family were told that Amadeusz had a genetic mutation of epilepsy called SCN8A. The condition hadn’t been discovered until 2011 and is so rare there was only a handful of people are known to have it. Even today there are only 160 cases in the world and Amadeusz remains one of the most complex cases. “We were in a cubicle and the neurologist came in and told us she had a diagnosis and explained that there was no cure for Amadeusz. As she spoke to us I could literally see the door closing on me. Up until then I still had hope that his illness would pass and go away.” “For the first few days after he was diagnosed I had to stand back from him – I found...

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  • Harold Wood crowdfunding nearly at £1 million

    Harold Wood charity shop in Essex have been fundraising for families for the last 24 years and are only £25,629 away from reaching £1 million. Patron and joint founder of the group Pauline Obee MBE said “We are committed to raising as much money as possible for families needing our help. We are now just £25,629 away from reaching the £1 million mark and we would love our community to help us get there.” After hearing an interview with Rainbow Trust Children’s Charity’s founder Bernadette Cleary in 1993, Pauline and the late John Penrose established the Harold Wood Friends Group to support the charity. The group started fundraising when they were offered an empty shop for 3 months; they embraced this opportunity and ran jumble sales in the shop 2 days a week to raise money for Rainbow Trust. 24 years later the shop and friends group are still going strong, raising an incredible £974,371 to date. Pauline said “It hardly seems possible that Rainbow Trust has been part of my life for 24 years. I feel fortunate to have made so many generous and true friends since the opening of the shop and I am proud of what we...

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  • Meet Heidi, a Family Support Volunteer

    Meet Heidi, who volunteers with Sarah (pictured above) a Family Support Worker in our Essex care team. Our Family Support Volunteers provide a vital role in assisting our Care teams up and down the country. How did you first hear about Rainbow Trust? I was at a point of my life when I felt that I wanted to give something back to the community, I have completed various volunteer work over the years & always found it fulfilling. After searching on the internet for volunteer opportunities, I came across Rainbow Trust. Why did you decide to volunteer for the charity? After contacting the charity to learn more, I found everyone to be so inviting and going forward I thought it would be great to be part of such a welcoming team and worthy cause. What do you enjoy most about your volunteering? I enjoy seeing the parents having some time to breathe and chat in a non-judgemental environment, giving them the time and space to complete various chores knowing that their children are safe. Plus a smile from the children is always a bonus. Do you have a particularly distinctive memory from your volunteering so far? Hearing a particular child...

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  • I love every minute of volunteering with Rainbow Trust

    Meet Liz who volunteers with the Southampton Family Support Team. Our Family Support Volunteers provide a huge support to our work with families out in the community, in hospital and at home. How did you first hear about Rainbow Trust? I first found out about Rainbow Trust online, I had lots of spare time and was searching for volunteer roles, I thought this would be an excellent charity to volunteer with. Why did you decide to volunteer for the charity? It was the perfect opportunity for me to give a little back to my local community. What do you enjoy most about your volunteering? I love every minute of volunteering with Rainbow Trust it’s the special moments of a child’s smile and the interacting with them that just gets me! It’s amazing that however much time I can offer from a few hours to a day each week makes such a difference to the family that you are working with. It really is heart-warming. Do you have a particularly distinctive memory from your volunteering so far? My distinctive memory is going to the playroom with a young girl so that she could spend some time away from the ward. We...

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  • The greatest gift this Christmas, time together

    Samuel has a life-threatening heart condition. Rainbow Trust helps Samuel’s family cope by providing a dedicated Family Support Worker called Sarah to help them face and make the most of each new day. Our gorgeous little boy, Samuel, has a life-threatening heart condition. He underwent his first open heart surgery at just four days old. His heart condition means he has to be watched all the time. Crying and coughing could trigger a cardiac arrest, so we need to keep him calm. Our friends and family offer to look after our daughters Daisy and Betsy but no one’s comfortable taking on the responsibility of looking after Samuel. The only person who gives us a break from our desperate situation is Sarah, a Family Support Worker from Rainbow Trust. We couldn’t do without Sarah’s support. She’s been supporting our family for two years. When she looks after Samuel, it gives us time with Daisy and Betsy. Samuel wakes in the night up to 25 times, so having Sarah there to look after Samuel during the day means we can catch up on some sleep after a difficult night. She also cares for Betsy while Samuel has his hospital appointments. If we’re...

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  • Five steps to improve children’s health and social care

    Yesterday saw the publication of a five step plan to address the urgent health and social care needs of disabled children, including those with life threatening and terminal conditions. The plan has been drawn up by the Disabled Children’s Partnership, a coalition of more than 50 organisations, including Rainbow Trust Children’s Charity, Mencap, Sense and the National Autistic Society. With parents of many disabled children reporting challenges in accessing the support to which they are entitled, the plan sets out what the government must do address the growing crisis in children’s health and social care. The five steps include: • Making disabled children a priority in government, with one minister holding responsibility for disabled children • Reviewing the funding of ‘short breaks’ provision • Clarifying the existing rights of families • Creating a fund to improve health and social care services • Commissioning a review of health and social care law. Zillah Bingley, CEO of Rainbow Trust, said: “Only one in ten parents say they believe health and social care is meeting their disabled child’s needs. We think this is simply not acceptable. Where a child has a life threatening or terminal illness it is essential that the right support...

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  • Budget 2017: A missed opportunity

    Rainbow Trust Children’s Charity is disappointed that today’s Budget from Chancellor Philip Hammond has missed the opportunity to bring comfort to families of children with life threatening or terminal illnesses, with no mention of plugging the funding gap for child social care or of tackling funeral poverty. More positively, the Chancellor announced additional funding for the NHS over the course of the rest of the Parliament, and measures worth £1.5 billion to respond to the serious concerns raised about the impact of the introduction of Universal Credit. This announcement on Universal Credit will be welcomed by families on low incomes where a child has a life threatening or terminal condition, who are being moved onto Universal Credit. These include an end to the initial waiting period of seven days and making the first month’s payment available to claimants within five days. However, Rainbow Trust is calling for urgent investment in preventative social care services which could support those families who struggle to manage with both the emotional and practical challenges of having a child with a life threatening or terminal condition. Successive budget cuts mean three quarters of local authorities are overspending on their children’s services, and the Local Government...

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  • The importance of memory boxes

    This Children’s Grief Awareness Week we are focusing on what Rainbow Trust Children’s Charity does to support bereaved children. Last year, 69 children we were supporting died, leaving behind 79 brothers and sisters. Every single bereaved child needs support to help them adjust to life without their sibling. Mandy, a Family Support Worker from our Surrey care team, explains the importance of creating memory boxes with siblings to help them with their grieving process. When someone dies, we all worry that we will lose our memories of our loved one – it’s no different for a child. By gathering and saving special memories in a memory box, a child can go back to the box and reconnect with those memories, happy and sad, when they are ready. It changes over time – what might make them happy one day, may make them sad another. I supported a family with three children and the eldest brother died. I had a good relationship with the siblings and would pick them up from school when their mum and dad were in the hospital with him. They’d talk to me in the car about anything and everything, including their worries. I think children find...

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  • Rainbow Trust backs #BurytheDebt campaign

    As part of the Fair Funerals alliance, Rainbow Trust Children’s Charity is backing the #BurytheDebt campaign in the run up to the Budget on 22nd November. We are urging the Chancellor to increase the amount provided by the government’s Social Fund so that grieving families on low incomes can afford a respectful funeral when a family member dies. Rainbow Trust Children’s Charity was among the organisations and individuals who responded to a Department for Work and Pensions’ consultation earlier this year which put forward some small changes which could help grieving families. These included extending the application period from three to six months after a funeral, and letting people keep contributions from friends and family towards the cost of a funeral rather than deducting them. It was no big surprise that the recently published outcome of the consultation was an announcement that the department will go ahead with the modest improvements that it had suggested. However the campaign is calling on the Chancellor to go much further in the Budget on 22nd November and to increase the size of the fund so that the full cost of a funeral can be covered when needed. Rainbow Trust’s Director of Care, Anne...

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  • Hanover Dairies raise over £51,000

    On 4 November 2017 Hanover Dairies Limited held its 4th Charity Ball in aid of Rainbow Trust Children’s Charity and raised £51,000. The event took place at the Crowne Plaza in Newcastle and was hosted by owner of Hanover Dairies, Trevor Hanover. Guests enjoyed a drinks reception, followed by a three course meal with live entertainment from Mr Hanover himself during dinner. To show their support to the charity, guests could bid in either the silent auction, or in the live auction. Following the fundraising activities guests danced the night away to live music from band ‘Storm’. Zillah Bingley, CEO said “The evening was great fun and a huge success. We are thrilled that the commitment of Hanover Dairies and Trevor meant the event raised £51,000 which is enough to fund a Family Support Worker for more than a year. I cannot thank Trevor and his team enough for their incredible support for Rainbow Trust through this event but also in so many other ways.” Rainbow Trust are thrilled to announce that Hanover Dairies will continue to support us and are already planning their next fundraiser to take place in June 2018.

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  • David conquers Kili and raises an incredible £5,404

    David Thompson, conquered Mount Kilimanjaro by taking on the Lemosho route and completed the climb in seven days. Having managed to raise an incredible £5,404, his fundraising will enable Rainbow Trust to provide 235 hours of support to a family caring for a terminally ill child, helping them make the most of precious time. David ran a variety of fundraising events to raise his sponsorship target, including a charity football match and a BBQ fundraiser. His friends and family have been a great support, especially his nan, Nelly Wadley, who has been an avid fundraiser for Rainbow Trust, helping to establish the Harold Wood charity shop in Essex 24 years ago. David said: “It was such a wonderful trip, it was tough and the altitude really hit me hard on the summit night. But I am delighted to have conquered Kilimanjaro and to have completed a personal challenge, it’s been great to have my nan’s support and we are both so pleased to have raised a fantastic amount that will help those families supported by Rainbow Trust”. If you would like to tackle Kilimanjaro for Rainbow Trust, we’d love to have your support! There are many funding options available -...

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  • Allowing children and young people to ask the difficult questions

    This Children’s Grief Awareness Week, ​Monica, a Family Support Worker from the North East Care Team shares her experience providing support to young people and their families through bereavement. A few years ago, I supported a 13-year-old named Emily who sadly died of cancer. At the time, she was the same age as my daughter so it really hit home of what Emily was missing out on. I feel I formed a special connection with the family and they always commented how “I just got it, how I understood what Emily needed.” As Emily couldn’t go to school, she lost touch with a lot of her friends and the ones who did visit, she felt she had nothing in common with any more. She could not join in with conversations about going to the cinema or into town on a Saturday. She became very withdrawn and was really lonely. When I first meet the families, I ask them what I can do to help or what they are struggling with and they really appreciate that, straight away they feel listened to and valued. My support for Emily was to enable her to be a teenager and experience all the things...

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  • Family Support Worker brings joy to family caring for a seriously ill child

    A Manchester family who we support, has spoken about the joy its Family Support Worker has brought them, ahead of International Day of Happiness on 20 March. Every Tuesday, three-year-old Alexander Taylor sits by the window of his Bolton home looking out for Family Support Worker Brodie, who supports the whole family because Alexander’s twin brother Noel has severe development delay after developing a brain injury at birth and is on constant oxygen. Our expert Family Support Workers enable families who have a child with a life threatening illness to make the most of their time together by helping them at home, in hospital and in the community, for as long as is needed. As Brodie arrives at the Taylor family home, armed with toys and games to play with Alexander, Noel and their six-year-old sister Abigail, Alexander’s face breaks into a smile and Noel squeals excitedly, clearly pleased to see her. Rainbow Trust has been supporting the Taylor family for two years and Dad Darren said Rainbow Trust and Brodie had made a huge difference to their lives, supporting the whole family and providing an outlet for the children and some much needed respite for Darren and his wife...

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  • Topgolf UK to support Rainbow Trust

    Rainbow Trust are thrilled to announce that a market leader in sports entertainment, Topgolf® have chosen Rainbow Trust as their charity partner for 2018. With an ambitious fundraising target of over £42,000, the partnership will fund a Family Support Worker from our West London team. Topgolf has three venues across South-East, England which will all participate in fundraising through a series of activities, events and promotional offers. Topgolf will also be donating £1 to Rainbow Trust from the sale of every Double Smokehouse burger. Oonagh Goodman, Director of Fundraising and Marketing at Rainbow Trust said: “Our sincere thanks go to Topgolf UK for selecting Rainbow Trust as its Charity of the Year. We are really looking forward to working with Topgolf associates and guests to make this a hugely successful partnership. Topgolf has set an incredible fundraising target which is amazing. The money will fund one of our expert Family Support Workers who help families with a seriously ill child, at home, in hospital and in the community, to make life a little easier.” Claire Kendrick, Head of Marketing at Topgolf UK says; “Rainbow Trust is dedicated to supporting families during the toughest of times. One of Topgolf’s core values...

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  • Bristol ‘Charity bucket collection’ is not from Rainbow Trust Children’s Charity

    Rainbow Trust Children’s Charity has been made aware that a man has been knocking on the doors of Bristol residents purporting to be collecting money for Rainbow Trust. The man has called at homes in the East and North West areas of the city between Saturday 21 October and Saturday 3 November with a Rainbow Trust collection bucket. Emma Haines, Director of Marketing and Fundraising at Rainbow Trust, said: “Rainbow Trust fundraisers are not currently undertaking door-to door fundraising in the Bristol area and we would encourage residents not to give money if they are approached in this way at the moment. “When Rainbow Trust fundraisers do approach individuals directly, they should have a Rainbow Trust identification pass or a headed Rainbow Trust letter. “We are advising any concerned residents to contact Rainbow Trust and / or Avon & Somerset Police, who are aware of the incidents. The majority of our bucket collections take place at fundraising events and other agreed locations, such as supermarkets and shopping centres.” If anyone has any concerns, please call Rainbow Trust on 01372 220083 and report their concerns to Avon & Somerset Police by calling 101.

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  • Plan your alternative bake-off

    We share some food for thought ahead of #GreatRainbowBake with some alternative ways you and your little ones can partake in the Rainbow Bake challenge. For children with special diets or with a condition that requires them to be tube or TPN fed, we have some ideas to help you get involved on 7 May. Make it an excuse to play with food! Messy food play can be great for young children who may not have had many opportunities to explore food, for example if a child has been tube or TPN fed. Creating messy play with the sights, smells and texture of food can create pleasant sensory experiences. From fruit paints, dry pasta necklaces to a miniature sandpit with rice crispies - here’s some messy foody play ideas we love. Have a teddy bear bake off! Get crafty and make a pretend cake or tasty dish to feed hungry teddies. You can make food shapes out of play dough, stir coloured sand or rice in mixing bowls, or get outdoors and make a mud pie out of anything you can find. The only limit is your imagination! Find a recipe to suit special diets Look for ways to change...

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  • Charity Challenges to tick off your bucket list

    With World Cup fever upon us, Global Adventure Challenges have an awesome deal to save you 25% on your registration fee for a whole host of crazy challenges with the code ‘WC25’! Here’s our favourite five! London to Paris Bike Ride (France) 308 miles from capital to capital, with four days in the saddle. The journey begins in London, through the English countryside to Dover, before crossing the channel to cycle along the quiet French country lanes with views of the rolling green hills of Northern France, before reaching the finishing line of the spectacular Eiffel Tower. Find out more Hadrian’s Wall Trek (UK) Trek along the most remarkable Roman monument in the country, it’s approximately 25 miles of trekking from Lanercost Priory to Brocolitia, encompassing some of the most visited and fascinating ruins. Find out more Kilimanjaro Trek (Africa) A tough trek following the Machame Route to climb Africa’s highest mountain. This climb will push you to your limits, but you’ll be rewarded with the spectacular views and beautiful ice formations from the snow-capped summit. Find out more The Lapland Husky Trail (Norway) A truly unique experience to sled 250 km from Norway in to Sweden through untouched nature...

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  • Rainbow Trust joins AmazonSmile

    Amazon is an online shopping site which many of use on a regular basis, but did you know about their charitable sister-site, AmazonSmile? AmazonSmile is a simple and automatic way for you to support Rainbow Trust every time you shop, and at no cost to you! When you shop at AmazonSmile, you’ll find the exact same prices, selection and shopping experience as Amazon.co.uk, with the added bonus that Amazon will donate a portion of the purchase price directly to Rainbow Trust, allowing you to support families with seriously ill children whilst undertaking your usual shopping. How do I shop at AmazonSmile? Simply go to smile.amazon.co.uk and select Rainbow Trust Children’s Charity as your chosen charity to support. Your usual Amazon log-in information and settings remain the same. Products marked “Eligible for AmazonSmile donation” on their product detail pages mean a portion of the selling price will be donated to us. How do I select to support Rainbow Trust when shopping on AmazonSmile? When you first sign in to your AmazonSmile account, you will be prompted to select the charity you wish to support. Rainbow Trust Children’s Charity can be entered in to the search bar, then click ‘select’ to choose...

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  • Help us win Sainsbury's local charity of the year

    We need your help! We’ve been shortlisted at a number of Sainsbury’s stores across the country to be their local charity partner, but we need your vote to win. Every year Sainsbury’s work together with their customers and colleagues to support a local cause at the heart of the community. These are collaborative partnerships that include a range of support such as awareness-raising and fundraising in store, volunteering and donations. Once votes have been counted, the winning charity for each store will be released. Check back on Sainsbury’s website on 10 July to see which charity will be supported by your local store. To vote for Rainbow Trust, see below for a list of stores we have been shortlisted for and cast your vote: Sainsbury’s Andover Sainsbury’s Barkingside Sainsbury’s Beckton Sainsbury’s Brentwood Sainsbury’s Calcot Sainsbury’s Caledonian Road Station Local Sainsbury’s Chipping Ongar Sainsbury’s Chertsey Sainsbury’s Chingford Sainsbury’s Clapham Common Sainsbury’s Coreys Mill Sainsbury’s Crystal Palac Sainsbury’s Dingles Sainsbury’s Durham Sainsbury’s Edgeware Sainsbury’s Ewell Cheam Rd Local Sainsbury’s Farnborough Sainsbury’s Fenchurch Street Sainsbury’s Finchley Road Sainsbury’s Golders Green Sainsbury’s Guildford Sainsbury’s Hendon Sainsbury’s Heyford Hill Sainsbury’s Hook Rd Chessington Local Sainsbury’s Holborn Sainsbury’s Islington Pentonville Road Local Sainsbury’s Lewisham Sainsbury’s London...

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  • Meet Barbara and Eleanor, volunteers from our Essex shop

    Meet Barbara and Eleanor, two of the original volunteers who established our Harold Wood shop over 20 years ago. As long standing volunteers, they’ve given a huge amount of their time to support Rainbow Trust, even being part of Harold Wood’s recent milestone of reaching £1 million raised for families. How did you first hear about Rainbow Trust? Barbara: I’ve been involved in charities for a long time, in fact I used to volunteer at a different charity, but came across an advert for Rainbow Trust’s shops and thought I would try something new. I’ve been here for 24 years now! Why did you decide to volunteer for the charity? Barbara: It’s nice to do something for children – especially when you have had your own. Hearing stories about how tough life has been for some of the children Rainbow Trust supports, makes you feel so grateful for your own good health. Eleanor: I heard about Rainbow Trust through a friend. We were meeting up one Christmas and a friend of Pauline Obee’s was looking for volunteers, so I decided to get involved – and I never left. What do you enjoy most about your volunteering? Barbara: I really enjoy...

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  • Family celebrate National Cancer Survivors Day

    On Sunday 3 June families around the country will celebrate National Cancer Survivors Day and none more so than the Kemish family from Totton whose eight year old son McKenzie reached the milestone of being five years cancer free in December 2017. The family celebrated at the time and McKenzie wore a specially made T-shirt to school celebrating his cancer free status. They are now preparing to celebrate again to mark National Cancer Survivors Day and to thank Rainbow Trust Children’s Charity who have supported the family since McKenzie was first diagnosed with stage 4 Neuroblastoma in October 2011, when McKenzie was just two years old. McKenzie’s mum Amberley Kemish explains: “We were introduced to Dawn, one of Rainbow Trust’s Family Support Workers, in the hospital playroom just six weeks after the diagnosis, and she asked us how she could help. I told her I wanted someone to play with McKenzie’s brothers and sisters and bring some fun back into their lives. Dawn and the children clicked immediately. “The time Dawn spent with the children meant I could do simple tasks like the shopping without having to take the five children along. Or when McKenzie was in hospital – sometimes...

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  • Mums up a Mountain conquer Mount Snowdon

    Mums up a Mountain conquer Mount Snowdon raising over an incredible £2,400 to support seriously ill children and their families. The ‘Mums up a Mountain’ team consisting of 8 friends, Ruth, Viv, Kerry, Supreeta, Catherine, Deanne, Anna and Jane, took on the incredible challenge of climbing 3199ft up Mount Snowdon in North Wales. The group were inspired to fundraise for Rainbow Trust as they know firsthand how vital our support can be. Their friend Karena and her family are currently supported by Rainbow Trust as her son has been diagnosed with a brain tumour and is undergoing chemotherapy. Rainbow Trust also provides support to his two brothers, helping them keep some normality while their brother undergoes treatment. The team created a colourful display on the mountain, walking in their bright t-shirts with an array of coloured balloons attached to their rucksacks! Ruth said: “We had an amazing day, we met so many lovely people whilst on our climb, some of whom supported us there and then, you certainly couldn’t miss us in our Rainbow Trust t-shirts!” Having set themselves an original target of £1,000, the group of determined mums went on to raise an incredible £2,480. This money will enable...

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  • Launch of the Children and Young People Cancer Coalition

    Rainbow Trust is pleased to be a member of the Children and Young People Cancer Coalition, which launches today. The coalition brings together 15 organisations supporting children and young people with cancer and their families. More than 4,000 children and young people are diagnosed with cancer each year in the UK, with 11 new diagnoses each day. A third of the children supported by Rainbow Trust each year have a cancer diagnosis. Zillah Bingley, CEO of Rainbow Trust Children’s Charity, said: ‘Four out of five children and young people will survive cancer for five years or more, but 10 children and young people still die every week in the UK. Through this coalition Rainbow Trust will be working with other major charities to improve outcomes for children and young people with cancer, and their families. If the government is serious about making progress on its ambitions to improve care and support for people with cancer, it is essential that the specific needs of this age group are recognised. This is why the coalition is pressing for action in key areas, including improved access to clinical trials and to psychological support, and to palliative care which remains inequitable depending on...

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  • Meet Ioan, newest member of the Regional Fundraising Team

    At Rainbow Trust we have a team of dedicated Regional Fundraisers, ready to help you raise funds to support seriously ill children and their families. From dealing with your enquiries and helping you to make the most of your fundraising, Ioan (pictured above second from left) is on hand to help. I joined Rainbow Trust in April of this year. My main job involves assisting individual enquires and guiding people through their fundraising journeys, all while supporting the rest of the Regional Team and representing Rainbow Trust at events throughout the year (e.g. London Marathon, Berkshire Golf Day etc…). I’m also out and about a lot, often collecting money that you’ve raised and helping to build relationships with our supporting businesses. Although I’ve only been here a month or so, I’m really enjoying working with individuals who want to fundraise for Rainbow Trust. It’s amazing to see the support the charity receives, especially through the more outside-the-box ideas! At the moment, my main challenge is learning the systems we use, as I’m still quite new! However, the team are all exceptionally helpful and I’m really enjoying my job so far. If you or an organisation you are linked to is...

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  • Step up this National Walking Month

    This May is National Walking Month, a whole month dedicated to encouraging people across the country to get on their feet. From a stroll along the South Coast, to trekking your way up the UK’s three highest peaks, we have a walk to suit just about everyone. Here are our top six. Cotswolds Way Challenge (30 June – 1 July) Join over 2,000 trekkers and take on the historic route that goes from Bath to Cheltenham. Take your pick from one of three distances, 100k, 50k or 25k! Find out more. Jurassic Coast Challenge (21-22 July) Starting in Poole Harbour, walk, jog or run the spectacular Jurassic coastline. This is a fun and rewarding challenge with full support and hospitality included, leaving you to focus on getting to the finish line. Find out more. South Coast Challenge (25-26 August) Take in some of England’s finest scenery as you make your way up Beachy Head, over the magnificent Seven Sisters and along the South Downs Way as historic Arundel comes into view. Find out more. Thames Path Challenge (9-10 September) A great one to do as a team – follow England’s greatest river and head upstream from Putney Bridge past Hampton...

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  • They said he had three weeks to live

    When Dominic, my youngest son, was 10 weeks old, he was diagnosed with a cancerous mass on his brain, spinal column and central nervous system. Doctors told us it was extremely rare and unlikely to be treatable - they said he probably only had three weeks to live. No parent ever expects to go through a scenario like this. Actually, being there, holding your very sick baby, when those words are spoken, is totally surreal and such random thoughts go through your head that it’s hard to share your initial emotions with anyone, for fear of being judged. My initial thoughts ranged from anger at the thought of having to spend more time in this noisy hospital, away from Zach, my other very young son, and despair at the thought of him going into school without having had his uniform ironed correctly. Looking back now I see that these crazy thoughts were my mind’s way of protecting me from having to process the whole, horrible, too-desperate-to-even imagine situation, all in one go. The few weeks that followed were extremely difficult and I had to juggle a whole range of emotions on very little sleep and with a small support network...

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  • Our charity partnerships helping you plan for the future

    These days our lives are packed full of choices. This even extends to writing a will, but it no longer has to be a long-winded, expensive process. Rainbow Trust has partnered with two will writing providers who can help you plan with minimal fuss and expense. The Goodwill Partnership offers home visits from trained will writers, who help you plan from the comfort of your own home, or workplace – whichever and whenever is convenient. They guarantee the lowest price for a home-visit will, which is checked and provided by solicitors who can also provide legal advice and storage of your will. We’ve also partnered with Farewill to provide all our supporters with a discounted will. You can write your will online in four simple steps, from the comfort of your own home and with live support from their will specialists. At the moment there is a special 20% discount for Rainbow Trust supporters. If you’re thinking of making your first will, or updating an existing one, you can find the answer to many questions about gifts in wills here. You can also download a guide to making a will to make sure you don’t miss any important steps along...

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  • Nobody expects to outlive their child

    Nobody expects to outlive their child, but this is something that happens for many families we support. We support families living with a child with a life threatening illness and last year 67 of the children we supported, died. For these families, their worst fear became a reality. Having to plan their child’s funeral is not something any of them ever imagined they’d have to do in their lifetime. Rainbow Trust supports families from diagnosis, through treatment and if needed, bereavement. Each family has their own dedicated Family Support Worker who becomes a trusted constant in their lives, one they can rely on to be there for the whole family. The role of a Family Support Worker is twofold; a professional who provides a service but, with the care and compassion of someone who genuinely cares. It is this relationship that proves so vital to families when a child dies. Family Support Workers often help parents plan their child’s funeral. With over 30 years’ experience, our nine care teams around the country share a wealth of knowledge and can help and guide families through the process. “I spent a lot of time talking to Dawn about Jack’s funeral, about what...

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  • Rainbow Trust calls for improvements in bereavement bill

    Rainbow Trust warmly welcomes the development of the Parental Bereavement (Pay and Leave) Bill which will support bereaved employees at the most difficult of times. However we urge MPs to support changes in two areas that would make the bill even more beneficial to the families that we support. The proposed legislation will, for the first time, provide employed parents with two weeks of paid bereavement leave if their child dies. It would end the current situation in which employers are only obliged to offer ‘reasonable’ time off to bereaved employees, which may be unpaid. Along with the National Bereavement Alliance and Together for Short Lives, we believe employed parents should be given the flexibility to take the leave at any time within the 56 weeks following a child’s death, rather than the proposed eight weeks. We also support widening the entitlement so that it applies to parents of a young person under 25 rather than under 18. Anne Harris, Rainbow Trust Director of Care, said: ‘Rainbow Trust welcomes this bill but we hope changes will be incorporated to allow parents greater flexibility to take their entitlement to time off work. This is important to allow parents the necessary time...

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  • Rainbow Trust calls on volunteers to make Time For Change

    On 31 May - 2 June we are calling on volunteers to give #TimeforChange to help raise awareness and vital funds for families by partaking in our biggest ever bucket collection. Time for Change will be rallying together Rainbow Trust staff and volunteers across 30 major Sainsbury’s stores over one weekend to collect money, pack bags and tell members of the public more about what we do. Time is hugely important, particularly when it is limited by a serious illness. Our Family Support Workers enable families who have a child with a life-threatening illness to make the most of time together, supporting them when they need it most. Every pound and penny you raise will enable us to support sick children and families by paying for:£3 could buy arts and crafts materials to entertain a young child in hospital £10 could pay for a sensory toy for a seriously ill child with special needs £24 could give a mum, dad or child an hour of support £1,720 could support one family with a seriously ill child for a year Find out where you can get involved or come and visit us in-store next week to give #TimeforChange

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  • Candice Brown, Great British Bake Off winner 2016, supports our Great Rainbow Bake

    We are absolutely delighted that Candice Brown, Great British Bake Off winner 2016, is supporting our Great Rainbow Bake! Candice is kindly lending her support to encourage families to get busy baking for Rainbow Trust this Bank Holiday weekend. She even took time out of her busy schedule to create a stunning tower of rainbow meringues and has shared the recipe to inspire others to join in: Candice’s Rainbow Meringues Can make 24-30 meringues or 12-15 sandwiched meringues Ingredients: 115g caster sugar ½ lemon, to wipe bowl and whisk 3 egg whites 45g icing sugar Rainbow coloured food colouring gel 300ml double cream Blueberry jam, preferably home-made Mango curd or ready-made passion fruit curd Sprinkles (e.g. finely chopped nuts, hundreds and thousands, mini chocolate stars) Method: Preheat the oven to 160°C fan (180°C/350°F/Gas Mark 4). Spread out the caster sugar on a baking tray and heat in the oven for about 10 minutes until the sugar starts to melt around the edges. Meanwhile, use the lemon half to rub the inside of the bowl of a free-standing electric mixer fitted with a whisk attachment. Wipe the whisk with lemon too. This will remove any grease. Put the egg whites into...

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  • Five reasons to volunteer as a student

    Thinking about swapping the classroom for some volunteering but not sure you have time while studying? Here are five reasons why you should. Great work experience Many students find after college or University they lack real-world experience, but by volunteering, not only do you get a feel for what a professional working environment is like, you can be sure to gain experience that will help you in your future career. If you’re thinking about how to break into the charity sector, or just looking for something to do next, it’s a great way to take your first steps! There’s no shortage of opportunities. From supporting our digital team at our head office, cheering on runners at the London Marathon, or directly helping families in the community, there’s something for everyone. But don’t be put off if you don’t see a role on our website – get in touch or send over your CV and tell us what you’re good at. Give your CV a boost Whether you can give a couple of hours, a day a week, or choose to become a lifelong supporter, volunteering is a great way of supporting a cause you believe in while gaining some...

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  • Get your bake on for the Great Rainbow Bake

    Katie and her three sons, Jacob, Louis and Charlie, one of whom has an undiagnosed genetic condition and has started walking against the odds, are appealing for people to take part in the #GreatRainbowBake on 7 May. The campaign invites families to celebrate spending precious time together and having fun by baking a rainbow-themed cake with family, friends or colleagues, and donating £5 to help families like Charlie’s get the support they need. Katie, Charlie’s mum, said: “I would encourage people to take part in the Great Rainbow Bake and help families like ours because Rainbow Trust has been like a lifeline. Just having someone else to turn to, talk to and to help with all the little things makes a huge difference to my family.” Little Charlie, who is partly tube fed and cannot speak, has undergone various invasive tests since he was born and is part of the 100,000 genomes project at Southampton Hospital, which means doctors are continually analysing his DNA to try and find out more about his condition. Charlie is on oxygen at night and he has difficulties coordinating and controlling his movements. Yet, despite all this, he is doing well and is managing to...

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  • Hanover Dairies and Fentimans 300 mile bike ride to support families with a seriously ill child

    Hanover Dairies have teamed up with Fentimans and are taking on a gruelling 300 mile bike ride to raise money for Rainbow Trust. A team of four will cycle from Hanover Dairies offices in Newcastle to Rainbow Trust’s head office in Leatherhead, Surrey. The team are on a mission to raise an incredible £30,000 which would support 12 families for an entire year. Hanover Dairies owner and Rainbow Trust patron, Trevor said: “We are passionate about supporting Rainbow Trust so have decided to do a cycle challenge to raise funds for this special charity. We aim to raise funds through our many doorstep milk customers, family, friends and are currently training on our bikes to cover 50+ miles per day. It is exciting to be working alongside Fentimans for this event and we hope to raise more awareness and funds to help support families who have a seriously ill child.” Rainbow Trust would like to say a huge thank you to both Hanover Dairies and Fentimans for their continued support and wish them the best of luck with their challenge in June. We are looking forward to a welcome reception at our offices when they arrive! Alan Robson is broadcasting...

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  • Hanover Dairies mission to give families a week to remember

    Following the success of an all expenses paid trip to Centre Parcs in June last year for four families supported by Rainbow Trust, Hanover Dairies have been on a mission to source sponsorship to send more families in 2018. Trevor Hanover, owner of Hanover Dairies and Rainbow Trust Patron, has personally funded and sourced sponsorship to send eight families this June. Each family will be given £1,000 spending money on top of their week’s break, and transport to and from Whinfell Lodge in Cumbria. We are extremely grateful to Hanover Dairies for personally contributing towards the project but also for securing the very generous sponsors listed below:Hanover Dairies The Gentleman’s Night Out Mr Daniels Mr Harvey Mr Powney Mr Beaumont The company continues to fundraise for Rainbow Trust to help fund the charity’s objectives; to provide emotional and practical support to families that have a child with a life threatening or terminal illness. Since 2008, Hanover Dairies have raised in excess of £250,000 for Rainbow Trust, with their latest bi-annual fundraising ball raising over £50,000 in November. Their next fundraising effort will be taking place in June when Hanover Dairies team up with Fentimans Brewery and will be cycling over...

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  • George Michael tribute charity walkers raise over £9,000 for families

    A group of dedicated George Michael fans held two charity walks on the 2 December and 7 April to celebrate the memory of George Michael, a past Rainbow Trust patron, raising an incredible £9,100 for families with a seriously ill child. The first Round Here Walk, which took place in London in December, gathered together 55 walkers and another 97 virtual walkers who were following online. Helen, the walk organiser explains: “We decided to raise funds for Rainbow Trust to continue all the good work George did when he was their Patron. As lifelong fans, we wanted to find a way whereby we could honour and celebrate not only his life, but all his acts of generosity. George always had a unique ability to bring people together, and connect with them in a deep meaningful and emotional way - the Round Here Walks harness the essence of that as we travel around London visiting some of the iconic places associated with him.” The funds they have raised so far could pay for 395 hours of emotional and practical support for families with a seriously ill child, helping them make the most of their precious time together at home, in hospital...

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  • Victory for campaigners as free funerals for children announced

    Following many months of campaigning, the Prime Minister has promised free funerals for children under 18 through the creation of a Children’s Funeral Fund. The cross party campaign was led by Carolyn Harris MP, herself a bereaved mother, and backed by organisations including Rainbow Trust. The campaign urged government to abolish fees to prevent the death of a child forcing families into debt. The Prime Minister paid tribute to parents having to deal with the pain of losing a child, saying “it cannot be right that grieving parents should have to worry about how to meet the funeral costs for a child they hoped to see grow into adulthood”. Rainbow Trust Director of Care, Anne Harris, said: “This is an important step forward to ease the financial stress on bereaved families at an incredibly difficult time. It will also benefit the many families whose children are seriously ill and who may have been anxious about the costs they would face in future. This is important when families are known to be financially disadvantaged by the many costs incurred in having a seriously ill child – with one parent often forced to give up work, for example, as well as the...

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  • Having a seriously ill sister has taught me a lot

    This National Sibling’s Day, Petra, a sibling we support, shares her experiences having a seriously ill sister and how this impacted her growing up. Hi, my name is Petra. I am 14 years old and I live in Surrey with my mum, dad, brother and sister. My sister’s name is Rowan. When Rowan was three, she was diagnosed with NF (Neuro Fibromatosis). NF is a condition where you can get tumours around your body. We found out in 2009 that Rowan had an optic glioma (a brain tumour in her optic nerve) which means that she can’t see very well and she had to have chemotherapy. Rowan had to go up to Great Ormond Street Hospital in London every week to get her chemotherapy. This put a massive strain on the family and was very worrying. I was five years old and I remember finding it very scary. How does having a sister with a serious illness impact you? In 2009 when Rowan was having chemo therapy I was five years old and found it very unsettling. My parents were often in hospital with Rowan. I had to have people coming to look after myself and my brother and I...

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  • A thank you letter to a Rainbow Trust Supporter

    Time is precious when a brother or sister has a life-threatening illness but what difference does an hour of support make? Tyrese tells us how important time with his Sibling Support Worker is in this thank you letter written for you. Dear Rainbow Trust Supporter, My name is Tyrese and I am 12 years old. I live in Wigan with my Mum, Step-Dad and three siblings, Layton, Tilly and Logan. The best thing about my Sibling Support Worker is that she isn’t as formal as a counsellor, so it’s way easier to talk about stuff that’s going on and we can chat about normal stuff too. I can talk about stuff more and express how I feel much better. My favourite thing to do with my Support Worker is go out for tea and a chat after school. It gives me time away from home and the sometimes-stressful atmosphere. In the holidays, we go to places with other siblings that I wouldn’t normally get to go to. I really like seeing my Sibling Support Worker, so thank you for helping Rainbow Trust to help me. Tyrese, a sibling supported by Rainbow Trust Support like this wouldn’t be possible without you...

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  • Rainbow Trust launches Forever Funds

    Last year we supported over 2,300 families with a seriously ill child – this is only possible because of the fundraising efforts made by our supporters and the families we support. To thank the families and fundraisers who inspire us to keep doing the work we do every day, we have created a special place on our website just for you: Forever Funds. What is a Forever Fund? Forever Funds are for families who are, or have been, supported by Rainbow Trust who wish to share their story and fundraise for a loved one – creating a lasting memory whilst helping to fund expert Family Support Workers. Each fund can be personalised with memories, photos and comments from family and friends, giving families a place to share their story. “People always think of the medical help a seriously ill child needs, which is vital but equally vital is seeing the emotional and practical support Rainbow Trust gives Adam, Megan and Clare. Rainbow Trust is a real life guardian angel and if I can help them continue helping Adam and other families in the future then I will.” Martyn, who ran a marathon for his nephew Adam How to become a...

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  • MPs hold inquiry into improving care for seriously ill children

    Rainbow Trust Children’s Charity is pleased to see the progress of an inquiry into end of life care for children which has been hearing from families and professionals during February and March. The inquiry, held by the All-Party Parliamentary Group (APPG) for Children Who Need Palliative Care, is exploring the extent to which the government is meeting its end of life care ‘choice commitment’ for children and young people. Building on evidence in written submissions, a series of oral evidence sessions has been hearing the experiences of young people, families, professionals, academics, and service providers. Among the witnesses have been Lucy Watts MBE, who lives with a life limiting condition, Doug Morris, whose family receives Rainbow Trust support, bereaved mother Steph Nimmo, and senior professionals from hospices and paediatric hospitals. Topics covered have included the experience of families and professionals in holding sensitive conversations about planning for end of life care, the significant shortfall in training and recruiting community nursing staff and paediatric consultant posts, and the underfunding of children’s social care support and respite services. Anne Harris, Rainbow Trust Director of Care, said: ‘We’re hugely grateful to the Co-Chairs of the APPG, Dr Caroline Johnson MP and Catherine McKinnell...

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  • Get egg-cited with Easter crafts

    With Easter just around the corner, we’re getting egg-cited to welcome in Spring and what better way to celebrate than by getting crafty? Check out these cracking crafts, perfect for keeping the kids entertained over the Easter break. Easter colour-in postcard Looking for a quick craft fix? Our Easter themed postcard is perfect for those with little time. Just download, print and colour-in – it’s as simple as that. There’s also space on the back to write a message should you want to give your masterpiece to a loved one. Download yours here. DIY Daffodils Nothing says spring more than daffodils and this easy-peasy tutorial shows you how to make a bouquet to brighten any day and that’s guaranteed to last the whole of the Easter holidays. You’ll need some yellow card or paper, lolly sticks and some cupcake casings as well as some glue to make these lovely paper flowers. Make yours here. Easter egg ornaments These ornaments are egg-sactly what we’re looking for and a great way of adding a little touch of Easter to your home. They’re fun to make and with a few simple supplies you’ll have a basket full in no time. Use beads and...

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  • London Comedy Lunch success

    We are thrilled to announce that the London Comedy Lunch, held on 7 December of last year at the HAC, raised over £12,000 for seriously ill children. The afternoon was a tremendous networking event for the attendees who enjoyed a fantastically entertaining show, a great meal and were very generous in donating to us as the beneficiary charity for the 3rd consecutive year. Jason Manford was predictably a real hit with the audience and was preceded on stage by Tom Stade, who really set the mood for a show that left everyone in stitches. Jarred Christmas compered the afternoon’s entertainment and did a brilliant job of assisting with the raffle and even encouraging those attending to be as generous as possible! ​We offer our congratulations to Ronald McDonald House Charities, who have secured the partnership for this year.

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  • Harold Wood volunteers hit £1 million target

    On 7 March, the Harold Wood Friends Group, along with the Deputy Mayor of Havering, Cllr Dilip Patel, celebrated completing their One Million Campaign - one month ahead of schedule and in their 25th anniversary year - with prosecco, balloons and the completed totalizer. Their accomplishment is testament to the commitment of the 33 volunteers, eight of whom were among the original team of 16 involved when the shop officially opened in April 1993. The Harold Wood Volunteer Group launched their campaign last September in a bid to increase the £950,000 they had already raised for Rainbow Trust since 1993. Rainbow Trust Patron and Harold Wood shop founder and manager Pauline Obee OBE was thrilled to have reached their target and thanked everyone involved. “I am absolutely delighted,” she said. “We celebrate our 25th Anniversary in March, which is when we first leased the shop, and it is quite an achievement. My only regret is that the shop’s co-founder, the late John Penrose, isn’t here to see it. “John and I had always said we would make a million or make 25 years so we made it our goal so I felt relieved and elated to have achieved both.” Community...

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  • A moment for mum this Mother's Day

    We’re calling on families across England to take part in our campaign celebrating amazing mums ahead of Mother’s Day on Sunday 11 March. ‘Moment for Mum’ invites children to download a poster, colour it in and write a few words explaining why they think their mum is so amazing. Youngsters are then invited to share a photo of them with their poster on social media tagging in Rainbow Trust using the hashtag #MomentforMum. Rainbow Trust enables families who have a child with a life threatening illness to make the most of their time together. Rainbow Trust pairs each family with an expert Family Support Worker who helps them at home, in hospital and in the community, for as long as it is needed. Oonagh Goodman, Director of Marketing and Fundraising at Rainbow Trust said: “We would love children up and down the country to get involved with Rainbow Trust’s Moment for Mum Campaign and share their special reasons for why their mum is so special. Rainbow Trust supports families with a seriously ill child and every day our care teams support amazing mums caring for a very ill child whilst trying to keep family life running as normally as possible...

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  • How will you celebrate National Old Stuff Day?

    Perhaps one of the lesser known days in the Awareness Day calendar, National Old Stuff Day, which falls on Friday 2 March, is all about the re-purposed, the recycled and the reusable. Here are a few ideas about how you and your organisation can get involved, all while helping Rainbow Trust. Give the office a spring clean Tying in with the weekend of the ‘Great British Spring Clean’, why not de-clutter your office space by donating your old technology to us? Through our relationship with recycling company Redeem Group, we are able to arrange the bulk collection of your old or damaged computers and devices, free of charge, which are then recycled responsibly and in compliance with current regulations. Rainbow Trust then receives any value that the devices may have as a donation. There really is no better excuse to rally your staff and bring a little Zen to your work space whilst helping the environment. Donate your old phones Start an old phone amnesty, where staff can even bring in their old handsets from home. Recycle used cartridges Does your company throw away used toner cartridges? Rainbow Trust can benefit from you recycling them! A collection box can be...

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  • Commissioning Children’s Palliative Care TfsL Report

    Rainbow Trust Children’s Charity welcomes the new report ‘Commissioning children’s palliative care in England: 2017 edition’ from Together for Short Lives launched on Sunday 12 November. Based on Freedom of Information Requests, the report describes what clinical commissioning groups (CCGs) and local authorities are funding and providing for children with life limiting and life threatening conditions and their families. The report highlights clearly that children’s palliative care commissioning across England is inconsistent and that in many areas commissioners are failing to plan and fund adequate support for families. In some areas community children’s nurses are not being commissioned at all and in other areas community children’s nurses are not being commissioned out of hours and at weekends, when families often need additional support. Additionally three quarters of local authorities are not commissioning voluntary sector children’s palliative care organisations, such as Rainbow Trust, to help families caring for a seriously ill child. Anne Harris, Director of Care for Rainbow Trust, responding to the report said, “We are pleased to see this report from Together for Short Lives is shining a light on the gap between the support that families need and the services that are actually being funded by local decision...

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  • Epsom branch of Leeds Building Society present ‘Memory Boxes’

    A member of the Epsom branch of Leeds Building Society took time out on Friday 6 October to present special memory boxes to Rainbow Trust’s Surrey Care Team in Leatherhead, who support families caring for a child with a life threatening or terminal illness. The memory boxes were funded by Leeds Building Society’s Charitable Foundation and will be used by terminally ill children, their siblings and parents who are being supported by Rainbow Trust’s Family Support Workers in Surrey. Charlotte Harding, a Customer Advisor from the Epsom branch, heard from the Rainbow Trust Care Team about how the memory boxes will enable families they support to collate treasured items such as photos, letters, drawings, cards and toys in a safe place as an everlasting keepsake and memory of their beloved child or sibling. Christina Cahill, Rainbow Trust’s Surrey Care Team Manager, said: “We are incredibly grateful for this generous donation from Leeds Building Society’s Charitable Foundation. We know, from over 30 years of experience, that keepsakes and memory boxes give enormous comfort to families. All our Family Support Workers are specifically trained in helping families cope in these devastating circumstances, and creating a box of treasured items can be a...

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  • Mother 'keeps daughter's memory alive' with arts and crafts

    A mother who makes hand-made crafts in memory of her daughter to raise money for Rainbow Trust Children’s Charity, which supported her whole family, has said her daughter would be proud she is helping other seriously ill children. Working from her daughter Amy’s bedroom, which has remained unchanged since she died aged 13 in 2016, Lisa Stockill spends her spare time making personalised gifts, keepsakes and memory boxes in aid of Rainbow Trust and CLIC Sargent. Her designs, which also include glassware, peg dolls, wedding and christening gifts have so far raised around £1,000 for Rainbow Trust. “Amy will be looking down and be proud of what I’m doing and that I’m helping other sick children as well,” Lisa said. Family Support Worker Sabrina supported the Stockill family at home after Amy finished her hospital treatment and helped Amy’s older brothers Shane and Christopher come to terms with Amy’s diagnosis. When Amy passed away suddenly on 8 February 2016, after being in remission with a brain tumour for nearly two years, Sabrina provided bereavement support for the family. Lisa wanted to give something back to Rainbow Trust because they made such a vital difference. After Amy passed away, Lisa was...

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  • Meet Lily, Regional Fundraiser for the North West and South West

    At Rainbow Trust we have a team of dedicated Regional Fundraisers, ready to spread the word of Rainbow Trust and help you raise funds to support families. From Schools to Rotary Clubs, Lily is on hand to help. Here, she shares her love for working for a charity. Hello, my name is Lily, and I have been part of the Regional Fundraising team for a year and a half now. I have always had a passion for charity work, and whilst at The University of Kent started volunteering – I volunteered so much that my mum thought I would fail my degree! (I graduated with honours). When I left University, I knew my passion would only grow so I was keen to work for a charity so I could play my part in helping those in need. I worked for a company local to Rainbow Trust’s head office, where I met Katherine who was already working for Rainbow Trust. I loved seeing the work Katherine and her team would do in order to fundraise for such an amazing cause, so I enquired about jobs… and the rest is history! I work with the west side of the Country, which sounds...

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  • Rainbow Trust open letter delivered to new health minister

    This week Rainbow Trust delivered an open letter to the Department of Health from parents, professionals and supporters of the charity. Our aim is to make sure that the new Minister for Care and Mental Health, Jackie Doyle-Price MP, has child palliative care high on her agenda as she gets her feet under her desk. The letter followed Rainbow Trust’s publication of an important new report earlier this year that set out that our services are saving the health and social care system an estimated £2m each year, through our conservative calculations. Despite this, just three per cent of the charity’s funding comes from statutory sources. Parents and supporters were invited to sign the open letter to make the case for fairer access to existing funding streams for child palliative care. Those signing the letter could add their reasons, with many describing how Rainbow Trust’s emotional and practical support has improved families’ ability to cope. ‘They make such a huge difference to our lives,’ wrote one parent from London. Zillah Bingley, CEO of Rainbow Trust, said, ‘I’d like to thank all the parents, professionals and supporters who signed Rainbow Trust’s open letter to the health minister responsible for end of...

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  • West Cornwall Pasty Co take on the Samworth Brother's Charity Challenge

    A courageous team from West Cornwall Pasty Co recently took part in the Samworth Brother’s Charity Challenge for Rainbow Trust. Taking place every two years, the Samworth Brothers Charity Challenge is an extreme triathlon-style event that raises funds by putting sponsored teams through their paces in a gruelling mountain bike ride, canoe race and finally a mountain walk. Our massive congratulations go out to the West Cornwall Pasty Team, the Try-Athletes, who took on this challenge on 10 June 2017 in the Lake District. They raised an amazing £2,590 for Rainbow Trust, which well surpassed their target! “We are so proud of our team! Ilona, Carmon, Sevgi & Stuart tackled the tough route which included over 2 hours of cycling, 3 hours hill walking and 3 hours of canoeing. The team trained hard and were incredibly motivated to raise as much money as possible for Rainbow Trust.” West Cornwall Pasty Co Huge thanks to those who took part and all those who sponsored them. If your company are interested in taking on a challenge for Rainbow Trust, please contact our Sports and Challenges team.

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  • Island charity Layla’s Trust helps fund dedicated Rainbow Trust Family Support Worker

    Isle of Wight based charity Layla’s Trust has made a £12,000 donation to us to help fund the Island’s first Rainbow Trust Family Support Worker, dedicated to helping families caring for a child with a life threatening or terminal illness. The appointment of the dedicated Isle of Wight Family Support Worker, Madelaine, follows a successful six-month trial by Rainbow Trust’s Southampton Care Team supporting families on the Island. Madeleine will provide emotional and practical support to families, helping them at home, in the local community and on the mainland when they visit Southampton General Hospital. This dedicated support for families with seriously ill children has only been made possible due to the financial support from Layla’s Trust, set up in 2011 by Emma and Colman Cotter whose baby girl, Layla, died when she was just 10-weeks-old. Emma Cotter from Layla’s Trust says, “Supporting the Island community has unique challenges particularly if your child becomes seriously ill. Layla’s Trust is proud to have committed over £12,000 to help fund Madelaine’s valuable work as a Rainbow Trust Family Support Worker on the Island. We first approached Rainbow Trust back in 2012 to see whether they would be able to bring their services...

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  • Rainbow Trust Children’s Charity voted Surrey’s best Not-for-profit Organisation

    We’re delighted to have won the Toast of Surrey 2017 Not-for-profit Organisation Award. Oonagh Goodman, Head of Marketing and Communications at the Leatherhead-based charity, collected the plaque at the Toast of Surrey Business Awards ceremony at Mercedes-Benz World, Weybridge on Wednesday (28 June). Rainbow Trust has nine care teams of Family Support Workers across England, including Surrey, helping families at home, in hospital and in the community making life a little easier. Providing emotional and practical support, Family Support Workers help families wherever they are needed, such as taking siblings to school, driving families to hospital appointments and giving parents and carers some respite. Emma Haines, Director of Marketing and Fundraising, said: “We are absolutely thrilled to have won the Toast of Surrey Not-for-profit Organisation Award and would like to thank the judges, sponsors and everyone involved in selecting us in this category. It was an honour for us to attend the awards ceremony and to celebrate with other worthy causes. This award is testament to the dedication of our Family Support Workers who provide emotional and practical support to families across England caring for a child with a life threatening or terminal illness.” The annual Toast of Surrey Business...

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  • The Secret Life of Us: new campaign launches

    Today marks the launch of a major new campaign, the ‘Secret Life of Us’, by the Disabled Children’s Partnership. This coalition of more than 45 organisations, including Rainbow Trust, is calling for better health and social care for disabled children, young people and their families in England. Together we are highlighting that there is an unacceptable contrast between the quality of life and opportunities available to disabled children, including those with life threatening or terminal illnesses, compared to those without disabilities. Did you know that 69% of families with disabled children receive no support in caring for their child? Or that 43% of the general public don’t even know anyone who is disabled? And that 97% of parents with disabled children say that people do not understand the challenges they face, every day? The campaign brings to life the realities of the challenges that disabled children, young people and their families face in living a life that many of us take for granted. The charities, including Contact a Family, Sense, CLIC Sargent, The National Autistic Society and Mencap, as well as Rainbow Trust and Together for Short Lives, share the belief that health and social care services for disabled children...

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  • Child of Courage Bradley Lowery continues to be supported at home by Rainbow Trust

    We are ​extremely saddened to share with you the news that Bradley Lowery has now been given weeks to live Bradley, six, from Blackhall Colliery, County Durham, was diagnosed with neuroblastoma when he was 18 months old. He is currently receiving palliative care at home and is continuing to be supported by Rainbow Trust. Bradley was recently named Child of Courage at the Pride of North East Awards and he has become a well-known face across the UK after becoming Sunderland’s mascot and close friend of England striker Jermaine Defoe. We would like to share this lovely photo of Bradley enjoying some time with Rainbow Trust volunteer Martin from the North East Family Support Team, taken in November 2016. We have been supporting the family for over four years. Our Family Support Worker Monica has been helping Bradley and his family and continues to support them. Bradley’s Mum Gemma kindly said Rainbow Trust has been invaluable. Gemma said: “Rainbow Trust has been an invaluable service for me and Bradley. They have given us amazing support and I am very grateful for everything.” Our thoughts are with the family at this time.

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  • Father's Day letter to the editor from Zak, a Family Support Worker

    Since becoming a father last year, the celebration of Father’s Day has taken on a whole new meaning for me. I’m looking forward to receiving my wonky homemade card and the huge hug from my daughter on the morning of Sunday 18 June. Father’s Day is doubly important to me though as I also work for Rainbow Trust Children’s Charity. I am one of its 50 Family Support Workers across England helping families who have a life threatened or terminally ill child. Alongside the children’s vital medical treatment, Rainbow Trust provides the whole family with emotional and practical support to try and make life a little easier for them. At this time of year Rainbow Trust works a lot with dads who can struggle to deal with the enormity that their child might never get better. We do all we can to help these fathers capture precious time and memories with their family and offer someone impartial to turn to when it all gets too much. This Father’s Day please spare a thought for these dads and support Rainbow Trust with a £3 donation by texting RAIN18 £3 to 70070 or click her to donate online. Zak Miah, Rainbow Trust...

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  • What does the election result mean for seriously ill children and their families?

    For families whose child has a life threatening or terminal illness, the impact of the election is yet to become clear. The surprise election result of a minority Conservative government led to three ministers relevant for children’s health each losing their parliamentary seats and leaving government altogether: David Mowat, the health minister responsible for end of life care, Children’s Minister Edward Timpson and the Minister for Civil Society, Rob Wilson. This means that charities like Rainbow Trust will now need to develop new relationships with their replacements. First of all, Rainbow Trust will be making sure that the new health ministers, Jackie Dayle-Price MP and Steve Brine MP, are well briefed on what children’s social palliative care is. We will be setting out why we need fairer access to existing funding streams so we can support more families in more parts of the country and we will be delivering our open letter to the health minister responsible for end of life care which many families and supporters co-signed online letter earlier this spring. An immediate task will be for ministers to decide which of the pledges in the Conservative manifesto will make it into the Queen’s Speech, when the legislative...

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  • Essex volunteer group devastated after break-in

    The founder of a volunteer-run charity shop in Harold Wood, the proceeds of which go to Rainbow Trust Children’s Charity, has spoken of her upset after jewellery and money were taken just two days after a celebratory afternoon tea thanking volunteers for raising over £900,000 for the charity. Pauline Obee MBE discovered the break-in when she went to open the Station Road shop on Saturday morning. “They caused havoc,” Pauline said. “What’s the mentality of people getting into a charity shop? There are 33 volunteers working there who give up their time free to raise money for Rainbow Trust. It’s quite depressing really.” Pauline and other volunteers have set up a pop-up–shop outside until it re-opens and have so far raised more than £300 in donations and by selling the shop’s merchandise, which includes clothes and bric-a-brac. “People have been really generous, it proves to us that not everyone is bad and people want us to be there. People are really sad for us and have shown us sympathy.” Pauline founded the Harold Wood Volunteer Group 24 years ago and the group runs the Harold Wood shop. They also take part in fundraising efforts across Essex in aid of Rainbow...

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  • Will you give children like Hadley a summer to look forward to?

    My husband Benedikt and I have twins; Ben, who is a healthy four year old and Hadley, who was diagnosed with leukaemia two years ago. Since then our life has been a rollercoaster; a blur of antibiotics, chemotherapy, blood transfusions, school runs and daily chores. We’ve been able to get through it because of Rainbow Trust Children’s Charity. They picked us up when we were at our lowest. They gave us the support we needed to get back on our feet. “Hadley was fighting for her life, but we were all suffering.” As parents, we were stretched to our limit Benedikt often travels for work and we’d recently moved to the area; we had no friends who could help us out. Benedikt’s father had been diagnosed with cancer too, so it was a particularly hard time for us all. We were at a critical point when Rainbow Trust came to help. Within a month of Hadley’s diagnosis, Mandy, our dedicated Family Support Worker was a part of our lives. We quickly bonded with her – all of us. Ben and Hadley aren’t really sure what Mandy does, or where she comes from. They think she might be a fun Aunty...

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  • Brentwood volunteer inspired to help families with seriously ill children supported by Rainbow Trust

    A woman from Brentwood, Essex who volunteered for Rainbow Trust Children’s Charity has become a full-time Family Support Worker after being inspired by its work helping families caring for a child with a life threatening or terminal illness. Abi, who volunteered for eight months before joining Rainbow Trust full time in October 2016, said one of the most important parts of both roles is remembering to have fun with the families. Abi spoke about her experiences and encouraged other supporters to come forward, ahead of Volunteers’ Week from 1-7 June, which celebrates volunteers’ contributions across the UK. As a Rainbow Trust volunteer, Abi assisted a Family Support Worker, spending time with families and helping at events and drop-in groups, where families have a chance to meet others also caring for a seriously ill child. Working as a nanny four days a week and having recently moved to Brentwood, Abi was keen to volunteer on her day off. “I wanted to get some more experience and I love working with kids and families, I found it very rewarding and I applied for the Family Support Worker role. After many years working with children who were quite privileged, it was nice to...

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  • Rowan's hospital essentials for children starting cancer treatment

    Rowan (pictured left) was just three years old when she was diagnosed with a brain tumour. She underwent 18 months of gruelling chemotherapy. Janet, a Surrey based Family Support Worker, started supporting Rowan and her family soon after she was diagnosed and would often take Rowan and Beth, her mum, to the hospital for appointments and treatment. She also spent time with Beth while Rowan was in theatre and she was there to drive them both home after the very long days on the ward. Sadly, the numerous treatments have left Rowan almost completely blind. She now uses a cane or a wheelchair to help her get around. Despite all this, this brave little lady who has experienced more than anyone her age should, is back at school and is currently enjoying a break from treatment. Rowan shares her tips and suggestions for those children starting their cancer treatment:Wear comfortable clothes like loose trousers or leggings and layers. Hospitals can get very hot or cold Bring something you know you’ll want to eat as hospital food might not tickle your taste buds. Also this means you can eat it when you feel well enough not just when lunch is being...

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  • Essex mother volunteers for Rainbow Trust Children’s Charity, which enabled her son to die at home

    A mother from Great Canfield, Essex, whose son was able to die at home because of the support he received from Rainbow Trust Children’s Charity, has become a Volunteer Ambassador for the charity, 24 years after his death. Linda Newberry, now 65 and a grandmother, shared her story to help Rainbow Trust, which supports families caring for a child with a life threatening or terminal illness, mark Volunteers’ Week from 1-7 June, which celebrates volunteers’ contributions across the UK. Linda had helped raise awareness about Rainbow Trust after her son Kevin died and now having retired after 20 years as a social worker she has embraced her role as a Volunteer Ambassador, which includes promoting Rainbow Trust’s work at golf and rotary clubs and speaking at events. It was 1993 when Linda first heard about Rainbow Trust - founded by Bernadette Cleary in 1986 and still very much in its infancy compared to the 2,227 families it helps today - through the charity’s shop in Harold Wood. As a single mother of four and studying for a university degree, Linda was desperate when her youngest son Kevin, aged 10, was diagnosed with medulloblastoma, a cancerous brain tumour. Kevin had two...

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  • Meet Katherine, Regional Fundraiser for the North and South East

    At Rainbow Trust we have a team of dedicated Regional Fundraisers, ready to spread the word and help you raise funds in your community to support families. Katherine, our Regional Fundraiser for the North East and South East, shares why she loves her job and how you can support her in your area. Hello, my name is Katherine I have been part of the Regional Fundraising Team for nearly three years! The area that I cover is pretty big as it includes the Home Counties in the South-East as well as a large region in the North-East from Northumberland all the way down to Yorkshire. I’m often asked what the best part of my role is and I find it’s very easy to answer. I work with so many different individuals and organisations and no week is the same. One morning I can be in a primary school assembly and the next I am meeting with a supporter taking on a huge challenge to raise funds for Rainbow Trust. Like most jobs, a Regional Fundraiser role is challenging but rewarding. The challenge is that we are still a small team covering larges patches. Thankfully, we have many wonderful volunteers who...

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  • Gymboree extends their support of Rainbow Trust

    Gymboree Play & Music have been supporting and fundraising for Rainbow Trust since 2016. In the last six months that support has grown and both the Surbiton and Walton-on-Thames branches now offer drop-in groups for the families supported by our Surrey Care Team. The Surbiton branch, with its lovely wooden apparatus, invites families supported by Rainbow Trust to attend an appropriate class. Our Family Support Workers have also taken siblings there on a few occasions and the children have had loads of fun. Walton-on-Thames offers the same wonderful classes and also have a play den that the children can use. These sessions offer local Rainbow Trust families the opportunity to socialise with other families, share experiences and gives the children the chance to play with others. Treatment and hospital stays take precedence in these children’s lives so having the opportunity to play in a safe environment is invaluable. On the last Tuesday of the month, between 12pm and 2pm, Amanda, our Family Support volunteer, and a member of the Surrey Care Team will be at the branch to offer any advice and support. Lyn Sweet, one of our Family Support Workers, said: The staff are very accommodating and remember the...

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  • Rainbow Trust welcomes HRH The Duchess of Cambridge’s video message marking Children's Hospice Week

    We are delighted to share the exciting news that Her Royal Highness, The Duchess of Cambridge has recorded a personal video message to celebrate children’s palliative care services and mark the beginning of Children’s Hospice Week 2017. Children’s Hospice Week (22-28 May) is organised by the UK children’s palliative care charity Together for Short Lives of which Rainbow Trust is a member. The Duchess’s video message is released today (22 May 2017), and can be viewed on the Together for Short Lives websites The Duchess’s message and support highlights the huge difference that all palliative care services can make for children and families. Rainbow Trust provides designated Family Support Workers to over 2,200 children with life threatening and terminal illnesses and their families throughout England. Our Family Support Workers become a trusted part of the family and because caring for a child with a serious illness is 24 /7, our Family Support Workers provide support to families however, wherever and for as long as a family needs it. Our Head of Marketing Oonagh Goodman says: “We are thrilled that HRH The Duchess of Cambridge is helping to raise awareness of services like ours to mark Children’s Hospice Week. Rainbow Trust...

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  • Why I became a Rainbow Trust Trustee by Consultant Paediatrician, Jon Rabbs

    Jon Rabbs is Consultant Paediatrician at Worthing Hospital and a Trustee at Rainbow Trust. Here he explains why he became involved and his vision for the future of the charity. I became a Rainbow Trust Trustee after seeing the difference a Family Support Worker’s support makes to families living with a seriously or terminally ill child. Often in the clinic, I’d see a Rainbow Trust Family Support Worker sitting with siblings supporting them while they waited for their brother or sister’s treatment or appointment to finish. On exploring the role of the Family Support Worker and certainly since becoming a Trustee, it became clearer how much wider and essential the Family Support Worker role can be. Rainbow Trust is quite different to other organisations Very few organisations support families in as many ways as Rainbow Trust: face to face,practically, sign posting advice and liaising with other professionals. Rainbow Trust also gives support long after other agencies have stopped which we know families appreciate. Vision for the future - increased funding and recognition As a Trustee, I am committed to supporting the short, medium and long term plans of the organisation including reaching more families, continuing to encourage development of new...

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  • I love being able to make even the smallest difference

    Zak from our West London Care Team tells us what it means to be a Family Support Worker and how you can help more families up and down the country. I’ve been working for Rainbow Trust for the past five years and I love making a difference in people’s lives. My team is also a big part of why I love my job. We support each other and can pick each other up if we’ve had a sad day with families. Driving to appointments I support families by taking them to the hospital so they don’t have to worry about travelling with a sick child on public transport or about traffic and finding parking - all of these little things mean a more pressured day. We all know how stressful driving in London can be so I can take some of that stress out of the day by collecting the family, driving them to hospital, being responsible for the logistics and providing an opportunity for parents and children to discuss what is planned for that day. Spending time in hospital I spend time with families on the ward too - appointments can take all day; they get pushed back or...

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  • This Dying Matters Week mum shares how Rainbow Trust supported her through the loss of two children

    Dying Matters Awareness Week is an opportunity to highlight the importance of talking about dying, death and bereavement, all of which are so often overlooked and ignored for fear of offending or upsetting. The fact is that death, dying and bereavement are very real and for many, they are a reality. Rainbow Trust Children’s Charity supports families living with a child with a life threatening or terminal illness. Last year, we supported over 2,200 families and of those children, three percent died. Planning your child’s funeral is not something you ever imagine you will have to do so for families in this position, Rainbow Trust is there to help. We support families from diagnosis through treatment and bereavement and are often involved in helping parents plan their child’s funeral or prepare the family for their child’s death. We do this by making memory boxes with children and family members, or creating photo books of all the good times the family have shared to make sure that their memories are captured. “We help families make memories when a child is dying. It’s so important to make those last months or weeks special. It gives families something to hold on to,” says...

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  • This Mental Health Awareness Week brave mum shares why she supports other parents

    This year, as we celebrate Mental Health Awareness Week, the focus is on why so few of us are thriving with good mental health. Why don’t people reach out? What stops people asking for help? Is it because they don’t think anyone will understand? From our 30 years’ experience of supporting families, we know that giving families the space to talk, the empathy and patience they need to navigate through all of the different emotions and thoughts that may come with having a seriously ill child, is paramount. Having spoken to many of the mums and dads we support, we’re told that emotional support for them and their children is what makes the difference to them coping or not. Families often feel so alone and isolated as friends and extended family don’t understand the reality they are living. That isolation can be devastating for families who don’t want to burden others with their truth or don’t want to upset others despite the fact that they need an outlet, they need somewhere to go with the overwhelming feelings they may have. With all the work being done by other charities to encourage people to talk, listen and to openly acknowledge that...

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  • Top three suggested reads for aspiring MPs

    Few commentators expected a General Election to be called this summer. But while children’s palliative care is unlikely to be discussed on doorsteps in this period, recent months have seen some important new reports that would-be MPs should have on their reading list if they want to understand the policy changes needed to support children with life threatening and terminal illnesses and their families. Top of our list would be Rainbow Trust’s own report, Hidden Savings, which estimates how much money our services may be saving the health and social care system. This won the attention of nursing and palliative care publications, as well as MPs and Lords. Fiona Smith, Royal College of Nurses Professional Lead for Children and Young People’s Nursing, responded to the report by saying, “The kind of support Rainbow Trust provides is invaluable to families and saves millions of pounds. However, the Government needs to recognise the importance of social care for children and families and ensure that it is accessible for all those who need it.” Another recent report was the first analysis in more than a decade of the numbers of disabled children with complex needs and life-limiting conditions. Published by the Council for...

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  • We need your Good Old Pounds

    Following the introduction of the new 12-sided pound coin on 28 March 2017, we are calling on supporters to give us their ‘Good Old Pounds’. The old pound coins will lose their legal tender on 15 October 2017 so make sure you put them to good use before then. Just five old pound coins could buy a book with colourful pictures which could make a huge difference to a seriously ill child’s early language development. While £23 could help fund a Family Support Worker for one hour so they can support a child and their family when they need someone to answer their questions and listen to their fears. Simply download and print this template to make your very own fundraising box to display anywhere you can think of, such as shops, schools, or your office. Then fill your fundraising box with ‘Good Old Pounds’ to help Rainbow Trust care for more families. Your box work best printed on card and reinforced with sticky tape. You can still get involved without a fundraising box by donating online rainbowtrust.org.uk/donate So check your sofa, pocket and piggy bank and help families make the most of their time together, one pound at a time.

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  • Family supported by Rainbow Trust speak about their son’s illness to mark Undiagnosed Children's Day

    A family from Reading are helping us to mark Undiagnosed Children’s Day on Friday 28 April by speaking about caring for their three-year-old son whose birthday falls on the same day. Faith and Jordan Mansfield have spoken about Isaac’s undiagnosed condition to raise awareness for Rainbow Trust, which supports families with a life threatened or terminally ill child. Undiagnosed Children’s Day is a nationwide event raising awareness of children with undiagnosed genetic conditions, also known as syndromes without a name (SWAN). Faith and Jordan first realised something was wrong when Isaac was a few months old and he was found to have global development delay which affects his cognitive function and motor skills. After four long years of tests, Isaac’s disease has not yet been diagnosed. He is fed by a tube and has a range of complex needs. Rainbow Trust has been supporting the family since November 2014, through their dedicated Family Support Worker Luci Green, who takes them to hospital appointments and visits them at home and takes them out for trips as Faith doesn’t drive. Rainbow Trust has nine care teams of Family Support Workers across England, including in West London covering Reading helping families at home...

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  • Are you planning a celebration?

    My little girl has leukaemia. Rainbow Trust has been supporting us for over a year, which has made a huge difference to our everyday lives. Phoebe has a big brother, Ollie, and so during Phoebe’s treatment it’s difficult for us to make sure Ollie gets quality time with Mum and Dad. My husband, Nathan, had to keep working to pay the bills and we were really struggling to keep family life normal. We were all suffering. While Phoebe was receiving chemotherapy, Nathan and I were also in the middle of planning our wedding, and we had a difficult time trying to decide whether we should go ahead. Having our Family Support Worker, Amelia, supporting us, made that decision much easier. She kept me grounded when it all got too much, and with her help, we decided to go ahead with our plans. Having someone there who you can trust with your children is amazing, I don’t know what we’d do without Amelia now. She’s just brilliant. She takes care of my family, not just Phoebe but Ollie and me as well. “With help from Rainbow Trust, we had our dream day, and though Phoebe was in some pain from her...

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  • The Community Foundation for Surrey make generous donation to support siblings

    The Community Foundation for Surrey have made a generous donation to Rainbow Trust to enable our Family Support Workers in Surrey to host a series of Sibling Support Days over the course of the next 12 months. Our sibling activity days in the school holidays are especially popular with the children and families. In some cases, these are the only opportunities siblings might have to go out in the holidays due to the logistics of the family having a seriously ill child. Trusts and Foundations Manager, Sharon Carter said: “We are delighted that the Community Foundation for Surrey recognises the importance of our work with these children and their families. Often, when a child is ill, families’ priorities shift and brothers or sisters can end up feeling isolated or lonely. The relief these days out give parents, knowing that their children are having fun, is a fantastic way of helping these families.” The Community Foundation for Surrey is an independent charitable trust established to inspire local giving for local need. The Community Foundation works both with donors who want to give something back to their local communities and the voluntary groups providing vital services for local people. Companies, individuals, families...

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  • Why I became a Fundraising Ambassador

    When Michael’s godson, Dominic, was diagnosed with cancer in 2013, he experience first hand how Rainbow Trust supported his godson’s whole family. Since then, Michael has hosted fundraising events and given talks about Rainbow Trust to groups, from Rotary Clubs and schools. Here, he shares why he decided to become a Fundraising Ambassador. When did you first start volunteering for Rainbow Trust? My godson, aged 18 months, was diagnosed (in Newcastle’s Royal Victoria Infirmary) with a very rare and life-threatening form of neuroblastoma in December 2013, with treatment and support from Rainbow Trust throughout 2014 - and beyond. I organised, hosted and played music with my band at an all-star fundraising gala concert to 500 guests at Sage Gateshead in September 2014, with over £6k raised for Rainbow Trust and the North East Children’s Cancer Research (NECCR) fund. Why did you choose to support Rainbow Trust? My own daughter was diagnosed with a very rare genetic condition when she was just a few weeks old and I saw first hand how Rainbow Trust supported families alongside us in the wards. 8 or 9 years later to see the incredible support again ginven to The Halliwell family, whose older son Zach...

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  • Swindon teen’s skydive in memory of best friend

    A Swindon teenager is fulfilling her promise to her best friend who died of a rare heart and lung condition and jumping around 10,000ft from a plane to raise money. Ash Cleverly, 19, from Grange Park, wants to keep Erika Cowie’s memory alive and also Erika’s love for Rainbow Trust. Erika, from Rodbourne, who Ash describes as the “sister she never had”, died of idiopathic pulmonary arterial hypertension two months after her 18th Birthday in September last year. She was diagnosed when she was 13 and was not expected to reach her 14th birthday. The life-threatening disease prevents the heart from sufficiently pumping blood through the pulmonary arteries. Ash and Erika met on social media in 2015 and thoughts of their friendship will help put her fear of heights behind her when she skydives from Netheravon Airfield in Salisbury on 24 June. “I’m extremely nervous but full of adrenaline,” Ash said. “It’s something I’ve always wanted to do and it is really a once in a lifetime opportunity. “Erika was truly thrilled to pieces when I told her I wanted to skydive for her and a charity so dear not only to her but to me as well. Our friendship...

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  • Rainbow Trust and Evans design a T-Shirt Competition

    This April, Evans has teamed up with us to launch a Design a T-shirt competition. Grab your pens or pencils and get creative for a chance to have your t-shirt design produced and sold in-store this summer! Simply visit an Evans store to pick up your Design a T-Shirt competition card and either hand it in in-store or download the template and upload your masterpiece here. Anyone can enter but your design must include a rainbow or rainbow colours. Hurry as you can only take part from Saturday 1 April – Sunday 30 April. Evans has been supporting Rainbow Trust as their charity partner since 2015 and this exciting new initiative gives budding creative the opportunity to not only see their design sold in store and receive a £100 Evans gift card, but also to help raise funds for seriously ill children and their families as profits from the sale of the winning T-Shirt come to Rainbow Trust. For full terms and conditions and to find out more please go to the Evans website here.

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  • A letter to my brother this Sibling's Day

    Rainbow Trust has been providing support to the Watts family for the past two years, including sibling support for Georgia. This #NationalSiblingsDay, five-year-old Georgia writes a letter to her brother Sammy, nine, who has been diagnosed with Sanfilippo Syndrome, a rare terminal genetic disease that causes severe and progressive physical and mental disability. Their family is supported by Claire in our Southampton based team. To Sammy I love you to the moon and stars and back again. I really like it when you bounce on the trampoline with me and I love to make you laugh by being silly because it makes Mummy laugh too. I don’t like it when you have to go into hospital or to see a doctor as I’m worried that you won’t come back and that makes me sad. I know one day you will live with the angels but I don’t want that to be soon because I will miss you. I don’t like you hitting or that Mummy can’t play with me in my bedroom if she is looking after you but I will love you always. Love Georgia xxx We recognise that having a child with a life threatening or terminal illness...

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  • Bradley Lowery

    We are extremely saddened to hear the news that Bradley Lowery died this afternoon. Rainbow Trust Children’s Charity will continue to support Bradley’s family at this immensely difficult and private time.

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  • Double fundraising by Natta Group

    On Friday 9 June 2017, Rainbow Trust Children’s Charity was fortunate enough to be one of the beneficiary charities of the annual Natta Group Golf Day. Natta have been a long time supporter of Rainbow Trust, and their golf day is always a fantastic event to be a part of. The golf day took place at Sherfield Oaks Golf Club in Hampshire, where the keen teams of Natta clients and associates enjoyed a sunny round of golf, followed by lunch and an auction. The auction prizes on offer ranged from an amazing helicopter ride, to sought-after football tickets to a 12-month golf club membership. In total, the event raised over £16,000 for the three charities. A team of brave participants took part in the Survival of the Fittest challenge on 8 July 2017, making this the second fundraising sporting event this summer that Natta have taken part in for Rainbow Trust. Managing Director, John Whelan, said: “I’m delighted to present this cheque for £5,436 from our Golf Day to our friends at Rainbow Trust. They are a tremendous bunch who work tirelessly for this great charity. Natta is proud to help them support those children and their families, who are...

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  • Rainbow runners raise over £5,000 for families

    Rainbow Runners Cathy and Darrell from Basingstoke, are set to run the Amsterdam Marathon on Sunday 15 October. Having currently raised over £5,000, their fundraising will enable Rainbow Trust to provide support to three families with a terminally ill child for a whole year. The Amsterdam Marathon is known to be a fast and beautiful course, both Cathy and Darrell have been in training and have now completed their last 22 mile run in preparation for the big day. Funnily enough, after completing the marathon, they will have clocked up an incredible 370 miles, which happens to be the same distance between Basingstoke and Amsterdam by road! Having already exceeded their initial £3,000 target, their fundraising page just keeps on rising, and we can’t wait to see how much they can raise! We would like to wish both of them lots of luck for this weekend! If you would like to support Cathy and Darrell you can donate to their fundraising page here.

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  • Gift Aid: what you need to know

    A mystery to many of us, Gift Aid can be a bit confusing, but is it worth it and do charities really benefit? The answer is yes! According to the Charities Aid Foundation, Gift Aid has raised more than £60 billion for good causes over its 25-year existence – that’s a lot of extra money, and, if you’re a UK tax payer, you could help the charities you support make your donations go further with a tick of a box. So, what is Gift Aid? Gift Aid is a UK government scheme that allows charities (and Community Amateur Sports Clubs) to reclaim the basic rate of tax on donations made by a UK taxpayer. This is because when a UK taxpayer gives to charity, tax has already been paid on that money. In other words, this means that Gift Aid allows us to claim 25% of the value of your donation to Rainbow Trust Children’s Charity – at no extra cost to you! Once we receive your Gift Aid Declaration we’re then able to claim Gift Aid on donations made in the last four years and on any donations you make in the future. The maths (no calculator needed) It...

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  • Baby Loss Awareness Week

    Baby Loss Awareness Week 2017 Today marks the beginning of Baby Loss Awareness Week (9-15 October). Alongside more than 40 other organisations, Rainbow Trust Children’s Charity is calling for every parent whose baby has died to be offered an excellent standard of bereavement care. Pregnancy and baby loss affects thousands of families each year across the UK. Bereavement support is vital to offer to anyone who has lost a child or pregnancy. But currently, the standard of care bereaved parents receive is a lottery, depending on where they live, what stage of pregnancy or birth the loss occurs, and whether individual healthcare workers know what to do. The coalition of charities are calling for excellent NHS bereavement care to be mandatory across the UK so that no parent is left to cope with the death of their baby alone. In particular, the coalition of charities is calling for:All UK hospitals to be required to offer excellent bereavement care to parents A member of staff appointed to lead on bereavement care in every hospital department where pregnancy loss and baby death occurs Bereavement rooms to be available and accessible in all hospitals All health and social care professionals to receive the...

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  • QuirkyAccom.com makes generous donation

    Earlier this month, we were delighted to receive a donation of £20,000 from QuirkyAccom.com to support seriously ill children and their families. QuirkyAccom.com is an online directory, offering a wide range of unusual accommodation in the UK and abroad. They pledge to donate all of their profits to good causes each year, and Rainbow Trust were the fortunate recipients of a wonderful contribution this month. Jess Twitchin, CEO and founder of QuirkyAccom.com said: “It is important to us to be able to contribute ALL of QuirkyAccom.com’s profits to valued causes throughout the year. This time we have chosen Rainbow Trust, as our bookkeeper’s child has a life threatening illness and we know from her experience how important it is to offer extra support for those in such difficult and sad situations.” Emma Haines, Director of Marketing and Fundraising at Rainbow Trust said: “It’s down to the generosity of our supporters that we are able to continue raising vital funds to support families in need. We’d like to thank all at QuirkyAccom.com for such a generous donation and for helping us raise awareness of Rainbow Trust’s work.” Rainbow Trust send their heartfelt thanks to Jess and her team for their generosity...

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  • Why I took on the Ice Mile for Rainbow Trust

    Meet fundraising star, Andrea. Andrea became the 206th person in the world to complete an Ice Mile, a gruelling mile long race in freezing temperatures. Below she shares why she decided to fundraise for Rainbow Trust and push herself to her limits. What is The Ice Mile? Some say that the Ice Mile is the toughest swim of them all. This dangerous and exhilarating challenge consists of swimming, non-stop, in open water colder than 5C for one mile (1,610m). It is a relatively new event that is gaining popularity among outdoor swimmers and endurance athletes around the world. Why I chose Rainbow Trust I chose to fundraise for Rainbow Trust as Kai, a friend of my son, had very recently undergone successful brain surgery for a tumour. Kai said that he and his family had been helped by Rainbow Trust and he wanted to give something back. Will the water be cold enough? I had been wanting to complete my Ice Mile last year in March and was all set to go, when we had to cancel because the lake in Wales was too warm! So, I had to wait another year. In this time, I trained all over the...

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  • Ride London raises funds for Rainbow Trust

    Earlier this year, on 30 July, staff and ‘volun-cheerers’ lined the streets of Leatherhead, Dorking and Surbiton to cheer on our team of fifty-one amazing cyclists as they tackled the 100 mile Prudential Ride London - Surrey. Making their way through Surrey and London, the team were set to raise much needed funds for Rainbow Trust Children’s Charity. So far, raising an astounding £78,000, smashing previous years. The challenging cycle saw the team line up at the start in London ready to set off around the Surrey Hills – emphasis on hills! They took on the famous Box Hill, all 7km of the mighty Leith Hill and everything in between, before heading back into London and finishing on The Mall. Some of the riders had been able to make our Ride London training days earlier in the year so they were well prepared! Despite a few showers, the cyclists powered on through with smiles on their faces which was helped by the various Rainbow Trust cheer squads along the way, with their colourful banners and bright Rainbow hair. Feeling inspired by our cyclists? Sign up here to be part of our 2018 team.

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  • Five-year-old Gwen takes on a Half Marathon for families

    On Sunday 1 October, five-year-old Gwen and her dad Jamie, embarked on a Half Marathon of their own to raise vital funds for families. Their challenge, starting at Barnes Footbridge on the Thames and ending at Tower Bridge in London, spanned a total of 13 miles. This incredible little girl was inspired to take on the challenge as part of a school project after listening to some of our family stories. She said:“I am doing this as part of a school project set this term. ‘How to make the world a better place’ - I hope to raise £100 for the Rainbow Trust Charity who help seriously ill children and their families.” If that wasn’t enough, so far Gwen has raised an impressive £300 and counting – smashing her fundraising target! A total that could help give an hour’s support to over 13 families or even buy an incredible 60 picture books for seriously ill children; something that could help encourage a child’s early language skills and entertain a young seriously ill child in hospital. Jamie, Gwen’s dad said: “As expected she managed the 13 miles with ease and even managed a sprint to the finish.” Jodie Egerton, Regional Fundraiser...

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  • The Rainbow Fish Design a T-Shirt Competition

    The Rainbow Fish is celebrating its 25th anniversary with Rainbow Trust, supporting families with a life threatened or terminally ill child. To celebrate this very special partnership, exclusive Rainbow Fish personalised T-Shirts are now available on Digital Giving’s T-Shirt Booth platform, with each one sold generating £2 for Rainbow Trust https://www.t-booth.net/ We have also launched a Design your own T-shirt competition sponsored by Tinies, the leading childcare specialist and T-shirt Booth to create a stunning personalised Rainbow Fish T-shirt! Rainbow Fish prizes 3 lucky entrants will win a signed edition of the latest book ‘You can’t win them all, Rainbow Fish’ and one overall prize winner will have their exclusive Rainbow Fish design printed on their very own T-shirt. There are three age categories: 2-4 years, 5-7 years and 8-10 years. To enter, download and print the entry form and draw your design within the dotted line on the T-shirt. Then fill in your details on the competition entry form. If you are the overall winner you will need to supply a photo via email once notified. Closing date is October 31 2017. This Competition is open to residents of the UK and entrants must be 2+ years. Please obtain...

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  • Rainbow Trust partner with ChariTable Bookings

    We’re excited to announce the launch of our partnership with new charity restaurant booking portal, ChariTable Bookings. ChariTable Bookings is an exciting concept whereby diners can book to eat at over 8,450 restaurants, and in doing so, donate to a charity of their choice at no cost to themselves. For every diner on a booking, £1 will be donated to a charity of the bookers choosing and Rainbow Trust are proud to be one the beneficiary charities on offer. ChariTable are also running an incentive for new users called the ‘30 Bookings Challenge’, offering various rewards for customers signing-up to the portal and making 30 bookings for their chosen charity. Emma Haines, Director of Marketing and Fundraising for Rainbow Trust said: “ChariTable Bookings is a wonderful initiative to encourage people to raise money for Rainbow Trust Children’s Charity as they book their favourite restaurant. We are more determined than ever to reach our goal - that every family who has a life threatened or terminally ill child, should have access to our support, if they need it. Rainbow Trust relies almost entirely on donations from its supporters and we are so grateful for this generosity, which enables us to raise...

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  • Joe and Anna’s Rainbow Wedding

    Supporters Joe and Anna recently celebrated their wedding with a rainbow theme, raising over £1,000 for Rainbow Trust during their special day. “We think what they do is really special and very in need” says Joe, who talked about the charity during his dinner speech to their 100 guests. “There wasn’t a dry eye in the barn when the speeches mentioned Rainbow Trust. We handed out literature and the children loved the colourful balloons.” Composers Joe and Anna write and produce pieces of music to be used in advertising. They chose Rainbow Trust to benefit from donations in lieu of presents after Anna had a tough time when she was expecting their twins, Ben and Nathan. She and Joe were given all sorts of worrying information during the pregnancy, but happily they were born safely and with no complications. Ben and Nathan are now healthy, lively three year olds, so when the couple set a wedding date they knew they wanted to help families less fortunate than theirs. “We’re so glad we’ve been able to raise the amount we did for Rainbow Trust and hope to raise more, by donating proceeds of the sales of a piece of music we’ve...

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  • One year on: what progress on end of life care for children?

    Rainbow Trust Children’s Charity welcomes the publication of a progress report by government on the first year of implementing its End of Life Care strategy. However we urge greater attention on the resourcing of emotional and practical support for families, and we call on the Department of Health to open up existing funding streams to enable more families to receive our tailored support. The progress report documents the activities and work streams which are underway to bring about the government’s vision of ‘personalised end of life care for all’. In terms of children and young people, it focusses on progress in two particular areas: bereavement support for the whole family, including the introduction of a new entitlement to bereavement leave for parents, and the implementation of the NICE (National Institute for Health and Care Excellence) Clinical Guidance on End of Life Care for Babies, Children and Young People. Anne Harris, Rainbow Trust Director of Care, said: ‘We welcome this progress report which highlights the valuable work underway to improve care for children with life threatening or terminal conditions and their families, and we look forward to the forthcoming publication of a new bereavement pathway for families. However, the emotional and...

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  • Natta’s Survival of the Fittest experience

    Corporate supporters and ‘survivors’, Natta Building Co Ltd, share their advice to those taking on the Survival of the Fittest course in Manchester this October after completing the London course earlier this year.Run the distance of the race beforehand so you get an idea of how long it will take as a minimum. You don’t need to join a gym – all the training you need to do can be done at home and on the road. It’s definitely worth focussing on upper body strength. It is all about going up-up-up! And on the road, well, it is as simple as one foot in front of the other. Run-run-run! For some it might be that simple but if not we encourage you to find a partner to run with who can help keep you motivated. On the day of the race it’s all about having fun. You’ll soon forget it is a race if you fully embrace the atmosphere and remember why you are doing this. Also, if you’re not running with a partner, friend or colleagues, you can always make a friend on the day, someone at similar running pace as you. Share training stories or reasons for doing...

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  • What would you wish for if you had a magic wand?

    What would you wish for if you had a magic wand? We asked some of the children we support and you can see some of our favourites - including the wish to turn their doctor into a frog! Although we do not have a magic wand, Rainbow Trust does understand the importance of creating a little bit of magic and just how precious time can be, as we support families who have a child with a life threatening or terminal illness. Our Family Support Workers provide families with emotional and practical support amid the chaos of medicines, hospitals and endless appointments, giving them a sense of normality and the ability to cope with everyday life. “I love the fact that we see the child and family first not the illness, we help the family to be just that ‘a family’.” Nicki, Family Support Worker No family can prepare for hearing the news that their child is seriously ill, but we aim to support families in any way we can, so they do not have to go through it alone. Sitting with siblings while they wait for their brother or sister’s treatment, taking families to and from hospital appointments, collecting siblings...

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  • Sweet charity, Time Inc. and Rainbow Trust

    On 19 September, Time Inc. (UK) Ltd will celebrate their partnership with Rainbow Trust Children’s charity by delivering a sweet treat to each of the staff at their London, Farnborough and Manchester offices. With the help of some willing Rainbow Trust volunteers and staff, a tube of Smarties will be dropped at each desk. Once the Time Inc. staff have eaten their yummy gift they will be encouraged to use the empty tube to collect up any spare change they may have, which will then be donated to Rainbow Trust. But the fun doesn’t end there. Those that donate will be entered in to a prize draw for a chance to win a Gin & Jam Tea at Hush in Mayfair. Jane Mortimore, Corporate Responsibility Manager for Time Inc. who came up with the idea says: The Smarties challenge is a great and easy way to engage our staff with the charity partnership - as who doesn’t like Smarties? It is so easy for them to fill up the tube with spare change, that they can then leave at our drop off points. Some of the staff can take them home and involve their children, so it is a great...

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  • Bereavement leave debated in Parliament

    Rainbow Trust Children’s Charity welcomes a wide ranging debate on ‘Bereavement leave for families who lose a child’ which was held in Parliament on 12th September. This was secured by Paul Masterton, Conservative MP for East Renfrewshire and a member of the All Party Group for Children Who Need Palliative Care, who referenced the information provided by Rainbow Trust on this issue alongside other organisations. The debate relates to a proposal for employed parents to receive statutory paid bereavement leave. The proposed legislation would end the current situation in which employers are only obliged to offer ‘reasonable’ time off to bereaved employees, which is not necessarily paid. This has government backing, and follows concerted lobbying by another MP, Will Quince, Conservative MP for Colchester, and by the All Party Group on Baby Loss. The proposal was in the Conservative Party Manifesto and is being taken forward through a Private Members Bill put forward by Kevin Hollinrake, MP for Thirsk and Malton. Rainbow Trust knows that parents of children with a life threatening or terminal illness often spend months or years combining work and care for their child. To do this they frequently have to negotiate some flexibility with their employer...

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  • New guidance on quality of care at end of life

    Rainbow Trust warmly welcomes the publication today of new guidance on the quality of care that children and their families should expect when a child is approaching death. The guidance covers medical care, emotional support and the coordination of the child’s care. The new NICE (National Institute of Health and Care Excellence) standard sets out six ‘quality statements’ that care providers should be meeting when a baby, child or young person is approaching the end of life. While not mandatory, this publication means both families and professionals can now know what best practice looks like, and the guidance can be a tool for improving care where it currently falls short. Anne Harris, Director of Care at Rainbow Trust, said: ‘Rainbow Trust is pleased to be formally supporting this guidance which is another step towards improving the care that children and families can receive at this very difficult time. Through our Family Support Workers we will be ensuring that Rainbow Trust’s own service continues to be of a consistently high standard. At the same time we urge government to ensure the resources are in place to make these statements a reality for all families in all parts of the country.’ You...

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  • Therapy through play

    Rainbow Trust’s Family Support Workers take on a number of roles within their day-to-day work: Transport provider. Tea maker. Hug giver. Day out facilitator. Tear wiper. Food shopper. Face painter. We provide a wide range of support services to the sick child, siblings, parents and wider family alike. However, there’s one common factor in everything we do – we do what we do with the aim of making your poorly child smile. Playing with children is something that we will encounter on an almost daily basis. Play, fun and laughter are all elements we try to incorporate into our interactions with both sick children and their siblings; playing helps children to communicate at their own level, pace and medium. In a hospital setting, play during painful treatment acts as a happy distraction, and Family Support Workers can keep the sick child entertained while Mum and Dad are speaking with doctors. In a bereavement setting, play enables children to understand confused feelings and upsetting experiences that they haven’t yet had a chance to process. While adults favour talking about their worries and concerns, we allow children to express themselves in whichever manner they are comfortable. Family Support Workers not only play...

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  • Winner announced for Evans Design A T-Shirt Competition

    Our fashionable partners at Evans recently launched an exciting Design-A-T-Shirt competition which ran throughout April 2017 to raise vital funds for seriously ill children and their families. Evans’ customers were encouraged to pick up a template in-store or download one online, grab their colouring pens and pencils, and design a rainbow-themed T-shirt. The winner would receive a £100 Evans Gift Card along with the thrill of having their winning design sold on Evans’ website this summer, with all profits going to Rainbow Trust Children’s Charity. The judging took place 5th May 2017 with the Evans team, Rainbow Trust Senior Corporate Partnerships Manager, Louise Bingham, and blogger Freya De Fleur, coming together at Evans’ head office to pour over the fantastic submissions. The competition was tough with so many beautiful, colourful entries to choose from. The winning design selected was by Liberty Hollis, aged 7, from Warrington and looks fantastic! Huge thanks go out to Evans, Freya De Fleur and all the budding designers who took part. You can grab your t-shirt here

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  • Rainbow Fish celebrates 25th anniversary by partnering with Rainbow Trust

    Louis Kennedy and NorthSouth Books have announced that Rainbow Fish is celebrating its 25th Anniversary with a partnership with Rainbow Trust Children’s Charity, supporting families with a life threatened or terminally ill child. First published in 1992, The Rainbow Fish titles, written by Marcus P Fisher, have sold over 30 million copies. The eighth book in the series “You Can’t Win Them All, Rainbow Fish” has just been published in the UK in hardback. To celebrate this milestone year, exclusive Rainbow Fish personalised T-Shirts are now available on Digital Giving’s T-Shirt Booth platform, with each one sold generating £2 for Rainbow Trust. The Rainbow Fish books offer lessons about sharing, friendship, accepting differences, love and facing your fears. These are issues that all children face so they can identify with the comforting characters. The many sea creatures in the books are colourful, full of personality, and beautiful. The images are eye-catching and engaging, ideal for translating into exclusive T-Shirt designs. Rob Mejia, of RJM Licensing said, “We were looking for a great opportunity to really connect with our fans in the UK linked to the new book and 25th Anniversary. When we were approached by Tracey with the concept of...

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  • Harold Wood volunteers launch crowdfunding campaign to reach £1 million

    Dedicated Harold Wood charity shop volunteers today launched a campaign raise the £50,000 needed to reach the milestone of raising of £1 million since they started fundraising for Rainbow Trust 24 years ago. Pauline Obee MBE and volunteers who run the Harold Wood charity shop were joined by Councillor Linda Van den Hende, the Mayor of Havering, who officially launched the campaign, along with shop staff, adjoining shop keepers and local families supported by Rainbow Trust. The group first began after Pauline, heard a radio interview in 1993 with Rainbow Trust’s founder Bernadette Cleary. Inspired by what she heard, she and friend, the late John Penrose, established the Harold Wood Friends Group to support the charity. The group started fundraising when they were offered an empty shop for three months and initially held jumble sales in the shop two days a week. Now, 24 years later, the shop and friends group are still going strong having raised £950,000 to date. Patron and volunteer ,Pauline Obee MBE, said: “I feel proud of the success of the shop and the amount the volunteers have contributed to the Rainbow Trust since the Harold Wood shop first opened 24 years ago. I am delighted...

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  • What if I don't have a will?

    Thinking about the future and writing a will can be intimidating, but it can also be an incredibly positive experience, providing peace of mind and ensuring you can make a difference in people’s lives for years to come. Families like Darren’s have been helped by gifts left in wills to Rainbow Trust. We couldn’t give our expert family support to so many families without such important and meaningful gifts. There are many important reasons to make sure you have a valid will; to ensure specific items of emotional value are passed on to the right person, to continue good work through causes you support and provide for those closest to you. It’s not a legal requirement to have a will, but it’s the only way to make sure your estate is divided between those that you intend to benefit from it. Without a will, your estate might pass to the crown. A will can also help you avoid paying too much tax, so you can leave more to support your loved ones. By writing a will, you’re taking a meaningful step towards ensuring the people and causes you care about are looked after in the way you would like. If...

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  • Being there through tough times

    Amelia is a Family Support Worker in our Swindon team. She supports up to 25 families at any one time, helping them cope through caring for their child who has a life threatening or terminal illness. Here she shares how she has supported Max* and his family. I was first introduced to Max* and his family when he was going through intense chemotherapy. He was just over a year old and had been diagnosed with a tumour in both his lungs and at the base of his spine. The family were spending many long days in hospital, with many more ahead of them. His parents spent their time divided by hospital appointments, balancing their home life and bringing up their other two children. I supported the family during this time, through the punishing chemotherapy, sitting with Max so they could grab some lunch, or doing simple things like the school run. I was able to give them time together as a family and space to rest to keep up their strength to support their son. I spent time with his siblings too, giving them opportunities to play, make things and various trips out, which included their very first trip to...

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  • RideLondon rider raises over £2,700

    Crawley Down resident, Nick Levett, cycled 100 miles by taking part in RideLondon on Sunday 30 July to raise money for families caring for a child with a life threatening or terminal illness. Nick, a talent identification manager at the Football Association, completed the race in an impressive five hours. He chose to fundraise for Rainbow Trust as his girlfriend used to volunteer for the charity and, now a father himself, the charity is close to their heart. Nick said: “The event was such a rewarding and exhilarating experience for me and a great chance to raise money for a charity which continues to make a massive difference to so many lives. I have a son, Cal, who is three years old. Thankfully he is in good health, but the impact he has had on my life has been huge and it’s fair to say you don’t know love like it until you have your own child. It breaks my heart to know other parents and families may be having a difficult time so anything I could do to help them is an easy reason for me.” Nick was delighted to exceed his initial fundraising target of £1,650, the cost...

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  • Cubitt and West employee shaves head

    Reigate trainee estate agent, Leonore Oxley, had her head shaved by a local barber, on 27 July at Woldingham golf course during a Cubitt and West staff BBQ and award ceremony, to raise money for Rainbow Trust. Cubitt and West have been supporting us since 2006 and it was through the corporate partnership that Leonore found out about the charity. Leonore said: “I was thinking of shaving my head a couple of months ago, but thought I’d probably back out! When I first considered shaving off my hair, I hadn’t heard of Rainbow Trust but since learning about the charity at work, I decided I really wanted to raise money for them as it is incredible what they do”. Through shaving her head Leonore has raised £867 for Rainbow Trust including gift aid, from generous donations from friends, family and her Cubitt and West colleagues and the total is continuing to rise. Leonore added: “Shaving my head was such an achievement for me and knowing the money raised will go to such a great cause, makes it all worthwhile. In the back of my mind, my hair wasn’t that important, what was important is knowing it will help Rainbow Trust.”...

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  • Summertime Picnic letter to the editor

    Now that the summer holidays are here, parents (and grandparents) everywhere are hunting out activities to keep the children occupied – me included! Rainbow Trust Children’s Charity has launched a fun, simple, summer activity called the Summertime Picnic. The idea is straightforward - host a picnic and ask friends and family to make a donation to Rainbow Trust. It can be a picnic in the garden, the park or even inside on a carpet, weather depending. The Summertime Picnic is about enjoying quality time with your family and Rainbow Trust understands just how precious time can be as we support families who have a child with a life threatening or terminal illness. We match families with a Family Support Worker who provides emotional and practical support amid the chaos of medicines, hospitals and endless appointments. Rainbow Trust has a free online ‘Picnic Pack’ as well as ideas, recipes and games for a wonderful afternoon with friends and families. Just click here to start planning yours. Emma Haines, Rainbow Trust Director of Marketing and Fundraising

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  • Hanover Dairies funds Centre Parcs holiday for families with seriously ill children

    Pictured above: Amy and Darren Tate with their three-year-old son Jake, Hanover Dairies owner Trevor Hanover and Hanover Dairies Managing Director Tony Baldwin. Hanover Dairies in Blaydon, Tyne and Wear, has treated four families supported by Rainbow Trust, to a trip to Centre Parcs. The company, which supplies milk across the north east, has raised over £200,000 for Rainbow Trust since 2008. Its owner Trevor Hanover, a Rainbow Trust patron, has personally funded the trip throughout June and secured sponsorship from Terry Daniels from London property company Appointmoor Ltd so families could have an unforgettable time together at the Whinfell Forest park, Cumbria. Each family was given £1,000 spending money and chauffeured to and from Whinfell Lodge for a true VIP experience for their week’s holiday, courtesy of Green Mountain Travel of Cramlington. As one family left the park they met the next family as they arrived for their break. Trevor was named a ‘Point of Light’ by former Prime Minister David Cameron for his tireless fundraising for us in 2016, plans to send more families to Centre Parcs every year. Trevor said: “It was unimaginable to us what these families go through and what they have to deal with...

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  • RideLondon cyclists ride to victory raising £42,000

    50 Rainbow Trust supporters took part in RideLondon on Sunday 30 July, raising an amazing £42,000 for seriously ill children and their families. The competitors began their 100-mile challenge at the Olympic Park in Stratford, riding through central London into the Surrey countryside and finally completing the route in Westminster. With Rainbow trust cyclists riding quickly and enthusiastic support from Rainbow Trust cheering squads, in Surbiton, Leatherhead and Dorking, the fundraiser was a huge success. One cyclist Godfrey Haire, a dad from Redhill supported by Rainbow Trust, who is preparing to donate a kidney to his seven-year-old son Henry said: “This event has been really rewarding for me and everyone else here and I’m sure that the money we have all raised together today will contribute massively towards Rainbow Trust care programs both locally and all across the country.” Emma Haines, Director of Marketing and Fundraising at Rainbow Trust, said: “It’s great to see our Rainbow Trust supporters taking on the challenge of RideLondon. I would like to thank them and the Rainbow Trust volunteers cheering them on today. We have a care team in Leatherhead which supports local families across the region. All the money raised today will really...

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  • The need to tackle high funeral costs

    Families adjusting to the death of a child experience much grief and distress. Finding the money to pay for a funeral can be an added source of stress. Rainbow Trust welcomes a consultation from the Department for Work and Pensions which proposes improvements to the state support which some families can claim towards the cost of a funeral. However, Rainbow Trust remains deeply concerned that grants will still only cover a proportion of the overall cost. The cost of funerals has risen more than 90% in a decade, with ‘funeral poverty’ recognised as a growing issue. The average price for a cremation now stands at £3,214 and £4,136 for a burial. Prices have been increasing at four times the rate of inflation, with many bereaved people going into debt because of the cost. Families on low incomes can apply to a fund called the Social Fund. This can provide a grant towards the cost of a funeral for a child or adult. However, this grant now only covers an average of around 37% of the overall bill. Making a claim can be a slow and complex process and can leave parents confused and frustrated. The new consultation seeks feedback on...

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  • Top tips for a successful picnic

    Whatever the weather, a picnic is a perfect excuse to get everyone together and this summertime, whether you decide to head to the park or prefer to stay in and camp out on your living room floor, we’re calling on you to do just that. Gather your loved ones and help raise money for families caring for a seriously ill child. Great company, delicious food, what isn’t there to like about picnics? For those in need of a little inspiration, here are a few tips to help make sure yours is a walk in the park. Choose your location The local park, your garden, the beach. Indoors or outdoors, so long as you have space for a blanket or two, you can hold a picnic pretty much anywhere! Try and pack light or, if you do have lots to carry, make sure your perfect picnic spot is easy to get to. Think outside the sandwich Although a regular in the picnic basket (and quite rightly so!) branch out from the humble sandwich and try a few new culinary delights that are easy to share. Not only will they impress, but they’ll go further too. Click here for some rainbow themed...

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  • Morrisons Foundation funds Rainbow Trust drop-in groups

    Rainbow Trust celebrates a funding boost following a £3,000 grant from the Morrisons Foundation. The donation will be used to run our drop-in groups where families of children with life-threatening illnesses can meet with people in similar situations, share their experiences and build relationships to help them through difficult times. Sarah, a mum supported by us, said: “These sessions help families to meet other people facing similar challenges and give children the opportunity to play with Family Support Workers who really understand their individual needs. They are brilliant.” The cheque was presented to our employees on behalf of the Foundation by Kay Goacher, Store Manager of Weybridge Morrisons, on Friday 30 June. Kay said: “We were delighted to give this cheque to a charity which is supporting people in our area.” The Morrisons Foundation was set up by Morrisons’ supermarkets in 2015 and gets most of its funding from the sale of single-use carrier bags. Since launching over £10 million has been donated for charity projects across the country. Emma Haines, Director of Marketing and Fundraising at Rainbow Trust, said: “We are really grateful to the Morrisons Foundation for supporting our work and would like to thank them for their...

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  • How to survive The Nuts Challenge

    This gritty, exhilarating and often very muddy adventure race is well known for its challenging obstacles. But how do you make sure you get to the finish line? We asked some experienced ‘nutters’ for their top tips for anyone taking on this ultimate assault course.Don’t wear your favourite trainers - while most trainers can survive a washing machine, wearing your brand new white Nikes isn’t recommended. They will get muddy. Very muddy. It’s also important you tie your shoes on tightly as you may, quite literally, get stuck in the mud! Take warm clothing - without giving too much away, you’re likely to face a water obstacle challenge, which means when you finish you’re going to be wet and get cold pretty quickly. Make use of the changing area so that your dry clothes and towel are easily accessible. If you have them to hand, finger less gloves are also a plus, they keep your hands warm but won’t hold you back. Bring bin bags – in case you haven’t already figured it out, it’s going to get messy. Make sure you have a bin bag or two for your dirty clothes and trainers once the race is over. Be...

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  • Summertime Picnic: what's it all about?

    Our Summertime Picnic is a nationwide fundraising event where we ask people across the UK to host their own picnic, using the materials we’ve provided, to raise funds for Rainbow Trust. Every day more families are told the devastating news that their child has been diagnosed with a life-threatening condition. The impact on the child and their family can be devastating, so when they need someone to turn to, Rainbow Trust is there. By taking part in our Summertime Picnic, you’ll make sure that Rainbow Trust can be there for seriously ill children and their families. Hosting a Summertime Picnic is a great way to help support us because it’s fun, easy to prepare and a great excuse to feast! You can get your Picnic Pack here. It makes everything, from inviting your friends to raising money, a walk in the park. Whether you’ve raised £5 or £500, we’d love to see your Summertime Picnic so make sure to share any photos you take on our ‘latest news’ page, or tweet them to us at @RainbowTrustCC. Aimee, Phoebe’s mum said: “Having someone there who you can trust with your child is amazing, I don’t know what we’d do without Amelia...

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  • Florrie completes the World Marathon Majors to raise an awesome £2608

    Florrie Maxwell uses her 6 World Marathon Major places to fundraise £2608 to support seriously ill children and their families. Florrie Maxwell completed this incredible challenge in eight months, completing a marathon in Berlin, Chicago, New York, Tokyo, Boston and London, running a total of 157.2 miles, as well as facing a variety of weather conditions from torrential rain and strong winds in Boston to the hottest London Marathon on record! Each run bought along a multitude of challenges, a tough hilly run and numerous long bridges without any cheering support from the public in New York presented a challenge, but the reason to run encouraged Florrie through the tougher miles. Florrie said: “I managed to see a rainbow through all of the skyscrapers which reminded me why I was running.” Inspired by a 10 year old friend who sadly became seriously ill with cancer, Florrie was inspired to help families and children in similar positions. Overall she raised an outstanding £5038, split between Rainbow Trust and the Multiple Sclerosis Society. Florrie’s fundraising will enable Rainbow Trust to provide 113 hours of practical and emotional support to a family caring for a terminally ill child, helping them make the most...

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  • Mum of Bradley Lowery commends charity's valuable work

    The mother of Bradley Lowery, who died of a rare cancer last year when he was six and captured the nation’s heart, has spoken about the importance of raising awareness of Rainbow Trust Children’s Charity, to help other families caring for a seriously ill child. Speaking at Rainbow Trust’s annual Staff Conference in London, and as the first anniversary of Bradley’s death approaches on 7 July, Gemma described how Rainbow Trust has helped to keep her son’s memory alive. Gemma explained how when Bradley was first diagnosed with a neuroblastoma at 18 months old, she did not think she would need any support outside of the family. “As life went on we were stuck in hospital trying to save our child so I took the offer of support from Rainbow Trust up,” she told the audience, which also comprised other families supported by the charity. The Lowery’s Family Support Worker, Monica, has supported the family for more than five years and still sees them regularly. “Monica was amazing,” Gemma said. “She took Bradley out on fun days and she would come so I could have a few hours of fresh air and normality. At one stage during Bradley’s illness I...

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  • Lockton chooses Rainbow Trust as charity partner

    We have been selected as Lockton‘s UK Associates’ charity partner for 2017, a collaboration that will see the company raise funds and awareness for the charity, which supports families caring for a child with a life threatening or terminal illness. Lockton is the world’s largest privately owned insurance brokerage firm and is passionate about giving back to the community. Simon Coleman, CEO at Lockton said: “Lockton is delighted to be supporting the Rainbow Trust Charity in 2017 and is looking forward to a successful partnership” Zillah Bingley, CEO of Rainbow Trust, said: “We are absolutely delighted to have been chosen as Lockton’s Charity of the Year Partner. Thank you so much to everyone that voted for us. The money that Lockton is aiming to raise will have a huge impact for Rainbow Trust and our support of families who have a child with a life threatening or terminal illness” Our corporate fundraising team look forward to meeting with the Lockton Charity Champions very soon, and kick-starting what promises to be an exciting and engaging partnership.

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  • Tom's Final Peak

    This July Tom will tackle the final Nuttall in his nine-year epic challenge! Nine years ago when persuaded to join some friends on a climb of the Yorkshire 3 Peaks, Tom didn’t realise this initial challenge would lead to him climbing all of the English Nuttalls. The Nuttalls are mountains more than 2000 feet in height, by the time Tom finishes his challenge he would have climbed 258 of them. When Tom summits Scafell Pike, the last peak in his challenge and the highest mountain in England, he will have covered over 900 miles and ascended the equivalent height of around 8 Mount Everests. Along the way, he has been joined by 24 friends and family, as well as a dog! Tom has a special reason for choosing to fundraise for Rainbow Trust as one of his two chosen charities. His nephew Joseph has been in and out of the hospital for around the last 5 years since the age of 3, receiving chemotherapy and other treatment for a brain tumour, during this time Rainbow Trust has supported the family providing practical and emotional support where ever it is needed. If you would like to find out more about Toms...

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  • Children’s Funeral Fund to become a reality this month

    Rainbow Trust Children’s Charity warmly welcomes that a start date for the Children’s Funeral Fund has finally been set, 16 months after Prime Minister Theresa May committed to making children’s funerals free. From 23 July, bereaved parents, guardians or carers will no longer pay the fees charged for a cremation or burial of a child under 18, under details published by the Ministry of Justice. The scheme will reimburse burial authorities, cremation authorities and funeral directors directly, and the fund will be available regardless of the family’s income. A contribution to the cost of a coffin will also be available. Rainbow Trust Children’s Charity Chief Executive Zillah Bingley said, ‘‘The implementation of this fund is a huge victory for campaigners, and means that around 4,000 families each year will no longer risk being pushed into debt by the cost of their child’s funeral.” “When a child is seriously ill, families often experience financial difficulties, for example if one parent has to give up work to care for their child. If a child dies, parents are often unprepared for the high cost of a funeral and families risk taking on debts when they are vulnerable and trying to come to terms...

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  • Today you can help more families like Natalie’s

    Will you help us raise £21,360 this summer so 12 families can receive respite and support by a Family Support Worker like Shelly for a year? There’s something you can do right now to help ease the worries, fears and frustration experienced by parents who are unable to leave hospital as they look after their seriously ill child. A family’s world can be turned upside down in seconds. When Dominic was only ten-weeks-old, he was diagnosed with a cancerous mass on his brain, spinal column and central nervous system. Doctors told his parents that this was extremely rare and very unlikely to be treatable. No parent ever expects to go through a scenario like this, to hold their ten-week-old baby and hear that they may have just weeks to live. Biopsies and tests revealed that chemotherapy drugs might help Dominic, but that they would leave him open to infection. So, Natalie, Dominic’s mum, stayed with him in hospital for the next five months, leaving Dominic’s big brother, five-year-old Zach, at home with dad. Dominic couldn’t leave the ward at all and Natalie felt very isolated. Her days were governed by the hospital ward, schedules and Dominic’s treatment, without many familiar...

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  • Rainbow Trust backs urgent call for fair and sustainable funding

    Rainbow Trust Children’s Charity backs today’s call for fair and sustainable funding for children’s palliative care, and urges for any increase in funding to be equitably shared between services. Calls for fair and sustainable funding for children’s palliative care services have received national media attention as a result of a new survey examining how children’s hospices and community palliative care services are funded in England. Children’s hospices are calling on government to make sure NHS England honours its commitment to protect and increase children’s hospice funding. However, children’s social palliative care support is currently ineligible for the annual hospice grant. Rainbow Trust Chief Executive Zillah Bingley said: ‘We absolutely agree that it is simply not sustainable to expect children’s palliative care services to be funded by charity reserves and the generosity of the public alone. It is unsustainable for any child palliative care service – whether a community service or a children’s hospice - to bear the brunt of rising costs and a challenging funding environment without more support from national government and NHS England. The grave risk is that more families may find themselves unable to access the support that they need, even though the numbers of children and...

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  • Six-year-old’s sponsored silence is golden

    A six-year-old ‘chatterbox’ from Chalfont St Peter, Buckinghamshire, remained tight-lipped for a six-hour sponsored silence, raising £500 for families with a seriously ill child. Lucy Freegard liked the name of Rainbow Trust and was further inspired to raise money for it after reading some of the family stories on the charity’s website. She achieved her challenge at home on Sunday 26 May. “Lucy told me she wanted to raise money for children’s charities and we looked at various ones,” her mother Sarah said. “She liked the idea of Rainbow Trust and it was the name that drew her to it and I told her more about the charity and she liked it.” Armed with a biro to pen any requests for her family, Lucy passed the time playing charades, drawing rainbows, playing on the trampoline in the garden and reading. “She was jumping for joy on the trampoline after she completed it, she was so pleased with herself,” Sarah said. “She’s the biggest chatterbox and whenever she asked people for sponsorship they all laughed, in a nice way, thinking she wouldn’t be able to do it because Lucy does love to chat. We are so proud of her. Just the...

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  • Meet Marie, our Celebrity Support Volunteer in the PR team

    Hello, I’m Marie and I’ve been volunteering at Rainbow Trust since March this year. I worked in the Public Sector for 36 years and spent most of my career in HM Treasury. I spent the last 10 years of my career at the Parliamentary and Health Service Ombudsman initially as an Investigation Manager before moving to the corporate side as Director of Service Delivery. Five years ago, I took redundancy, aiming to have a couple of months off to recharge my batteries. I took up walking to get fit and help me unwind and I discovered that I loved it. I love being outside whatever the weather and watching the seasons change. I got a dog to keep me company on my long walks; he was great fun and kept me fit so I got another. Before I realised it I had gone from being a fulltime worker and commuter, doing 10 hour days, to being a walking mad, outdoor loving, dog owner who just couldn’t sit still. Needless to say, I haven’t found time to look for a fulltime job! How did you first hear about Rainbow Trust and why did you decide to volunteer? I was aware of...

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  • Meet Molly, Silver Duke of Edinburgh award volunteer

    The DofE Award recognises extra-curricular activities undertaken by young people outside of their academic achievements, covering sport, skill development, physical challenge and volunteering – we offer students the opportunity to complete their volunteering section with us by joining our weekly sessions held at our Head Office. Hi, I’m Molly and I am 17 years old. I currently attend Godalming College in upper sixth and am hoping to go to Loughborough University to study sports science. I love playing and watching sport as well, especially football. I’ve been working on my Duke of Edinburgh’s Award and one of the sections involves spending time volunteering for a local cause. My sister had volunteered at Rainbow Trust for her DofE award, and really enjoyed the Tuesday volunteer nights so suggested that I did the same. Different members of staff attend the Tuesday volunteering sessions so it’s interesting to find out about all the different departments involved in running Rainbow Trust. I’ve really enjoyed spending time with the staff that work at Rainbow Trust as everyone is so welcoming and friendly. I’ve also gained good life-skills which would benefit me in the workplace. Every week is something different which makes it interesting and keeps...

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  • Kennedys Law take on the Three Peaks Challenge

    An intrepid team from Kennedys Law will be embarking on a 3 Peaks Challenge on 28th June 2019 in aid of Rainbow Trust, their current charity partner. The team of 22 will be climbing the three highest peaks in the UK- Ben Nevis (1345m), Scarfell Pike (978m) and Snowdon (1085m) and are currently in training for what will be a real test of endurance. The team is comprised of staff from 5 of Kennedys UK offices and they are currently over halfway to their fundraising target of £12,600.00. This isn’t the first summer fundraising challenge that Kennedys have set themselves, having previously undertaken a London to Paris Bike Ride, Dragon Boat Race, cycle relay between offices and a Yorkshire 3 Peaks Challenge. Kiah Ashbarry, Trainee Solicitor, Manchester, told us a little about what the challenge means for her: “I am taking part as my daughter completed the Bitesize Battlefield Challenge last year and raised an impressive amount for Rainbow Trust, so I wanted to do my bit for the charity too. The Three Peaks Challenge is something I have always wanted to complete – I’m a glutton for punishment! I am currently training for the Manchester 10K so I am...

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  • Sector faces perfect storm of rising demand, rising costs and uncertain finances

    Rainbow Trust Children’s Charity shares the grave concern among the wider children’s palliative care sector that statutory funding is not keeping pace with the rising cost of delivering the care that children and their families need. The Acorns Children’s Hospice group in the Midlands has recently begun a consultation with staff on a proposal to close its Walsall hospice, while Shooting Star Chase in Surrey has stated that it plans only to support children and young people in their final year of life unless local and national government funding doubles. Zillah Bingley, Rainbow Trust Chief Executive, said: “Children’s palliative care has been ignored for too long, with community and hospice services alike facing a perfect storm of rising demand and rising costs, alongside uncertain finances. For Rainbow Trust Children’s Charity, years of sustained cuts to local government funding mean that we now need to fundraise more than 97% of our income in a challenging economic environment, with no central government funding. This is despite the fact that the number of families needing our support is increasing year on year, as more seriously ill babies survive birth, and as more children live longer with their complex conditions owing to advances in...

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  • FSB raises over £30,000 for Rainbow Trust

    ​Rainbow Trust was honoured to be the Chairman’s Charity of the Year for 2018/2019, as selected by Mike Cherry of the Blackpool-based Federation of Small Businesses (FSB). Over the last 12 months, the organisation has undertaken many fundraising events, from Quiz Nights to half marathons, along with a spectacularly successful poker night held at the Blackpool Grosvenor Casino. One member even took on the challenge of completing an epic 256-mile bike ride from FSB’s Blackpool HQ to their Westminster office. The final fundraising event in the calendar was the FSB’s Celebrating Small Business Awards UK Final 2019, which took place on 23 May 2019 at Battersea Evolution. Attending guests donated an incredible total of £5,600, which brought the charity partnership to a close. The grand total donated by FSB and its members reached a tremendous £31,500.00 over the year. Mike Cherry, FSB Chairman, said: “It’s been our absolute pleasure over the past year to be able to support such a worthwhile charity such as Rainbow Trust. Staff and members have really pulled together and taken part in everything from a cycle ride from FSB head office in Blackpool to our Westminster Office, as well as bake sales and fitness challenges...

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  • #GiveItBack campaign launches

    A major new campaign is calling on the Chancellor to plug a £434 million gap in funding for social care for disabled and seriously ill children. Launched today, in partnership with The Sun newspaper, the Disabled Children’s Partnership’s high profile ‘Give It Back’ campaign builds on a survey of more than 3,400 parents in April. The shocking survey findings reveal the full impact that a lack of support has on families with disabled or seriously ill children:Only 4% of parents say they receive the right support to care for their disabled children safely. 53% of parents have been forced to give up a paid job to care for their child. More than a third (37%) of parent carers say their disabled or seriously ill child has missed school or college because the staff or services are not available to support them. A third (33%) of parents/ carers say their disabled or seriously ill child has been in unnecessary extra pain because the right equipment, doctor or health service hasn’t been available. Zillah Bingley, Chief Executive of Rainbow Trust Children’s Charity, said: “We are proud to be part of such an important campaign. Families with disabled and seriously ill children have...

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  • Volunteer awarded Room to Reward hotel stay to mark Volunteers Week

    To mark Volunteers Week which starts on 1 June, Bournemouth resident Ruth Hunter is looking forward to a two-night stay at a hotel in recognition of her dedication volunteering for Rainbow Trust Children’s Charity. Former primary school teacher Ruth is a Rainbow Trust Family Support Volunteer who dedicates between four and six hours each week to supporting families who are supported by the charity’s Southampton Care Team, which covers Dorset; Hampshire; West Sussex, South Wiltshire and the Isle of Wight. Ruth said: “It came as a total surprise to be given such a fantastic award by Rainbow Trust and the charity’s partner, Room for Reward. I almost deleted the email telling me I’d won as I assumed it was spam! It is so lovely to feel appreciated and I am very excited to spend a weekend away with my husband Andy and daughter Flossie.” Rainbow Trust enables families who have a child with a life-threatening illness to make the most of their time together. It provides expert practical and emotional support, wherever possible, for as long as it is needed. Rainbow Trust pairs each family with an expert Family Support Worker who becomes a trusted and constant person in family...

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  • The day my life changed forever

    My family have been supported by Rainbow Trust since my son was diagnosed with Leukaemia and our lives changed forever. We are an ordinary family, Mum, Dad and three sons, Marcel, Eddie and Arthur. Until then, we had been fortunate with our children; they were all in good health and Arthur had never been to hospital. Little did we know, this would all change. It was the start of the new school year; Marcel was due to sit his final A Level exam; Eddie had started Secondary school and Arthur was focused on getting 100% school attendance so he could become a Junior Governor. Towards the end of August, we noticed that Arthur had bruising on his body following our summer holiday. We had allowed Eddie and Arthur to go to a Bouncy Castle, and Arthur came back covered in bruises and lots of exciting stories. We expected them to clear up, but they got worse. Then, one morning, he woke up with his mouth covered in dried blood and swollen gums. We thought he hadn’t been brushing his teeth properly so, we went to the Dentist, hoping he would get a telling off and have them professionally cleaned. But...

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  • Crafter’s Companion’s rookie runners take on The Great North Run

    Nine novice runners, from Crafter’s Companion in Newton Aycliffe, will complete the Great North Run in the hopes of raising more than £3,000 for seriously ill children and their families. Sunny Pahal, Amy Gray, Katy Jones, Chantel Gray, Paige Todd-Archbold, Jade Craggs, Sarah Grainger, Hillary Delve and Di Kinrade work across different areas of the company including product development, marketing, trade and social media. The team will join more than 40,000 runners taking part in the Great North Run on September 8. Apart from Sunny, who has already participated in two half marathons this year for Rainbow Trust, this is the first time that the group has trained for a running event. Marketing manager, Meg Lidster, who will be nine months pregnant at the time of the Great North Run, is also fundraising for the charity by walking the equivalent 13.1 miles during the summer. Sunny discovered Rainbow Trust and was inspired by the charity’s work and how it aligned with Crafter’s Companion’s ethos to support community causes. After showing the charity and its work to the rest of the company, the group of runners assembled to support the dozens of families that use the service in the North East...

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  • Choose kindness with Smiggle

    Rainbow Trust is thrilled to announce that we have partnered with colourful, fun children’s stationery brand Smiggle, to bring smiles and giggles to children who need them most! For 5 weeks from 24 April 2019, Smiggle will be running their ‘Choose Kindness’ campaign, encouraging their customers to write a Kindness Note to a seriously ill child and their family, and to post this in the in-store post boxes. These notes will be gathered up at the end of the campaign and distributed to the children and families supported by Rainbow Trust, alongside a bag of amazing Smiggle goodies! We are so pleased that Smiggle have chosen to work with Rainbow Trust on this initiative, that not only provides a wonderful gift for the children in our care, but also encourages children in the wider community to ‘choose kindness’ and share a kind word for others. Oonagh Goodman, Director of Fundraising and Marketing at Rainbow Trust, says We are incredibly grateful that Smiggle has selected Rainbow Trust to benefit from the ‘Choose Kindness’ campaign. Support like this is vital in helping us raise awareness of what we do and the help that our Family Support Workers provide to families with a...

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  • Giveacar helps us keep Family Support Workers on the road

    Rainbow Trust have been partnered with Giveacar since 2011 and are pleased to share that for the month of July 2019, we are their charity in focus. Giveacar is a not-for-profit social enterprise that turns unwanted vehicles into cash for charity. They arrange a free collection, then either sell your car at auction or scrap it, with the proceeds raised (minus service fees) going to charity. This gives people an ethical, hassle-free way of getting rid of an unwanted car - it’s a win-win! We have received over £5,000 through the generosity of our supporters who have used Giveacar’s service. This could pay for 202 hours of support to families with a seriously ill child. Giveacar says; “Giveacar is working closely with Rainbow Trust to help raise funds that support ill children and their families. Rainbow Trust supports families who have a child aged 0-18 years with a life threatening or terminal illness and need bespoke support. The work they conduct is a vital source of positivity meaning your beaten-up family car is having a measured and direct impact on a child’s health and future.” We believe we can raise even more valuable funds this way, and help even more...

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  • Minister responds to Rainbow Trust’s open letter

    Care Minister Caroline Dinenage MP has formally responded to Rainbow Trust’s open letter on sibling support which was delivered to the Department for Health and Social Care ahead of international sibling day in April. The open letter had been signed by more than 200 parents, adult siblings and professionals. It called for all brothers and sisters of seriously ill children to be able to access high quality sibling support when required, before their education, mental health and wellbeing are more seriously affected. In a detailed three page response, the Minister writes, ‘I appreciate your concerns about the level of support available to people with seriously ill siblings, and I would like to thank you and all those who co-signed your letter for highlighting the support they need. I can only imagine how distressing it must be for children and young people under such difficult circumstances.’ The response continues, ‘…. I know that Rainbow Trust works tirelessly to support families affected by the illness of a child, and I would like to thank your volunteers and support workers, who help to make life as manageable as possible for families caring for a seriously ill child.’ The Minister goes on to reference...

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  • IWFM selects Rainbow Trust as as their Charity Ball beneficiary

    The Institute of Workplace and Facilities Management (IWFM) are delighted to be supporting Rainbow Trust Children’s Charity at this year’s IWFM Charity Ball. IWFM is a community of over 17,000 workplace and facilities management professionals and have been holding the charity ball for a number of years, which is a networking and fundraising event for the industry. Rainbow Trust has been fortunate enough to be selected as the beneficiary charity for the event, which is taking place this year on 04 July 2019. Mark Muncaster and Sarah Marles, IWFM North Region charity ball organisers, said: “Whilst deciding which charity we wanted to work with this year, we heard of the amazing work that The Rainbow Trust do and we had no hesitation in getting involved in fundraising for them. Rainbow Trust supports families who have a child with a life threatening or terminal illness. With an estimated 49,000 children and young people in the UK living with a life limiting or life-threatening condition, they really do need our support, and we are delighted to be able to help.” We are thrilled to be working with the IWFM team and are looking forward to what is sure to be an enjoyable...

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  • Let's talk about death

    Death and dying is still a taboo topic because people are fearful of how to tackle it. This feeling is exacerbated when it’s a child that has died or is nearing the end of their life. Rainbow Trust supports over 2,500 families with a seriously ill child and since the start of 2019, 27 children supported by Rainbow Trust have died – more than one per week. Bereaved families tell us that their friends often disappear when their child has died because they don’t know what to do. So they do nothing or they cross the road to avoid an awkward situation. But it’s always better to do something, even just to say that you don’t know what to say – families appreciate the acknowledgement. Rainbow Trust’s Family Support Workers play a crucial role in helping families cope. Grief is not measurable and affects everyone differently so Rainbow Trust provides families with an outlet for their emotions. We are supporting Dying Matters Awareness Week from 13-19 May to help promote the importance of talking more openly about dying, death and bereavement. So please, make that call or knock on that door to let bereaved friends know you are there. Together...

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  • Huge disappointment at delay to start of Children’s Funeral Fund

    Despite urgent pleas from MPs and charities, Ministers are still not able to provide a date for the Children’s Funeral Fund to start operating, more than a year after its announcement. Speaking in the House of Commons, Carolyn Harris MP, whose son died suddenly at eight years old, passionately set out her disappointment at the lack of progress since the Fund was announced by Prime Minister Theresa May. In the last year, more than 4,000 children will have died whose families would have benefitted from the Fund. Carolyn Harris said, ‘I did not expect more than a year later to be waiting for her to honour the commitment she made. I am struggling even to find the words for how disappointed and hurt I am that we have yet to see the fund become a reality.’ A number of other MPs added their voices to the debate in support. Responding on behalf of government, Justice Minister Edward Agar expressed his admiration for Carolyn Harris’ campaigning, and said, ‘The scheme that we are envisaging will not just bring England into line with broadly comparable arrangements in Wales and Scotland. I am keen that we go a bit beyond that where we...

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  • Candice Brown calls on families to make a ‘Great Rainbow Bake’ to help seriously ill children

    Great British Bake Off winner Candice Brown is fronting our Great Rainbow Bake campaign and calling on families to take part and get messy to raise vital funds and awareness to support families caring for a seriously ill child. Now in its second year, the Great Rainbow Bake runs from Bank Holiday Monday 6 May until 12 May and invites families and friends to celebrate spending precious time together by taking on the challenge of rainbow baking, having fun while supporting Rainbow Trust to give families quality time together when it matters most. Candice is encouraging people to ‘Bake and Donate’ either by making a donation themselves or selling their cakes to family, friends and colleagues. She is calling on people to visit Rainbow Trust’s website and read the inspiring rainbow recipes to suit all budgets and skill levels, including rainbow cakes from Candice and fellow Great British Bake Off winner Nadiya Hussain plus cake kits by Craft & Crumb to purchase. Candice said: “My top tip for success with your Great Rainbow Bake is to just have fun, get messy and get baking. Don’t worry if it doesn’t turn out perfectly – we just want you to have loads...

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  • South Shields girl Phoebe fronts Great Rainbow Bake Campaign

    Phoebe Doneghan, aged six, is fronting the Great Rainbow Bake Campaign to help raise funds to support families with a seriously ill child. Phoebe, who was diagnosed with Fanconi Anaemia in March 2018, an extremely rare disease that affects the bone marrow, has been supported by Rainbow Trust for the past year and is delighted to have been chosen to be the face of the baking fundraiser. The Great Rainbow Bake, which is also supported by 2016 Great British Bake Off winner Candice Brown, takes place from 6 to 12 May and invites people to take on the challenge of rainbow baking with family, friends or colleagues to raise vital funds to support families with a seriously ill child when it matters most. Phoebe’s mum Lauren said: “It is fantastic that Phoebe is well enough to front the Great Rainbow Bake Campaign and it’s an opportunity for our whole family to show our thanks to Rainbow Trust for all the support we have been given over the past year.” Shortly after Phoebe’s diagnosis she underwent a gruelling bone marrow transplant. Incredibly her Dad Tom was a perfect match for his daughter and was able to donate bone marrow to her...

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  • Henry selected to represent Rainbow Trust for Chris Evans' Carfest

    Five young people inspire you to #DoMoreGood for five charities at this year’s CarFest. CarFest, the family festival created by radio presenter Chris Evans, is on a mission to Do More Good and ensure that everyone who attends the festival this year gains a better understanding of where the money goes and how their support can directly help young people across the UK. CarFest, the family festival created by radio presenter Chris Evans, is on a mission to Do More Good and ensure that everyone who attends the festival this year gains a better understanding of where the money goes and how their support can directly help young people across the UK. As part of their mission, CarFest today introduced five young people who each represent one of the five charity partners who will receive funds from this year’s event. Their stories bring to life the impact that CarFest’s fundraising efforts can have on an individual, highlighting the invaluable work of each of the charity partners selected to receive funds this year. Nine-year-old Henry from Surrey is the face of Rainbow Trust Children’s Charity. Henry is awaiting a kidney transplant from his Dad because he was born with a rare...

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  • Spring in to your Easter fundraising

    As spring finally returns, Easter is the perfect opportunity to turn over a new leaf with some fresh fundraising. Check out our cracking Easter fundraising ideas to help put a spring back in your step.How many mini eggs in a jar? An adaptation of an old favourite, instead of using sweets, put chocolate eggs in the jar instead to give it an Easter twist. Simply source a jar and charge people per guess – winner takes a all!Easter picnic Easter Egg Hunts usually happen outdoors, but don’t let that stop you if April showers threaten to put a stop to your plans. School grounds, the office or even your own home can make perfect hunting grounds. Buy some small Easter eggs and hide them or use cardboard versions that can be traded in for prizes.Easter bake sale Think hot cross buns, bunny shaped biscuits, chocolate egg rice crispy cakes. Raising money at work? Add an egg-stra fundraising option by holding an Easter bake off.Bunny bingo Bingo tickets can be priced at £1 each with. The first person to get a line wins an Easter egg or bunny themed prize.Easter bonnet competition Easter wouldn’t be complete without an Easter bonnet competition...

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  • Siblings deliver letter to heart of government

    Rainbow Trust’s call for sibling support to be valued and funded more highly was delivered by siblings to government ministers in person this week. Siblings Hannah, Rose and Eddie, along with Rainbow Trust CEO Zillah Bingley, delivered an open letter to government which has now been co-signed by more than 200 parents, professionals and supporters. The letter was delivered to mark international Siblings Day on 10 April. It asks Care Minister Caroline Dinenage MP, and Children and Families Minister Nadhim Zahawi MP, to ensure all children and young people with seriously ill brothers and sisters have access to high quality sibling support when they need it – before their education, mental health and wellbeing are more seriously affected. Many co-signatories have left moving comments about their own experiences as parent or sibling. Hannah, whose brother has a rare genetic condition, said Rainbow Trust had made a big difference. “I wanted to help deliver this letter so that more brothers and sisters of really ill children can be helped by Rainbow Trust. They really listen to you and make things better.” Zillah Bingley said: ‘We’re in Westminster today to deliver a powerful message to ministers about the huge value of supporting...

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  • 100 miles and 10 mountains

    TEC Reports CEO, Charles Griffin takes on a 10 Peak Challenge. Charles, CEO of TEC Reports, has set himself a challenge to raise £5000 to help I Love Claims hit their £1 million target for Rainbow Trust. Kick starting his challenge with a ‘warm-up’ trek of 100 miles in 5 days along the West Highland Way, Charles has now completed the first of 10 peaks! Mount Snowdon was the first testing challenge. The 8.9 miles and 3,560ft climb were made a little easier by the beautiful weather and the climb was conquered in 3 hours. Charles said: “On such a beautiful day the views from the top of Snowdon were breath-taking and the journey was pretty epic too. As you climb higher, the views across the valleys and lakes unfold, and there are plenty of opportunities for photo stops, allowing you to catch your breath.” You can check out the route and relive the climb here. Next up, Charles plans to scale Ben Nevis, a 1345m climb and the tallest mountain in Scotland. Followed by Cairngorm 1245m, Braeriach 1296m and Scafell Pike 978m. During his challenge, Charles will scale over 16,000 meters! Two challenges in and having already raised £500...

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  • Helping siblings cope

    A child’s life changes dramatically when their brother or sister is diagnosed with a serious illness. We know from speaking to siblings we support that their lives can be turned upside down, while parents understandably rally to support the sick child and balance the demands of family life. Parents often tell us they feel really guilty, but are forced to focus on the sick child despite knowing how hard this is for their other children. How can we make sure that all children have the support they need? This National Sibling’s Day read as siblings share their thoughts and tips for how to help them cope with having a seriously ill brother or sister. “Don’t try to make me talk about what is going on. Subtle questions are ok, but I will talk when I am ready.” “Try to talk to me about the future, even if you can’t give me answers.” “Get to know me. Take time to talk to me and find out what I like and what’s going on in my life.” “Be honest with me, tell me what you can about my sibling’s health and make sure I know what days appointments are on and what...

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  • Twins survived ‘against the odds’ and home for Mother’s Day

    A mother supported by Rainbow Trust Children’s Charity, is looking forward to spending Mother’s Day with her twin daughters after doctors told her they probably would not survive. Ella-Mae’s non-identical girls, Bella and Ruby were born 14 weeks early, weighing 910 grams and 900 grams respectively. They have chronic lung disease, requiring 24-hour oxygen. Ella-Mae spent three months of her pregnancy in hospital or on strict bed rest to give her babies the best chance. Despite being told by doctors at her 12-week and 20-week scans that she should prepare for the worst, against the odds they survived. The twins moved out of Guys and St Thomas’s neo-natal ward and back to their Westminster home in mid-January and Rainbow Trust Family Support Worker Fiona has been supporting Mum, her fiancé Giovanni and the girls since then. Rainbow Trust has eight care teams of Family Support Workers across England, including two in London, helping families at home, in hospital and in the community, making life a little easier wherever they can. Fiona has been providing emotional and practical support to the whole family, helping them adapt to moving the girls back home, taking them to hospital appointments, helping the girls with...

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  • Meet Julie, Care Team Admin Volunteer for the Central London team

    Meet Julie, Care Team Admin Volunteer for the Central London team who has been volunteering for Rainbow Trust since August last year. Here, she shares her volunteering experience. I am 42, I live in South East London and have three children (5, 7 and 11 years old). Oh and two guinea pigs, which the kids promised to look after, I am yet to notice this. Prior to having my children I worked in the City for 12 years providing admin support. I love travelling and have been lucky enough to visit New Zealand, Cook Islands, Singapore and Cambodia within the last few years with the family. Unfortunately I really hate flying. How did you first hear about Rainbow Trust and why did you decide to volunteer? I first heard of Rainbow Trust whilst watching telethon. I thought the family support provided by the charity was so vital and obviously hugely appreciated by the families featured. I decided to try and find a charitable organisation to volunteer for part-time, I had the free time and wanted to do something worthwhile. I remembered Rainbow Trust, looked at the website and the perfect admin support role appeared! What do you enjoy most about...

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  • Rainbow Trust launches new partnership with Craft & Crumb

    We are thrilled to announce a brand new partnership with Craft & Crumb launching just in time for our Great Rainbow Bake campaign in May. Craft & Crumb is an award-winning company selling beautifully designed baking kits containing everything you need to bake homemade cakes, biscuits, cupcakes and other yummy goodies. Set up by two busy mothers, Louise Nicholson and Kate Horne, Craft & Crumb has taken the hard work out of baking delicious treats with family. Craft & Crumb kits come with the right quantities of everything you need to bake and decorate your cake, apart from a few basic fresh ingredients like butter and eggs. They even include disposable cake and cupcake pans to save on washing up! Louise Nicholson, Co-Founder of Craft & Crumb, said: “We are absolutely delighted to be partnering with Rainbow Trust to help make a difference to families caring for a seriously ill child. As mothers ourselves, this is a cause very close to our hearts and we hope to raise vital funds and awareness from our Rainbow Baking kits so that Rainbow Trust can continue the incredible work it does to support families who are facing the unimaginable” Oonagh Goodman, Rainbow Trust’s...

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  • Significant new pledges on children’s palliative care

    Following a parliamentary debate on children’s palliative care on Monday 1 July, Rainbow Trust welcomes a new government pledge to increase the annual Children’s Hospice Grant to £25 million by 2024 from its current level of £12 million. But this increased grant will not be open to community children’s palliative care services, such as that provided by Rainbow Trust. Instead, Care Minister Caroline Dinenage announced that NHS England will undertake “a needs assessment” to understand “whether additional investment is required where palliative care is provided by means other than hospices.” Rainbow Trust’s CEO, Zillah Bingley, responded urging the Care Minister and NHS England to act on this as soon as possible: “Last night’s funding announcement will have been met with a huge sigh of relief from hard pressed hospices, coming as it did on the day that yet another children’s hospice announced cuts to its services because of funding pressures. “However services such as Rainbow Trust will not benefit from the increased grant and we currently receive no funding from any Clinical Commissioning Groups (CCGs) or from central government. “It’s now vital that both Government and NHS England quickly address the gap in funding for emotional and practical support and...

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  • Meet Sarah, Family Support Worker

    Based in Essex, Sarah works with families in extreme and uncertain situations, so that they don’t have to manage alone. In doing so, Sarah often becomes a trusted and constant person in the lives of the families we work with. Sarah, who recently became a mum to twin girls, talks to us about what inspired her to become a Family Support Worker and what she feels is the most fulfilling aspect of her job. When did you become a Family Support Worker and what does it mean to you? I joined Rainbow Trust in 2013 and have been part of the Essex team for nearly 6 years. I have so much respect for the families that we support and find it humbling to be able to support them throughout their journey’s. Whenever people ask me what I do, I get ‘the look’ followed by, ‘I don’t know how you do it!’. The truth is, I love my job, it ’s a really unique situation when your days are so varied. Sometimes I can be driving a family to appointments, supporting them in hospital or helping at home. Other days I will be playing ninja tag, realising I’m not as fit...

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  • Rainbow Trust says ‘cheers’ to Above Brand

    Rainbow Trust were thrilled to be offered 23 cases of Martorelli Lab’s organic craft beer by Francesca Martorelli, Creative Director and CEO of Above Brand and Martorelli Lab. We decided to put these to the best use possible and asked Above Brand to deliver them to one of our corporate partners, Kennedys Law to support them with their fundraising. An intrepid team of runners from Kennedys Law will be taking part in the Virgin Money London Marathon in April, on behalf of Rainbow Trust, and had the idea of using the 600 beers to fundraise toward their sponsorship target. Francesca Martorelli said: “I decided to donate a good part of our Above Brand beers to charities I feel are close to my values. Children are our greatest treasure. They are our future. That’s why I contacted the fantastic Rainbow Trust Children’s Charity, asking them to make the most of the donation.” Thank you so much to Francesca for her generosity and for supporting Rainbow Trust. By using the beers for fundraising, we will be generating vital funds which go directly towards allowing us to continue supporting families with a seriously ill child.

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  • Remember A Charity Week 2019 is here!

    ​Today you can pass on something wonderful. Legacy gifts are so important to Rainbow Trust and have an incredible impact in the support we are able to offer children with life threatening illnesses and their families, for as longs as they need us to do so, both today and in the future. Paisley, Family Support Worker said: “As a Family Support Worker, I spend time with families who have a seriously ill child. Their world is turned upside down and it’s difficult for them to live normal lives in that situation. Gifts in Wills enable me to make each day a little easier for the whole family. I can spend time with the sick child, pick siblings up from school, accompany mum or dad to the hospital and provide important emotional support at a devastating time in their lives. Every gift in a will means my support can continue for as long as the family needs me.” A gift in your will, however large or small, would help us to continue to provide the support that families so desperately need for years to come. We will respect your wishes and decisions at all times and treat all enquiries and pledges...

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  • How do we help children open up to grief?

    How do children learn? By watching those around them, by experimenting, by making mistakes and trying again and by being guided. This is how they will learn to grieve as well. When a child experiences the death of a sibling after a serious illness, their life will already have been greatly impacted. They will have lost so much already: time with their parents, normal family life and a relationship with a healthy sibling. Children will have observed how adults express their emotions or not. They will have learnt how grown-ups react to questions about their sibling. Maybe they will have been excluded from the truth or overwhelmed by too much information. Together with their age and developmental stage their observations and experience of their sibling’s illness will have all been setting the foundations for how they will grieve. Every family will need to find their own way to experience and manage their grief, sometimes this will be guided by religious or cultural influences, however, it is something that can be prepared for. For example:Answering questions as honestly and simply as you can when your child asks. Creating an extended network around your child so that they can go to other...

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  • Long term partnership with Natta hits milestone of support

    This week we caught up with our friends at Natta Building Company to celebrate seven years of support, in which time the company and its employees have raised a whopping £60,000. Over the years the business has been actively involved in the charities clay shoot, race night and golf day, as well as entering teams into sporting events such as Brighton Marathon, Survival of the Fittest and more recently Rough Runner. Natta’s annual golf day has also benefited us for the last few years, which as well as raising funds has grown our profile in the construction sector and encouraged support from clients and suppliers. The company also contribute £1 for each observation card that is filled in on-site and for suggestions that are filled out and posted in the company ‘Suggestion Box’ at Natta HQ. As if all this isn’t enough, Natta employees also show their support to the charity by volunteering at many of our fundraising events in the community including bag packing in the local Sainsburys and more recently helping with Halloween activities at Chessington Garden Centre. Louise Bingham, our Corporate Partnerships Manager said: It is fantastic to celebrate this fundraising milestone with the company, we are...

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  • Dad and friend complete Mont Ventoux challenge for Rainbow Trust

    Dad Godfrey Haire, whose family are supported by Rainbow Trust, has just completed a year of gruelling challenges to raise funds for us. Godfrey and his friend Paul Taylor finished their epic year with cycling up ‘the most vicious mountain’ Mont Ventoux, in the French Alps, last month. Describing it as his biggest fear yet, Godfrey, and his Ride London partner reached the summit with a height of 1,909m on Friday 20 September in around three hours - at the top, they waved our banner. Battling vertical climbs in intense heat, the pair opted for the route with the steepest gradient. Godfrey said: “You’re riding in the clouds at that point, through big, open lunar-like landscape. Knowing I was doing it for Rainbow Trust and thinking of Henry and all the people who had sponsored me kept me going” Mont Ventoux is the legendary Tour de France favourite in the French Alps and Godfrey and Paul covered 22km with a height gain of 6,273 feet and an average gradient of 7.5%. Godfrey said: “It’s the equivalent of cycling up six Eiffel Towers or ten Box Hills. Even going downhill had its challenges as the last half an hour meant tackling...

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  • Parents need better psychological support when a baby dies

    Too many parents affected by pregnancy or baby loss are currently not able to access the psychological support that they need, according to a new report published to coincide with Baby Loss Awareness Week (9 - 15 October). In one survey, 60% of parents who experienced pregnancy or baby loss told charity Sands that they would have liked specialist psychological support for their mental health, but were not able to access it on the NHS. Among the thousands of parents who experience pregnancy or baby loss every year, a significant number may experience a psychiatric illness that requires specialist support, triggered by intense grief and trauma. The report, Out of Sight, Out of Mind, by the charity Sands, sets out new research that shows that too often this support is unavailable, inaccessible or inappropriate. Freedom of Information requests found that more than eight out of ten commissioners across the UK do not commission specialist therapies to support this group, with a more general service being more common. Those who sought support through their GP often experienced long waiting lists. As a result, bereaved parents can fall through the gaps. Not being able to access support can affect all aspects of...

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  • Rainbow Trust joins 23 charities in innovative charity advent calendar

    We are delighted to announce that we are part of a unique advent calendar for Christmas 2019, alongside 23 other charities, which will appear in John Lewis & Partners stores across the country. Last year the celebrity-endorsed social enterprise Advent of Change launched the first-of-its-kind charity advent calendar. By the end of 2018, the movement had raised £100,000 for its 24 chosen charities, and even received an award from the Prime Minister in recognition of outstanding contribution to charitable causes. This year the calendar is returning, alongside four brand-new products. We are proud to join the Advent of Change movement, as part of their Premium Advent Calendar for 2019. Each day of this alternative advent calendar represents a £1 donation and describes how that gift could be used, giving the recipient a ‘feel-good feeling’ when seeing exactly how they’ve helped – from clearing plastic from UK shores to offering shelter to a homeless person, and even helping to provide life-changing medicine for a sick child. Turning Christmas consumerism upside down Advent of Change started with one person, and a little idea: to take a product built to receive, and reverse its purpose to give instead – an idea that quickly...

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  • A week in the life of a Family Support Worker

    Angie has been at Rainbow Trust for 3 years and shares one of her working weeks with us. Monday I visited a mum whose seven-month-old baby had died. She is struggling most days as her husband works; she’s alone at home and cries because she misses her baby so much. We talked about the day Mia died and her funeral. Mum asked me to call the Department of Work and Pensions about a payment she’s received. They confirmed that the carers allowance continues for eight weeks after a child has died. Mum was so grateful as they’ve been struggling financially after her self-employed husband wasn’t paid for the days he took off following their baby’s death. Tuesday I took David, 12, and his mum to Great Ormond Street Hospital. David has a brain tumour. He has suffered brain damage due to radiotherapy he’s had over the last six years and Mum finds it too difficult to take him alone on the train. David had an MRI scan which showed that his tumour is currently stable. It was a long day and both Mum and David slept while I drove them home. Wednesday In the morning, I had counselling. All Family...

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  • Family Support Worker Mandy gives family time to focus on each of their children

    Ali’s 12-week pregnancy scan revealed that one of their twins, Marlowe, was at high risk of having Down’s syndrome and that she had a hole in her heart. This heart condition made it difficult for Marlowe to feed and breathe at the same time, so she had planned heart surgery at seven months old. A month after the surgery, Marlowe caught flu which damaged her lungs and all of her organs started to shut down. The family was told that Marlowe wasn’t going to survive. She was on a ventilator to help her breathe. Doctors advised that they should plan to withdraw life support. However, Marlowe started making progress, totally unexpectedly. It took a further six months to wake her up and six months for her to start crawling. Marlowe was in hospital for 22 months. Just before she was discharged home, nurses mentioned Rainbow Trust to Claire and Ali. Sibling support was highlighted for Henley, Marlowe’s twin brother, and Faith, Claire’s 13-year-old daughter, who was struggling with revision for her school exams at the time. The family was introduced to Rainbow Trust and Family Support Worker, Mandy, started supporting them. “When Mandy takes Henley or Faith out they can...

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  • Giving Fabian’s family time to manage cancer together

    When doctors found a tumour in her son’s liver, Marte found it difficult to cope. This is her story. When Fabian, my son, was two and a half, he was seriously unwell but specialists and doctors told me he was completely fine. I knew he wasn’t. When he stopped eating and was in pain I took him to our local hospital, where they couldn’t identify what was wrong with him and we were referred to Brighton Hospital. Within half an hour being there we were told he had a big tumour on his liver. I didn’t know what to do or how I would cope. He started his chemotherapy at The Royal Marsden Hospital soon after. As the tumour was very big, doctors wanted to shrink it as much as they could before operating. When they did operate they had to remove part of his liver as well and chemotherapy continued for two months to try and ensure all of the tumour had gone. Unfortunately, Fabian’s hearing was damaged by the treatment and he now has hearing aids in both ears as a result. My husband had to take days off work to come to hospital but he couldn’t do...

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  • Auto Windscreens get colourful to raise over £2,700 for Rainbow Trust

    ​Over the last few weeks Auto Windscreens has been taking part in all things charitable, hosting a fundraising day and separate staff BBQ to raise money for Rainbow Trust. Six team members also completed September’s Great North Run in support of our work to help families with a seriously ill child. The company’s 450 employees in Chesterfield got behind the two office-based events, which included a variety of activities and games, surrounded by a host of colourful rainbow-themed decorations. In total, Auto Windscreens has raised over £2,700 for Rainbow Trust through these efforts! This is enough to provide 103 hours of practical and emotional support for families who have a child with a life-threatening or terminal illness. James MacBeth, Auto Windscreens’ Managing Director, said: “Our employees have shown passion and dedication when it comes to charity, resulting in a number of highly successful fundraisers. As a business that cares about our Corporate Social Responsibilities, it’s great to see so many of our staff getting involved for such a worthy cause.” Auto Windscreens are a leading automotive glass and replacement company in the UK. For further information on becoming a corporate supporter of Rainbow Trust, please contact us today.

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  • Knight Frank to give their all for Day of Giving 2019

    One week from today, Knight Frank staff will be fundraising their socks off for a few selected charities, including Rainbow Trust. Alongside LandAid, Alzheimers Society, Contact the Elderly and YoungMinds, Rainbow Trust will benefit from all the hard work Knight Frank give on their Day of Giving 2019. Taking place once every two years, Day of Giving sees Knight Frank go above and beyond in their fundraising efforts, spending the whole day fundraising for charity. Zillah Bingley, CEO of Rainbow Trust, said “Rainbow Trust is delighted that Knight Frank continues to be a fantastic supporter of the charity. Day of Giving is such a superb example of where all teams from this brilliant national organisation, wherever they are located, come together to do something amazing. Thank you so much for this tremendous relationship.” In 2017, Knight Frank’s Day of Giving saw staff bake, cycle and even battle it out in a canoe race, amongst other activities! We are so grateful for Knight Frank’s incredible support and cannot wait to see what this year’s Day of Giving has in store. Knight Frank, its employees and Rainbow Trust have been working together as partners since 2010 to support families with seriously ill...

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  • Meet Simon, a Dad raising money to thank Rainbow Trust

    Simon Hanid, whose four-year-old daughter Poppy recently ended two years of gruelling leukaemia treatment, is taking part in the 25K Thames Bridges Trek on Saturday 7 September to raise funds for Rainbow Trust. Simon and a team of three friends will join other trekkers in the challenge, which sets out from Putney Bridge, heads onwards to the City zig-zagging over 16 historic bridges, crosses the impressive Tower Bridge and finally finishes at Southwark Park. Simon said: “Poppy has been supported by Rainbow Trust from shortly after her diagnosis in 2017 to when she rang her end of treatment bell on 12 June this year. The charity is very dear to me as it has offered us so much support with Poppy and this is my way of giving back. Without Rainbow Trust our lives – Poppy’s, mine, her mum Vicky’s and big sister Mia’s – we would have been even more of a wreck. The work it does is invaluable to families like ours.” The Trek is 25km from start to finish and Simon has high hopes, having finished a practise around his local area in an impressive four and half hours and he is aiming to raise £250 for...

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  • Teen calls on Government to offer more support to young people with disabled siblings

    Across the UK, there are thousands of young people, like 15-year old Emily, whose brother Ben has a condition called Spinal Muscular Atrophy. Often carrying the emotional weight of their parents, young people with a seriously ill brother or sister, like Emily, are left feeling overlooked, anxious and lonely, which can massively impact their mental health. Speaking in front of a packed audience in the Houses of Lords, 15-year-old Emily bravely called on the government to ensure educational institutions are more well-equipped to support young people who have a sibling with a chronic illness. For most of her life, Emily, who is three years younger than Ben, says she’s been more like a big sister to her brother, who needs constant care. ‘‘A great deal of my life has been based on his needs’’ says Emily. ‘‘When he is ill, I must fit in with everything that goes on because of it. If he is in hospital or at home, mum and dad spend so much time getting him better, they are too tired to listen to me, spend time with me or help me. I find this annoying at times and a lot of the time I feel lonely.”...

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  • Invisible Children – those out of school with serious illness

    We welcome a new report highlighting the need for more support for children who are not attending school because of illness. Jointly published by tech start-up, No Isolation, and think tank, Tomorrow Today, the report, Invisible Children: Serious illness, prolonged school absence and long-term impact, is the record of a roundtable seminar held in June. We took part alongside a range of education experts, ‘hospital school’ professionals, and civil servants, as well as a young person with experience of cancer, and the parent of a child unable to attend school for over three years. The report of the seminar sets out three main areas of concern:Nationally inconsistent methods of record-keeping mean there is no central data on the numbers of children who are in and out of school owing to serious illness. As a result of poor data, there is limited research into the long-term effects of being out of school because of ill health. Not attending school for long periods of time while unwell can be detrimental not only to academic success, but to emotional and social development, with potentially life-long consequences. Zillah Bingley, Rainbow Trust’s Chief Executive, contributed the Foreword to the report, and said: ‘We warmly welcome...

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  • Meet Elodie, Corporate Intern

    Tell us a bit about yourself? I’m a corporate intern, so I work with the corporate team. I do a lot of research for future clients that we might potentially partner with and could fundraise for us. How did you hear about Rainbow Trust? I heard about Rainbow Trust through a woman I babysit for as she used to be a sports and events manager at the charity. Can you describe a typical working day in the office? I usually get in, get myself a cup of tea. Sit down, I’ll see what work my manager has for me, and then crack on with it. It’s usually research and also a lot of laminating too. What’s been the most enjoyable experience for you? A couple of weeks ago I helped out with the cheer point for Ride London. It felt good to see the smiles on the faces of the people as we cheered for them. What do you most like about working for Rainbow Trust? The people, the working environment, it’s very relaxed and friendly, everyone is really lovely and if you need any help with anything you can ask anyone and they’re always happy to help. So, it’s...

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  • What do wine tasting and sky diving have in common?

    Nothing at all! But that didn’t stop Corporate Partner Decanter (part of the TI Media Group) from combining the two! Throwing yourself out of a plane thousands of feet above the Cambridgeshire countryside might not be everyone’s idea of a fun day out, but Decanter’s executive office manager, Danny John Casely, couldn’t hide his excitement after completing his first-event skydive. Danny took the plunge, leaping from 10,000 feet at Sibson Airfield in Wansford to help raise funds for Rainbow Trust as TI Media’s charity partner, with the support of a £10,000 donation from Decanter. To show his thanks to Decanter for supporting his daredevil antics, Danny bought along a copy of the magazine to read on his way down, concealed within his jumpsuit! Check out the short film of the day here. Danny John Casely said “It was just mind-blowing – one of the best things I’ve ever done and made even better by the fact that it was for a brilliant cause. It was a real adrenalin rush and the G-force you experience when the chute is pulled is just awesome. It was a day full of highlights, but it was hard to beat tumbling through the cloud cover...

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  • K2 Corporate Mobility show support for Rainbow Trust

    K2 Corporate Mobility, based in Weybridge, have been a supporter of Rainbow Trust Children’s Charity since 2012, supporting the charity through sports and challenge events and office fundraising initiatives throughout the years. Their support is bolstered by the collaboration between themselves and Please Connect Me. As providers of global relocation management services for companies, K2 work alongside Please Connect Me, who offer a service to help relocators connect their utilities when moving. For every referral that Please Connect Me receives from K2 as part of a relocation package, Rainbow Trust receives a percentage donation. This is great example of sustainable income for the charity, which also benefits the businesses involved; Please Connect Me receives customer referrals with regularity via K2, whilst the charitable donations made in exchange allow K2 to meet their CSR objectives and support Rainbow Trust. Jose Pose at K2 Corporate Mobility says: “We have supported Rainbow Trust and the fantastic work they do for a number of years, and undertaken some challenging fundraising events in that time, such as climbing Kilimanjaro. The donations made through the referral scheme allow us to maintain consistent financial support to the charity outside of any other fundraising initiatives that we may...

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  • Meet Hannah, Sports and Events Volunteer

    Tell us a bit about yourself – interests and hobbies, other work or volunteering I’m Hannah and I have volunteered with Rainbow Trust for 6 months so far. For the last 3 years I have worked as a personal trainer helping people with their health and fitness goals in their own homes. I combine this with being a life coach and am also studying to be a counsellor. Prior to this I worked in the city in accounting, a very different environment and I much prefer what I do now. I have always been very sporty, I play netball, tennis, I cycle and go hiking and I also love to travel. How did you first hear about Rainbow Trust and why did you decide to volunteer? I was aware of the work of Rainbow Trust and when I started working for myself, I finally had the time and flexibility to do some volunteering, so I applied for a role at Rainbow Trust Head Office. What do you enjoy most about your volunteering? Although I don’t miss my old corporate accounting role, I do miss the office environment and social aspect of working in a team so volunteering 1 day a...

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  • Vote Rainbow Trust in the ScS Big Toy Bonanza

    ​Rainbow Trust are thrilled to be one of the worthwhile charities invited to participate in the ScS Big Toy Bonanza. Wednesday 7 August 2019 is National Play Day and to celebrate this, ScS are launching an event whereby they will donate hundreds of toys to local charities as voted for by their customers. Designed to celebrate the importance of playtime in children’s lives, the campaign could be hugely beneficial to Rainbow Trust. Our Family Support Workers understand the value of play and spend a lot of time with children in hospital or siblings at home, engaging in games or arts and crafts. David Knight, CEO of ScS, said: “We are proud to support our local community and as a business it is incredibly important to us that we give back and contribute to local projects. It is our absolute pleasure to be delivering toys during the summer holidays and helping hundreds of children to enjoy play time. We want to offer local people the chance to nominate the charity that will benefit from our Big Toy Bonanza. Simply vote instore throughout August and let us know which local cause you would like to support. We can’t wait to welcome everyone...

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  • Surrey family fronting CarFest receives a VIP welcome

    Singing on stage with the Rock Choir and meeting radio presenter and festival founder Chris Evans were among the highlights for Henry and his family from Redhill, Surrey who enjoyed a VIP welcome at CarFest North last weekend. Nine-year-old Henry, Rainbow Trust’s face of CarFest North, his brother Thomas, seven, and parents Godfrey and Beccy enjoyed a VIP driver track experience, a cookery demonstration with Spanish celebrity chef José Pizarro and great music over the three-day family event in Bolesworth, Cheshire. The fun began en-route to the event after some 50,000 festival goers received an exclusive downloadable car kit with top ten family car games, along with colourful bunting and posters. Our branded lorry and Berlingo car played an eye-catching role during the popular carnival, thanks to AST Transport Branding and Auto Windscreens for wrapping the Berlingo, which represents the fleet of cars used by our Family Support Workers, and to L Lynch Haulage for bringing the amazing branded lorry. Rainbow Trust’s main base throughout the weekend was in the Tent of Inspiration where CarFesters met the our team and competed in a fun, bike powered head-to-head challenge. They also learnt more about the charity’s vital work by taking part...

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  • Mika Flowers partners with Rainbow Trust Children’s Charity to provide gift for loved ones

    Rainbow Trust Children’s Charity, has been selected as Mika Flower’s charity partner and will receive 10% from the sale of every flower box and 15% from every Rainbow Trust bespoke flower box. Mika Flowers delivers beautiful flowers across the UK and their sleeping roses have been carefully preserved to last a minimum of one year. With little maintenance, their flowers are the perfect gift that will keep on living. With a flower for every occasion, whether a gift or to brighten up the home, Mika Flowers promises the best quality. With next day delivery or same day collection, it couldn’t be easier to surprise a loved one. With a mission to create charitable flower gifting, Mika Flowers created a bespoke collection of flower boxes for Rainbow Trust and 15% of each purchase will support families caring for a seriously ill child. Santa Montvydaite, Founder of Mika Flowers, said: “We are incredibly excited about the partnership with Rainbow Trust, we want to make flower gifting extra special by giving back and helping to make a difference to a great cause. We chose Rainbow Trust because of the wonderful work they do to support families who have a seriously ill child. We...

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  • Jill Halfpenny takes on new role as Ambassador

    British actress Jill Halfpenny has been announced as an Ambassador for Rainbow Trust Children’s Charity, which supports families with a seriously ill child. Jill, who has just appeared in the new four-part drama series Dark Money on BBC One, has been a regular on our screens since 1989 when she starred in Byker Grove. Since then we have seen her in dramas such as BAFTA award winning Three Girls, Humans and Year of the Rabbit. Other credits include the recent Liar, Babylon, In The Club and Waterloo Road. The talented actor has also enjoyed success with West End productions such as Abigail’s Party, and her Olivier award winning role in Legally Blonde. She also played Roxy in the musical Chicago after being crowned the winner of Strictly Come Dancing in 2004. Jill has now chosen to put her support behind Rainbow Trust which enables families who have a child with a life threatening illness to make the most of their time together. Rainbow Trust pairs each family with an expert Family Support Worker who helps them at home, in hospital and in the community, for as long as it is needed. Jill said: “I am really looking forward to becoming...

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  • Our message to new Prime Minister, Boris Johnson

    Rainbow Trust Children’s Charity today wrote to new the Prime Minister, Boris Johnson MP, to welcome him to his new job, and to highlight the urgent need to ensure all families with a seriously ill child can access the emotional and practical support that they need. Rainbow Trust Chief Executive Zillah Bingley said: “With a bulging in-tray, we strongly encourage Prime Minister Johnson to keep up the momentum to improve children’s palliative care, despite the competing demands on his time. Following the recent welcome news that the Children’s Hospice Grant will be increased to £25m by 2025, it’s now vital that both Government and NHS England quickly address the significant gap in funding for emotional and practical support for families with a seriously ill child, whether in the home and in the community, as identified by Catherine McKinnell MP. Rainbow Trust’s West London team regularly supports families with seriously ill children in Boris Johnson’s constituency of Uxbridge and West Ruislip. However, there are many more families which need our support who do not live in areas that our teams can support. We urge Prime Minister Johnson to act swiftly to end the current situation whereby accessing emotional and practical support...

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  • Rainbow Trust is heading to CarFest

    As a CarFest 2019 Charity partner, we are excited to be heading to Cheshire on Friday. CarFest is a three-day family-orientated festival, which attracts over 100,000 people, and has raised over £13.5 million. This year’s CarFest will take place from July 26-28 in Cheshire, followed by August 23-25 in Hampshire. TV actress Jill Halfpenny, who recently became an Ambassador for Rainbow Trust, took to social media to thank ‘CarFesters’ as 10% of the total profits raised from ticket sales will go to Rainbow Trust. </p><p> The money that CarFest raises will enable us to provide vital support to more than 100 seriously ill children - like nine-year-old Henry who is awaiting a kidney transplant from his dad, Godfrey. Nicki, a Rainbow Trust Family Support Worker, currently helps the family by providing much-needed respite for parents, Godfrey and Beccy, and spends time with Henry’s brother Thomas. The family will be attending CarFest North to talk about the positive impact Rainbow Trust has had on their family. Godfrey said: “Nicki is there whenever we need her. She provides us with much needed emotional support. While she can’t cure Henry’s condition, she can and does help us cope day-to-day.” If you are heading...

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  • Why I give up my time to support families in hospital

    For parents who spend lots of time in the hospital caring for their sick child, having a Hospital Support Volunteer to look after their other children is invaluable. Working on a voluntary basis, Dominic gives the quality time and attention that children desperately need. In this Q&A, Dominic reveals how he became a Hospital Support Volunteer and why he feels compelled to give back. How did you become a Hospital Support Volunteer? I had a close friend who was helped by Rainbow Trust while he was in hospital. Seeing how they helped my friend made me feel like I owed them so much as a result. So, I looked into becoming a Hospital Support Volunteer and decided to reach out to Rainbow Trust. After a DBS check and excellent training, I was ready to go. What sort of support do you offer to the families you work with? I help by manning the playroom at St Thomas hospital, playing games, doing art and providing some light relief to the siblings of the sick child. If families have any questions about Rainbow Trust or have any worries, I can signpost them to find help. What is the most fulfilling aspect of...

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  • Meet Amanda, Hospital Support Volunteer

    One of the many things we are proud to offer is hospital support. When it comes to families who might have a child with a life-threatening illness who spend a lot of time in the hospital, the help we offer is a lifeline. A huge part of our support comes from our Hospital Support Workers like Amanda, who has been working with us for the past 8 years. In our latest Q&A, Amanda shares the motivation she has to make a positive difference to the lives of the families she works with and why she would encourage others to become Hospital Support Volunteers. How did you become a Hospital Support Volunteer? I was already volunteering for Rainbow Trust in their head office and was told about a need for a volunteer within the Surrey Care team which I had previously expressed an interest in when I first approached Rainbow Trust in 2011. What sort of support do you offer to the families you work with? I will go to the hospital to offer support during outpatient appointments and I will also visit children who are in-patients. During these visits, I will entertain the child who is poorly and keep them...

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  • Top tips for travelling with a child with a serious illness

    As many of you will know from first-hand experience, travelling with children, in general, can be a difficult situation, but travelling with a child who has a serious illness can be an even bigger challenge. Whether you have a holiday planned abroad or if you will be travelling closer to home, our Family Support Workers have compiled a top tips list of how you can prepare for your summer holiday’s travel.Avoid the Tube if you can - take alternative transport Take lots of water so everyone can stay hydrated Bring snacks and games to keep your children preoccupied Bring ice pops, mini fans and hats from the freezer to keep cool Take regular breaks, and if very hot only travel if necessary Make sure to bring sick bags Travel with more than 1 adult, so that responsibility can be evenly shared. To find out more about the support we offer families, click here.

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  • Former England Footballer Paul Konchesky becomes an Ambassador

    We’re delighted to announce that Former England footballer and Stapleford Abbots resident Paul Konchesky has become an Ambassador for Rainbow Trust Children’s Charity. The popular former Leicester City, Charlton, West Ham, Liverpool, Fulham and England defender, is a dedicated father to three children which spurred on his decision to support the children’s charity. The big game still very much part of his life, Paul enjoys mentoring the Academy boys at West Ham United, the club he supports and coaching his young son’s football team. In his spare time he watches his daughter show jumping and spends time at the pie and mash shop he opened in Brentwood in 2015. He is looking forward to devoting some of his time to Rainbow Trust. Paul said: “When I heard about Rainbow Trust and the fantastic work it does, I knew that this is a charity I could fully support. I have been incredibly fortunate in my life – both as a professional footballer and personally. I am now a father of three and I know how precious family is. As an Ambassador for Rainbow Trust I hope to raise awareness and funds to help families going through extremely challenging times, and hopefully...

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  • Ask the expert

    Dr Finella Craig, Consultant in Paediatric Palliative Medicine at Great Ormond Street Hospital for Children (GOSH), talks to Rainbow Trust volunteer, Chris Evans, about the importance of supporting siblings of seriously ill children. Can you tell me about the work you do at GOSH? We look after children with life-limiting and life-threatening illnesses, where there’s uncertainty about their outcome. Some will be at end of life and others might be with us for a number of years or even discharged from palliative care. What involvement have you had with Rainbow Trust and how have they helped the families in your care, particularly the siblings of seriously ill children? Rainbow Trust are fantastic. What I love about them is they quietly get on with anything that needs doing for a family, whether it’s helping with washing, gardening etc or simply listening to their worries. They are particularly good at providing sibling support, so things like doing the school run, after-school care, helping them with homework or taking them out to do nice things. Siblings get so little one-to-one time, so having a trusted person from Rainbow Trust who makes them feel special and listens to their worries is incredible. When a...

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  • Government urged to listen to children and young people’s experience of cancer

    A new report into the experiences of children and young people who have received cancer treatment has identified crucial areas where their treatment and care could have been improved. ‘Listen Up! What matters to young cancer patients’ is the report of an inquiry into ‘patient experience’ by the All Party Parliamentary Group on Children, Teenagers and Young Adults with Cancer. This cross-party group of MPs heard from children, young people and their parents from across the UK during evidence sessions this spring, as well as professionals. A survey carried out as part of the inquiry found that 82% of young people and parents who responded did not think that the government listens to the experiences of young people with cancer and their families enough. Anne Harris, Director of Care at Rainbow Trust Children’s Charity, said: ‘We warmly welcome this report which shines a spotlight on the challenges faced by more than 4,000 children, teenagers and young people who are diagnosed with cancer each year. Too often, diagnosis for this age group comes late because it is rare, and the subsequent treatment can be difficult. For the families that Rainbow Trust supports where a child has a cancer diagnosis, this report...

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  • How you can pass on something wonderful

    This September, Rainbow Trust is joining 200 charities to come together to launch Human – the world’s first charity-powered search engine. Combining charities’ unique knowledge and expertise, Human enables the public to ask some of life’s biggest questions and to hear directly from charities, supporters and beneficiaries what they are doing in response. Through the search engine, people can ask questions such as: ‘How can we cure the deadliest common cancers?’ ‘How do we ensure no one has to sleep rough?’ and ‘How can we help every animal find a home?’ and see video responses showing how charities address these issues and how the public can help, by leaving a gift in their will. Rob Cope, Director of Remember A Charity, says: “Every day people use Google to find the answers to their questions, but it’s real people and charities we turn to when we want answers to life’s biggest challenges. This campaign has been designed to showcase just how vital charities are in responding to many of the world’s biggest problems and how legacies can help combat those issues. It will encourage the public to think about their deepest concerns for the world we live in and to consider...

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  • Oktoberfest comes to Uppingham!

    Corporate Partners, Smithers Purslow, continue their ‘£40K for Charity’ challenge with a Bavarian-style October fundraiser. Smithers Purslow has set itself the challenge of raising over £40,000 for charity in its 40th year in business, which runs from May 2018 to May 2019. The challenge is going brilliantly so far, with just under half the fundraising target reached and 2 events already completed: staff have already undertaken the 3 Peaks Yacht Race Challenge along with a Charity Golf Day. Smithers Purslow have chosen to support Rainbow Trust among some other charities close to their heart, and the next big event on their calendar is an Oktoberfest party at Uppingham School Memorial Hall, near Leicester, on Friday 26 October 2018. The venue will be transformed into an authentic Bavarian-style beer hall (Bier Keller) for the evening, with long wooden trestle tables, free-flowing beer, wine and delicious German food not forgetting the obligatory fancy dress/authentic Bavarian costume. Professional entertainment will be provided by Karl’s Bavarian Oompah Band making this an event not to be missed! Tickets are on sale now; you can find out more and buy yours here or for more information email Smithers Purslow.

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  • Baby Loss Awareness Week focusses on improved bereavement care

    Rainbow Trust Children’s Charity is proud to support Baby Loss Awareness Week, which this year takes place from 9-15 October. Miscarriage, still birth or the death of a baby are not rare events, and thousands of people in the UK are affected every year. Baby Loss Awareness Week is backed by more than 60 charities, and culminates in a global wave of light on 15 October (International Pregnancy and Infant Loss Remembrance Day). Together, the organisations are seeking to raise awareness about the issues surrounding pregnancy and baby loss in the UK, as well as pressing for improved bereavement care and a reduction in preventable deaths. In particular, we are calling for all bereaved parents to be offered high quality bereavement care and support, wherever they live, when they need it, for as long as they need it. This is something that Rainbow Trust strongly supports through its experience of supporting families in the most difficult of times. For instance, research by Sands found that bereavement care training is mandatory in fewer than half of NHS Trusts and Health Boards, and, one in three Trusts and Health Boards did not have a dedicated bereavement room in each of their maternity...

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  • Join Team Rainbow Trust for the 2019 London Marathon today!

    Join Rainbow Trust Children’s Charity for the biggest sporting event in our calendar and the largest single day fundraising event in the world, the Virgin Money London Marathon. As part of our team you will receive dedicated training support while you raise vital funds to help Rainbow Trust provide practical and emotional support to families with a seriously ill child. By joining the 2019 marathon team you will benefit from:Inspirational fundraising advice and materials A technical Rainbow Trust running vest and fabulous rainbow hair Entry to our post-race reception, with refreshments and sports massage available Plenty of support on the day from our three cheer points. Rainbow Trust runner and 2018 London Marathon finisher, Elaine said: “Your organisation and support in the lead up to the big event has been wonderful. Despite me being a ballot place winner and not being able to get to one of your training sessions, I have felt very much involved and part of your team. I can honestly say I felt very proud to be wearing your running vest and my rainbow headband got so many comments.” Join our team If you were fortunate enough to secure a ballot place for the 2019 Virgin...

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  • Rainbow Trust dad rallies eighteen friends for mud race

    Jay Connor and his 18-strong team of friends took on the Nuts Challenge in September, tackling over 100 army constructed obstacles on a 7km course to raise over £5,000 for Rainbow Trust. The team were inspired to join Jay, having witnessed the value of support given to their friend and his family, who have been supported by Rainbow Trust since his daughter was diagnosed with a complex heart condition. Explaining his motivations to take on this challenge Jay said: “Our Family Support Worker, Eleanor, was there for us every step of the way. She had the insight and experience that we needed which has been a great comfort and has offered us peace of mind. Nothing has ever been too much trouble and we have always been able to rely on her. We want other families in similar situations to be fortunate enough to receive the same support that we have had.” Just as the team supported each other during the race, they pulled together to smash their initial target. The money they raised will enable us to provide a year of practical and emotional support to three families caring for a seriously ill child. If you are Nuts enough...

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  • What should the NHS be doing over the next 10 years?

    The NHS has recently been consulting on a new ‘Long Term Plan’. The idea is to gather input from people and organisations the NHS will set out its ambitions for improvement over the next decade, and its more detailed plans over the five years. This is particularly important in light of the boost to NHS funding announced by the Prime Minister to coincide with the NHS’s 70th birthday this summer. Rainbow Trust has responded to the consultation to make the case for the best possible support for seriously ill children and their families. Above all, we would like to see NHS England and the Department for Health and Social Care urgently clarify the responsibilities for local health decision makers (Clinical Commissioning Groups or CCGs) and local authorities to provide ‘short breaks’ and respite care for families, to clear up any confusion over who should provide what. These types of services need increased funding so that families can cope better with the strain of caring, both practical and emotional. With referrals to Rainbow Trust up 12 per cent during 2017-18, the demand for emotional and practical support is rising. Family support services urgently need to grow, not shrink. But at the...

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  • In Henry's name

    We were deeply saddened to hear that Rob Delaney’s son Henry died earlier this year. A Rainbow Trust Family Support Worker is continuing to support the family at this incredibly difficult time. We would like to thank everyone who has kindly made a donation to us in Henry’s name following Rob’s emotional social media posts and media articles, sharing news and memories of his family’s very special son. If you would like to make a donation from outside of the UK, please use PayPal on our website rainbowtrust.org.uk/donate or through JustGiving or Virgin Money Giving

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  • Family supported by Rainbow Trust featured in BBC News report

    A family supported by Rainbow Trust Children’s Charity was featured on the BBC national news on Thursday 20 September. Mother Clare Finch spoke about her struggle to access local authority support for her son Adam, after a brain tumour left him with life-long health complications. These ongoing health challenges mean that he is unable to attend school full time. The BBC coverage was prompted by research from the County Council Network, which represents 36 larger authorities. The Network has said the ‘worst is yet to come’ in cuts to services as central government further reduces its funding for local authorities. It is predicting ‘unpalatable cutbacks’ in 2019 with the councils identifying at least £1bn savings to plug a £1.5bn shortfall by 2020. In a survey of county councils, all those who responded said they faced significant cost pressures, including a growth in demand in some areas, such as children’s and adult social care. Local funding cuts in Stockport have meant that Clare and Adam have relied more heavily on their Rainbow Trust Family Support Worker for emotional and practical support, as well as sibling support for Adam’s sister Megan. Deputy Family Support Manager Sean Tansey has supported the whole family...

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  • Rainbow Trust receives £15,000 grant from ABF The Soldiers’ Charity to help army families

    We received a £15,000 grant from ABF The Soldiers’ Charity, which will enable us to help more army families initially from our South West team based in Chippenham. This grant will boost the help the South West Care Team are already giving army families. It will also enable the team to reach out to more army families who might be in need of Rainbow Trust’s support. Our Family Support Workers enable families who have a child with a life threatening illness to make the most of their time together when it matters most, helping them at home, in hospital or in the community, wherever they are needed. Rainbow Trust Chief Executive Zillah Bingley welcomed the grant. “We are extremely grateful to have been successful in our application for this grant would like to thank ABF The Soldiers’ Charity,” she said. “We know there are more army families living with a seriously ill child who need our help and this money will help us reach them and raise awareness of our work among army communities where we are keen to build contacts. “While these families will have a big army support network, they are unlikely to have the specialist social palliative...

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  • Shining a light on childhood cancer

    Every September is Childhood Cancer Awareness Month, a month dedicated to shining a light on the impact cancer has on young people and their families. We know from reports that childhood cancer is on the rise. According to Cancer Research UK, childhood cancer has risen by 13% since the early nineties, with over 4,000 children and young people being diagnosed with cancer each year in the UK. That’s 11 new diagnoses every day. 35% of children that began receiving support from Rainbow Trust last year were diagnosed with cancer, making it the most prevalent illness affecting the families that we support. Amongst these children, there are 44 different types of cancer. The most common of these are acute lymphoblastic leukaemia, brain tumours and neuroblastoma, with 144, 89 and 34 diagnosed children, respectively. Despite the rise in cancer cases, we’re pleased to see that treatment options are going up and survival rates have improved significantly. We welcome NHS England’s recent announcement of a new personalised therapy for children with a form of leukaemia which involves treatment tailored to the individual child, reprogramming the patient’s own immune system cells which are then used to target their cancer, and that cancer is one...

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  • Meet Karis, Family Support Volunteer

    Hi! My name is Karis and I’m a 22-year-old Geordie. University drew me away from my small hometown of South Shields to Manchester almost 3 years ago. I recently graduated from the University of Manchester with a degree in Biomedical Science. I’ve dreamed of becoming a doctor since I was small and I used to cover my little sisters in plasters, much to my parent’s dismay. I currently work as a Healthcare Assistant in Manchester and when I’m not there you can find me watching movies with my flatmates or volunteering. I love to read, and I adore anything Disney or musical theatre related - I once applied for a job in Disney World Florida when I was just 13 but my parents wouldn’t let me go. I think I understand why now! How did you first hear about Rainbow Trust and why did you decide to volunteer? When I was two my little sister came into my life. It quickly became apparent that she wasn’t quite like the other kids her age and she was diagnosed with a rare chromosome disorder. Since then, I have been helping care for her alongside my parents. When I moved to Manchester, I...

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  • A day in the life of a Sibling Support Worker

    Here, Sibling Support Worker, Natasha, shares a typical day in her shoes. This morning, I left my house early to be with a family for an assessment at 10:30. Assessments can take anywhere from 1-3 hours and they open lots of avenues for healthy and valuable conversation with families. This particular assessment was all about the eldest sibling and the worries and struggles he is experiencing with the family’s current circumstances as well as his brother’s diagnosis of Acute Lymphoblastic Leukaemia. Leaving the family’s home, I travelled to the Oldham care office to do some work on our Summer Sibling Play Scheme. This will involve three consecutive days of activities for siblings to attend in the summer holidays. We have one week arranged in Cumbria and Lancashire and the following week based in Greater Manchester, giving all children supported by the North West team an equal opportunity to access fun days during the summer! Within the short time I had to spend at the office I sorted out invitations and rang around confirming venues. I left the office and set off to another family home where a Family Support Worker and I had arranged to complete a file review with...

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  • Gyles Brandreth fronts our appeal on BBC Radio 4

    Turn on your radio and listen to BBC Radio 4 on Sunday 30 September to hear Gyles Brandreth presenting our exciting charity appeal. We are delighted to have been selected to benefit from BBC Radio 4’s Charity Appeal, which reaches just under 2 million listeners each week. The well known writer, presenter and former MP, Gyles Brandreth, will be presenting the appeal for us. Gyles knows all too well the positive impact of Rainbow Trust as his family have benefited from our support after his grandson was diagnosed with an aggressive cancer when he was just 18 months old. In the appeal Gyles talks openly about his personal connection to Rainbow Trust. He also shares the story of another family we have helped, whose mother had to live in hospital for five months with Dominic, her 10-week-old son, while he underwent intensive cancer treatment. Meanwhile her husband was left trying to cope at home, looking after their five-year-old son, who didn’t understand what was happening. Gyles will ask listeners to make a donation to help us continue supporting families at the very toughest time. If you would like to make a donation, you can do so via the BBC Radio...

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  • Keeping Rainbow Trust green

    It’s been an incredible two years since my first blog entry. The positive news is that our Green Team is still here, being strong and proactive! Since then, some members of the Team have inevitably moved on and left Rainbow Trust but we’re not short of new recruits and currently have eight creative and committed team members, ensuring we reduce our environmental impact while we care for families across the country. We introduce several initiatives each year to encourage all employees to take part in. Our monthly Green Team bulletin is sent electronically to all staff at Rainbow Trust, sharing information about ethical shopping, ways to reduce emissions and fantastic ways to upcycle our unwanted items. We’ve recently given all our Care Teams enough 100% compostable plates and cups for their days out and drop-in groups, so that we’re not adding to the mountain of single-use plastics being sent to landfill. We tested them out at our annual staff picnic and were invited to share a case study with the eco-friendly suppliers, Biopac. Our Green Team has also been busy preparing for our forthcoming head office move. We’ve been at our Leatherhead office for 15 years, during which time we’ve...

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  • St James Group staff support Rainbow Trust through payroll giving

    Long-term corporate partner St James Group has been successfully raising funds using a payroll giving scheme which enables employees to make tax-efficient donations to the charity. Here, Dean Summers, Managing Director of St James London South, shares how. ‘As an employer, St James is committed to using Give as you Earn as a simple and effective way to give to charity. St James runs a Payroll Giving scheme which means our staff can donate straight from their wages and donations are taken before tax, meaning the charity gets more while the employee pays less. In 2017, 44% of St James London South staff were giving through Give as you Earn. This has proven to be an attractive scheme among employees as it’s extremely easy to set-up and gives them the opportunity to donate as much or as little as they feel they are able. We created a sign-up sheet where all staff would only need to complete their names, division and the amount they wish to give. They then send the form to payroll who will get them signed up. Both our Payroll department and employees found this system hassle free, with the simple set-up process eliminating the need for...

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  • World Mental Health Day: Mum says her mental health was at risk without Rainbow Trust

    To mark World Mental Health Day on 10 October, Gateshead family, the Halliwell’s, say the ‘huge impact’ on their mental health would have been worse without support from Rainbow Trust Children’s Charity, after their son was diagnosed with a life threatening illness. Mum Natalie Halliwell shares their story to help raise awareness of mental health and Rainbow Trust. In early 2013 her son Dominic was just 10 weeks old when he was diagnosed with a cancerous mass on his brain, spinal column and central nervous system. For the next five months, Natalie stayed by his hospital bedside leaving her five-year- old son Zach at home with her husband. “The few weeks that followed were extremely difficult and I had to juggle a whole range of emotions on very little sleep and with a small support network,” Natalie said. “I stayed with Dominic in the hospital but I felt very alone during those first few weeks, and my role as primary carer for my baby was removed from me as his little body required regular medication and checks from the medical team, rather than me. “Coping was difficult and in the darkest hours, at night when the other children were sleeping...

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  • Cumbrian family raises £50,000 in memory of their daughter

    The mother of a little girl, who passed away six years ago of a rare genetic disorder, has so far raised £50,000 for Rainbow Trust. Kelly Holliday and her husband Phil, from Workington, began fundraising after their four-year-old daughter Isla died of a rare genetic disease in November 2012. Now, Kelly, who turns 40 next year, plans to mark her milestone birthday by raising more money for Rainbow Trust, which was such a great support to her whole family. Two new Rainbow Trust Family Support Workers have recently joined the North West Care Team, providing much-needed support to families in Cumbria, which has also enabled Rainbow Trust to take on more families in the region. This will give the support available to Cumbrian families a much needed boost. There has been little support available for families with a seriously ill child since 2012, but government cuts have reduced services even further. Rainbow Trust has recognised this and is doing everything possible to help Cumbrian families who desperately need it. Kelly said: “During Isla’s life we received huge support from our Rainbow Trust Family Support Worker, Marlene, and we wanted to raise funds to enable them to continue their amazing work...

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  • Racing car driver raises £700 for Rainbow Trust

    Reece Barr, an exciting young racing car driver, raised £700 last season to support seriously ill children and their families. Reece, 17 years-old and originally from Donegal, currently lives in Silverstone village, right next to the world-famous race track. Having raced in carting divisions for three years, Reece made the step-up to car racing in 2017 with great success, moving up from the Mini Challenge UK Championship to the TCR Europe Touring Car Series after his first season. The young driver became aware of Rainbow Trust after hearing about the charity through word-of-mouth. Their cause felt close to Reece’s heart due to his own family having had experiences similar to that of the families that Rainbow Trust support. After some further research into the charity, Reece decided to start fundraising. “We liked what we were hearing about Rainbow Trust. There were some really amazing stories and we were happy to help however we could. They are a great charity to support. “Illnesses in younger children cause huge amounts of stress for families. People may feel quite alone, so when they get the support that Rainbow Trust offers, it can make a world of difference. Rainbow Trust care so much about...

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  • Act now to go Nuts for Rainbow Trust Children’s Charity

    There is still time to sign up to take part in the Nuts Challenge on behalf of Rainbow Trust Children’s Charity. Online entries close on 17 August for the event, which takes place in Dorking on 1 and 2 September. Individuals and teams will face around 100 obstacles and climb river banks and slides, navigating cargo nets, crawling through tunnels and more. If you are keen to challenge yourself on the 7km army designed assault course to raise funds for Rainbow Trust, visit our event page or contact Rainbow Trust’s Sports and Challenges Team on 01372 220031. Participants need to pay £45.99 registration fee and raise a minimum sponsorship of £100. Competitors will receive a bright Rainbow Trust t-shirt, as well as dedicated fundraising advice to help you hit your target! Jay Connor, whose family is supported by Rainbow Trust after his daughter was diagnosed with a complex heart condition, is taking part on behalf of Rainbow Trust for the third time and together with an 18-strong team of friends is aiming to raise £4,500 for the charity. He said “The support that Rainbow Trust has given my family has been incredible. Our Rainbow Trust Family Support Worker, Eleanor, was...

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  • New Family Support Workers in Cumbria provide much needed boost

    Rainbow Trust has welcomed two new Family Support Workers to the North West team to cover Cumbria, providing much needed support to families who have a child with a life threatening illness in this area. Wendy Thompson, Family Support Manager for the North West, said: “The addition of Debbie Frith from Carnforth and Sophie Harris from Carlisle is a much needed to boost to the team and means we are now in a position to take on many more families in Cumbria who have a seriously ill child. “Cumbria is a very rural county and the feeling of isolation experienced by families can be intense. Between Debbie and Sophie we are now able to help families in the six districts of Cumbria from Carlisle in the North, across Allerdale and Copeland in the West, Eden in the East, down to Barrow-in-Furness and South Lakeland.” Debbie joined Rainbow Trust four months ago bringing with her experience from various roles working with families and children. She said: “I am so glad I applied for the job. I kept being drawn to the advert and after seeing videos of the work Rainbow Trust does on the charity’s website I understood the importance of...

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  • Boy supported by Rainbow Trust stands up for the first time

    A boy supported by Rainbow Trust Children’s Charity who has a genetic muscle wasting disease has stood for the first time using a frame, giving his mother fresh hope for his future. Little Hadi will be two in September and his mother Sanaa has shared their family story to raise awareness of Rainbow Trust and to highlight Spinal Muscular Atrophy Awareness (SMA) Month, which is in August. Hadi was diagnosed with SMA Type One when he was eight weeks old. The disease affects all the muscles in his body because he is missing a protein called SMN. He is tube fed, unable to swallow or to sit up unaided and can have difficulty breathing. But Sanaa says his symptoms have improved since taking his medication, Spinraza, which replaces the missing protein and which is administered through an injection in his back every four months when the protein starts wearing off. “Hadi is one of very few people in England who has access to Spinraza,” she said, adding that when he first started taking Spinraza, aged four and a half months, he was one of around only 17 other children in England with SMA type one who had access to the...

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  • Rainbow Trust receives over £43,000 from The Big Cycle

    On Thursday 5 July North East drinks giants Hanover Dairies and Fentimans, makers of premium mixers and soft drinks, successfully completed their 300-mile bike ride ‘The Big Cycle’. The epic journey, which took seven days, has so far raised an impressive £43,652, more than double the initial target, for Rainbow Trust. Rainbow Trust Patron Trevor Hanover, owner of Hanover Dairies and fellow cyclists Michael Hanover, Paul Doran and Eldon Robson, owner of Fentimans, finished their journey at Rainbow Trust’s Leatherhead headquarters in Cleeve Road. Rainbow Trust staff cheered the riders into Cleeve Court with bells and pompoms after which they enjoyed a celebratory reception of croissants, pastries and refreshments. The Big Cycle participants took on some of the most challenging terrain in the UK with the route taking them from Kielder Forest to Lake Windemere and on to Preston, Kendal, the Peak District and Forest of Dean before culminating at Rainbow Trust HQ. Trevor took on the challenge after being inspired by families he has met who are supported by Rainbow Trust, such as the Stockills from Sedgefield, County Durham, whose daughter Amy died in February 2016. His fundraising efforts over the last decade have raised around £310,000 for Rainbow...

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  • We're calling on runners for Royal Parks Half Marathon!

    Rainbow Trust is calling on people to take part in the Royal Parks Half Marathon on Sunday 14 October. Royal Parks Half Marathon is one of the best-known races of its kind in the UK, with the route taking runners around some of London’s world-famous sights, such as Buckingham Palace and the Royal Albert Hall. Runners start from Hyde Park at 9am and finish at the same place after a circuit including some of London’s other beautiful Royal parks: Green Park, St. James’ Park and Kensington Gardens. One of Rainbow Trust’s runners, Raymond Egen, said: “My brother has been through a traumatic year, in and out of hospital with his one-year-old-boy, who had to go for brain surgery regularly. I saw how he struggled with family life and how it affected him. Every time I put on this Rainbow Trust shirt, I think of my brother and my nephew and the wonderful support that Rainbow Trust provide for children and their families.” Oonagh Goodman, Director of Fundraising and Marketing at Rainbow Trust, said: “We are very grateful to our runners for taking part in the Royal Parks Half Marathon, a fantastic event which helps us fund our vital support to...

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  • London International Kayak Fishing Festival raises £1,000

    The London International Kayak Fishing Festival was held on 8-10 June at RK Leisure in Wraysbury and featured a mega raffle, raising £1,000 to help support families with a seriously ill child. The event attracts more than 70 kayak fishermen from 11 different countries across the world. This year’s winner, Lars Lundberg from Sweden, will be representing the European Hobie Kayak Fishing Team at the upcoming World Championships. Event organiser and tournament director, Ian “Dizzyfish” Harris, said: “The London International is now the unique event I always wanted it to be. We are delighted that we have been able to raise funds for Rainbow Trust, which is a truly worthy cause, offering support to families who are in desperate need of it.”. Oonagh Goodman, Director of Fundraising and Marketing at Rainbow Trust, said: “We are incredibly grateful that the London International Kayak Fishing Festival was able to help us fund our vital support for families with a seriously ill child. All the money raised from the event will help Rainbow Trust to support families to make the most of the precious time they have together.”

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  • ARMA ACE Awards raise over £5,000

    We’re delighted to have been chosen as charity partners by ARMA (the Association of Residential Managing Agents) and supported through their glittering ARMA ACE Awards, held at Tobacco Dock in London on the 6 of July 2018. Speaking to an audience of over 500 industry professionals, speeches by Jodie Egerton (Regional Fundraiser for Rainbow Trust) and Sean Connolly (Rainbow Trust family speaker) captivated their audience and highlighted the important work of Rainbow Trust, supporting families with a seriously ill child. The evening ended in a cheque presentation, where it was revealed that the fantastic sum of £5,768 was raised. Oonagh Goodman, Director of Fundraising and Marketing at Rainbow Trust Children’s Charity, said: “We are extremely grateful to have been supported through the ARMA ACE Awards event. The fantastic amount raised will help provide vital support to families caring for a seriously ill child.”

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  • Danetree School's human rainbow in aid of seriously ill children

    Last month, 670 children aged 4 to 11-years-old from Danetree School formed a human rainbow to raise much needed funds for families with a seriously ill child. Danetree School’s Rainbow Day brought together the entire school to sell cakes and dress in multi-coloured mufti for the day. Each year group were assigned a colour to wear for the day and were asked to provide a small donation in-lieu. They also held a bake sale with tasty baked rainbow cakes and other colourful baked goods. Jessie Knight from Danetree School explains: “It was a great day and the children loved dressing up in mufti. There was a real buzz having the whole school create a human rainbow.” In total, the school raised an incredible £578.34 which could pay for the transport costs for a Family Support Worker for an entire month - allowing up to 25 families to cope with numerous hospital appointments for check ups and treatment, which for many families, involves navigating long distances to unfamiliar cities and dealing with the complexities of public transport with a sick child. “We chose Rainbow Trust Children’s Charity as we think it is important that whole families are supported in times of...

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  • Remember a Charity in your Will Week

    For the first time, Rainbow Trust has joined forces with 200 other charities to celebrate how gifts in wills can changes lives. Taking place on 10-16 September, Remember a Charity Week aims to raise awareness of the importance of leaving a gift in your will to charity. Now in it’s ninth year, the week brings together charities to highlight the importance of legacy giving. The campaign showcases the impact of legacy donations and calls on supporters to consider passing on something wonderful in their will. You can read more about gifts in wills and how they help seriously ill children and their families here. “We’re thrilled to be working with Remember a Charity, who are the most well-respected campaigners for legacy giving. It’s a wonderful opportunity to raise awareness of supporting charities in your will, which provides vital funds for good causes. Some charities rely on gifts in wills to fund half their work, but with only 7% of adults remembering a charity in their will, there’s still so much we can achieve by talking about it with our supporters.” Jenny Anne Dexter, Individual Giving and Legacy Manager To find out more about leaving a gift in your will to...

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  • Mother supported by Rainbow Trust helps raise over £95k

    A mother who we support, delivered a speech about her son at the Co-op Property Awards at Lancashire Cricket Club, helping to raise over £95,000. Clare’s family began receiving support from Rainbow Trust after her son was diagnosed with cancer. Clare’s stirring speech gave a very personal account of her family’s journey and the help that Rainbow Trust were able to give them, from diagnosis through recovery. “The emotional support offered by Rainbow Trust has had an incredible impact on all our lives, not only through their visits, but also being at the end of the phone and just being confident that there is someone who can help if we need it,” she told the audience. Clare’s speech included glowing individual praise for her Rainbow Trust Family Support Workers who helped her family to cope. “When Sean and Callie came into our lives, the difference it made was instant, to all of us,” she said. “The job of a Family Support Worker is so unique and highly skilled. Adam instantly clicked with Sean, and my daughter Megan with Callie too, which offered me such relief.” Rainbow Trust were chosen by Co-op Property to be a beneficiary of their awards and...

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  • Parental bereavement leave bill now ready to become law

    Rainbow Trust is delighted that a new bill will soon become law, meaning that parents who are employed at the time of their child’s death will be entitled to two weeks of paid compassionate leave. Until now employers have only been obliged to offer ‘reasonable’ time off to bereaved employees, which can be unpaid. The Parental Bereavement (Pay and Leave) Bill completed its passage through the House of Lords before Parliament rose for its summer recess. Anne Harris, Rainbow Trust Director of Care, said: ‘Rainbow Trust is delighted that this bill has passed the final hurdle to becoming law. While many employers have a compassionate approach, we know that this is not always the case. Providing all employed parents with a minimum entitlement to paid time off work will remove one more issue on which to negotiate with their employer at the most difficult times. This law will help to reduce the stress on many families as they come to terms with the death of their child. We look forward to seeing the full detail when the government responds to the recent consultation relating to the detail of the entitlement, and we hope that future legislation will provide similar entitlements...

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  • Research shows £1.5 billion funding gap for seriously ill and disabled children

    The Disabled Children’s Partnership (DCP) – a coalition of 60 charities, including Rainbow Trust Children’s Charity – has published research showing a £1.5 billion funding gap for health and social care services needed by disabled and seriously ill children. This investment shortfall and its consequences were highlighted in a BBC Panorama programme. ‘Fighting for My Child’, broadcast on Monday 16 July. The prevalence of life threatening and terminal conditions among children is rising, with more seriously ill babies surviving birth, and with medical advances enabling children to live longer with their complex conditions. Overall, there are more than one million disabled children in the UK, 33 per cent more than a decade ago. Yet fewer seriously ill and disabled children than ever before are currently getting the support they need. The Panorama programme highlights the consequences of the shortfall in services, showing the day to day life of families at their wits end, having to go to court to fight for vital support, and dealing with a system that has limited and dwindling resources. The DCP are urgently calling on the government to plug the £1.5 billion gap – just 0.2 per cent of total government spending – to ensure...

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  • Bitesize Bootcamps names Rainbow Trust as charity partner for 2018’s Battlefield Challenge

    This year Bitesize Bootcamp are holding their annual Battlefield Challenge on the 3-4 November, with a Halloween twist and you’re invited! Bitesize Bootcamp offer boot camp inspired fitness sessions for children, aiming to develop their well-being through fun and interesting exercise programs and events. Sponsored by UK Fast, this years event is set to take place at Ashton on Mersey School, Sale, Manchester and challenges children between the ages of 4 and 16 years to tackle over 20 muddy and wet obstacles that lie in their way, in order to be crowned a battlefield champion! Not only will the event be a great alternative day out, but they’ll also be supporting Rainbow Trust to support families caring for a seriously ill child, by raising a minimum of £20. With last years event raising a total of £8,000, this years Battlefield Challenge will aim to be bigger and better to surpass this total. Ruth McShane, Director of Bitesize Bootcamp said: “We’re really excited for our Bitesize Battlefield Challenge this year, which will give kids a great opportunity to get wet, muddy, and most importantly, find out how fun being active can be. We’re also delighted to be able to give support...

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  • Volunteer recognised on the ward where she spent first year of her life

    A student nurse recently found herself back on the ward where she was looked after as a baby while volunteering for Rainbow Trust Children’s Charity. Lia Grafanakis, 21 from Clapham, has been volunteering for a year with Rainbow Trust and was recognised on the neonatal ward at St. Thomas’ Hospital where she spent the first year of her life after being born prematurely at just 25 weeks. Lia is now a healthy young adult and is studying to become a nurse. As part of her course at Middlesex University, Lia was required to complete a work placement. She chose Rainbow Trust because of its work with families and a personal connection through a friend. “My experiences in the early part of my life did motivate me to volunteer.” Lia said. “I had heard about Rainbow Trust beforehand. Someone that I know, she and her family are supported by the charity’s Central London Care Team and I know they do a fantastic job.” The Family Support Worker, Vilja, who Lia was working with was aware of the connection and encouraged her to talk to staff. “I app