Family stories
Families supported by the South West Team
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Gene's Story
Regular meetups with Family Support Manager Charlotte give Gene an outlet and help ease isolation and loneliness.
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Phoebe's Story
“We embraced Wendy’s support; there is no need to be alone. You may have initial concerns that you may not connect but once you do you feel like the weight has been lifted. Life without Wendy would have been so much harder.”
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Freddie's Story
"I wouldn’t want Freddie to have been without Charlotte and Rainbow Trust. I know he is getting the best possible care and support he needs. Every sibling of a seriously ill child should have it."
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Azaan's Story
"Wendy has been a big, positive change to my life. I know that Raihan has somebody he trusts and that he is enjoying both his time with her and happy trips out."
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Phoebe's Story
"Having had Rainbow Trust support before, we knew immediately how much we needed their help. In fact, this time round we needed Rainbow Trust more than ever before."
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Anna's Story
“Without Rainbow Trust and Charlotte, our situation would definitely have been a lot harder. From a practical side, there have been times when Anna has been stuck at home and hasn’t seen anyone in ages, so having Charlotte come in has been great."
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Families supported by the North East Team
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Ki Ki's Story
"Shelly would spend time with Kingston to provide an outlet; in their sessions he was able to express how he was feeling and voice his worries and concerns. We started to see a real difference in him."
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Jackson's Story
Jackson's mum, Debbie, has always said that Rainbow Trust is the most constant organisation that has been there for her family and is always full of praise.
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Cole's Story
"I really benefitted from being able to talk things through by text. Family Support Workers Sian and Sabrina have been a light at the darkest of times. They’ve supported me and my family when we faced the worst."
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Zayd's Story
"We couldn’t have got through it without Sabrina. Without her, Zayd’s brother Hamza would be in therapy and both he and his sister Safina would have felt so neglected."
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Cameron's Story
“Shelly also understood what we were going through, and she would look after Fraser for a few hours while we were in the hospital. She gave Fraser lots of attention and let him have some fun and attention while we needed to be with Cameron.”
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Families supported by the North West Team
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Pola's Story
“I think I would have gone crazy without Brodie! At first, she helped me with travel to the hospital, but her support became so much more than just picking me up and dropping me off. I could ask her advice, I could speak openly with her and share all my worries."
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Oliver's Story
“Being able to talk openly and honestly to Marlene gives me an ‘outlet’ – a way of venting and processing everything. It’s so easy to talk to Marlene."
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Henry's Story
“I’ve always felt that Rainbow Trust’s help was the only support I could turn to. Family Support Worker Brodie was always happy to help.”
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Rosie's Story
“Working with Rainbow Trust has helped to give Rosie’s life meaning. She only lived for four years, but she’s done a lot of good in that time."
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Ethan's Story
Family Support Worker William has delivered the Drawing and Talking programme to six siblings of seriously ill children. One of the children who took part is 10-year-old Ethan.
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Families supported by the Southampton Team
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Teddy's Story
"We would feel lost and stuck without Mandy and Rainbow Trust’s support. She is always there, and she takes some pressure away from us."
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Belle's Story
"Mandy quickly became a huge part of our lives and is always compassionate to our needs. There have been so many ups and downs during our cancer journey and Mandy has been there throughout."
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Reggie's Story
"Having Sammii as our Family Support Worker has helped our family immeasurably. I know we would not have coped so well and our lives would have been significantly harder hit were it not for Sammii."
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Annie's Story
"Both Liz and Annabel continue to support us through our grief. I will never have the words that will show how much Rainbow Trust, Liz and Annabel mean to us."
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Kaia's Story
Family Support Worker Mandy explained that she could take Kelly on the 100-mile round trip to visit Kaia which gave Kelly flexibility to let her decide how long she needed to stay at the ward.
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Families supported by the Essex Team
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Reuel's Story
"When we met our Family Support Worker, Abi, she was a breath of fresh air. She has helped to rebuild our family, we all love her."
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Erin's Story
"Even if Sarah cannot be there in person, like during lockdown, just a phone call makes all the difference as she knows what to say to me. Sarah understands and is there for us both."
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Harry's Story
"All my children love seeing Abi and all really look forward to spending time with her. I don’t think that I could sing her praises any more!"
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Joseph's Story
"We have had help from Rainbow Trust throughout the pandemic. Our Family Support Worker Abi has been great, dropping off activities for the boys and shopping for us when we needed it."
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Families supported by the London & South East Team
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James' Story
“Rainbow Trust makes you realise that you’re not alone and that there are many other families who are in the same situation. The Family Support Workers can guide you to a more positive outcome in your life."
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Bella and Ruby's Story
“Fiona gave us emotional support during the hardest time of our lives. We had no certainty the girls would make it, and this support made the world of difference to us."
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Jody's Story
Jody's mum, Sarah, explains how the COVID-19 pandemic impacted her life when her daughter relapsed with a brain tumour in November 2020.
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Poppy's Story
“I can’t even let myself think about what it’d be like without Nicki’s support. She has helped all of us and I’d recommend Rainbow Trust to anyone who needed them."
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Zachary's Story
"It’s so hard being up in hospital all day and then coming back to having a full-on family life and having the agility of managing children with complex needs. Without Nicki, we’d still be really struggling."
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Fabian's Story
"Jayne has been amazing, a constant presence with practical solutions and really helpful. She would always think about how she could help us and would offer advice if we need it."
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