In a nutshell
Rainbow Trust supports families who have a child aged 0-18 years with a life threatening or terminal illness and need the bespoke support we offer.
There are an estimated 86,625 children in England with life-limiting or life-threatening conditions. This number has trebled over the last 17 years and means the likely need for services is significantly higher than previously understood, and is on the rise (Make Every Child Count study, University of York, 2020). Many of these children and their families are able to cope or are not in a ‘crisis situation’. However, thousands of families have to face the very real possibility that their child may die and struggle to cope on a day to day basis.
Who we support
We support these families who have a child with a life threatening or terminal illness and are in the greatest need. Our Family Support Workers provide a life line to these families and children. We support the whole family including parents, carers, the unwell child, brothers, sisters and grandparents. They bring support and help to families who so desperately need it at home, in hospital and in the community. Any family can receive support from the moment of their child or young person’s diagnosis.
Our support is hugely varied and depends on the needs of the family. Support may include all or some of the following: