How Family Support Workers can help

Rainbow Trust Family Support Workers support the whole family including parents, carers, the unwell child, brothers, sisters and grandparents. Support is hugely varied and depends on the needs of the family. Read some of our families stories to find out more about the care we provide.

Sibling Support

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    Max's Story

    "There are adults always coming for Max, but it’s really nice for Eva to have a friend that’s just for her."

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    Freddie's Story

    "I wouldn’t want Freddie to have been without Charlotte and Rainbow Trust. I know he is getting the best possible care and support he needs.

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    Lola's Story

    Lola was diagnosed with a Wilms tumour. Jodie explains the help Rainbow Trust has made in providing sibling support.

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    Ethan's Story

    Family Support Worker William has delivered the Drawing and Talking programme to six siblings of seriously ill children, including Ethan.

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    Jaxon's Story

    Hayley and Andy are parents to two-year-old Jaxon, and seven-year-old Jessica. In August 2022, Jaxon was diagnosed with liver cancer.

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    Edith's Story

    Edith's mum, Sarah, got in touch with Rainbow Trust when Edith’s sister, Bea, started having a hard time dealing with her emotions.

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    Florrie's Story

    Just before Florrie’s first birthday, the family found themselves in a particularly unexpected and unique situation. 

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Family Support

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    Niamh's story

    "When your child's sick, you worry about leaving them, but I've always felt really secure with Family Support Worker Michelle."

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    Jaxson's Story

    Jaxson was diagnosed with leukaemia at three-years-old. Family Support Worker Wendy began supporting the family in January 2023.

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    Isabelle's Story

    Christina and Duncan are parents to Isabelle, Max, and Jack and have been supported by Rainbow Trust Children’s Charity since October 2020.

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    Tommy's Story

    'As a parent, you’re living it day-to-day, and having an extra person to advocate for you and back you up, is just the best thing.'

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    Phoebe's Story

    “We embraced Wendy’s support; there is no need to be alone. Life without Wendy would have been so much harder.”

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    Anna's Story

    “Without Rainbow Trust and Charlotte, our situation would definitely have been a lot harder. Having Charlotte come in has been great."

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    James' Story

    James was born with sepsis and a number of serious and complex needs due to a brain haemorrhage that caused a significant brain injury.

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    Finley's Story

    'There’s someone there for you to talk to, who’s willing to help and is just really adaptable. Laura understands what it’s like'

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    Ethan's Story

    'I can talk to Michelle about anything, and Katlyn loves her too. Michelle will come over and spend time with Ethan – it’s such a big help.’

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    Teddy's Story

    ‘I just so look forward to when Emma comes. We call it a ‘Rainbow Day.’ I knew I’d be able to get out of the ward and get away.'

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    Mya Ela's Story

    ‘Jaimie has been my absolute rock to be honest. I would feel so lost without her. She has made such a big difference to our lives.'

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Transport Support

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    Pola's Story

    “I think I would have gone crazy without Brodie! I could ask her advice, I could speak openly with her and share all my worries."

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    Jody's Story

    Jody's mum, Sarah, explains how the COVID-19 pandemic impacted her life when her daughter relapsed with a brain tumour in November 2020.

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    Poppy's Story

    “I can’t even let myself think about what it’d be like without Nicki’s support. She has helped all of us and I’d recommend Rainbow Trust to

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    Teddy's Story

    Kat tells us of her experience dealing with Teddy’s rare cancer and the support they have had from Family Support Worker Jayne.

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Neonatal Support

Bereavement Support

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    Riley's Story

    ‘I wanted to walk to where Stanley’s buried, but I didn’t want to go alone. Jo came with me, and we just talked about Stanley.’

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    Rosie's Story

    “Working with Rainbow Trust helped to give Rosie’s life meaning. She only lived for four years, but she’s done a lot of good in that time."

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    Maddison's Story

    Rainbow Trust Family Support Worker Merissa started supporting the McVety family in 2019 after Maddison was diagnosed with cancer at age 13.

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    Erin's Story

    "Even if Sarah cannot be there in person, just a phone call makes all the difference as she knows what to say to me."

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Hospital Support

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    Bea's Story

    “Monica knows we worry the second we leave Bea, so she keeps us up to date with everything that is going on.”

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    Oscar's Story

    Emma shares her family's experience caring for a seriously ill child, and the support she received from Rainbow Trust Family Support Worker

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    Nour's Story

    Nour received her heart Transplant in January 2023 and is recovering well. Both Nour and her family are over the moon that she is home.

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    Jakob's Story

    Jakob, who has an extremely rare illness, ‘rings bell’ after transplant thanks to his six-year-old donor sister.

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    Henry's Story

    “I’ve always felt that Rainbow Trust’s help was the only support I could turn to. Family Support Worker Brodie was always happy to help.”

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Online Support

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Donate today

Donation payment types
Donation payment values.

£5 could provide bereavement support to help a family cope with the death of a child.