Date published: 28 June 2017 by Anna Jackson
Today marks the launch of a major new campaign, the ‘Secret Life of Us’, by the Disabled Children’s Partnership. This coalition of more than 45 organisations, including Rainbow Trust, is calling for better health and social care for disabled children, young people and their families in England. Together we are highlighting that there is an unacceptable contrast between the quality of life and opportunities available to disabled children, including those with life threatening or terminal illnesses, compared to those without disabilities.
Did you know that 69% of families with disabled children receive no support in caring for their child? Or that 43% of the general public don’t even know anyone who is disabled? And that 97% of parents with disabled children say that people do not understand the challenges they face, every day?
The campaign brings to life the realities of the challenges that disabled children, young people and their families face in living a life that many of us take for granted. The charities, including Contact a Family, Sense, CLIC Sargent, The National Autistic Society and Mencap, as well as Rainbow Trust and Together for Short Lives, share the belief that health and social care services for disabled children, young people and families can and must be better.
Zillah Bingley, Chief Executive of Rainbow Trust Children’s Charity, said:
‘We are delighted to be part of a group of charities who are working together to ensure the health and social care system is fit for purpose. At a time of great pressure on the finances of the health and social care system, it is vital that we join forces to secure changes that will enable all families with seriously ill children to get the support that they need.’