Date published: 05 March 2026 by Sophie Wichman

Following a parliamentary debate this week about the role of grassroots charities and how government works with the sector, Zillah Bingley, Chief Executive, Rainbow Trust Children’s Charity said:

“Like many charities delivering innovative and frontline services, we see first-hand what families need and the pressures they face when systems do not join up around them. Charities play a vital role in identifying and implementing practical solutions and are a core support for families. But we cannot do it alone: we need government to step up, listen and back us up, practically and financially.

“Charities must be recognised as partners in policy discussions and funding decisions, rather than treated as an afterthought.

“We welcome opportunities to engage with ministers and MPs about the challenges facing families with seriously ill children. It is our duty to advocate on behalf of these families. Recently, we have met with parliamentarians from across the country to discuss the challenges families face navigating health, education and social support systems while caring for a seriously sick child.

“Government has rightly spoken about shifting care from hospital to community and supporting families earlier. For that to be realised, sustainable funding and recognition must extend to the wider voluntary sector organisations providing vital support alongside clinical services.

“Families caring for a seriously ill child rely on a network of support far beyond hospital care. Ensuring charities delivering this are heard in policy discussions is essential to reflect families’ needs.”